Family Engagement in Research Training Program
We train, mentor, and mobilize today’s advocates, champions, and leaders in family engagement.
@melshel.bsky.social
Medication and patient safety advocate doing my best to impact change in the name of my boy, #Andrewslivinglegacy. 🔗 www.melissasheldrick.ca
@leeram.bsky.social
Greetings from...Where the hell am I? Is any of this real? Dabble in many art forms when able. #HSP #ME/CFS, #goldendoodlemama
@maureenchats.bsky.social
Passionate about patient/citizen engagement, teacher @ heart, rare disease advocate, Adjunct Professor, U of Toronto DLSPH, Canada’s Drug Agency Board member, INFORM RARE, McMaster Health Forum Citizen Partner, IMPaCT Trials, SPOR Evidence Alliance
@jthompdementiaadv.bsky.social
Interested in all things dementia and public involvement in research. Former carer.
@jimreeder.bsky.social
NIHR Doctoral Clinical Academic Fellow at University of Exeter. Children’s physiotherapist @ekhuft. @OfficialCAHPR Research Champion for Kent, Surrey and Sussex.
@feistyzebra.bsky.social
Rare illness and disability advocate | Loves science | Covid conscious 😷 & wants clean indoor air | Concerned about climate change | Proud Manitoban | Loves sewing 🧵|
@tatianatrifan.bsky.social
Life is full of surprises, but never when you need one. Completely allergic to any form of racism, sexism, genderism. #StandWithUkraine Views are my own
@savaslab.bsky.social
Science, public conversations on cancer, community engagement, news & flower pics I don't engage with folks who troll/insult Opinions mine. RTs-likes-mentions not endorsements No DMs Prof. at Memorial University, NL, Canada https://strength-in-community.ca
@absporu.bsky.social
The Alberta SPOR SUPPORT Unit is dedicated to the integration of research into care so that patients receive the right care at the right time. www.absporu.ca
@bearleykim.bsky.social
Kindness & Compassion. Music maker. All the sparkly things. Mom to Rare/ID young adult. Canadian living in Alberta. Fully vaccinated. I still mask when appropriate. Banner art bespoke Kendra Allenby. Vive le Canada!
@kellyloverock.bsky.social
Comms specialist, patient-partner with Can-SOLVE CKD Network (cansolveckd.ca), expert finder of things, thrift shopping pro, #SciComm. She/her Best last name in the game
@ctzenimprover.bsky.social
Lover of chocolate and equity. access + equity + healthcare, ally, tea-drinking, babywearing educator. Opinions are my own.
@birbsarereal.bsky.social
Forty-something retired biologist and ME advocate. Lover of birds and yarn. Former athlete. Wife. For kindness, empathy, inclusion, and accessibility. She/her. Crochet artist; https://www.ravelry.com/stores/stitches-by-sarah
@ohlookitsmaryo.bsky.social
Registered nurse. PhD candidate @ UAlberta, CIHR-funded. Examining race/racism and care access for Black babies.
@abbyneedsanap.bsky.social
Housebound neurodivergent artist with Myalgic Encephalomyelitis #MECFS, POTS, MCAS, FM. Enjoyer of cozy fluffy things, tea, books, and the way the light filters through the forest. Passionate about animal welfare + nutrition, the paranormal, & weather.
@doublewhammied.bsky.social
Everything was going great until this whole breast cancer thing.
@patriciastoop.bsky.social
Happily married & mom of 2 adult Indigenous kidlets & two dogs| living w/ stage 4 Her2 breast cancer & Bipolar | Leftist | Dutch settler|she/her|BScOT MRSc 👩🏼🎓Qualitative research rocks.Lots on my plate #mbc #neurodiverse #dysautonomia #bipolar
@accesseasyenglish.bsky.social
Our team develop content to Easy English. It is for the 44% of Australian adults with low literacy. Plus many more people who need it every day. Our services include content creation, training, webinars, organisational support #SLP #speechie #inclusion
@maria62.bsky.social
I am a determined, curious, funny, educated, political, supportive, nature loving, feminist woman in Orlando, FL
@mwellmanosu.bsky.social
Staff member at Ohio's Statewide Family Engagement Center at The Ohio State University. Focused mostly on literacy. Mom of 2 kids. Ph.D. in Community Psychology.
@dquesnel.bsky.social
Researching compassion science with digital therapeutics/health for youth well-being with chronic illness at #SFU | Patient Engagement Specialist, research navigator at BC SUPPORT Unit Fraser Centre #POR #PPIE | Advocate | Mom to 2 with rare disease.
