Clare Daly
ME/CFS (1993) | Long Covid (2020).
Occasionally Support @ Visible Health
@alitwy.bsky.social
Living with Long Covid. Doing my bit to support UK healthcare workers with Long Covid. Chair of Supporting Healthcare Heroes UK. Associate Member Long Covid Support. Editor-in-Chief Evidence Based Nursing. Retired Professor of Children’s Nursing. #FBLC
@dysautonomiac.bsky.social
I have a brain blood flow disease. Work @ Lumia Health. Living with #pots #mcas #eds #longcovid #dysautonomia #chronicillness #orthostatichypertension #bronchialatresia #spoonie #zebra
@lumiahealth.bsky.social
What you feel is real. Lumia tracks blood flow to the head. Designed for #pots #orthostatichypotension #syncope #longcovid #myalgicencephalomyelitis #fainting #dysautonomia #chronicillness Currently for USA, iPhone, and adults 18+ only. www.lumiahealth.com
@sarahoc1.bsky.social
#pwME patient 12 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover
@lcaireland.bsky.social
The voice for Long Covid in Ireland. An advocacy group comprised of Long Covid patients fighting for awareness of LC & adequate services in Ireland for all patients. https://longcovidadvocacyireland.com
@visibleappchat.bsky.social
To talk about pacing, energy envelope, mecfs, long covid and more using the Visible app, with or without the heart rate arm band
@feltedchopsticks.bsky.social
Avid reader, queer, autistic, asian, Buddhist, super liberal, disabled, all around nerd, crocheter and cat mama. Give me all the cozy books and diverse lit! She /her
@ramsestemmerman.bsky.social
Former DJ/Event Manager | Administrator #MEcvs Infokanaal (Youtube) | Advocate for more biomedical research for post-infectious #MEcfs & #LongCovid.
@precisionmedicine.bsky.social
Associate Director of Bioinformatics and Software at Illumina. Unleashing the power of the genome through SW and AI. #PrecisionMedicine #Cancer #MECFS #RareDisease
@erturklab.bsky.social
AI and tissue clearing-based technologies for health. Director at Helmholtz Munich, Full professor at LMU Munich, and CEO of Deep Piction (@deeppiction.bsky.social) We’re🇩🇪🇹🇷🇭🇷🇨🇳🇮🇹🇮🇳🇸🇮🇴🇲🇨🇱🇭🇺🇧🇬🇺🇦🇷🇴🇦🇹🇹🇼🏳🌈
@dieworkwear.bsky.social
Menswear writer. Editor at Put This On. Words at The New York Times, The Washington Post, The Financial Times, Esquire, and Mr. Porter. If you have a style question, search: https://dieworkwear.com/ | https://putthison.com/start-here/
@adamjkucharski.bsky.social
Epidemiologist/mathematician. Professor at London School of Hygiene & Tropical Medicine. Author of The Rules of Contagion and The Perfect Bet. Views own. New book Proof: The Uncertain Science of Certainty available now: proof.kucharski.io
@actionforme.bsky.social
Providing support & holistic healthcare services to people of all ages affected by #MECFS
@thereforme.bsky.social
Calling for an NHS that's there for Long Covid & Myalgic Encephalomyelitis (ME) | www.thereforme.uk
@fishupahill.bsky.social
Formerly many things. Now missing, but not gone. #pwME, #pwLC and #Lyme.
@rgleadow.bsky.social
Plant scientist studying how climate change affects plant toxicity (#cyanide). Born 314ppm. Interested in science, tech, plants. #MECFS ally #botanist 🌾🪴🧪🌱🌿💉 Views my own
@kelsveil.bsky.social
Prior MARAC research representative for Domestic Abuse. | My views are my own. Campaigning for biomedical research into LongCovid #Longcovid #FBLC
@lexhood.bsky.social
TV drama Exec Producer - currently on All Creatures Great and Small. Caffeine, books, scripts, also Schnauzers. All posts personal.
@profmakris.bsky.social
Emeritus Professor of Haemostasis and Thrombosis in Sheffield, UK. I tweet about thrombosis, hemophilia, COVID-19, medicine, NHS & AI. Opinions are my own.
@theguardian.com
The need for independent journalism has never been greater. Become a Guardian supporter https://support.theguardian.com 🇺🇸 Guardian US https://bsky.app/profile/us.theguardian.com 🇦🇺 Guardian Australia https://bsky.app/profile/australia.theguardian.com
@swiftsandswallows.bsky.social
My daughter had Severe ME, POTS & MCAS and died in 2024 after years of medical neglect. I am also the parent carer of a younger daughter with ME & POTS. Loves to see cute photos of cats, birds & animals so I can share with my daughter to brighten her day
@alyssaaerinn.bsky.social
chronically ill/disabled writer, poet, idea-haver, former Physio | LongCovid, ME et al 😷 ADHD divest, dismantle, do better, land back Treaty 7 | she/her Pfp:white♀️blonde hair gaze down @ teacup. "Keep Masks in Healthcare" Cvr: snow-covered, Rocky mtn lake
@sickandtiredaus.bsky.social
http://heymp.com.au/sickandtired http://change.org/LongCOVIDInquiry http://www.instagram.com/sickandtiredaus https://x.com/JordanCrane2?t=qsba4zmDGLFUas_tcP_pnw&s=09 https://www.facebook.com/share/19nSvtGPNz/
@maryek.bsky.social
Paediatric Physio. UK based. She/her. Varied interests. Climate Health is Public Health🌍🌎🌏 Member of Research Committee in Long Covid Physio #physiosky, #physio
@d2p.bsky.social
Paediatric Radiologist, Aotearoa New Zealand Following more immunologists than radiologists #MECFS #LongCOVID and a bit of #MacDev #iOSDev he/him https://ddp.nz | https://dysimmune.nz
@otskiff.bsky.social
Occupational Therapist (neurorehab) on pause due to #LongCOVID, #POTS, #MECFS, #ChronicMigraine, #HSD, #MCAS & #TeamClots 🫁 AHP Committee @LongCovidPhysio. Swiftie 🫶, F1 🏎, cricket 🏏 fan London, UK
@profmarkfaghy.bsky.social
Professor of Clinical Exercise Science - Clinical Exercise Physiologist - Researcher in #LongCOVID - Nature Research Award Winner 2024 - Derby UK
@pengwen.bsky.social
P/w Long Covid, writer, nerd, ENM, loudmouth, green thumb, artist, queer, ND, & unstoppable! No alt text= no RT #FBLC #LongCovidAid
@brycetetraeder.bsky.social
Global Tetrahedron CEO, chairman, media proprietor, entrepreneur, human trafficker, thought leader, and venture capitalist.
