cbme-mark.bsky.social
Severe ME/CFS with added Long Covid. Running a support group in Cambridge, UK.
Pronouns: depends how the day pans out
@sherbert-lemon.bsky.social
Avid reader, occasional reviewer. Beginner genealogist & dysgu Cymraeg. Retired by moderate-severe ME/CFS & chronic migraine. Managed by Rowan. She/her.
@eleanorsews.bsky.social
Retired lecturer/therapist. Interested in politics, music, culture, science, languages and disability-woke AF I’ve been in the #ME owners club for decades 👩🏼🦼➡️ Angry but peaceful. She/her Uninvited DMs = Instant Block Maker of #FanningTheFlames cartoons
@meresearchuk.bsky.social
ME Research UK is a charity which funds scientific (biomedical) investigation into the causes, consequences and treatment of ME/CFS (charity number SC036942)
@thereforme.bsky.social
Calling for an NHS that's there for Long Covid & Myalgic Encephalomyelitis (ME) | www.thereforme.uk
@actionforme.bsky.social
Providing support & holistic healthcare services to people of all ages affected by #MECFS
@danaludwig.bsky.social
licensed non-practicing physician in CA. Working as a data scientist at local Universities. Focused on Covid-19 research.
@c-a-g0101.bsky.social
Microbiologiste. Loi de Brandolini expérimentée pendant 3 ans... Ça m'a filé des envies de Darwinisme ! ... Mais je me soigne. Mes skeets n'engagent que moi
@elsdraeger.bsky.social
@elsdraeger from the bird site Sexual Health doctor and Sex Education trainer Navigating a phased return to work with #LongCovid. Cats/Lego/Eurovision/Medicine/Sex Education/Books/Long Covid/Sexual Health
@ngrandvaux.bsky.social
PhD, professor #umontreal, Director Host/Virus interaction lab #CRCHUM, Co-founder #CanSocVirol #ScienceCommunicator Fr/En #science #Virology #redox #politics #lupuswarrior #Sjögrens #CovidIsAirborne #IndoorAirQualityMatters Opinion my own 🇨🇦 🇫🇷 🇩🇪
@brendancrabb.bsky.social
research scientist in infectious diseases, health equity advocate, director & ceo burnet institute (www.burnet.edu.au), chair, australian global health alliance & pacific friends of global health (www.ausglobalhealth.org)
@seastarsal.bsky.social
As a ME/CFS and Long Covid cartoonist, I try to comfort the afflicted and rage against the bad guys. I've had ME/CFS since 1992. cfsgraphics.com
@chronicchannel.bsky.social
Youtube Channel covering Chronic Illness, Universal Basic Income and Air Quality. https://www.youtube.com/@ChronicIllnessChannel Clean The Air http://bit.ly/CleanTheAirUK
@richardsima.bsky.social
Science journalist and Brain Matters columnist @washingtonpost.com. Erstwhile neuroscientist 🧠 https://www.washingtonpost.com/people/richard-sima/
@clarejdaly.bsky.social
ME/CFS (1993) | Long Covid (2020). Occasionally Support @ Visible Health
@curelc-me.bsky.social
Despondent over the political and social handling of the pandemic and its victims
@carriemcginn.bsky.social
Infection-associated chronic illness advocate | Life sidelined by #LongCovid #MECFS #POTS | #PatientPartner | MSc | Mom | She/Her | 🇨🇦 #Canada #Quebec #CovidConscious #StillMasking #MyalgicEncephalomyelitis #pwME #EMSFC #CovidLongue #CovidLong #pwLC
@judyandhuahua.bsky.social
COVIDisairborne use AIRBORNE precautions! At least protect the HCWs- masks, ventilation, uptodate vaccinations , TTI, quarantine, & early Rx
@sars2isairborne.bsky.social
Has a few biology degrees. Zero covid zealot™ Hard-line scientist© Covid avoider. #MECFS #pwME If I haven't used alt text it's because I don't have the spoons, please don't shout at me about it as it could make me crash.
@kglesliephysio.bsky.social
Neurological physiotherapist. Co-founder Physios for ME. PhD student @ Liverpool university
@sunny-rae1.bsky.social
Consultant Cardiologist, also treating and researching Long Covid. Long Covid Advisory Team @ WHN, #TeamClots, Medical Champion @ Long Covid Kids. Prevention is better than cure. Views my own and not medical advice x
@clanman.bsky.social
Running The York ME Community & Caring about Accessibility in York UK. Could talk football all day long. Like to Word Doodle (some call it poetry) The Word Doodle Trilogy is out on Amazon now !
