Anil van der Zee
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS
#art2cureME #pwme #millionsmissing
@nicholasfeustel.com
Filmmaker and Online Video Creator, specialising in documentaries and infotainment formats on health and human rights. (he/him)
@drkelleherfurth.medsky.social
Beratende Ärztin & Sparringspartnerin für Menschen in gesundheitlichen und beruflichen Umbrüchen - zu sinnvoller Arbeit, persönlichem Neubeginn und systemischer Verantwortung. Schreibt in der #MedSky Bubble über #LongCOVID, #MECFS, #Schlaganfall …
@dennis-dekker-1972.bsky.social
LongCovid combineer ik met Colitis Ulcerosa. Gaat prima samen. 😵💫 Fietsen gaat niet meer zo snel, dus lees ik me maar suf. De bibliotheek is een uitkomst. Vrouw, zoon en hond. PvdD-lid. 🌍🐶
@martinruecker.bsky.social
investigativjournalist | www.martin-ruecker.com | Threema: TUFVC84Z
@ozfish.bsky.social
Retired maths teacher. ME/CFS 35 years. Volunteer staff member on Science for ME international forum, www.s4me.info
@rikhaagmans.bsky.social
@maschadelena.bsky.social
@fatigatioev.bsky.social
Wir unterstützen Menschen mit ME/CFS (Myalgische Enzephalomyelitis / Chronisches Fatigue Syndrom) und setzen uns seit 1993 für Versorgung, Forschung und Aufklärung ein. Größte deutsche Patientenorganisation mit gut 3.000 Mitgliedern.
@scheibenbogen.bsky.social
Immunologist and ME/CFS researcher @Charité https://cfc.charite.de/
@susscrofa.bsky.social
Bin KEINE Auskunftsstelle für alle Fragen hinsichtlich Pandemie oder Medizin. Wer solche Fragen an mich stellt, wird blockiert.
@mtwoltering.bsky.social
Creative & social project initiator used to work 🌎👩🏻💻 and💃🏻 a lot internationally. Can't stand injustice. Designing solutions for health for everyone in the few moments my inflamed🤯 brain allows me to. @ 🛏🏠 #ME #LongCovid #NeuroInflammation
@f-v-w.bsky.social
@neurostingl.bsky.social
Facharzt für Neurologie ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin
@loopert.bsky.social
Kleine graad in taal , logica en AI, maar nu herstellend van #qkoorts Reïntegrerend en klussend, thuis en in de moestuin, low profile natuur fotografie, samenwonend met T, mijn partner met #longcovid, biljarten is mijn passie en training
@ntisec.bsky.social
Father, creative, thinker, asks questions. Since 1997 mild MEcfs, since early March 2020 rather severe longcovid. Dutch & English
@bekhonl.bsky.social
Life on hold since 2021 #LongCovid #POTS #ME Psychologist for 25 years CBT, EMDR, ACT. Here to advocate for biomedical research & treatment #PAIS #IACC. Painfully aware of the harm that was done by my profession to PAIS patients.
@martinangler.com
Science Journalist #LongCovid Context ABSW 2024 Awards Finalist theMHS 2024 Awards "Highly Commended" Portfolio https://muckrack.com/martinangler
@cmaddis.bsky.social
Asst. Prof. in Machine Learning at UofT. #LongCOVID patient. https://www.cs.toronto.edu/~cmaddis/
@bradghoffman.bsky.social
Long-covid first waver with ME | Former Associate Professor and Diabetes Researcher
@tjehai.bsky.social
MD PhD, pulmonologist, not practicing since Long Covid hit. (Cycling, sailing) piano, books.
