Dx Revision Watch
Formerly monitoring/reporting on developments with ICD-11, ICD-10-CM, DSM-5, SNOMED CT & other classification and terminology systems
@therealmecfs.bsky.social
Chronically ill & disabled person with lots of personal opinions, who sometimes likes a hat. Occasionally an advocate for PwME, gamer and proudly on the Autism spectrum. I’ve low tolerance for ignorance and assholery so if you come for a fight, expect one.
@hopestarmasacre.bsky.social
your least favorite autists favorite autist // disabled as fuck with Extremely Severe ME, POTS & feral MCAS // pronouns are they/them ✡️ 🇲🇽🏳️🌈
@colleensteckel.bsky.social
Advocate for #MyalgicEncephalomyelitis using ME-ICC. Contracted ME in 1989 Substack: https://colleensteckelmeiccinfo.substack.com/ Volunteer at www.MEadvocacy.org Aspiring writer of paranormal fiction
@maditamadita.bsky.social
@laurarichmond.bsky.social
Author of All My Worldly Joy - to be published September '25. Mental health researcher and campaigner. Reformed medievalist. #ActuallyAutistic
@stardust949.bsky.social
Aspiring to write for stage & screen. Dyslexic ball of chaos. She/ her. #pwME #MECFS #POTS #BLM #TransRightsAreHumanRights. Twitter account: @StarDust949
@kityates.bsky.social
Author. Prof of Math Bio and Public Engagement. Member of Independent Sage since October 2020. @Kit_Yates_Maths on twitter Books - Math(s) of Life and Death How to Expect the Unexpected Get them here: https://tinyurl.com/37rx2yuv He/Him
@nick2155.bsky.social
ME/POTS/FIBRO/PVFS - Mod/Admin for Millions Missing Voice Global #InstitutionalisedDiscrimination #MECFS #LongCovid
@bshuell.bsky.social
Husband to a wonderful wife, father to 2 amazing kids, advocate, former software developer with myalgic encephalomyelitis, Living a limited life, missing from many places. Aspiring to be well again. Dog Dad. Occasionally bipedal. Twitter/X refugee. #mecfs
@carpat21.bsky.social
@benhmecfs.bsky.social
ME/CFS patient advocate, Open Medicine Foundation science correspondent. Bedbound. Former: exercise physiology, biochemist in training, athlete-Powerlifter, PT, Gym Manager. Jazz grad/Musician. F1/Boxing.
@cateye0611.bsky.social
#ME #MECFS science & research nerd. Focus: medical neglect & misinformation of/about infection driven severe #ME (Myalgic Encephalomyelitis) 🦠 22yrs 🛏️ 🏠 🤢 ♥️ but 📛: 🚶♂️+🐕, 📚, 🕺🏻💃, 🎶, 🍹, …
@sannara.bsky.social
#MECFS #MILLIONSMISSING #MEAwareness #PEM #POTS #MCAS #PostCovid #LongCovid #TeamWissenschaft #GdB https://www.mecfs.de/was-ist-me-cfs/
@lessorfewer.bsky.social
PhD geography: money & finance • Life mostly on hold from Long Covid 03/2021 • 개리말고 가리 ________________ 🇮🇪 | https://linktr.ee/g_a_r_y
@petitfeu.bsky.social
Still suffering from #MECFS. Life still on hold. she/her 💙 = ME/CFS solidarity #noAfD
@gemzme.bsky.social
@bmhughes.bsky.social
Concerned citizen • Prof Psych • Writer • Galway • he/him A blog: https://thesciencebit.net/ A bio: https://brianmhughes.com/ A book: https://bloomsburycp3.codemantra.com/viewer/63721f10ee35880001aafadc 📷 https://www.photoblogism.net
@chelseaman.bsky.social
Literature and Philosophy, and in the real world a Bakunin style anarchist
@macanders.bsky.social
Author of several novels | ME #pwme | https://henryandersonbooks.com
@britborg.bsky.social
Dutch. Severe ME. Previously journalist. #Fraudevinkje #code98 @brit_borg on Twitter/X #JournalismIsNotACrime
@cyruxime.bsky.social
Energetically compromised (bedridden) by severe #MECFS. All systems operating at minimum capacity & overloaded. In a previous life: comp sci x math, powerlifting. #LongCovid ally.
