Medical Uncertainty
Research project on experiences of medical uncertainty in Fibromyalgia, ME/CFS, Long Covid and Chemobrain. Hosted at @manchstm.bsky.social / University of Manchester, funded by the Wellcome Trust
https://t.ly/CYJ7V
@tadpole99.bsky.social
Tanka editor for Presence https://haikupresence.org/home Writer of haiku, tanka and more http://haikusoup.blogspot.co.uk/ Recently diagnosed with ME/CFS and learning to live with it A bit of a hermit Fascinated by Icelandic volcanoes Retired librarian
@gerbelean.bsky.social
Living with MS and ADHD in the best way I can. Open University student. Interested in HSD, EDS, ME/CFS, Long Covid, neurodiversity, and neuroplasticity. Everything is connected, and that includes our environment and politics.
@thereforme.bsky.social
Calling for an NHS that's there for Long Covid & Myalgic Encephalomyelitis (ME) | www.thereforme.uk
@meactionuk.bsky.social
Our movement fights for recognition, education, and research so that one day all people with ME (myalgic encephalomyelitis) will have access to rapid diagnosis, and compassionate, effective care.
@flissbright.bsky.social
Rehab researcher, speech therapist, Pākehā, mum, wannabe potter. She/her. #academicsky #kikorangi
@emendenhall.bsky.social
Professor, Georgetown SFS, medical anthropologist & guggenheim fellow, writer, editor, mom Preorder my new book! Invisible Illness, https://www.ucpress.edu/books/invisible-illness/hardcover
@cambridgegill.bsky.social
Thanks for dropping by! Interests: justice, humour, art, archaeology & architecture, climate crisis & ecology. All this & more, tho grounded by ME/CFS since 1998. Anti bigotry & exploitation, hence moving here. UK based, UK and USA raised. (She/her).
@nikksinc.bsky.social
Battersea born, now living in Sussex. Freelance editorial manager. LOVE Earl Grey tea, books, The Archers, CPFC and all things ginger. Owned by a collie and a marmalade cat. Pisces: never knowingly decisive. Fav hieroglyph: Eye of Horus
@marapieri.bsky.social
Sociologist • LGBTQ+ health, crip studies and chronic illness • University of Coimbra (Portugal) Centre for Social Studies • she/her
@emwalkerexphys.bsky.social
PhD Candidate at UNSW and NeuRA | Conducting a process evaluation of a CLBP clinical trial | Passionate about complex systems, equity, social and political determinants, qualitative research, underrepresented populations and intersectionality 📚
@danielarbilla.bsky.social
Supporting people with pain, mental health concerns and strength training Mentor and supervisor for clinicians in private practice Host of ‘Honest Health Chats’ on Spotify 🎧
@longcovidphysio.bsky.social
#LongCOVIDPhysio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with #LongCOVID & allies https://bio.site/longcovidphysio
@elisaperego78.bsky.social
#LongCovid | researcher | Covid | health, disability, inequality in present and past | human-environment interactions | big data | medicine history | patient-led research | MA PHD| ≠ MD |
@crunchme.bsky.social
CrunchME is a patient-led organisation, creating the evidence and insight base needed to crunch infection-associated chronic conditions (IACCs), including #MECFS and #LongCovid. 📍 https://crunchme.org/
@longcovidscot.bsky.social
Long Covid Scotland is a charity & action group led by & advocating for people living with Long Covid. https://www.longcovid.scot
@longcovidresource.bsky.social
The Long COVID Resource is dedicated to providing information and resources on Long COVID and summaries of studies. Long COVID Resource: https://longcovidresource.com
@lcawarenessint.bsky.social
*Raising awareness about Long Covid with the Long Covid community International Long Covid Awareness Day=March 15th International Long Covid Awareness Month=March #LongCovid #LongCovidKids #LongCovidAwarenessDay
@malnutritionme.bsky.social
Campaign for improvements in medical care for ME patients with gastrointestinal symptoms. http://25megroup.org
@pillowwriters.bsky.social
Pillow Writers is a free international online writing group for the ME/CFS community. All welcome.
