Kitty Kayser
22. ME/CFS and POTS since 2010, moderate since 2023. hEDS and co. she/her. 🧡🤍🩷
@rarediseaseoregon.bsky.social
Social media presence of the patient-led, patient-centered, #CripCoalition working for a Rare Disease Advisory Council in Oregon Pro-Trans, Pro-BIPOC, Forever. Links: taplink.cc/rarediseaseoregon #CripTheVote #DisCo #NEISVoid #NothingAboutUsWithoutUs
@altnps.bsky.social
The official "Resistance" team of U.S. National Park Service. Our website: www.ourparks.org
@neurologistmom.bsky.social
A neurologist, M.D., mother of a 16-year-old with #NeuroSjogrens #AutoimmuneEncephalopathy triggered by SARS-CoV-2 ⚠️ Occasionally blocks energy drains. 📍Seattle, WA
@bennessb.bsky.social
currently: sick / haunted in Western Mass, host of No End In Sight - a podcast about life with chronic illness, creator of #NEISVoid | previously: Stories We Don’t Tell in Toronto | she / her
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 36 years, severe ME 30 years. @IrishMECFSAssoc trustee 28 years 26 publications in peer-reviewed journals Social media: https://me-pedia.org/wiki/Tom_Kindlon
@diatoma.bsky.social
Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de México. #ME #MECFS #POTS #LongCovid
@thesicktimes.bsky.social
A nonprofit news site chronicling the #LongCOVID crisis. Founded by journalists @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social Website: thesicktimes.org Newsletter: thesicktimes.org/newsletter Donate: the-sick-times.fundjournalism.org
@wilhelminaj.bsky.social
Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
@sabrinapoirier.bsky.social
#CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis + #MECFS & #LongCovid #ResearchPartner & #Advocate • Chair of #MedicalEducation Group • #PwME #Disability (Unceded) #Canada https://linktr.ee/sabrinapoiriercanada
@chi.nws-bot.us
Unofficial bot sharing alerts from NWS Chicago IL. This account is not monitored. Contact @wandrme.paxex.aero if needed.
@pdx.nws-bot.us
Unofficial bot sharing alerts from NWS Portland OR. This account is not monitored. Contact @wandrme.paxex.aero if needed.
@altnoaa.bsky.social
Original resistance account for the NOAA. Not official account of NOAA but close enough we can forecast them. Weather geek. Boat driver. Former airman. Weekend redneck. Coffee: black. Go Walz! 🌮
@soundoftheforest.bsky.social
Autistic artist and naturalist. Enjoy the unfiltered wandering of my brain. She/they https://linktr.ee/SoundOfTheForest2
@distaaybled.bsky.social
just a girl navigating being disabled in her 20s and advocating for others♿️ DeafDisabledAutistic, ASL, endo, hEDS + co, ostomate https://linktr.ee/distaaybled?utm_source=linktree_admin_share
@rejayjay.bsky.social
Silly Chicago girl, marketing professional, long covid patient. No DMs unless you donate to the mutual aid I repost. 💜
@broadwaybabyto.bsky.social
Disabled & chronically ill writer. Former theatre critic. Clean air is a human right & vulnerable people aren’t expendable. Covid is airborne 😷 https://www.disabledginger.com A redheaded snippet who loves Sondheim. Once fainted into Hugh Jackman.
@calltoactivism.bsky.social
Founded to stand up to Trump and the GOP. Legal analysis & news the media is missing.
@vvictormanuel.bsky.social
that (formerly) homeless trans kid. 26. queer. aspec. german. latino. charrúa. jewish. disabled. EDS & co. ADHD & autism. he/ him. 💉 7.11.17 | 🔪 1.3.19 from the river to the sea 🇵🇸🇵🇸
@leeram.bsky.social
The true north is indeed strong and free. Dabble in many art forms when able. #HSP #ME/CFS, #goldendoodlemama
@emilyrj.bsky.social
Digital journalism. Design, news/book edits, linguistics, data, tech. Medical + academic research. Disability in news, media and accessibility design consults. @emily_rj on Twitter #CripTheVote #Iowa ♿️🏳️🌈📚
@meactnet.bsky.social
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet #pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
@carriemcginn.bsky.social
Infection-associated chronic illness advocate | Life sidelined by #LongCovid #MECFS #POTS | #PatientPartner | MSc | Mom | She/Her | 🇨🇦 #Canada #Quebec #CovidConscious #StillMasking #MyalgicEncephalomyelitis #pwME #EMSFC #CovidLongue #CovidLong #pwLC
@exceedhergrasp1.bsky.social
Scientific Director, #MEAction Stanford Med Université de Montréal TIME100 Health 2024 #ME, #EDS, #POTS, #LongCOVID Views my own exceedhergrasp1 on Twitter
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: [email protected]