Physios For ME
A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME
Find out more at physiosforme.com
@waldmeer.bsky.social
ME/CFS | Medizin | Wissenschaft Website: https://bit.ly/waldmeer Auch unter: @waldpol.bsky.social
@emec.bsky.social
Advocacy organization for ME/CFS patients and their carers in Europe
@batemanhornecenter.bsky.social
The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
@drjogreer.bsky.social
Mum, Carer, Myalgic Encephalomyelitis (ME) Advocate, Educational Psychologist
@wanderingsally.bsky.social
Sally used to wander and wander... now merely existing in a life on hold. DoB. 330ppm Living on unceded Ngunnawal & Ngambri land.
@ahandvanish.bsky.social
Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
@amymooney.bsky.social
Occupational therapist, advocate, and caregiver dedicated to supporting individuals with chronic complex conditions. Offering therapeutic care for those affected by #MECFS, #LongCOVID, #POTS, #EDS, and related conditions. http://www.OT4ME.com
@neurologistmom.bsky.social
A neurologist, M.D., mother of a 16-year-old with #NeuroSjogrens #AutoimmuneEncephalopathy triggered by SARS-CoV-2 ⚠️ Occasionally blocks energy drains. 📍Seattle, WA
@remediescounseling.bsky.social
Remedies Counseling: Counselor only for people living w chronic illness - #MEcfs, #LongCOVID, vx injury, MCS/ES, #Lyme, #HIV, etc. https://remediescounseling.com/ I am living w MEcfs and HIV. Competed 3x at triathlon world champs.
@meactnet.bsky.social
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet #pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
@erictopol.bsky.social
physician-scientist, author, editor https://www.scripps.edu/faculty/topol/ Ground Truths https://erictopol.substack.com SUPER AGERS https://www.simonandschuster.com/books/Super-Agers/Eric-Topol/9781668067666
@mhornig.bsky.social
Translational MD-scientist, mom, 🎶 | Bklyn born + bred Pathogen/microbe-host interactions + 🧠outcomes across the life course | gut-immune-🧠 axis #ASD #ADHD #PANS/#PANDAS #OCD affective disorders/#TRD Alzheimer’s #MECFS #LongCOVID All posts = my views
@miriametucker.bsky.social
Writer/journalist specializing in medicine/health. Living with type 1 diabetes since 1973.
@swastrosarah.bsky.social
Speaking up for everyone affected by severe/very severe #ME. Medical science has everything to learn about human biology from the post infection disease ME. #MEKills backstory https://x.com/swastrosarah?lang=en-GB
@profmarkfaghy.bsky.social
Professor of Clinical Exercise Science - Clinical Exercise Physiologist - Researcher in #LongCOVID - Nature Research Award Winner 2024 - Derby UK
@andrewg76201347.bsky.social
ME/CFS, POTS, MCAS, lupus, Hashimoto’s. Patient & carer. Disabled scientist. Female - using fake name bc I post about son's illness. Location: Australia
@janetdafoe.bsky.social
ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
@allihawes.bsky.social
Head of School for Primary Care, working with Training Hubs in South East QN SCPHN (HV) PFHEA Interests: all things education, training and leadership/culture/OD #LGBTQIA #Ally #GeneralPractice #PCNs #PublicHealth
@julesahouston.bsky.social
Body malfunctioning since 1998 #MECFS #PoTS #MCAS #hypermobility & other delights. I'm a #LongCovid #LongCovidKids and #Pans #Pandas ally. Here to make connections old & new. #CovidIsNotOver #CleanAirForAll #MasksInHealthcare #GreatestMEdicalScandal
@mecfsskeptic.bsky.social
Exploring the history of psychosomatic medicine and research on myalgic encefalomyelitis/chronic fatigue syndrome (ME/CFS). https://mecfsskeptic.com/
@domsalisbury.bsky.social
Ex-atmosphere/ocean scientist. Very ill with M.E #pwME. Patient advocate (when able). Interested in how we live. Open-minded, but always sceptical. Particular interest in calling out shoddy research and bad practice. [UK] https://domsalisbury.github.io
@simonmcg.bsky.social
Sometimes try to explain and comment on ME researchh, or even contribute to it. And I advocate for more and better research.
