Quella π
Chronic Illnese and Disability education and advocacy. π
Severe MECFS warrior with Long Covid, Dysautonomia (POTs and low blood volume), Fibromyalgia, Endometriosis, Depression.π
Medical researcher + Medschool Dropout π
@batemanhornecenter.bsky.social
The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
@kaufmanmd.bsky.social
Physician/Internist focused on complex illness including Long Covid, ME/CFS, dysautonomia/POTS, MCAS, connective tissue disorder, and of course SIBO/Leaky Gut. And sadly, the ongoing coup.
@polybiorf.bsky.social
501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
@dsavannah.bsky.social
~ Life stolen by MEcfs-hEDS-fibro-POTS-&c; FT sick since 12/2014 ~ #LiveInBedButIAintDead ~ When brain & body behave: Chronic Illness Advocate ~ Discworldian, Browncoat ~π±(x3)π’ππ»π·πΈππΌοΈ ~ she / her ~ Love Is Love β€οΈππ§‘ππ©΅πππ€π€π©Άπ€π©· https://linktr.ee/thedsavannah
@virusesimmunity.bsky.social
We study antiviral immunity and viral disease pathogenesis. We are developing mucosal vaccine strategies to prevent infection and transmission. #COVID19 #longCOVID #vaccines
@daltmann.bsky.social
Professor of Immunology, Imperial College London. Editor of OUP Oxford Open Immunology. Co-author - Penguin Long Covid Handbook. Discusses: Covid-19, Long Covid, T cells, immunogenetics and HLA, respiratory infection, science policy, arboviruses, C19th lit
@wilhelminaj.bsky.social
Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
@ashleyhultman.bsky.social
#TeachMETreatME #hEDS #MyalgicEncephalomyelitis #MESpine #CCI #POTS #longCovid #AuDHD #endo β’ Capitol Hill, AFL-CIO, and AFT alum β’ She/her
@cgatist.bsky.social
Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
@mayalongcovid.bsky.social
RWJF ClinicalScholars Alum, School Nurse, Scientific Diver/ocean lover bedridden by severe #LongCovid 3/2020 & #MECFS, #POTS, #MCAS #hEDS #Chiari. #healthequity
@friendlycovid19.bsky.social
Novel coronavirus looking for friends. Always evolving. Pronouns it/its.
@riemerville.bsky.social
Salty | #LongCovid,#POTS & #ME | Books, Music, Food, Art #ATXRE | Excuse my typos We are living in a choose-your-own dystopian novel
@vashetc.bsky.social
ph.d. perpetually horizontal. writer, researcher. βπ½ v ash e t c [dot] com β vashetc.com profile ID: brown person poses in wheelchair in front of a wall of pink paperflowers. banner: lake & mntn @ sunset. Thereβs a silhouette of a family in the water
@shelleyjules.bsky.social
MECFS from the long before times but not diagnosed for 23 yearsβ¦LC since 2020 - interested in advancing patient led research (Renegade Research & Remission Biome) & all avenues that lead to effective treatments for everyone. She/her. Love is my language. π
@yogafogie.bsky.social
DMV native. COVID long hauler. Patient-Led Research Collaborative.
@lizworthey.bsky.social
#AssociateProf #CompBio #Omics #WomenInScience #LGBTQ+Ally #Scottish #PrecisionMedicine #HealthCare #MDx #ME/CFS #RareDisease #Informatics #SciFiNerd #LongCovidAffected sites.uab.edu/cgds/ she/her
@guusontheinternet.bsky.social
Creative turned activist #NietHersteld - Long Covid since janβ21 βΏοΈ - posts with brain fog, so pls bear with me - eager to learn - posts in π¬π§ & π³π±
@fvrhijn.bsky.social
MD | rheumatology resident #ME due to #LongCovid Nonbinary ππππ | views are mine.
@mareksjf.bsky.social
β’ Scientist β PhD mathematical physics (not MD) β Dr. rer. nat. β’ Interests: Medicine β History β Global Politics β’ #MECFS β‘οΈ http://mecfs.de/was-ist-me β’ EN β PL β DE
@jannamoen.bsky.social
Postdoctoral scientist studying the neurobiology of #longCOVID in the Iwasaki lab @ Yale. Patient, scientist, advocate. | βΏπ³οΈβπ | she/her My long COVID research newsletter: lcbreakdown.substack.com
@emmiskyten.bsky.social
Sustainability science studies on hold because of POTS + Long covid / suspected ME. Previously interesting, now mostly into resting. Here to connect with other sick people and for science stuff.
@vickyvdtogt.bsky.social
Community organizer | Researcher | Advocate | Director of development at Research-Aid Networks π Author of The Long Covid Symptom Diary, now available in EN, NL & ES! - www.ddxpublishing.com
@cortjohnson.bsky.social
Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
@ezra.zone
creator of longcovidstudies.net, member of the Patient-Led Research Collaborative, and freelancer.