@dangoyal.bsky.social
Fighting for health equality. Medical Doctor and Researcher. Host of The Debrief podcast. My substack is here: https://dangoyal.substack.com?r=1lppfd&utm_medium=ios&utm_source=profile
@angryhacademic.bsky.social
#LongCovid Scientific Consultant PhD Nutrition & Metabolism Hon Research Fellow, Lund Uni Posts: nutrition ▪ health ▪ all-things-science ▪ activism ▪ fun facts ▪ #PostVac Donations: https://ko-fi.com/drsmash Facebook: https://www.facebook.com/LongCovidSC
@thisismetweety.bsky.social
Apparently I don’t like viruses. #MEcfs as a child; post viral syndrome as an adult; now #LongCovid; #fibro; #hypermobility; #hEDS #pwME. Kiddo with #LC. #ND. #HealthPolicy research. (Yes I know it’s Skeeting & hashtags don’t work the same. Give me time.)
@sibylledahrendorf.bsky.social
former filmmaker II torn from life due to complex chronic illness II #CranioCervicalInstability #MCAS #SmallFiber #PoTS #FluoroQuinoloneToxicity #FlagylToxicity #Lyme #ME II https://sibylledahrendorf.jimdofree.com II Wer unter meinen Posts pöbelt ➜ Block
@mehdirhasan.bsky.social
Editor and CEO, Zeteo Author, ‘Win Every Argument’ British-American
@longcovidphysio.bsky.social
#LongCOVIDPhysio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with #LongCOVID & allies https://bio.site/longcovidphysio
@kityates.bsky.social
Author. Prof of Math Bio and Public Engagement. Member of Independent Sage since October 2020. @Kit_Yates_Maths on twitter Books - Math(s) of Life and Death How to Expect the Unexpected Get them here: https://tinyurl.com/37rx2yuv He/Him
@alicefricker.bsky.social
20, Bedridden for 9yrs with #VerySevereME #hEDS #SFPN #MCAS #PoTS Chronic Insomnia & Chronic Bladder condition. Mother helps run account. ♥️ Instagram : @aliceandthemillions / alicefricker
@ruthlampard.bsky.social
Looking out for blessings: in wildlife, nature, & kindness. Lead Chaplain with AfME Healthcare: views my own. Living w ME & LongCovid. Virtual Pilgrim. Fan of rewilding, life too. Usually moderate to mild in views, occasionally sharp. No DMs, will block
@betsyladyzhets.bsky.social
editor/co-founder @thesicktimes.bsky.social | journalist covering Long COVID & related crises | she/her/🏳️🌈 email: betsy@thesicktimes.org | signal: betsyladyzhets.25 | https://thesicktimes.org/
@neuroweaveratl.bsky.social
GSU • UNG Chronic Disease Researcher ME Action • Board Member #Neuroscience #ChronicIllness *views my own*
@liapas.bsky.social
#SciArt symptomatology and #anatomy #embroidery, writing, and #MECFS. A bit of music too. Canadian settler. she/her. https://linktr.ee/lia_pas
@juliametraux.bsky.social
Disability Reporter @ Mother Jones • jmetraux@motherjones.com • She/her • Berkeley Journalism alum • Signal: @juliametraux.49 Author page: https://www.motherjones.com/author/julia-metraux/ Free monthly newsletter: bit.ly/3Ee9lRO
@angelamswinca.bsky.social
🦠😷♿️#LongCovid disabled | 📢Chicané activist | 🏠LAX | ⚖️health justice | ✊🏽✊🏾✊🏿racial justice alt text profile pic: tan skinned person in a tan KN95 mask and suit, dark wavy hair with short bangs
@mvgutierrezmd.bsky.social
Professor & Chair of Rehab Med at UT Health San Antonio | Mom, runner, #LatinasInMedicine, #Physiatry, #LongCOVID
@turnoftheshrew.bsky.social
Here for the latest research + advocacy for Long Covid, ME/CFS, dysautonomia, connective tissue disorders, etc + disability justice community. Former HCP.
@guusontheinternet.bsky.social
Creative turned activist #NietHersteld - Long Covid since jan’21 ♿️ - posts with brain fog, so pls bear with me - eager to learn - posts in 🇬🇧 & 🇳🇱