Izzy Wightman
Writer, researcher, journalist... when well enough. Living with Long Covid.
@kityates.bsky.social
Author. Prof of Math Bio and Public Engagement. Member of Independent Sage since October 2020. @Kit_Yates_Maths on twitter Books - Math(s) of Life and Death How to Expect the Unexpected Get them here: https://tinyurl.com/37rx2yuv He/Him
@marynmck.bsky.social
Journalist. Contributing Ed at Scientific American. Senior Fellow at Emory Univ's Center for the Study of Human Health. Books: BIG CHICKEN, SUPERBUG, BEATING BACK THE DEVIL. All my stories at https://authory.com/marynmckenna. DMs don't work, don't know why
@physiosforme.bsky.social
A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME Find out more at physiosforme.com
@batemanhornecenter.bsky.social
The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
@rorpreston.bsky.social
Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions 💙 #MECFS #LongCovid #IACC #PAIS 📍 https://crunchme.org/
@nikosuvisto.bsky.social
Life on hold by severe #MECFS, currently 99% bedbound 🛌 Documenting my life like it is now, advocacy through photography 📷 📍Finland https://www.aquietstorm.me
@rfh1955.bsky.social
ME/CFS archive, especially RFH 1955. For education, not profit. Relocated from Twitter. Researched since 2011 by @continuitytweets.bsky.social & @ciaranj_farrell. https://rfh1955.blogspot.com/
@juliadoubleday.bsky.social
Writer of The Gauntlet, about COVID and public health. Read: thegauntlet.news Subscribe: thegauntlet.news/subscribe
@robbielane87.bsky.social
Just a dude with ADHD and severe ME/CFS with a sprinkle of fibromyalgia and a tic disorder.. and and pinch of DiD.. Trying to get by one day at a time 🖤
@paulaknight.bsky.social
Author, illustrator, comics memoir THE FACTS OF LIFE (Myriad) Kidlit Books x3 Writing illustration comics poetry photography Disabled nonambulatory bedbased 6yr #pwME No DMs pls https://linktr.ee/paulajknight https://ko-fi.com/bedscape She/Her
@amandabennett.bsky.social
Usually up mountains, sidetracked by long covid since Dec 2020. Now mostly housebound with cardiac issues.
@hildabast.bsky.social
Scientist (PhD; she/her), writer, cartoonist. Blogging & Newsletter: Living With Evidence https://hildabastian.wordpress.com/ Mastodon enthusiast: @hildabast@mastodon.online
@meresearchuk.bsky.social
ME Research UK is a charity which funds scientific (biomedical) investigation into the causes, consequences and treatment of ME/CFS (charity number SC036942)
@adambienkov.bsky.social
Editor of BylineTimes.com Lobby journalist in the House of Commons. 📩Adam@bylinetimes.com Subscribe to my Substack ⬇️ https://www.adambienkov.co.uk
@tenaciousmumma.bsky.social
Mum & carer of Sophia, bedbound with very severe ME. Constantly searching for answers and a way out of the abyss. #lymedisease #severeME #POTS #chronicpain #allodynia #vertigo
@neurologistmom.bsky.social
A neurologist, M.D., mother of a 16-year-old with #NeuroSjogrens #AutoimmuneEncephalopathy triggered by SARS-CoV-2 ⚠️ Occasionally blocks energy drains. 📍Seattle, WA
@handle.invalid
Multipurpose nerd. Engineering manager currently waylaid by a complex illness. On a mission to watch every Katharine Hepburn movie. 🏳️🌈 they (🇬🇧), elle (🇫🇷) Currently residing in Portland OR. Always a Mainer. Blog at my username!
@coldon1983.bsky.social
Aberdeen fan. Passionate about an independent Scotland. SNP member. Live by the sea and a Loch. ME for 11 years #pwME #rejoin #FBPE 🏴
@thrivingplanet.bsky.social
Was: Facilitation & organisational culture nerd for do-gooders, climate & sustainability activist. Ultra healthy, athletic, MTB / ski / mountaineering / outdoors. Everything on pause: Long Covid is brutal. Lancaster, North West England (Plague Island). ⓥ
@verhac.bsky.social
ME/CFS, Long Covid & PAIS | science & physiotherapy | #SaubereLuft #CleanAir | 📍Vienna
@claguenjc36.bsky.social
Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise incl CV/fatigue/mental health/ME/Longcovid/EDI/all views my own she/her
@timothysnyder.bsky.social
Levin Professor of History at Yale. Author of "On Freedom," "On Tyranny," with 20 new lessons on Ukraine, "Our Malady," "Road to Unfreedom," "Black Earth," and "Bloodlands"
@katiamek.bsky.social
26. Former greek Architecture student and 3D artist dealing with severe #LongCovid and #SevereME since 2021. . inst: k_aotic https://linktr.ee/katiamek
@dragonflydreams-za.bsky.social
Diagnosed with #MyalgicEncephalomyelitis in 1990. Bed bound since 2017. Design personalized gifts & ME awareness t-shirts, etc. online. www.zazzle.com/store/dragonfliesanddreams. Typing is hard so not very active on social media. Johannesburg, South Africa
@eleanorsews.bsky.social
Retired lecturer/therapist. Interested in politics, music, culture, science, languages and disability-woke AF I’ve been in the #ME owners club for decades 👩🏼🦼➡️ Angry but peaceful. She/her Uninvited DMs = Instant Block Maker of #FanningTheFlames cartoons
@tessamunt.bsky.social
LibDem MP for Wells and Mendip Hills. Passionate to serve my home area with energy, experience, and deep care for people. tessa.munt.mp@parliament.uk
@scienceforme.bsky.social
We are an independent, patient-led, international discussion forum (www.s4me.info) for people with ME/CFS and the carers, clinicians, scientists and advocates who support us. This account is maintained on a part-time basis by patients.