@cppedsa.bsky.social
An online resource for the EDS and HSD community. We provide informative resources and education for patients, families and physicians about the Ehlers-Danlos Syndromes and related conditions. https://chronicpainpartners.com
@mediumwhite.bsky.social
Europhile 🏳️🌈, lived in 🇬🇧🇮🇹🇨🇼🇧🇪 🇧🇩. Dedicated follower of science. Former textile engineer, now a Mgmt consultant. I believe in believing people.
@longcovidresource.bsky.social
The Long COVID Resource is dedicated to providing information and resources on Long COVID and summaries of studies. Long COVID Resource: https://longcovidresource.com
@covidchronicles.bsky.social
Chronicling my journey through purgatory, graphically. Former athlete/composer/writer/woodworker. Saddled with debilitating COVID-induced metabolic dysfunction since Nov 2022. #LongCOVID #LC #MECFS #PEM #SickJokes
@drjogreer.bsky.social
Mum, Carer, Myalgic Encephalomyelitis (ME) Advocate, Educational Psychologist
@eliaou.bsky.social
sociology, education, technology, and social movements | neurodivergent | Long Covid Sep 2023 #CovidCompetent Mastodon: @eliaou@pialle.fr
@cortjohnson.bsky.social
Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
@cgatist.bsky.social
Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
@openmedf.bsky.social
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
@investinmeresearch.bsky.social
An independent UK charity finding, funding, facilitating biomedical research into ME and providing better education and awareness of this disease in UK & Europe (charity nr. 1153730) www.investinme.org
@longcovidsos.bsky.social
UK based charity advocating for those impacted by #LongCovid Recognition - Research - Rehabilitation www.longcovidsos.org info@longcovidsos.org Charity reg no 1199120
@covidactionuk.bsky.social
Covid Action UK is the campaign to beat the pandemic. We are calling on the Government to recognise that Covid is still with us and that it's airborne, and for clean air, indoors and out, free tests, masks, and free vaccines for all. https://covidaction.uk
@drkatecushing.bsky.social
Doctor, scientist, mum, recently retired w ill health. Public Governor Newcastle upon Tyne Hospitals Trust Long Covid & CCH. Love Northumberland/Newcastle, owls/wildlife/books/art/music/politics/EU Wrote Little Orange Book 4 parents of babies & small kids.
@longcovidkids.bsky.social
UK-based international charity supporting & advocating for children & young people with #LongCovid & related conditions. #LongCovidKids #LongCovid #PaediatricLongCovid #LongCovidAwareness
@patientled.bsky.social
Patient-Led Research for #LongCovid! http://patientledresearch.com
@weselymd.bsky.social
Husband & Dad. ICU Doc. Vanderbilt. @CIBScenter studies Covid & Long Covid, ICU Survivorship, Dementia, Delirium, PICS. Fighting misinformation. Posts my own. Still learning.
@lisamccorkell.bsky.social
formerly a patient-led research collaborative co-lead, always a co-founder | MPP | she/her | natures 10 in 2022
@francesryan.bsky.social
Guardian columnist and journalist. Commentator of the Year 2024. Author of Who Wants Normal? and Crippled. E: frances.ryan.freelance@guardian.co.uk
@nisreenalwan.bsky.social
Professor of Public Health. Southampton, UK. Citizen of the world☀️ Posts are my own personal opinions not those of any organisation. Reposts are not necessarily endorsements. Anti-war, anti-discrimination, pro-equity, pro-feminism, pro-nature, pro-science.
@ahandvanish.bsky.social
Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
@drericding.bsky.social
Public health warnings & health policy. Epidemiologist & health economist. Chair and Faculty at NECSI. Former 16 years at Harvard. DC & Virginia. Bio & contact: necsi.edu/eric-feigl-ding A story: nym.ag/3olszuo 📝: drericding.substack.com/subscribe
@chrischirp.bsky.social
Prof Operational Research , @UCL_CORU, passionate about health care, women in STEMs, defending liberal democracy (!). Member of @independentsage, posts personal.
@erictopol.bsky.social
physician-scientist, author, editor https://www.scripps.edu/faculty/topol/ Ground Truths https://erictopol.substack.com SUPER AGERS https://www.simonandschuster.com/books/Super-Agers/Eric-Topol/9781668067666