Pam Cusick
Wife, mom, rare patient-healthcare research matchmaker, and aspiring yogi.
@bornecharity.bsky.social
Borne is a medical research charity with the mission to end premature birth 💙🔬
@happytalkresearch.bsky.social
I am the qualitative researcher that illuminates the path with consumer & B2B insights that business leaders need to develop more effective and resonant products, services, and marketing communications. I’m fascinated by what motivates human behaviors!
@p3timc.bsky.social
Director of Operations, QuestionPro Founder & CEO, P3 Technology LinkedIn.com/in/timothyjcornelius
@chadfagan.bsky.social
@bsstew.bsky.social
@emmymaduro.bsky.social
I'm with Quest Mindshare! Sample Provider company that focused on B2C niche/B2B and Healthcare 🙌🏻 send your quote to emaduro@samplegurus.com #MarketResearch #Quantitative #MRX #B2B #HealthcareResearch
@pallasresearch.bsky.social
Researching B2B tech one interview at a time; avid reader and baker of sweet treats
@paullong1.bsky.social
Market Research Consultant | Also posting on Social Media, Tech, AI, Data Visualization
@mrxplorer.bsky.social
Tenured insights pro, described as bubbly, energetic, passionate, and most definitely geeky. LinkedIn: https://www.linkedin.com/in/zontziry
@seanjordaninsights.bsky.social
I'm a full time Insights Researcher. I'm also occasionally insightful! My professional details are here: https://www.linkedin.com/in/seanjjordan/
@hshorten.bsky.social
I was diagnosed with Pompe Disease in 2010 and have since been dedicated to advocating for issues related to rare disease. I founded Pompe Alliance in 2018, an organization that provides services to Pompe patients and their families.
@raregenomics.bsky.social
Rare Genomics Institute (RG) is a 501(c)3 non-profit organization committed to filling the unmet needs of patients and families affected by rare diseases. https://www.raregenomics.org/
@nucdf.bsky.social
We support patients and families affected by urea cycle disorders, a group of rare genetic diseases. Working to advance research, improve care, and raise awareness that saves lives https://nucdf.org #UCDs #RareDisease #CheckAmmonia
@nordrare.bsky.social
NORD is a patient advocacy organization leading the fight to improve the lives of rare disease patients. Alone we are rare. Together we are strong.® www.rarediseases.org
@autoinflammatory.bsky.social
The Autoinflammatory Alliance is a 501c3 nonprofit org helping to improve awareness, care and treatment for rare autoinflammatory and immunedysregulatory diseases. We are here to help patients, caregivers, and support research.
@scn2a.bsky.social
"Families" is part of our name for a reason. Rare and devastating, SCN2A-related disorders affect the entire family. Our team of leaders strive every day and, in every way, to improve the lives of not only the patients, but the entire family.
@thesumairafdn.bsky.social
TSF is a global nonprofit organization dedicated to raising awareness of rare neuroimmune conditions, building community, supporting research, advocating on behalf of patients. www.sumairafoundation.org
@oncrn56.bsky.social
I am an oncology nurse who is the Director of Nursing for ICAN (International Cancer Advocacy Network). I interact with patients here and abroad and mostly with patients who have rare lung cancers called Exon 20 mutation and MET 14 Skipping mutations.
@vascern.bsky.social
Advancing the diagnosis, treatment, and care of patients with rare multisystemic vascular diseases across Europe. 🔬 Evidence-based guidelines | 🌍 Cross-border collaboration | 📚 Education 📌 Visit us: www.vascern.eu
@gc4gc.bsky.social
rare disease geneticist | epilepsy | epigenetics | iPSCs | mentor & genetics MedEd | immigrant | tweets about science, lab fun & occasionally our tiny hooman https://sites.northwestern.edu/carvilllab/
@mitogc.bsky.social
Smithie 2014, mitochondrial disease, spoonie, rare disease, genetic counselor, 🏳️🌈 ♿️ opinions are my own
@ginaravenscroft.bsky.social
Rare & neuromuscular disease researcher at UWA & the Harry Perkins Institute, Perth 🇦🇺 Passionate about #sciencefunding, #womeninSTEM, #EMCRs Mum of 👦👧🐶 Posting about genomics, rare disease, PI life & wine https://www.ravenscroftlab.com
@srcamm.bsky.social
Just a dad of a disabled son, a deceased son and an amazing daughter with a rare disease. #DoBetter
@rarepatientvoice.bsky.social
Empowers patients and family caregivers to share their voices with researchers and companies developing products, devices, and treatments to improve lives.
@rd-rn.bsky.social
An online hub supporting patient driven research ideas to be realised & flourish. Open to all. Join the #RareDisease #Research revolution at www.rd-rn.org * connections * resources *mentoring NIHR funded, co-created by CamRARE, PLRH & patient experts
@rarediseasesint.bsky.social
RDI is the global alliance for persons living with a rare disease, across all countries and all rare conditions.
@camrare.bsky.social
Making rare disease an everyday conversation. CamRARE is a charity empowering rare disease communities & fostering cross-sector collaboration to improve outcomes for those affected. #RareDisease Local | National | Global www.camraredisease.org
@rarediseasectn.bsky.social
HRB-funded clinical trial network aiming to increase the quantity and quality of rare disease clinical trials in Ireland, keeping the patient voice at our core.
@rdndlab.bsky.social
RDND Lab at King’s College London led by Cristina Dias. Clinical Geneticist and Rare Disease researcher. Rare Conditions, neurodevelopmental disorders of chromatin regulation and chromatin remodeller-TF interactions. https://tinyurl.com/rdndkcl
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: support@bsky.app