UniteToFight
LongCovid & ME/CFS conference project. We’re a small group of affected people living with LC & ME/CFS, alongside dedicated supporters.
#UniteToFight2024
www.youtube.com/@unitetofight2024
@profesterman.bsky.social
Epidemiologist Ex-WHO "It is more fun to talk with someone who doesn't use long, difficult words, but rather short easy words". 🧸 #UniSA #EpiSky #Epidemiology Opinions are my own
@thereforme.bsky.social
Calling for an NHS that's there for Long Covid & Myalgic Encephalomyelitis (ME) | www.thereforme.uk
@lygianavarro.com
lygianavarro.com editorial director @discojourno.bsky.social indie journalist. editor. reporter. producer (ES & EN) cover: Latine, LGBTQ+, health stories +more #DisabilityJustice. disabled. queer. 4yrs #LongCovid. 12 w #ME. imm in Tkaronto Signal: Lygia.65
@danwyke.bsky.social
M.E. inactivist, person-centred counsellor, recovering poet (Rack & Waterloo Press)
@sabrinapoirier.bsky.social
#CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis + #MECFS & #LongCovid #ResearchPartner & #Advocate • Chair of #MedicalEducation Group • #PwME #Disability (Unceded) #Canada https://linktr.ee/sabrinapoiriercanada
@thephysicsgirl.bsky.social
Lame puns and #longcovid. Maybe some science here and there.
@weibsbild.bsky.social
WasmitMenschen. Ostgewächs. Darss-Fan. Intro. Getrennterziehende TeenieBegleitung. Heiter-melancholisch. BGE. Nordlicht. Online seit CI$ 1995. Folgen≠mögen. Mildes #MEcfs seit 08/2022. #TeamVernunft. #TeamScience. she/her. Manchmal geht nur🫂 oder 🫶.
@thisistheillme.bsky.social
🇬🇧: Severe ME & long covid 🇳🇱: Auteur van 'De achterblijvers' (Uitgeverij De Geus) 🏳️🌈
@karenlhargrave.bsky.social
Co-founder #ThereForME | Calling for an NHS that’s there for ME & Long Covid | www.thereforme.uk Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
@atranscendedman.bsky.social
Transparent to the transcendent. Wrote a book on Long Covid. - https://jondouglas.dev/longhaul/ Extraordinary claims require extraordinary evidence. - Sagan
@anilvanderzee.bsky.social
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS #art2cureME #pwme #millionsmissing
@phillyphile215.bsky.social
Just a Philly girl, livin' in a lonely world…and a Luddite learning (now) to BlueSky. #LongCovid since March 2020 || Lawyer on Pause
@lauramiers.bsky.social
Chronically ill, LongCovid since 2020. Public health advocate and lived experience expert. Ex-Texan. Medicine, languages, Sociology, & law. Global citizen & polyglot.
@harmonicsoul.bsky.social
X Refugee 11/8/24. California Native. ME/CFS and Long Covid Community. Looking to reconnect with other X Refugees in chronic illness community. Please say hello and give me a follow.
@abrokenbattery.bsky.social
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos. https://linktr.ee/abrokenbattery
@whitneydafoe.bsky.social
Severe ME/CFS patient and advocate. Writer, photographer, filmmaker. artist, activist, creative. Bedridden since 2013 sick since 2004. Never. Giving. Up. ✊
@broadwaybabyto.bsky.social
Disabled & chronically ill writer. Former theatre critic. Clean air is a human right & vulnerable people aren’t expendable. Covid is airborne 😷 https://www.disabledginger.com A redheaded snippet who loves Sondheim. Once fainted into Hugh Jackman.
@neurologistmom.bsky.social
A neurologist, M.D., mother of a 16-year-old with #NeuroSjogrens #AutoimmuneEncephalopathy triggered by SARS-CoV-2 ⚠️ Occasionally blocks energy drains. 📍Seattle, WA
@frauxausnrw.bsky.social
MomOf2 mit #LongCovid since 08.22 #noafd #noCovid #UniteToFight2024
@lightupthenight4me.bsky.social
Offizieller Account ME/CFS Awareness, Aufklärung und ein bisschen mehr https://lightupthenight4me.wixsite.com/website
@chrissiep.bsky.social
Dog-, Book-, Sea-, Camping-, Movie-, Music-, Yoga-, Nature, Espresso-Lover. Active life stopped by Fluoroquinolones. #floxed, #FQAD, #MECFS, #MCAS, #SFN, #CCI, #LongCovid.
