Tamara | ME/CFS Mama
Just a Mama navigating parenting with a chronic illness.
Mild ME/CFS & IST
Aotearoa, New Zealand.
@tapanuiflu.bsky.social
Myalgic Encephalomyelitis since 1983 Tapanui Flu epidemic | #ME | #PwME | #LongCovid ally | Covid cautious Grandmother | Ex social scientist | Mostly housebound | On welfare Website: tapanuiflu.blog Aotearoa | New Zealand
@d2p.bsky.social
Paediatric Radiologist, Aotearoa New Zealand Following more immunologists than radiologists #MECFS #LongCOVID and a bit of #MacDev #iOSDev he/him https://ddp.nz | https://dysimmune.nz
@melindaiscomplex.bsky.social
My body has given up but I haven't... ME/CFS Patient Leader & Complex-Chronic Disease Advocate (on hiatus). Co-founder #MEAction Maryland. Bed-tethered disabled by severe ME & LC & comorbids. Orioles/Ravens/Caps fan. She/her
@katiamek.bsky.social
26. Former greek Architecture student and 3D artist dealing with severe #LongCovid and #SevereME since 2021. . inst: k_aotic https://linktr.ee/katiamek
@alivago.bsky.social
Lover of woods and mountains, botany and dragons, children’s books and much more. 🌳⛰️🥾🦊🌈🧑🏻🏭🪁 Stuck in an uncooperative body, severe Long Covid/ME. #LongCOVID #mecfs #pwme 🇵🇸 🇱🇧
@thereforme.bsky.social
Calling for an NHS that's there for Long Covid & Myalgic Encephalomyelitis (ME) | www.thereforme.uk
@meresearchuk.bsky.social
ME Research UK is a charity which funds scientific (biomedical) investigation into the causes, consequences and treatment of ME/CFS (charity number SC036942)
@spoonfuloflindsay.bsky.social
chronic illness life & disability lit 📚🪴🌊🐕 honoring the hard & finding joy along the way migraine | SF neuropathy | POTS | ME/CFS | long COVID | MCAS | ambulatory ♿
@normalness.bsky.social
We're all normal to ourselves. I write. I hate hustle. I love shiny objects. Can't even influence an ant. Anthropology & sociology graduate. Author of books. Spoonie. And much more. www.normalness.com
@medays.bsky.social
(She/her) ME, hEDS, adeno ~ surviving being housebound with birds, books, embroidery ~ still masking 😷 #pwME #MillionsMissing
@carlywelton.bsky.social
She/her. Mostly talking about life housebound by chronic illness (when I have enough energy to). #pwME
@lauraillustrated.bsky.social
illustrator & motion designer, memes, disability justice and climate | she/her | https://laurabeckman.com
@johnvsjonvsme.bsky.social
#JohnVsJonVsME campaign to get John Oliver or Jon Stewart to bring the awful history of #MyalgicEncephelomyelitis #GreatestMEdicalScandal to light JohnVsJon.com
@nlizaki.bsky.social
#MEActionNetwork health activist. Patient, project manager, translator & polyglot. ✊🏾 #Stoic #WoC @NLizaki & @SaveLizNevra on Twitter. #MyalgicEncephalomyelitis since 6. 28 now. #PMDD #hEDS #POTS #MCAS #LongCovid
@sickandtiredaus.bsky.social
http://heymp.com.au/sickandtired http://change.org/LongCOVIDInquiry http://www.instagram.com/sickandtiredaus https://x.com/JordanCrane2?t=qsba4zmDGLFUas_tcP_pnw&s=09 https://www.facebook.com/share/19nSvtGPNz/
@oonaghcousins.bsky.social
@quellaisstilldizzy.bsky.social
Chronic Illnese and Disability education and advocacy. 🐙 Severe MECFS warrior with Long Covid, Dysautonomia (POTs and low blood volume), Fibromyalgia, Endometriosis, Depression.🐙 Medical researcher + Medschool Dropout 🐙
@franoflittlespoons.bsky.social
(she/they) Chronically ill, ridiculous. I like more things than I can list here. Forever looking for small wonders.
@alexisme.bsky.social
Consultant in Health Protection, FFPH (2020) MPH MBBS BSc | Severe ME, Long Covid and POTS patient | Global health Most active on IG stories: https://www.instagram.com/alexis___me/
@treesofreverie.bsky.social
they/them 🏳️⚧️ queer, trans non-binary | disabled. neurodivergent. chronic illnesses. | artist. reader. writer. | cats: Charlie & Lola | Ex-Bookseller 7yrs. Housebound and mostly bedbound with Severe ME. #MECFS #MillionsMissing #pwME
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: [email protected]