@sarahcrafter.bsky.social
Professor of Cultural- Developmental Psychology at The Open University Interested in children and young people's migration Qualitative, Participatory and arts-based approaches
@teresadeak.bsky.social
Addicted to colour & butterflies! Staff for 3 cats and 2 dogs. Married since the 80s! Vernon BC in the Okanagan. That's in Canada. AuDHD with FM ME/CFS. Who knew I'd like gardening? She/her. Anti-Nazi, pro-science. Digital art, photos.
@hunkerton.bsky.social
Queer-femme xennial diabadass (T1D since 1993) I 🩷 Canadian politics, dogs, fundraising (legacy giving), disability justice, anti-racism & decolonizing this funny land called Canada Former Ottawa & Vancouver gal now in Toronto
@cathsmstratton.bsky.social
Epidemiology PhD(c) @UofT; @CIHR_IRSC CGS-D & @fdnPETF Scholar; MPH @Yale; VP & Research Chair @moyamoyafoundation #KnowledgeTranslation #KnowledgeSynthesis #RareDisease #PainScience #Disability
@michelesparling.bsky.social
I am 🇨🇦 * Empathy * Humanity * Social Justice * Mental health advocate looking for paths not walls * Just Be You Founder * Rec hockey player proving direct correlation between increased age & decreased skills.
@anetto.bsky.social
Patient partner keenly interested in patient and caregiver inclusion in research priority setting and healthcare system decisions at every level including governance. #MedX a formative experience. #PatientExperience
@nilikm.bsky.social
Family doctor | Trustee | medical #anthropology | #McGill | #UCL | #Yale | writer | #feminism | RxAdvocacy | Fulbright Scholar | Commonwealth Scholar | Jabapalooza | #WomenInMedicine | #Ottawa | #MedSky | personal account (she/her) 🇨🇦
@downing.bsky.social
Co-founder of The Light Collective www.lightcollective.org Security Researcher Health Infosec Views are my own.
@mcgill.ca
Over 200 years of great education, excellent research, in service to society. 🔗 www.mcgill.ca
@stillcovidingca.bsky.social
https://stillcoviding.ca/ | https://linktr.ee/stillcovidingcanada #StillCoviding #COVID #CovidIsntOver #BringBackMasks #YallMasking #LongCovid #CovidLongue
@icancmeresearch.bsky.social
Interdisciplinary #Canadian Collaborative #MyalgicEncephalomyelitis Research Network (created in 2019). #MECFS #PwME #LongCovid (Account managed by Sabrina.)
@patientlibrary.bsky.social
Open access evidence base for patient experience, lived experience, patient/public involvement. www.patientlibrary.net
@manojlalu.bsky.social
Anesthesiologist and Scientist from Ottawa. Interested in accelerating translation of therapies through preclinical systematic reviews, multilabstudies, and patient engagement.
@mommyhascancer.ca
Using my story to advocate for better screening, cancer care and research in Canada. Author of an animated comic strip series about a young family with a terminally ill parent, based on my and my kids’ experiences. 🔗 https://linktr.ee/mommyhascancer
@meryldl.bsky.social
Health, science, and environmental journalist and author of mindfulness women’s novel Warrior Won. Writes for NatGeo, Prevention, many more
@aqem.bsky.social
L’AQEM vise l'avancement de la connaissance et la reconnaissance de l' #EMSFC et au mieux-être des #paEM | #Canada #Quebec | www.aqem.ca | IG/X @aqem_sfc #EncephalomyeliteMyalgique #MyalgicEncephalomyelitis #MECFS #pwME #CovidLongue #CovidLong #LongCovid
@kellieocallaghan.bsky.social
Lived Experience, Patient & Community Engagement 🧩 Governance & Regional Development 🔗 Wayfinding 💭 Chair, Regional Development Australia - Gippsland 🦘 Chair, Mental Health & Wellbeing IRB 💬 Mayor, Emeritus 👩⚖️ Gunaikurnai Land, Gippsland Australia 🏡
@dawnrichards.bsky.social
Living life with #Arthritis along for the ride. Posting & passionate about #Research, arthritis, #PatientEngagement, #PPI. Opinions my own.
@hldca.bsky.social
Looking forward to exploring the new neighbourhood! Living with metastatic breast cancer, these days I mostly putter and walk the dog.
@maggiekeresteci.bsky.social
I care about improving lives of patients & caregivers | Author | Speaker | Advocate | Caregiver | Patient | co-design | Healthcare Policy | Health Services & Policy Research | Views are my own, influenced by many
@lgoodbu.bsky.social
Sharing Seth's Story - A film, a play and educational resource to improve end of life care, raise awareness of pancreatic cancer signs and symptoms - views are my own #sethslegacy
@platouche.com
Business Analyst | #longcovid #PASC #patientpartner | Long Covid advocate Analyste d'affaires | #covidlongue #covidlong #PACL #patientpartenaire #quebec | Défenseur de la COVID longue