Karen Radenkova

@laradenkova.bsky.social

Artist,partner, mother, keen archaeologist and baker of cakes! Carer for daughter with M.E. for twelve years, housebound for ten of those years.
Based in East of England.

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aidThompsin

@aidthompsin.bsky.social

Discontent Provider // “Aid Thompsin & Other Disappointments” podcast https://www.youtube.com/@aidthompsin

Joanne Harris

@joannechocolat.bsky.social

Writer. Yes, that one. (she/they)

@lifeatthewindow.bsky.social

Disabled. Living with severe M.E. Watching the world from the window while bedbound. Excuse typos etc, sometimes the cognitive bits don’t work. Also posting on endometriosis and a little on mental illness too 🏴󠁧󠁢󠁳󠁣󠁴󠁿

Jeremy Jeffs | photography & documentary

@jeremy-jeffs.bsky.social

Documentary photographer & film maker at Magnetofilms.com, editor/writer at PersonalWork.online Currently working on projects about ME/CFS (I have lived experience), loneliness and men's mental health. https://linktr.ee/jeremyjeffs

Alfie Boe OBE

@alfieboe.bsky.social

Together At Home 🏡 Out Now https://ballandboe.ffm.to/togetherathome

Open Culture

@openculture.bsky.social

A culture and education website that tries to make the web a more intelligent place. Features free courses, movies, audio books, ebooks & thought-provoking daily posts. Find us at: https://www.openculture.com/

Sugar Bean

@sugarbean.bsky.social

Severe ME/CFS, POTS, Raynaud’s, MCAS, MCS slice of life. I just need a place to vent. I’ll probably swear.

Victoria Strauss

@victoriastrauss.com

Adult/YA novelist, fanatical gardener, co-founder of SFWA's publishing industry watchdog group Writer Beware. Casting a small light in a wilderness of writing scams (plus an occasional cat pic) https://writerbeware.blog https://victoriastrauss.com

Douglas Kell

@dbkell.bsky.social

Research Scientist who prefers facts to lies. Focus on Long COVID. Free book: http://osf.io/pnxcs/.

Refugee Action

@refugeeaction.bsky.social

Everyone has a right to safety. Join us to stand with refugees and people seeking asylum. https://www.refugee-action.org.uk/

Illustrator Interrupted

@franceyme.bsky.social

https://amandafrancey.com/ illustrator, amateur photographer and bird telepath. Advocating for myalgic encephalomyelitis #MECFS #LongCovid #ClimateAction

Whitney Dafoe

@whitneydafoe.bsky.social

Severe ME/CFS patient and advocate. Writer, photographer, filmmaker. artist, activist, creative. Bedridden since 2013 sick since 2004. Never. Giving. Up. ✊

Janet Dafoe

@janetdafoe.bsky.social

ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.

SmallholdersUK

@smallholdersuk.bsky.social

All things smallholding; run by Debbie Kingsley @southyeofarm.bsky.social https://smallholdertraining.co.uk/

Peter Frampton

@mrpeterframpton.bsky.social

Kindness is king. Please no DMs. Thanking you kindly. 🤭 Anything other than mrpeterframpton is a fake me!

Daniel Moore

@talmandaniel.bsky.social

Curious & exhausted peace seeker, co-host of Post-Exertional Mayonnaise podcast, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him

Hannah Radenkova

@hannahradenkova.bsky.social

Illustrator and Purveyor of Joyous Nonsense. I also blog about my ME/CFS. She/her/they

Su

@sunshineseeker.bsky.social

Activist at heart. #AuDHD #neurodivergent with #MyalgicE and co-morbid illnesses. [she/her] Hoping and doing my best for a better tomorrow, currently from my bed. ~ Autistin mit ADHS, bettgebunden aufgrund von ME und komorbiden Erkrankungen. [sie/ihr}

Irish ME/CFS Association

@irishmecfsassoc.bsky.social

Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association NB: Posts should not be considered advice Registered Charity Number 20100254 CHY 22039 #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also