@mecfsnanoneedle.bsky.social
Severe #MECFS Patient Bedridden. No energy to speak. #MECFSDiagnosticBiomarkers Drug companies need a #MECFS and #LongCovid diagnostic blood test for successful clinical trials. https://mecfsdiagnosticbiomarkers.substack.com/
@drjogreer.bsky.social
Mum, Carer, Myalgic Encephalomyelitis (ME) Advocate, Educational Psychologist
@carolecadwalla.bsky.social
Ex-Guardian & Observer journalist till I got replaced by Nick Clegg. Fighting the Broligarchy since 2016. Please sign up to my (free!) newsletter: https://open.substack.com/pub/broligarchy
@angierasmussen.bsky.social
Virologist. PI at VIDO, University of Saskatchewan. Co-EiC of Vaccine. 🇺🇸 in 🇨🇦. Emerging viruses, pathogenesis, zoonosis, host responses, dogs, football, off-color language. Opinions my own.
@martinmckee.bsky.social
Prof of European Public Health LSHTM Co-Director European Observatory on Health Systems & Policy Member Independent SAGE Past President BMA & European Public Health Association Committed to 🇬🇧 rejoining 🇪🇺 #academicsky
@chrischirp.bsky.social
Prof Operational Research , @UCL_CORU, passionate about health care, women in STEMs, defending liberal democracy (!). Member of @independentsage, posts personal.
@independentsage.bsky.social
An independent group of scientists providing transparent advice during the COVID crisis.
@ravihvj.bsky.social
Post-Covid ME/CFS since March 2021. Before then, a life I loved. Stanford History | 2021 Schwarzman Scholar
@angryhacademic.bsky.social
#LongCovid Scientific Consultant PhD Nutrition & Metabolism Hon Research Fellow, Lund Uni Posts: nutrition ▪ health ▪ all-things-science ▪ activism ▪ fun facts ▪ #PostVac Donations: https://ko-fi.com/drsmash Facebook: https://www.facebook.com/LongCovidSC
@exceedhergrasp1.bsky.social
Scientific Director, #MEAction Stanford Med Université de Montréal TIME100 Health 2024 #ME, #EDS, #POTS, #LongCOVID Views my own exceedhergrasp1 on Twitter
@naomidharvey.bsky.social
Zoologist & veterinary research. She/her. 22yrs with #MEcfs Pro-vax but vaccine injured. Life on pause due to moderate/severe ME/CFS ♿️ Patient Expert in ME/CFS, POTS and syndromic Long Covid. Please excuse my typos.
@kirsties.bsky.social
UK #pwME #pwLC #MECFS #LongCovid #PEM (post-exertional malaise) as well as #Politics and other related chat. I use lists to manage my chats here. Feel free to use them or ask to be added https://writingandme.com/
@alexisme.bsky.social
Consultant in Health Protection, FFPH (2020) MPH MBBS BSc | Severe ME, Long Covid and POTS patient | Global health Most active on IG stories: https://www.instagram.com/alexis___me/
@putrinolab.bsky.social
@meactnet.bsky.social
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet #pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
@emmagl.bsky.social
Co-founder #ThereForME | Calling for an NHS that's there for Long Covid & ME | https://www.thereforme.uk/ Linguist, DELTA-qualified English 2nd lang teacher | https://hiveofactivities.wordpress.com Design | https://emmarubystudio.com/ She / her
@peterstefanovic.bsky.social
Lawyer, Filmmaker, Big Issue top 100 Changemaker 2024, CEO CAMPAIGN FOR SOCIAL JUSTICE https://www.cfsj.co.uk/
@broadwaybabyto.bsky.social
Disabled & chronically ill writer. Former theatre critic. Clean air is a human right & vulnerable people aren’t expendable. Covid is airborne 😷 https://www.disabledginger.com A redheaded snippet who loves Sondheim. Once fainted into Hugh Jackman.
@cabruce.bsky.social
Previously a psychotherapist. Bedridden #ME 32years Daughter severe ME, eldest son MS. I like art, nature, books, people, music, poetry and podcasts!