Heather
I was diagnosed with Pompe Disease in 2010 and have since been dedicated to advocating for issues related to rare disease. I founded Pompe Alliance in 2018, an organization that provides services to Pompe patients and their families.
@motherjones.com
Investigative journalism 🕵️, politics 🗳️, chart-tastic 📊, and sometimes sarcastic 🙄😌🤪 Join our people-powered nonprofit newsroom: motherjones.com/subscribe
@oxfordharrington.bsky.social
Partnership of the University of Oxford and Harrington Discovery Institute. Combining expertise in discovery science and therapeutics development to accelerate cures for rare diseases. Visit us at: www.oxfordharrington.org
@pjcusick.bsky.social
Wife, mom, rare patient-healthcare research matchmaker, and aspiring yogi.
@precisionmedicine.bsky.social
Associate Director of Bioinformatics and Software at Illumina. Unleashing the power of the genome through SW and AI. #PrecisionMedicine #Cancer #MECFS #RareDisease
@trendingworld.bsky.social
We post the main Trending Topics in the World every 30 minutes. There are usage tips in the pinned post. @terraprotege.bsky.social 🌱🌎
@eliteoptions2.bsky.social
I'm Brando- Options trader for 14 years. 📈 8 figures in profit day trading💰 Based out of Las Vegas 🎲 I'm here to share my knowledge and help others
@brownsteinmelissa.bsky.social
I'm an RN Pediatric Specialist, and 4☆Psychic Tarot Reader. I am on Bluesky.com to write the real issues EVERYONE wants to talk about. tRumpers you will be offended by my posts, and I don't care about your feelings. No messages from horney yuck Men! 🙃
@rayangossio.bsky.social
Businessman, Scientist,US Federal Tax professional, Author , Chief Strategist, founder and owner of the FUSO: Futurists Society. ABA MEMBER ID: 06199835 ; PTIN: P02356203 ; CTEC: A328086 ; NYTPRIN: 12807807; Visit: linktr.ee/alpharayangossio
@laurenctesta.bsky.social
PhD candidate and #raredisease patient-scientist in Gene Therapy and Vaccines at Penn. Interested in genetic therapies, aortas, and climbing. #BillsMafia
@xlpiano.bsky.social
Solo Piano Composer. Former director waterboard. River dikes. Room for the River. Submersible floating Solar. Pompe disease. Retired
@rhediix.bsky.social
Elder Millennial. Trekkie. Whovian. Guitarist and Ukuleleist. Visual Artist. Democrat. Foodie. Cincinnatian living in Las Vegas. I have Pompe Disease.
@medrxivpreprint.bsky.social
@biorxiv-neursci.bsky.social
@rd-rn.bsky.social
An online hub supporting patient driven research ideas to be realised & flourish. Open to all. Join the #RareDisease #Research revolution at www.rd-rn.org * connections * resources *mentoring NIHR funded, co-created by CamRARE, PLRH & patient experts
@camrare.bsky.social
Making rare disease an everyday conversation. CamRARE is a charity empowering rare disease communities & fostering cross-sector collaboration to improve outcomes for those affected. #RareDisease Local | National | Global www.camraredisease.org
@rarediseasectn.bsky.social
HRB-funded clinical trial network aiming to increase the quantity and quality of rare disease clinical trials in Ireland, keeping the patient voice at our core.
@newyorker.com
Unparalleled reporting and commentary on politics and culture, plus humor and cartoons, fiction and poetry. Get our Daily newsletter: http://nyer.cm/gtI6pVM Follow The New Yorker’s writers and contributors: https://go.bsky.app/Gh5bFwS
@bloomberg.com
The first word in business news. Newsletters: http://bloom.bg/newsletters Podcasts: http://bloom.bg/podcasts The Big Take podcast: http://trib.al/jtoXfuT
@ppfa.org
Hi! We’re America’s most trusted provider of sexual and reproductive health care education, and we think we look pretty good for over 100 years old. www.plannedparenthood.org & linktr.ee/PlannedParenthood
@unesco.org
Building peace where it starts - in the minds of women & men. Official BlueSky account of UNESCO. #Education #Sciences #Culture #Communication #Information
@sanders.senate.gov
Sen. Sanders of Vermont, Ranking Member of the U.S. Senate Committee on Health, Education, Labor & Pensions, is the longest-serving independent in congressional history.
@ohiocapitaljournal.com
Connecting Ohioans to our state government and its impact on our lives. Free to republish, we are the Ohio Capital Journal, reporting for the people. Sign up: ohiocapitaljournal.com/subscribe
@flavorflav.bsky.social
Rock and Roll Hall of Fame Inductee GRAMMYS Lifetime Achievement Award Questions or complaints,,, harass my management: [email protected]
@nytimes.com
In-depth, independent reporting to better understand the world, now on Bluesky. News tips? Share them here: http://nyti.ms/2FVHq9v
@theonion.com
America’s Finest News Source. A @globaltetrahedron.bsky.social subsidiary. Get the paper delivered to your door: membership.theonion.com
@bwjones.bsky.social
Neuroscientist Vision Neuroscientist Connectomics / VolumeEM Photographer / #Leica In the data bryanwjones.com ORCID 0000-0001-5527-6643
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: [email protected]