ICanCME Canadian Research Network
Interdisciplinary #Canadian Collaborative #MyalgicEncephalomyelitis Research Network (created in 2019).
#MECFS #PwME #LongCovid
(Account managed by Sabrina.)
@solveme.bsky.social
Solve M.E. is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid, and other infection-associated chronic conditions.
@batemanhornecenter.bsky.social
The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
@proulxlaurie.bsky.social
All about patient engagement, especially in pharmaceutical policy & research. Living with juvenile rheumatoid arthritis since I was 14. Writer, cat lover, and classical music nerd 🧐
@lli-1.bsky.social
Professor of Physical Therapy | Harold Robinson Chair in Arthritic Diseases @UBC @Arthritis-UBC | health services & implementation scientist https://arthritis.rehab.med.ubc.ca/
@pxphub.bsky.social
👉For Patients, By Patients 👈 The PxP initiative brings together resources for the patient engagement community in health research.
@longcovid-adri.bsky.social
Lead of Long Covid Canada Collaborative grp. ANIMAL LOVER. Former int. Competitive swimmer. Disabled by LC since Xmas 2020. #Covid #LongCovid #MECFS science-based advocate w several orgs. #FBLC We must #Unite2Fight strong together in this chaos! 🖤🤘
@maggiekeresteci.bsky.social
I care about improving lives of patients & caregivers | Author | Speaker | Advocate | Caregiver | Patient | co-design | Healthcare Policy | Health Services & Policy Research | Views are my own, influenced by many
@clairesnyman.bsky.social
#Braintumor | Healthcare advocate | Patient experience consultant | Pnt Engagement/Pnt Experience are essential | Author & #TEDx speaker | Two Steps Forward |
@hettymulhall.bsky.social
Associate Scientific Director at CIHR-IMHA | Views my own, reposts not endorsements | Non-practising Veterinary Surgeon
@remissionbiome.bsky.social
Community Science Project http://RemissionBiome.org
@uselesspriest.bsky.social
Long COVID, mild, since Apr 2022 ME / Long COVID diagnosed May 2024
@brianvastag.sciencemastodon.com.ap.brid.gy
Occasional science reporter at The Washington Post and elsewhere. Disabled by complex chronic post-viral illness. Living on #Kauai #Hawaii. Sometimes […] [bridged from https://sciencemastodon.com/@brianvastag on the fediverse by https://fed.brid.gy/ ]
@ninjazz636.bsky.social
#LongCovid-disabled first waver. Loves gardening and decorating. Cheese addict. Science. Climate. 🏳️🌈 ally. Pardon my French! 💚 Green means hope. #AirborneAware 😷 #FuckTrump #SlavaUkraini 🇺🇦
@diatoma.bsky.social
Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de México. #ME #MECFS #POTS #LongCovid
@katieklocksin.bsky.social
One of the #MillionsMissing with #LongCovid #MECFS // Once a radio and podcast producer, always a Transom alum 😷 Long covid is common 😷
@emilyesfraser.bsky.social
Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
@chromatowski.bsky.social
This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing. ME ‘05, LC ‘23, many of their friends along the way. Very severe (FUNCAP 0.8). No unsolicited advice please!
@rubyslippahs.bsky.social
COVID long-hauler, former archaeologist, opera singer, now fed employee. Kids, homeless, dogs. Isotopes+🍩 #WearAMask 🌎Ba'al Pit FB: is.gd/bp2vTA Media: covidlonghaulers@gmail.com YouTube.com/@covidlonghaulers @CLHAgainstFascism.bsky.social She/her
@richellesepulveda.bsky.social
Long Covid, MECFS, ADHD, etc. Patient-led research is my jam. A bit obsessed with GIP.
@petecaruso.bsky.social
Treat Long COVID, ME, POTS, Sjogrens, Mast Cell, and Chronic Lyme. Develop safe vaccines, treat vax. injury. Spouse has ME 30+ yrs. CrunchME.org Pfp: A man wearing a green face mask Banner: Colorful MEmes from patient-led Long COVID and ME awareness
@mfairma.bsky.social
ME. Spouse w LC, ME. Writer, bread baker, daydreamer. Still waiting on fair funding and apology from HHS. Masking like someone’s life depends on it.
@klazell.bsky.social
Artist, Long Covid, ME/CFS, POTS, EDS, previously Data Scientist. Life on pause due to #longcovid. Climate collapse aware.