@moppety.bsky.social
Parisienne Buffalonian linguist spoonie mom. http://bcopley.com "The line separating good and evil passes...right through every human heart." -Solzhenitsyn
@weselymd.bsky.social
Husband & Dad. ICU Doc. Vanderbilt. @CIBScenter studies Covid & Long Covid, ICU Survivorship, Dementia, Delirium, PICS. Fighting misinformation. Posts my own. Still learning.
@untonuggan.bsky.social
angry mast cells (HaT and #MCAS) + #POTS + neurodivergent. βΏ queer. white. emperor of typos. brain fog zone β οΈ. they/them πΆ iii'm still masking πΆ working on porting more of my body science infodumps and such to: liminalnest.wordpress.com #NEISvoid
@sabinehermisson.bsky.social
PD Dr. (religion, empirical education research) mother of Mila who suffers from very severe ME/CFS (Bell 0) https://milaandmecfs.files.wordpress.com/2022/05/mila-spiegel.pdf Vienna, Austria #CleanAir
@immunofever.bsky.social
Immunoengineer at MIT BE developing predictive diagnostics. Captivated by #inflammation, #SexDifferences #Lyme, #COVID, #IACI, #IACC and #onehealth. Mom of 2. prev/ PhD in Immunology @Yale; PostDoc @Stanford https://talresearchgroup.mit.edu/
@mervetepephd.bsky.social
PhD Microbiologist // Biomineralization, AMR & Biofilms // @remissionbiome.bsky.social team Defend science, resist ignorance https://twitter.com/mervetepePhD http://mastodon.online/@MerveTepe http://post.news/@/mervetepephd Ankara/New York/Tel Aviv
@legalnomads.com
Once a lawyer, then a travel writer. Now disabled, writing about curiosity, health, & loss. Travel writing, & celiac translation cards: legalnomads.com The best things I read each month: jodiettenberg.substack.com MCAS & health: jodiettenberg.com
@neurostingl.bsky.social
Facharzt fΓΌr Neurologie ME/CFS βͺ Long Covid βͺ Nervenultraschall βͺ ENG/EMG βͺ Hirngesundheit βͺ Telemedizin
@rhymeswithvery.bsky.social
ACT I: Books, bookstores, publishing, the Bay Area, my dog, trees, rocks, crows, large bodies of water. ACT II: #FcktheNIH, post-vaccine syndrome, #ME, other new health disasters, good people, disability justice. ACT III:
@akaemilo.bsky.social
Derailed by #MCAS #hEDS #MEcfs #Dysautonomia #GravesDisease Animals deserve better. Missing Ireland. Writer at ElizabethMilo.com #MaskUp
@carolinechristian.bsky.social
Professor #ssu, writer, mother disabled by #hEDS #MECFS #LC; I write a blog called Frozen in Amber about the science of and lived experience w/ #hEDS #MECFS #LC | chronicallycaroline.com
@dguckenheimer.bsky.social
π₯ Sociologist, writer, feminist, anti-facist, anti-racist, disability justice activist. π³οΈβπ Pronouns: she/they #livingwithableism #resist
@imperfectkira.bsky.social
Sick bish living richly. ME/CFS+ https://imperfectworkingorder.substack.com/
@ellecarnitine.bsky.social
immunocompromised β’ made & kept sick by the state β’ π΅πΈπ΅πΈπ΅πΈ
@mvgutierrezmd.bsky.social
Professor & Chair of Rehab Med at UT Health San Antonio | Mom, runner, #LatinasInMedicine, #Physiatry, #LongCOVID
@brianvastag.sciencemastodon.com.ap.brid.gy
Occasional science reporter at The Washington Post and elsewhere. Disabled by complex chronic post-viral illness. Living on #Kauai #Hawaii. Sometimes [β¦] [bridged from https://sciencemastodon.com/@brianvastag on the fediverse by https://fed.brid.gy/ ]
@diatoma.bsky.social
Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de MΓ©xico. #ME #MECFS #POTS
@betsyladyzhets.bsky.social
editor/co-founder @thesicktimes.bsky.social | journalist covering Long COVID & related crises | she/her/π³οΈβπ email: betsy@thesicktimes.org | signal: betsyladyzhets.25 | https://thesicktimes.org/
@erictopol.bsky.social
physician-scientist, author, editor https://www.scripps.edu/faculty/topol/ Ground Truths https://erictopol.substack.com SUPER AGERS https://www.simonandschuster.com/books/Super-Agers/Eric-Topol/9781668067666
@phicd.bsky.social
Another Australian (Cypriot & Greek) designer existing in Berlin. Been to hell & back thanks to the pandemic. End #prescribedharm #longcovid #MECFS check @sophsoph.psd & @berlin_buyers_club on the gram