Goblin Fox
* Spoonie with FND, Fibro and Hemiplegic Migraine.
* AuDHD, dyslexic and I am system with OSDD and C-PTSD.
* She/Her or They/Them.
* Queer & poly
* ❤️crafting & art.
* ❤️ Zombie, sci-fi, dystopian books
* ❤️ Nature and photography
@bryancrockett.ca
He/him. Métis. Views mine only. Your favourite DEI hire's favourite DEI hire. 📍Vancouver Island, BC 📧 bryan@bryancrockett.ca Vive le 🇨🇦
@leeram.bsky.social
Animal lover with a slightly unhealthy interest in U.S. Politics and distain for their new Con-mander-in-thief. Dabble in many art forms when able. #HSP #ME/CFS, #goldendoodlemama
@colocharachel.bsky.social
the truest thing I can say tonight is that being disabled out of the workforce was one of the best things that ever happened to me. • “I’m just an asshole who tries hard” -Kelly Hayes • Dakota land; Minnesota but no longer Minneapolis • she/her
@mariefollayttar.bsky.social
@MaineAllCare #UniversalHealthcareNow Sea Glass Collector -Advocate - Artist - Poet-Community Organizer - Political Strategist Disabled Director of Mainers for Accountable Leadership(leave) Rare Chronic Cancer survivor Long Covid, Me/CFS Autistic Wabanaki
@bshuell.bsky.social
Husband to a wonderful wife, father to 2 amazing kids, advocate, former software developer with myalgic encephalomyelitis, Living a limited life, missing from many places. Aspiring to be well again. Dog Dad. Occasionally bipedal. Twitter/X refugee. #mecfs
@wilhelminaj.bsky.social
Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
@shelleyjules.bsky.social
MECFS from the long before times but not diagnosed for 23 years…LC since 2020 - interested in advancing patient led research (Renegade Research & Remission Biome) & all avenues that lead to effective treatments for everyone. She/her. Love is my language. 💖
@dualiejulie.bsky.social
(She/her) In LongCOVID/M.E. hell looking for a way out! First wave Longhauler. Former engineering student. Trying to get my personality back from the disease. Very cute dog.
@carolbarrel.bsky.social
I enjoy cats and bicycles. I much less enjoy my chronic illnesses. #pwME
@lonniemarcumpt.bsky.social
Wife/Mother, Science Writer, PT, HC Admin, Disease Detective, Voracious Reader, Connoisseur of Coffee, Graduate CSUN, Olive Farmer, HHS 2019-2022 Tick-Borne Disease Working Group, CDC Fdn ICUE patient advocate.
@katieklocksin.bsky.social
One of the #MillionsMissing with #LongCovid #MECFS // Once a radio and podcast producer, always a Transom alum 😷 Long covid is common 😷
@yogafogie.bsky.social
DMV native. COVID long hauler. Patient-Led Research Collaborative.
@guusontheinternet.bsky.social
Creative turned activist #NietHersteld - Long Covid since jan’21 ♿️ - posts with brain fog, so pls bear with me - eager to learn - posts in 🇬🇧 & 🇳🇱
@fvrhijn.bsky.social
MD | rheumatology resident #ME due to #LongCovid Nonbinary 🌈🌈🌈🌈 | views are mine.
@melindaiscomplex.bsky.social
My body has given up but I haven't... ME/CFS Patient Leader & Complex-Chronic Disease Advocate (on hiatus). Co-founder #MEAction Maryland. Bed-tethered disabled by severe ME & LC & comorbids. Orioles/Ravens/Caps fan. She/her
@midcatecrisis.bsky.social
Chronically ill, autistic, demi/greyace (mostly in bed, mostly homebound) ME/CFS and probable LC 😷😷😷 Interests: climate, COVID, disability justice, nature, parenting, socialism Ltd cog energy, don't tend to follow back. Toronto, Canada She/her/they
@cortjohnson.bsky.social
Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
@benhmecfs.bsky.social
ME/CFS patient advocate, Open Medicine Foundation science correspondent. Bedbound. Former: exercise physiology, biochemist in training, athlete-Powerlifter, PT, Gym Manager. Jazz grad/Musician. F1/Boxing.
