@patientled.bsky.social
Patient-Led Research for #LongCovid! http://patientledresearch.com
@ahandvanish.bsky.social
Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
@carolstevens.bsky.social
Wife, Mom, Nanny. Proud to live in the maritime province of New Brunswick. Life altered by ME/CFS. Gobsmacked by US election results. Concerned the MAGA trend is growing in Canada too. #IStandWithCarney
@juliepinard.bsky.social
LC/ME since Jan2022. Patient-partner, neophyte in learning science behind post-infectious illnesses. 🇨🇦
@carriemcginn.bsky.social
Infection-associated chronic illness advocate | Life sidelined by #LongCovid #MECFS #POTS | #PatientPartner | MSc | Mom | She/Her | 🇨🇦 #Canada #Quebec #CovidConscious #StillMasking #MyalgicEncephalomyelitis #pwME #EMSFC #CovidLongue #CovidLong #pwLC
@sabrinapoirier.bsky.social
#CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis + #MECFS & #LongCovid #ResearchPartner & #Advocate • Chair of #MedicalEducation Group • #PwME #Disability (Unceded) #Canada https://linktr.ee/sabrinapoiriercanada
@andiepring.bsky.social
Children’s author, poet, & PhD student (disability/illness in children’s Gothic) | Founder of #VirtualWriters | #WriteMentor ‘21 mentee #eds #mecfs #pots #mcas she/her @virtualwriters.bsky.social andreapring.com | virtualwriters.org
@richellesepulveda.bsky.social
Long Covid, MECFS, ADHD, etc. Patient-led research is my jam. A bit obsessed with GIP.
@katboniface.bsky.social
Riverside, CA Equine History Collective Renegade Research https://katboniface.wordpress.com/the-glutamate-boss/
@ellybrosius.bsky.social
Pets, nature, physics, health, sewing, crafts, ME/CFS/OI/LC science & symptoms, medicinal metaphors, gratefulness practice. Volunteer for Renegade Research including R50, NoVA ME/CFS, OI & Long Covid Support Group, MEAction NC.
@horizontalviews.bsky.social
Visual Artist and Writer | Posts from the sick bed #ME #pwME #LongCOVID #ZeroCOVID #Crip #ChronicIllness #DisabilityJustice #ContemporaryArt #ConcretePoetry #PostdigitalPoetry #PoeticWeb n=50 @remissionbiome.bsky.social Poetry @diktgymnasiet.bsky.social
@whywhy.bsky.social
Doctor in psychology, proud participant of #RemissionBiome first cohort, #EDSh #MCAS #ME/CFS. The pandemic is not over. #CleanAir #MaskUp
@mayalongcovid.bsky.social
RWJF ClinicalScholars Alum, School Nurse, Scientific Diver/ocean lover bedridden by severe #LongCovid 3/2020 & #MECFS, #POTS, #MCAS #hEDS #Chiari. #healthequity
@thenicotinetest.bsky.social
The Nicotine Test -- a patient-led research project to evaluate the benefits of the nicotine patch for people living with #LongCovid. #TheNicotineTest #LongCovid #MECFS
@fightinglc.bsky.social
#LongCovid since Summer 2022. Doctor of Humanities. On Pause. Curious. Arty. Messy. A #Renegade50 with @RemissionBiome! #TreatLongCovid #MECFS
@shelleyjules.bsky.social
MECFS from the long before times but not diagnosed for 23 years…LC since 2020 - interested in advancing patient led research (Renegade Research & Remission Biome) & all avenues that lead to effective treatments for everyone. She/her. Love is my language. 💖
@winnie71.bsky.social
Proud 🇨🇦 mom of 2 amazing kids, wife and engineer!⛷️🥾 🌳 🌸 📚 🎶 🌊 🧳 👯♂️ On a mission to share beauty, hope, strength & knowledge! Long COVID March 2020❤️ ✌️ X: @cockapoowinnie
@faithox.bsky.social
Faithless from X. Severe ME & MCAS. Used to teach and write. From Otautahi, NZ. Running out of hope. Looking for some more.
@teebone21.bsky.social
#ME, #POTS, #LongCovid, former academic now 98% bedbound, progressive politics junkie, WoSo fan
@broadwaybabyto.bsky.social
Disabled & chronically ill writer. Former theatre critic. Clean air is a human right & vulnerable people aren’t expendable. Covid is airborne 😷 https://www.disabledginger.com A redheaded snippet who loves Sondheim. Once fainted into Hugh Jackman.