@ulrike1985.bsky.social
Aus gesundheitlichen Gründen vom Leben suspendiert: Long-Covid! fight for our right since 2021 Stay with ME/CFS, Post-Vac! Specialist in health and social #AfDnee SPD AG Selbst Aktiv Hessen Süd #WiesbadenerErklärung
@raoullucas.bsky.social
26 I ME/CFS seit 2021 I WING Universität Augsburg I DE II EN https://www.mecfs.de/was-ist-me-cfs/
@jenbrea.bsky.social
@rsandra266.bsky.social
M.Sc.Biosystems Engineering #neurobiology #Nature #teaching 🍂 | life pauses due to #LongCovid #MECFS #PEM #MCAS #SFN | team member of @Not_Recovered
@ojohnstoni.bsky.social
Psychology, research, mother of three, fighting for my husband with #LongCovid, disillusioned yet cheerful, haven't lost humour #MECFS #maskup #ParentsForFuture
@mareksjf.bsky.social
• Scientist ‖ PhD mathematical physics (not MD) ‖ Dr. rer. nat. • Interests: Medicine ‖ History ‖ Global Politics • #MECFS ➡️ http://mecfs.de/was-ist-me • EN ‖ PL ‖ DE
@drdanielloy.bsky.social
Ehemann, Jurist. #MECFS. Team #SIGNforMECFS. Team #GOfundMECFS. One of the #MillionsMissing.
@fstevenchalmers.bsky.social
Retired person, was in tech industry for 37 years Self and family got multiple chemical sensitivity from a sick house incident in the mid 1990s Heretic, with a heretical research hypothesis on the nature of MCS and a dozen other complex chronic illnesses
@amyboylanwrites.bsky.social
Freelance #copywriter. PhD Geology. Life on ⏸ 1st 🌊 #LongCovid #PoTS #MCAS #LongCovidKids #CovidIsAirborne 😷
@emilyesfraser.bsky.social
Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
@zey.bsky.social
It is said that there may be seeming disorder and yet no real disorder at all
@diatoma.bsky.social
Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de México. #ME #MECFS #POTS
@filowenstein.bsky.social
writer + journalist covering health justice, wellness culture, LGBTQ+ stuff + more... https://www.fionalowenstein.com/ The Long COVID Survival Guide: https://theexperimentpublishing.com/catalogs/fall-2022/long-covid-survival-guide/ they/them
@janboehm.bsky.social
🇪🇺 // JOIN ME ON MASTODON: https://edi.social/@janboehm // @ZDF Magazin Royale 🦠/ fest & flauschig @Spotify / hotline +49 30 959997666 / ❤️✊️😉
@spichaksimon.bsky.social
Neuroscience MSc 🦔 dad Founded Resolvve Inc to make therapy affordable for students Science, health and tech journalist published in Being Patient, NYT, The Guardian's Scientific Observer, The Sick Times, and The Daily Beast
@lungendoc.bsky.social
Pneumologe 🫁, Internist, Intensivmediziner, selbsternannter Beschützer der Lungengesundheit; private Posts; Klinische Forschung @ https://www.researchgate.net/profile/Arschang-Valipour
@sammiemc.bsky.social
Long Covid Kids Founder & CEO Hoping to be on the right side of history. ♿️#LongCovid ✳️#CleanAir 🙋🏻♀️Campaigner 🧠🧡🫀#LongCovidKids 🌊#ColdWater 🧜🏻♀️#Swimming 🧘🏻#Pilates coach - #Pacing since 2020 🦠 😷 🫅🏼#CoronationChampion 💥#Volunteer
@ixabil.bsky.social
LongCovid. My child also has long covid. 💔 we both have the PEM, POTS and cognitive issues-sub (ME..) Love animals, science, nature, history. Once an active girl; swimming and hiking. Have 2 lady-cats. linktr.ee/ixabil
@drrebeccaryan.bsky.social
Love everything Gut Brain Axis related. Gastroenterologist POTS, MCAS, hEDS, Long Covid, VCS
@polybiorf.bsky.social
501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
@kurtzermd.bsky.social
Activist doc vs interpersonal violence violence. Med Dir #TraumaInformedCare GYN Northwestern Chicago. Long COVID Mar ‘2020 #AMWA-PATH #DoctorsForAmerica #MomsDemandAction #LongCOVID Doc TIC gynecology sexmedmenopause.nm.org Posts my own & not employer’s
@blomechristine.bsky.social
COVID nerd | Post-COVID & ME/CFS researcher | no MD | http://patient-reported-outcomes.com | Hamburg Center for Health Economics @hche-uhh.bsky.social | derm PROMs | Botschafterin @dagl.bsky.social | DMs open