Fishupahill
Formerly many things. Now missing, but not gone.
#pwME, #pwLC and #Lyme.
@lilnic000.bsky.social
@stevefifield.bsky.social
Informed decisions & verifiable facts please, not opinion & belief. UK. 🇬🇧 Mine of occasionally useful information. NHS and healthcare 💙 #Equality #Justbe #Inclusion #LGBTQ+ 🌈 ally #pwME #MECFS #Activetravel 🚲 #Sustainability #Gardening #VisibleApp
@shrinkatlarge.bsky.social
Consultant clinical psychologist/ activist/ neuroqueer bluestocking. Former Lived Experience Practitioner. Future failed poet. Will question ideology for cake. 💜🎭🦓🥄🏳️🌈 #MadSky #TraumaNotPD #Disability #Neurodivergent #Mad https://t.co/83d2Ztwpp2
@angryhacademic.bsky.social
#LongCovid Scientific Consultant PhD Nutrition & Metabolism Hon Research Fellow, Lund Uni Posts: nutrition ▪ health ▪ all-things-science ▪ activism ▪ fun facts ▪ #PostVac Donations: https://ko-fi.com/drsmash Facebook: https://www.facebook.com/LongCovidSC
@sammiemc.bsky.social
Long Covid Kids Founder & CEO Hoping to be on the right side of history. ♿️#LongCovid ✳️#CleanAir 🙋🏻♀️Campaigner 🧠🧡🫀#LongCovidKids 🌊#ColdWater 🧜🏻♀️#Swimming 🧘🏻#Pilates coach - #Pacing since 2020 🦠 😷 🫅🏼#CoronationChampion 💥#Volunteer
@sarahoc1.bsky.social
#pwME patient 12 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover
@msmangajojo.bsky.social
Animal lover 🐿🐈⬛🕊🦅 Wears a mask. Not interested in antimaskers, antivaxers or Covid minimisers. Woke as f*** UK #WearAMask FFP2 /FFP3. #MasksinHealthcare #CovidIsAirborne Disabled, Chronic health issues,immunosuppressed ♿️☕️,📚Ancient Egypt, Labour Party 🌹
@coldon1983.bsky.social
Aberdeen fan. Passionate about an independent Scotland. SNP member. Live by the sea and a Loch. ME for 11 years #pwME #rejoin #FBPE 🏴
@michelleb4.bsky.social
A mixture of stuff #MECFS #LongCovid #frailty #mtb #cycling #feelthefearanddoitanyway co-founder @PhysiosForME Views are all my own
@cabruce.bsky.social
Previously a psychotherapist. Bedridden #ME 32years Daughter severe ME, eldest son MS. I like art, nature, books, people, music, poetry and podcasts!
@karenlhargrave.bsky.social
Co-founder #ThereForME | Calling for an NHS that’s there for ME & Long Covid | www.thereforme.uk Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
@hildabast.bsky.social
Scientist (PhD; she/her), writer, cartoonist. Blogging & Newsletter: Living With Evidence https://hildabastian.wordpress.com/ Mastodon enthusiast: @[email protected]
@joythief.bsky.social
Disabled, former paralegal posting into the void about covid, climate, and collapse. Still masking. Menopausal and angry. Probably in Denver or Seattle or Johnson City, TN. Fascists, racists, anti-LGBT+ folks blocked. She/her/hers
@thrivingplanet.bsky.social
Was: Facilitation & organisational culture nerd for do-gooders, climate & sustainability activist. Ultra healthy, athletic, MTB / ski / mountaineering / outdoors. Everything on pause: Long Covid is brutal. Lancaster, North West England (Plague Island). ⓥ
@gemzme.bsky.social
@andrewg76201347.bsky.social
ME/CFS, POTS, MCAS, lupus, Hashimoto’s. Patient & carer. Disabled scientist. Female - using fake name bc I post about son's illness. Location: Australia
@dee3d.bsky.social
Writer, 3D-modeler/game modder, old gamer gal. Love good science (hate fraud science), photography, DeOldify, MidCentury Modern, Film Noir, Pre-Code film, SciFi. Retired IT bod. 👩💻🤓
@pinam.bsky.social
GRADUATE PRODUCT DESIGNER, INTERIOR DESIGN Against FASCISM, any kind of RACISM and STIGMATIZATION of illness, especially MECFS Live with: Primary immunodeficiency (PID) Cancer ME(CFS) with humor, love for design, architecture, art...
@therealmecfs.bsky.social
Chronically ill & disabled person with lots of personal opinions, who sometimes likes a hat. Occasionally an advocate for PwME, gamer and proudly on the Autism spectrum. I’ve low tolerance for ignorance and assholery so if you come for a fight, expect one.