@honingtons.bsky.social
Specialist Physician and Clinical Lead ME/CFS and Fibromyalgia UCLH Long Covid hEDS
@actionforme.bsky.social
Providing support & holistic healthcare services to people of all ages affected by #MECFS
@rorpreston.bsky.social
Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions 💙 #MECFS #LongCovid #IACC #PAIS 📍 https://crunchme.org/
@karenlhargrave.bsky.social
Co-founder #ThereForME | Calling for an NHS that’s there for ME & Long Covid | www.thereforme.uk Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
@meactionscotland.bsky.social
@meresearchuk.bsky.social
ME Research UK is a charity which funds scientific (biomedical) investigation into the causes, consequences and treatment of ME/CFS (charity number SC036942)
@meassociation.bsky.social
A UK registered charity for people with #MECFS and Long Covid (and Post Covid ME/CFS). We inform, educate, raise awareness, fund medical research and campaign for positive change. RPs do not necessarily mean endorsement. www.meassociation.org.uk
@shh-uk.bsky.social
💙UK Registered Charity: 1205685 💙Long COVID doesn’t stop the care - neither do we. 💙Join our 2025 Campaign: #SafeAir4All
@rheumatoidart.bsky.social
A place for the discussion of RA and related conditions
@louisekenward.bsky.social
Writer, Artist, Psychologist MOVING MOUNTAINS PhD candidate at Centre for Place Writing, Manchester Met Uni. Exploring the Romney Marshes & its coastline through post-viral illness. https://louisekenward.substack.com Represented by Portobello Literary
@lowenergylounge.bsky.social
Navigating chronic illness, together. For those who live it and those who want to understand. ME/CFS Awareness First
@cfsresearch.bsky.social
Interested in research into ME/CFS/MECFS, FND and related conditions. https://medium.com/@cfs_research
@longhaulerspodcast.bsky.social
We’re a community of Covid longhaulers who have been brought together by this illness. We share the stories of folks who have been through it, who are going through it, and how they’re surviving it. #LongCovid #CovidIsntOver #CovidIsAirborne #CovidSky
@binman.bsky.social
Bit poorly. Campaigning for ME research and awareness. Music. Sport. Films. Animals. Spurs. Thomas Dolby. Janey.
@neurostingl.bsky.social
Facharzt für Neurologie ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin
@fibroandlupus.bsky.social
A place to create an online support community for Fibromyalgia and Lupus
@mynameisfibro.bsky.social
Our official account. Raising awareness and helping fibromyalgia warriors find the help, support, guidance and advice they need 24 hrs a day worldwide
@marting8177.bsky.social
RAF Veteran Fibro Warrior Everyone is welcome here Mental Health & Suicide Awareness Matters I Support Small Businesses Please be kind and love yourself Your life is so special 💕 Please Follow Your Dreams Sorry, No DMS or Cripto Mwaaah xxxxxxxxxxxx
@loveneverhate.bsky.social
I want our children to have the blessings I have had. I believe in a strong democracy and freedom for all. My family, friends, neighbors, and the American people all believe in these principles. I hope to engage, not enrage. We believe in love, never hate.
@germainehypher.bsky.social
🧵🧶✍🏻🎨📷🌱🐈⬛📚 Author of Crafting A Path Through Illness - exploring creativity while chronically ill. Disabled by M.E & fibromyalgia since childhood. Enabled (in spirit, if not body) by humour & creativity. www.germainehypher.weebly.com
@sophielewis.bsky.social
Sociologist + Qualitative researcher, University of Sydney| Focusing on health, illness and care. Cat lover | women’s football ⚽️
@thrivingplanet.bsky.social
Was: Facilitation & organisational culture nerd for do-gooders, climate & sustainability activist. Ultra healthy, athletic, MTB / ski / mountaineering / outdoors. Everything on pause: Long Covid is brutal. Lancaster, North West England (Plague Island). ⓥ
@lisawiedemann.bsky.social
researcher/lecturer/STS science and technology studies/working on ME/CFS/LongCovid/digital health/type 1 diabetes care/material semiotics
@esmerlize.bsky.social
Neurodivergent I MSW I Thanatologist Esmerlize Photography & Tarot Arts Editor/Self-Publisher of Mom’s Memoirs 8th House Healers Podcast Owner 📷 https://www.esmerlize.com 🔮 https://esmerlizetarot.etsy.com 📖 https://a.co/d/4aSMnQu 🎙️ Wherever you listen
@elliotelephants.bsky.social
Queer, Quaker, Art Therapist In Training, Autistic, Multiply Disabled
@johnmacartney.bsky.social
Marie Curie Associate Professor Sociologist of dying, palliative and end-of-life care, and bereavement. https://warwick.ac.uk/fac/sci/med/staff/jmacartney