@broadwaybabyto.bsky.social
Disabled & chronically ill writer. Former theatre critic. Clean air is a human right & vulnerable people aren’t expendable. Covid is airborne 😷 https://www.disabledginger.com A redheaded snippet who loves Sondheim. Once fainted into Hugh Jackman.
@neurologistmom.bsky.social
A neurologist, M.D., mother of a 16-year-old with #NeuroSjogrens #AutoimmuneEncephalopathy triggered by SARS-CoV-2 ⚠️ Occasionally blocks energy drains. 📍Seattle, WA
@stitchingtwitcher.bsky.social
Spotter of patterns, sometimes wishing I could unsee ME/CFS, Chronic Illness, AuDHD, Still Coviding
@morgfair.bsky.social
Actress. Politics, Foreign Policy, Science & RockNRoll. Love animals
@kirsties.bsky.social
UK #pwME #pwLC #MECFS #LongCovid #PEM (post-exertional malaise) as well as #Politics and other related chat. I use lists to manage my chats here. Feel free to use them or ask to be added https://writingandme.com/
@monzamayhem.bsky.social
Mother of child with ME/CFS; trying to create a life for him while waiting for answers from medical research. My oldest is a wildland firefighter. I post primarily about public health, ME/CFS, Long Covid, and wildland firefighting.
@emilyrj.bsky.social
Digital journalism. Design, news/book edits, linguistics, data, tech. Medical + academic research. Disability in news, media and accessibility design consults. @emily_rj on Twitter #CripTheVote #Iowa ♿️🏳️🌈📚
@minetodo.bsky.social
Storyteller. Advocate. Stand By ME/CFS! #StandByMEcfs #StillSickStillFighting #MEcfs since 2009
@cinnamonrollalong.bsky.social
#pwME #MECFS #pwLC #LongCovid #PoTS #Dysautonomia #MCAS #LongCovidKids #CovidisNotOver #CovidisAirborne
@shellchat.bsky.social
Reformed journo/editor, now working in health comms. Fighter of injustice in all its forms. Advocate for better research & support for ppl w uninvited friends POTS, ME/CFS, MCAS, LC, EDS, SjD, AnkSp plus other misunderstood AI conditions.
@nelehelena.bsky.social
I'll "tweet" here about the things I don't like if the other app goes down
@isabelrb.bsky.social
CEO | Renegade Research | Project Director of Remission Biome NBC-HWC, AIP-C @remissionbiome.bsky.social
@katha1970.bsky.social
Here for research and info on #Migraines #MECFS #LongCovid #MCAS #MCS #ChronicPain #MetabolicHealth #Neuroscience #Psychology #MedicalGaslighting, posts German & English, hobby songwriter
@bshuell.bsky.social
Husband to a wonderful wife, father to 2 amazing kids, advocate, former software developer with myalgic encephalomyelitis, Living a limited life, missing from many places. Aspiring to be well again. Dog Dad. Occasionally bipedal. Twitter/X refugee. #mecfs
@drdanielloy.bsky.social
Ehemann, Jurist. #MECFS. Team #SIGNforMECFS. Team #GOfundMECFS. One of the #MillionsMissing.
@sunny-rae1.bsky.social
Consultant Cardiologist, also treating and researching Long Covid. Long Covid Advisory Team @ WHN, #TeamClots, Medical Champion @ Long Covid Kids. Prevention is better than cure. Views my own and not medical advice x
@daltmann.bsky.social
Professor of Immunology, Imperial College London. Editor of OUP Oxford Open Immunology. Co-author - Penguin Long Covid Handbook. Discusses: Covid-19, Long Covid, T cells, immunogenetics and HLA, respiratory infection, science policy, arboviruses, C19th lit
@mervetepephd.bsky.social
PhD Microbiologist // Biomineralization, AMR & Biofilms // @remissionbiome.bsky.social team Defend science, resist ignorance https://twitter.com/mervetepePhD http://mastodon.online/@MerveTepe http://post.news/@/mervetepephd Ankara/New York/Tel Aviv
@writebiggs.bsky.social
Reader, writer, sleeper agent Loves history, folklore & growing things ME + expansion packs ADCI network ♿️ | she/her Curtis Brown Breakthrough winner ‘24, Jericho Writers Mentorship, Novelry Octopus winner ‘23. LL Lucy Cavendish Prize ‘24
@vonhatti.bsky.social
Unwell book editor, once actor/cabaret. Fake name, real face. #ChronicIllness #Publishing #Cats #Languages #ComicSongs https://m.youtube.com/@Theheraldpatch