@wilhelminaj.bsky.social
Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
@jetroz.bsky.social
Former art historian, curator, traveler and hiker turned Long Covid patient. Five years and counting 🛏️🧟♀️
@vmatthiesboon.bsky.social
Professor by Special Appointment - Head of Department of Ethics and Political Philosophy, Radboud Uni. Interests: Long Covid, Health Justice, Postviral Ethics, Trauma, Critical Theory,
@mhornig.bsky.social
Translational MD-scientist, mom, 🎶 | Bklyn born + bred Pathogen/microbe-host interactions + 🧠outcomes across the life course | gut-immune-🧠 axis #ASD #ADHD #PANS/#PANDAS #OCD affective disorders/#TRD Alzheimer’s #MECFS #LongCOVID All posts = my views
@neurologistmom.bsky.social
A neurologist, M.D., mother of a 16-year-old with #NeuroSjogrens #AutoimmuneEncephalopathy triggered by SARS-CoV-2 ⚠️ Occasionally blocks energy drains. 📍Seattle, WA
@brendancrabb.bsky.social
research scientist in infectious diseases, health equity advocate, director & ceo burnet institute (www.burnet.edu.au), chair, australian global health alliance & pacific friends of global health (www.ausglobalhealth.org)
@riendebock.bsky.social
Former mathematician. Life came to a sudden halt due to #LongCovid/ME, tweets in Dutch and English. @LongCovidNL.
@thisistheillme.bsky.social
🇬🇧: Severe ME & long covid 🇳🇱: Auteur van 'De achterblijvers' (Uitgeverij De Geus) 🏳️🌈
@hermien.bsky.social
Ik onderzoek, adviseer en schrijf. Ik ♥️ taal, bibliotheken, literatuur, filosofie, politiek, geschiedenis. #NietHersteld - De Podcast @NietHersteld.bsky.social
@fredverdult.bsky.social
Passie voor Perry, fietsen in Alpen, zweten in sauna | Levensgeluk verknald door lyme | Directeur Lymefonds | Trots Ridder op voorspraak Nobel laureate
@mfairma.bsky.social
ME. Spouse w LC, ME. Writer, bread baker, daydreamer. Still waiting on fair funding and apology from HHS. Masking like someone’s life depends on it.
@ludiekje.bsky.social
editor-in-chief ME Global Chronicle, co-founder & mod/adm ME Centraal
@bilgecetin.bsky.social
Living in the Netherlands. M.E. since 2019. Here to connect with the ME folks and researchers. english, dutch and turkish
@alexisme.bsky.social
Consultant in Health Protection, FFPH (2020) MPH MBBS BSc | Severe ME, Long Covid and POTS patient | Global health Most active on IG stories: https://www.instagram.com/alexis___me/
@philipcorsius.bsky.social
Storytelling | IP | TTRPGs | Themed entertainment | Podcasthost @daarwiljenaartoe.bsky.social
@molbaas.bsky.social
Psychiatrist | Life on hold since Oct. '21 due to long Covid | LC foundation NL | Carpe diem sed non inpensa crastina | Tweets are my own | No medical advice
@bentealinda.bsky.social
Had pech, werd ziek, leven weg (sinds 2009) | Bedgebonden door zeer ernstige ME, POTS, LongCovid, Lyme, CCI | Columniste | Insta: @bentealinda | Strooi met schrijfsels en vooral veel liefde🫶🏼↴
@claguenjc36.bsky.social
Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise incl CV/fatigue/mental health/ME/Longcovid/EDI/all views my own she/her
@michelleb4.bsky.social
A mixture of stuff #MECFS #LongCovid #frailty #mtb #cycling #feelthefearanddoitanyway co-founder @PhysiosForME Views are all my own
@mikeseumarathons.bsky.social
I run marathons around Europe raising funds for Invest In ME's biomedical research projects to cure ME. 32 countries so far. £51k raised. Next race: #33 Belfast, N.Ireland (04.05.25) www.mikeseumarathons.eu www.justgiving.com/mikeseumarathons
@domsalisbury.bsky.social
Ex-atmosphere/ocean scientist. Very ill with M.E #pwME. Patient advocate (when able). Interested in how we live. Open-minded, but always sceptical. Particular interest in calling out shoddy research and bad practice. [UK] https://domsalisbury.github.io
@oonaghcousins.bsky.social
@physiosforme.bsky.social
A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME Find out more at physiosforme.com
@kathrynhoffmann.bsky.social
ME/CFS & postakute Infektionssyndrome (PAIS). Prävention & Primärversorgung. - Univ.Prof. und Ärztin - !Alles hier: my own opinion! = Private account Spielt kein Taubenschach!
@meactnet.bsky.social
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet #pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
@dernetteausderecke.bsky.social
Seit 11/2023 Leben mit angezogener Handbremse #MECFS Sonst Veranstaltungstechniker und Student der Politik und Soziologie