@longcovidlad.bsky.social
Long covid since April 2020. R 50 participant. Trying to navigate a plethora of health conditions without any NHS support. #ME/CFS #POTS, #Long Covid, BBB dysfunction, #SIBO, #Leaky Gut, reactivated infections, #MCAS, Clots
@julesahouston.bsky.social
Body malfunctioning since 1998 #MECFS #PoTS #MCAS #hypermobility & other delights. I'm a #LongCovid #LongCovidKids and #Pans #Pandas ally. Here to make connections old & new. #CovidIsNotOver #CleanAirForAll #MasksInHealthcare #GreatestMEdicalScandal
@d2p.bsky.social
Paediatric Radiologist, Aotearoa New Zealand Following more immunologists than radiologists #MECFS #LongCOVID and a bit of #MacDev #iOSDev he/him https://ddp.nz | https://dysimmune.nz
@natebear1.bsky.social
Disease, climate, ecology, tech, empire, other stuff. About me and where I write about these things: http://donotpanic.news
@meetjess.bsky.social
Lover of all animals. Nature admirer. Elderly advocate. Bookworm. Sarcastic & compassionate. Music lover. Fierce Mama bear. #WeNotMe #COVIDISAIRBORNE
@catinthehat.bsky.social
Mum • Lover of nature and clean, fresh air • Passionate about science • “Without data, you’re just another person with an opinion.”
@talmandaniel.bsky.social
Curious & exhausted peace seeker, co-host of Post-Exertional Mayonnaise podcast, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
@purplespeedwell.bsky.social
Mostly bedridden with #MyalgicEncephalomyelitis, a devastating illness with little funding and no treatment. Toronto, Canada Ally of #pwLC #pwME #LongCovid #POTS #MCAS #MEcfs
@trishgreenhalgh.bsky.social
Prof of Primary Care Health Sciences, Oxford. Researching digital health/ inequities, covid prevention (masks/ air quality). Wild swimmer. Mum to Rob (marine bio) & Al (doc). She/her. https://scholar.google.com.au/citations?user=QDCqsJwAAAAJ&hl=en&oi=ao
@pikewielder.bsky.social
Biologist & non-consenting subject in a global open-air GOF research project, debilitated by SARS2 & watching the world burn.
@jeffgilchrist.bsky.social
PhD Biomedical researcher, data scientist, and finder of large prime numbers. Views are my own. Twitter: @jeffgilchrist Mastadon: @jeffgilchrist@mstdn.science COVID-19 guides, stats, calculators & 600+ scientific articles: http://covid.gilchrist.ca
@annakwood.bsky.social
Physicist, education researcher, gardener, bird watcher/photographer, chronic illness/ME
@kunstjonas.bsky.social
Professor of Communication and Psychology at BI Norwegian Business School and the University of Oslo Past Yale, Harvard, UiB. Editor-in-Chief at Advances.in Father. Views are my own.
@cgatist.bsky.social
Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
@edyong209.bsky.social
Writer, journalist. Science, health. Pandemics, animals. Birder, photographer. Many words, some awards. AN IMMENSE WORLD, I CONTAIN MULTITUDES. Married to Liz Neeley, parent to Typo. he/him 📷 Canon R6mkii + RF 800mm Edyong.me
@anilvanderzee.bsky.social
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS #art2cureME #pwme #millionsmissing
@erictopol.bsky.social
physician-scientist, author, editor https://www.scripps.edu/faculty/topol/ Ground Truths https://erictopol.substack.com SUPER AGERS https://www.simonandschuster.com/books/Super-Agers/Eric-Topol/9781668067666
@maosbot.bsky.social
Parent, spouse, Australian, cyclist, Professor of Machine Learning in Oxford. Bayesian ML, Long Covid, photos of dog, AI must be good for humans, https://www.robots.ox.ac.uk/~mosb
@emec.bsky.social
Advocacy organization for ME/CFS patients and their carers in Europe
@rfh1955.bsky.social
ME/CFS archive, especially RFH 1955. For education, not profit. Relocated from Twitter. Researched since 2011 by @continuitytweets.bsky.social & @ciaranj_farrell. https://rfh1955.blogspot.com/