@me-cfs.bsky.social
Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak. I care. My ME/CFS News Aggregator: @me-cfs.mastodon.social.ap.brid.gy Ⓐ💚, (FR/DE/EN, but posts in english) Clinging onto the ledge above the abyss.
@maryeilmicdom.bsky.social
Sport, history, language, law & humour | Living with and writing about #ME #POTS #IST #Asthma #Dysautonomia | #Celtic 🍀 | #LifeWriting at merrydholl.wordpress.com 🏴
@stephenmia.bsky.social
Former Skier, Cyclist, Climber, Hill Walker, Diagnostic Radiographer and functioning human. Now - ME, POTS, LC, Vax Injury - Pro Vax - Still finding the joy
@decodemestudy.bsky.social
🧬 The world’s biggest study of genetic causes of #MECFS. Launched September 2022. 🧬 https://www.decodeme.org.uk/
@scotjess.bsky.social
I love my boys (plural) even if only one of them, Elvis, is alive. 🦎🧡 💚 #TheSims (since 1). Got The Sims 4 Christmas 2014, year when shit hit the fan as I got #MEcfs Also #POTS #MenieresDisease & likely #MCAS #hEDS #Autistic late discovered She/Her
@bmhughes.bsky.social
Concerned citizen • Prof Psych • Writer • Galway • he/him A blog: https://thesciencebit.net/ A bio: https://brianmhughes.com/ A book: https://bloomsburycp3.codemantra.com/viewer/63721f10ee35880001aafadc 📷 https://www.photoblogism.net
@scholenveilig.bsky.social
Advocate for Safe Schools with a focus on prevention like Clean Air to protect children from health risks like long Covid. Sharing data on child Covid hospitalizations, long Covid, and schools with clean air: scholenveilig.com 🌍The Netherlands
@sannibenke.bsky.social
Originally a creator of colorful things but all i have left is my sword of words written in the dark. Former psychologist. Mom x 2. Life on hold by very severe #mecfs. Here to join the #pwme community. Sharing #bookrewievs and #liMEricks.
@jefflubellc19.bsky.social
I am researching treatments for my daughter, who has hEDS, ME/CFS and other conditions, with implications for #EDS, #MECFS and #LongCOVID. I am a researcher, but not an MD.
@oonaghcousins.bsky.social
@putrinolab.bsky.social
@thenicotinetest.bsky.social
The Nicotine Test -- a patient-led research project to evaluate the benefits of the nicotine patch for people living with #LongCovid. #TheNicotineTest #LongCovid #MECFS
@katboniface.bsky.social
Riverside, CA Equine History Collective Renegade Research https://katboniface.wordpress.com/the-glutamate-boss/
@profmarkfaghy.bsky.social
Professor of Clinical Exercise Science - Clinical Exercise Physiologist - Researcher in #LongCOVID - Nature Research Award Winner 2024 - Derby UK
@rthm.bsky.social
RTHM connects you with a digital care team specializing in Long COVID and ME/CFS that provides access to therapies based on the latest research. https://direct.rthm.com/?utm_source=bs&utm_medium=link&utm_campaign=bio&utm_id=profile&utm_term=web&utm_conten
@thesicktimes.bsky.social
A nonprofit news site chronicling the #LongCOVID crisis. Founded by journalists @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social Website: thesicktimes.org Newsletter: thesicktimes.org/newsletter Donate: the-sick-times.fundjournalism.org
@dbkell.bsky.social
Research Scientist who prefers facts to lies. Focus on Long COVID. Free book: http://osf.io/pnxcs/.
@julesahouston.bsky.social
Body malfunctioning since 1998 #MECFS #PoTS #MCAS #hypermobility & other delights. I'm a #LongCovid #LongCovidKids and #Pans #Pandas ally. Here to make connections old & new. #CovidIsNotOver #CleanAirForAll #MasksInHealthcare #GreatestMEdicalScandal
@kirsties.bsky.social
UK #pwME #pwLC #MECFS #LongCovid #PEM (post-exertional malaise) as well as #Politics and other related chat. I use lists to manage my chats here. Feel free to use them or ask to be added https://writingandme.com/
@rgleadow.bsky.social
Plant scientist studying how climate change affects plant toxicity (#cyanide). Born 314ppm. Interested in science, tech, plants. #MECFS ally #botanist 🌾🪴🧪🌱🌿💉 Views my own
@alinda6.bsky.social
@chromatowski.bsky.social
This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing. ME ‘05, LC ‘23, many of their friends along the way. Very severe (FUNCAP 0.8). No unsolicited advice please!