@sannara.bsky.social
#MECFS #MILLIONSMISSING #MEAwareness #PEM #POTS #MCAS #PostCovid #LongCovid #TeamWissenschaft #GdB https://www.mecfs.de/was-ist-me-cfs/
@moppety.bsky.social
Parisienne Buffalonian linguist spoonie mom. http://bcopley.com "The line separating good and evil passes...right through every human heart." -Solzhenitsyn
@sabrinapoirier.bsky.social
#CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis + #MECFS & #LongCovid #ResearchPartner & #Advocate • Chair of #MedicalEducation Group • #PwME #Disability (Unceded) #Canada https://linktr.ee/sabrinapoiriercanada
@legalnomads.com
Once a lawyer, then a travel writer. Now disabled, writing about curiosity, health, & loss. Travel writing, & celiac translation cards: legalnomads.com The best things I read each month: jodiettenberg.substack.com MCAS & health: jodiettenberg.com
@brianvastag.sciencemastodon.com.ap.brid.gy
Occasional science reporter at The Washington Post and elsewhere. Disabled by complex chronic post-viral illness. Living on #Kauai #Hawaii. Sometimes […] [bridged from https://sciencemastodon.com/@brianvastag on the fediverse by https://fed.brid.gy/ ]
@dguckenheimer.bsky.social
🥄 Sociologist, writer, feminist, anti-facist, anti-racist, disability justice activist. 🏳️🌈 Pronouns: she/they #livingwithableism #resist
@diatoma.bsky.social
Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de México. #ME #MECFS #POTS
@matthewcort.land
🖋️ Lawyer, advocate, writer, public health nerd 🦠 Immunocompromised, chronically ill, disabled Then: SSI, SNAP, Medicaid Now: data & policy, disability, healthcare. 🔗 patreon.com/mattbc 🏳️🌈nonbinary
@wendykloiber.bsky.social
So did the divine right of kings. Long covid class of March 2020, the kind with ME. Would like one more tattoo, minimum. She/her.
@itswhitneywitch.bsky.social
Disability Justice Living with ME, EDS, POTS, MCAS, vascular compressions, spinal comorbidities & more Ambulatory wheelchair user Cozy gamer, lazy gardener, hopeful baker
@richellesepulveda.bsky.social
Long Covid, MECFS, ADHD, etc. Patient-led research is my jam. A bit obsessed with GIP.
@jesshoneybadger.bsky.social
Chaotic good writer and scientist with severe, bed bound MECFS. Writing wholesome stories, science stuff, and funny anecdotes from bed. Lover of memes. jesshoneybadger.substack.com
@hlyann.bsky.social
AuDHD - EUPD/CPTSD | CFS | Dyslexic , Creativity| Introvert, Queer, Owlet , Old Soul , 30s, Survivor CSA+ - Trans Rights are Human Rights Im in Survival mixed with contradiction #TraumanotPD ONE SPOON AT A TIME 🥄
@valsdarkness.bsky.social
She/her My photography : @valsdarkroom.bsky.social My crochet work : @meancrochetmachine.bsky.social Website : https://valsvisionary.com
@huuggs.bsky.social
@ournewhomecoach.bsky.social
Helping people build less to live more. Registered Architect NSWARB 6611 ARBV 18886.Wangal land. DOB 329.43 ppm CO2. #GenXClub 🤞#NoDickheads. I receive DMs from mates. Any others will be deleted without response. I can’t send you money. Refusal may offend.
@lilysmythe.bsky.social
First-year MRC PhD student interested in the association between Functional Neurological Disorder and Autism, part of the Re:Spect Lab and based at the IoPPN, King's College London
@skhalsa.bsky.social
Psychiatrist and neuroscientist studying the role of interoception in mental health. Director of Anxiety Disorders Research, UCLA Psychiatry. Opinions my own.
@jungilligens.bsky.social
PhD neuropsychologist, clinician-scientist, post-doc neuroscience researcher @ Ruhr University Bochum; functional neurological disorder, neuroimaging, emotion.
@alancarson15.bsky.social
Neuropsychiatrist Royal Infirmary of Edinburgh. Professor University of Edinburgh.
@fndtogether.bsky.social
Registered charity in Canada dedicated to supporting individuals diagnosed with Functional Neurological Disorder (FND).
@nielsdetert.bsky.social
Neuropsychologist, John Radcliffe Hospital Oxford, FND, Mindfulness, Nature of mind, ISTDP, Chair UK FND Network www.ukfndnetwork.org
@leoistdp.bsky.social
Psychology for Functional Symptoms - Devon Partnership NHS Trust 🏥 Intensive Short-term Dynamic Psychotherapy - Teacher & Supervisor Researcher and Functional Symptoms Specialist. #FBPE www.ISTDPHealth.com