@naomiwhitt.bsky.social
Writing is my voice from a hidden world. Published in The Daily Telegraph and Open Democracy. Now focusing on my own website. www.alifehidden.com
@me-cfs.bsky.social
Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak. I care. My ME/CFS News Aggregator: @me-cfs.mastodon.social.ap.brid.gy Ⓐ💚, (FR/DE/EN, but posts in english) Clinging onto the ledge above the abyss.
@cyruxime.bsky.social
Energetically compromised (bedridden) by severe #MECFS. All systems operating at minimum capacity & overloaded. In a previous life: comp sci x math, powerlifting. #LongCovid ally.
@wilhelminaj.bsky.social
Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
@strangerandstranger.net
Author of "stranger and stranger”, letter writer, advocate and fundraiser for biomedical ME/CFS research.
@drdanielloy.bsky.social
Ehemann, Jurist. #MECFS. Team #SIGNforMECFS. Team #GOfundMECFS. One of the #MillionsMissing.
@abrokenbattery.bsky.social
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos. https://linktr.ee/abrokenbattery
@tilmanandris.bsky.social
Philosophy graduate | former science event organiser | former performance artist | ‘former’ and ‘ex’ at most of everything due to #MEcfs
@anilvanderzee.bsky.social
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS #art2cureME #pwme #millionsmissing
@sabinehermisson.bsky.social
PD Dr. (religion, empirical education research) mother of Mila who suffers from very severe ME/CFS (Bell 0) https://milaandmecfs.files.wordpress.com/2022/05/mila-spiegel.pdf Vienna, Austria #CleanAir
@kglesliephysio.bsky.social
Neurological physiotherapist. Co-founder Physios for ME. PhD student @ Liverpool university
@emmagl.bsky.social
Co-founder #ThereForME | Calling for an NHS that's there for Long Covid & ME | https://www.thereforme.uk/ Linguist, DELTA-qualified English 2nd lang teacher | https://hiveofactivities.wordpress.com Design | https://emmarubystudio.com/ She / her
@longcovidsupport.bsky.social
UK Charity Keeping people with #LongCovid at the centre • Support • Research • Advocacy • Education • #ResearchLongCovid #TreatLongCovid #CureLongCovid www.longcovid.org https://linktr.ee/longcovidsupport 📧info@longcovid.org
@longcovidadvoc.com
A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time... https://www.longcovidadvoc.com/ 🛍️ https://longcovidadvoc.shop/
@aaronca11.bsky.social
Billboard campaign/fundraiser here https://www.notrecovereduk.org
@longcovidkids.bsky.social
UK-based international charity supporting & advocating for children & young people with #LongCovid & related conditions. #LongCovidKids #LongCovid #PaediatricLongCovid #LongCovidAwareness
@binitakane.bsky.social
Long COVID/ME interested lung doctor | Campaigner for race equality, clean air & patient voice | Independent SAGE | Co-Founder South Asian Heritage Month YouTube: @LCCWYCD Enquiries: info@thelongcovidclinic.co.uk Linktree: https://linktr.ee/binitakane
@patientsafetylearning.org
Patient Safety Learning is a charity and independent voice for improving patient safety. 🔗Our website: https://www.patientsafetylearning.org/ 🔗the hub, our platform to share learning for patient safety: https://www.pslhub.org/
@thereforme.bsky.social
Calling for an NHS that's there for Long Covid & Myalgic Encephalomyelitis (ME) | www.thereforme.uk
@karenlhargrave.bsky.social
Co-founder #ThereForME | Calling for an NHS that’s there for ME & Long Covid | www.thereforme.uk Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
@edyong209.bsky.social
Writer, journalist. Science, health. Pandemics, animals. Birder, photographer. Many words, some awards. AN IMMENSE WORLD, I CONTAIN MULTITUDES. Married to Liz Neeley, parent to Typo. he/him 📷 Canon R6mkii + RF 800mm Edyong.me
@cabruce.bsky.social
Previously a psychotherapist. Bedridden #ME 32years Daughter severe ME, eldest son MS. I like art, nature, books, people, music, poetry and podcasts!
@putrinolab.bsky.social