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 36 years, severe ME 30 years. @IrishMECFSAssoc trustee 28 years 26 publications in peer-reviewed journals Social media: https://me-pedia.org/wiki/Tom_Kindlon
@hazie.bsky.social
Very trustworthy citizen. Untethered. Quite Bothered. Wear a mask. https://gofund.me/80ade9a5
@marsmaven.bsky.social
making spacecraft do things | musician, queer, pwME | bay area | she/her | marsmaven in a lot of places
@bagtooth.bsky.social
A stranger said I should be called TRUTHBAG. Pop culture, #LongCovid, #MECFS FUNCAP 2.6
@mormolykeia.bsky.social
@aaronca11.bsky.social
Billboard campaign/fundraiser here https://www.notrecovereduk.org
@katybrc.bsky.social
Myalgic Encephalomyelitis - M.E + POTS for 38 years Donor to the UK MEcfs Biobank for 10 years & @DecodeMEstudy Please watch http://dialogues-mecfs.co.uk/videos/ London, UK No DMs please #pwME
@nmjk.bsky.social
The State of Me, HarperCollins, 2008 | Shortlisted Bridport Flash Fiction Prize 2012 & 2023 | Love books, tulips, jazz, birds, French films | Novella-in-progress | Had ME since 1983 https://www2.societyofauthors.org/soa-member/nasim-marie-jafry/
@richardvallee.bsky.social
I play language. Mostly irreverent. Debugger. AI. Global warming. Integrity. Health. Science. Chronically ill punk rocker. I think about the future a lot.
@ravihvj.bsky.social
Post-Covid ME/CFS since March 2021. Before then, a life I loved. Stanford History | 2021 Schwarzman Scholar
@ciarawrightphd.bsky.social
Long Covid March 2022, life on pause as Functional Medicine Nutritionist, Scientist, Mountain Runner. Loves trees, houseplants, dogs, profanity. Liberal Atheist, she/her
@hopefullizzy.bsky.social
30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice✨ Bristol, UK
@whitneydafoe.bsky.social
Severe ME/CFS patient and advocate. Writer, photographer, filmmaker. artist, activist, creative. Bedridden since 2013 sick since 2004. Never. Giving. Up. ✊
@benking01.bsky.social
Long Covid & PE recovery. GeographyTeacher. Sustainability & Climate Change. BSc Env Science & Physics (Stirling). Soil Erosion PhD & Geog PGCE (Exeter). Tuba player. Devon, UK.
@fstevenchalmers.bsky.social
Retired person, was in tech industry for 37 years Self and family got multiple chemical sensitivity from a sick house incident in the mid 1990s Heretic, with a heretical research hypothesis on the nature of MCS and a dozen other complex chronic illnesses
@colleensteckel.bsky.social
Advocate for #MyalgicEncephalomyelitis using ME-ICC. Contracted ME in 1989 Substack: https://colleensteckelmeiccinfo.substack.com/ Volunteer at www.MEadvocacy.org Aspiring writer of paranormal fiction
@annakwood.bsky.social
Physicist, education researcher, gardener, bird watcher/photographer, chronic illness/ME
@sallywrites.bsky.social
MG author: Toby and the Silver Blood Witches, Max and Monty with Collins Primary Winner of the Book Bloggers' Novel of the Year Award 2022 Owned by three-legged rescue dog ME/CFS https://linktr.ee/SallyDoherty
@johnvsjonvsme.bsky.social
#JohnVsJonVsME campaign to get John Oliver or Jon Stewart to bring the awful history of #MyalgicEncephelomyelitis #GreatestMEdicalScandal to light JohnVsJon.com
@ptimmey.bsky.social
24. tired leftist passionate about science, films, social justice, tennis, and everything in between. 📍DMV
@seastarsal.bsky.social
As a ME/CFS and Long Covid cartoonist, I try to comfort the afflicted and rage against the bad guys. I've had ME/CFS since 1992. cfsgraphics.com
@elljuna.bsky.social
Tree-hugging socialist and devoted cat mom living the chronic life. #pwME ♿ #AuDHD #Neurodivergent 😷 up to save lives 💕 She/They
@rippermd41.bsky.social
My life runs by the Murphy’s Law of illness: If something can go wrong, it will go wrong. Latest one is #MECFS but the laundry list is long. Live in New England
@dsavannah.bsky.social
~ Life stolen by MEcfs-hEDS-fibro-POTS-&c; FT sick since 12/2014 ~ #LiveInBedButIAintDead ~ When brain & body behave: Chronic Illness Advocate ~ Discworldian, Browncoat ~🐱(x3)🐢💐🌻🌷📸📚🖼️ ~ she / her ~ Love Is Love ❤️💚🧡💛🩵💙💜🤎🖤🩶🤍🩷 https://linktr.ee/thedsavannah