Sugar Bean
Severe ME/CFS, POTS, Raynaud’s, MCAS, MCS slice of life.
I just need a place to vent. I’ll probably swear.
@sommrylee.bsky.social
2019-era virus long hauler w/ dysautonomia, mast cell activation syndrome, MECFS. Queer/Trans/Muslim. Neurodivergent af. 🍉 Champaign, IL; OK & NE = 🏠 Was a sommelier before getting sick, so I have basically a grad degree in wine that is now useless to me.
@knighthawk899.bsky.social
30's| 🇺🇸💙Resist|♿Disabled |Movies |Video Games |Meme Maker |Disability Awareness♿ Disabled people's needs are not being met in the US right now. Donate here: https://tinyurl.com/KnightHawk899 https://ko-fi.com/knighthawk889 venmo.com/u/Knighthawk899
@burgermind.bsky.social
ME since 2021 #PwME #mecfs #longcovid #fibro #pots #severeME I live on a lovely little island ( #OrcasIsland #PNW ) pfp: my black cat sleeping with forelegs stretched out
@laradenkova.bsky.social
Artist,partner, mother, keen archaeologist and baker of cakes! Carer for daughter with M.E. for twelve years, housebound for ten of those years. Based in East of England.
@ellecarnitine.bsky.social
immunocompromised • made & kept sick by the state • 🇵🇸🇵🇸🇵🇸
@legendoflala.bsky.social
latrell, lvl 24 autistic elfling bard cozy variety streamer • SAG-AFTRA ♡ art: @fairygardencurio.bsky.social shop: https://ko-fi.com/lala/shop ♡ 🌷 @ourpetalpages.bsky.social 🩵 @thedc3.bsky.social 💻 twitch.tv/legendoflala 💌 [email protected]
@talaattanagra.bsky.social
Here for science, nature, humanism, philosophy, mycology, history, advocacy, Afroasiatic languages, linguistics in general. Former analyst—medically retired by MEcfs. Existentialist. Epicurean. DMV-area forager. SCA, Atlantia. Harvard, GSE. Tinzouline ⵣ♡.
@julesahouston.bsky.social
Body malfunctioning since 1998 #MECFS #PoTS #MCAS #hypermobility & other delights. I'm a #LongCovid #LongCovidKids and #Pans #Pandas ally. Here to make connections old & new. #CovidIsNotOver #CleanAirForAll #MasksInHealthcare #GreatestMEdicalScandal
@medidier.bsky.social
Severe ME after covid infection Feb'22. Young dad. Bedbound. 🛌 #MillionsMissing #pwME #ThereForME #GreatestMEdicalScandal #PEM 🇬🇧🇲🇫🇪🇦🇧🇪
@joeblow604.bsky.social
Living with Myalgic Encephalomyelitis since 2011. Artist, Advocate, Creative Former Electro-Mechanical Prototyper Inclusive #pwME #MECFS #MCAS #POTS #Fibro #LongCovid #Disability #chronicillness #art #artist #painting #oilpainting #digitalart #photography
@iovercomeme.bsky.social
☀️☺️ SARAH 😷🥱😴 (she/her) Severe ME due to LC (2023) ME/CFS (1999 dx 2008) UC/IBD (2002) ADHD (Birth😝)
@thereforme.bsky.social
Calling for an NHS that's there for Long Covid & Myalgic Encephalomyelitis (ME) | www.thereforme.uk
@ednamacnamara.bsky.social
💙 M.E.Carer of son aged 31, ME for 12yrs 💙. RaisingAwareness for #PwME. #Carers #LCovid #greatestMEdicalscandal X Edna, M.E.Advocate 🇨🇮 https://www.irishexaminer.com/news/arid-40218716.html http://www.idonate.ie/aMothersWalkforMECFSresearch
@coldon1983.bsky.social
Aberdeen fan. Passionate about an independent Scotland. SNP member. Live by the sea and a Loch. ME for 11 years #pwME #rejoin #FBPE 🏴
@lauravictorine.bsky.social
Former medical doctor | PhD | Living with moderate/severe Myalgic Encephalomyelitis (ME) | Dutch 🇳🇱 | Cat mom of two | #pwME #myalgicencephalomyelitis #myalgicE
@maosbot.bsky.social
Parent, spouse, Australian, Professor of Machine Learning in Oxford. Bayesian ML, Long Covid, trans rights, photos of dog, AI must be good for humans, https://www.robots.ox.ac.uk/~mosb
@melindaiscomplex.bsky.social
My body has given up but I haven't... ME/CFS Patient Leader & Complex-Chronic Disease Advocate (on hiatus). Co-founder #MEAction Maryland. Bed-tethered disabled by severe ME & LC & comorbids. Orioles/Ravens/Caps fan. She/her
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 36 years, severe ME 30 years. @IrishMECFSAssoc trustee 28 years 26 publications in peer-reviewed journals Social media: https://me-pedia.org/wiki/Tom_Kindlon
@julierehmeyer.bsky.social
Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. I mostly write about complex chronic illness and math. Bylines in NYT, WashPost, Discover, Wired, Slate, Stat News, Science News, lots more. She/her.
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: [email protected]