Alison Williams
Tanka editor for Presence
https://haikupresence.org/home
Writer of haiku, tanka and more
http://haikusoup.blogspot.co.uk/
Recently diagnosed with ME/CFS and learning to live with it
A bit of a hermit
Fascinated by Icelandic volcanoes
Retired librarian
@med-uncertainty.bsky.social
Research project on experiences of medical uncertainty in Fibromyalgia, ME/CFS, Long Covid and Chemobrain. Hosted at @manchstm.bsky.social / University of Manchester, funded by the Wellcome Trust https://t.ly/CYJ7V
@dkarlbrandt.bsky.social
Haijin. Writes different kinds of short poetry, haiku, haiga, haibun, tanka and fanfiction.
@captuntouchable.bsky.social
Uncle. Space Nerd. He/They. Bisexual. Neurospicy. ME/CFS. ADHD. Autistic maybe? ♿🏳️🌈
@mattkendrick.bsky.social
Writer | editor | teacher | joyful Ninja Turtle | chronically ill Words: Craft Literary, Best Small Fictions, Best Microfiction, Wigleaf Top 50 Website: https://www.mattkendrick.co.uk/ Craft newsletter: https://prattlefogandgravelrap.substack.com/
@cripwriter.bsky.social
27♍♌♌ ⚧️(gender)queer🏳️🌈 ♿sick/mad/fat/crip/AuDHD🌈 🧠 #PluralSky (elysian collective)💭 -🌹rose -🧪Zephyr -🏹Artemis -🌼Virginia -🌻Pandora -💊Apollo -✌pearl 🏴anarchist jews by choice🔯 ✒️emerging poets/CNF writers 📍CA→WA→IN #FreePalestine
@thewestonmale.bsky.social
Multiple non-award winner. Ex-journo and health storyline whisperer with TV soaps. Now working as Senior Fundraising Volunteer for the @MEAssociation.bsky.social (UK) = talking to supporters/creating content here: https://meassociation.org.uk/get-involved/
@alastaircampbell2.bsky.social
Writer, strategist, co-presenter the U.K. No1 podcast The Rest Is Politics … love Britain hate Brexit, loved Twitter loathe Musk n Trump
@rory-stewart.bsky.social
@rorpreston.bsky.social
Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions 💙 #MECFS #LongCovid #IACC #PAIS 📍 https://crunchme.org/
@abrokenbattery.bsky.social
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos. https://linktr.ee/abrokenbattery
@gvnett.bsky.social
ME/CFS Endurer. Still missing and still trying to send gentle day wishes to all the never well warriors.
@swastrosarah.bsky.social
Speaking up for everyone affected by severe/very severe #ME. Medical science has everything to learn about human biology from the post infection disease ME. #MEKills backstory https://x.com/swastrosarah?lang=en-GB
@whitneydafoe.bsky.social
Severe ME/CFS patient and advocate. Writer, photographer, filmmaker. artist, activist, creative. Bedridden since 2013 sick since 2004. Never. Giving. Up. ✊
@turnoftheshrew.bsky.social
Here for the latest research + advocacy for Long Covid, ME/CFS, dysautonomia, connective tissue disorders, etc + disability justice community. Former HCP.
@katealexandra.bsky.social
AuDHD, POTS and MCAS, pro UBI, fan of baseball, women's hockey, reading, learning crochet. I have a body doubling service with weekly zooms - https://www.patreon.com/c/BodyDoublingwithKate. Let me keep you company while you work on your goals!
@karistinalafae.bsky.social
Faerie Godmother 🧚♀️ Xennial Author ✨ I choose kindness unless you don't. ♿ Disabled, AuDHD, Sjogrens, ME/CFS, bedbound, chronic pain, chronic illness 🌈 Queer, bisexual, genderfae, polyamorous 💻 Assistive technology advocate
@melaniewilliams.bsky.social
She/her Energy Limiting Chronic Illness (E.L.C.I.) Loves her/history
@diatoma.bsky.social
Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de México. #ME #MECFS #POTS #LongCovid
@alexisme.bsky.social
Consultant in Health Protection, FFPH (2020) MPH MBBS BSc | Severe ME, Long Covid and POTS patient | Global health Most active on IG stories: https://www.instagram.com/alexis___me/
@chromatowski.bsky.social
This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing. ME ‘05, LC ‘23, many of their friends along the way. Very severe (FUNCAP 0.8), thanks for your patience.
@lauravictorine.bsky.social
Former medical doctor | PhD | Living with moderate/severe Myalgic Encephalomyelitis (ME) | Dutch 🇳🇱 | Cat mom of two | #pwME #myalgicencephalomyelitis #myalgicE
@seastarsal.bsky.social
As a ME/CFS and Long Covid cartoonist, I try to comfort the afflicted and rage against the bad guys. I've had ME/CFS since 1992. cfsgraphics.com
@me-cfs.bsky.social
Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak. I care. My ME/CFS News Aggregator: @me-cfs.mastodon.social.ap.brid.gy Ⓐ💚, (FR/DE/EN, but posts in english) Clinging onto the ledge above the abyss.
@wilhelminaj.bsky.social
Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
@katybrc.bsky.social
Myalgic Encephalomyelitis - M.E + POTS for 38 years Donor to the UK MEcfs Biobank for 10 years & @DecodeMEstudy Please watch http://dialogues-mecfs.co.uk/videos/ London, UK No DMs please #pwME
@flowermad.bsky.social
Disabled, unable to work due to Long Covid, first waver March 2020. #LongCovid #LC/ME, #ME/CFS, #POTS. Housebound since June 2020. Passionate about nature, science, gardening, art. Lefty #FreePalestine🇵🇸 Sorry I cannot afford to donate to fundraisers :(
@colleensteckel.bsky.social
Advocate for #MyalgicEncephalomyelitis using ME-ICC. Contracted ME in 1989 Substack: https://colleensteckelmeiccinfo.substack.com/ Volunteer at www.MEadvocacy.org Aspiring writer of paranormal fiction
@mefoggydog.bsky.social
Award-winning #socialenterprise in #UK. Working for #socialchange for the #MECFS community. Linktree - http://bit.ly/408o6LI
@michaelnobbs.bsky.social
Artist and tea drinker living on a hillside in Wales. Learning to live a gentle creative life and encouraging others to do the same. Diagnosed with #MECFS in 1997. www.patreon.com/gogently https://linktr.ee/michaelnobbs ✍️🧶
@paulkeeble.co.uk
ME since 2017 (Mild), 2019 Moderate , 2020 Severe Long Covid since March 2020 (V Severe) Funcap55 = 1.9 ( (Severe)
@nikosuvisto.bsky.social
Life on hold by severe #MECFS, currently 99% bedbound 🛌 Documenting my life like it is now, advocacy through photography 📷 📍Finland https://www.aquietstorm.me
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 36 years, severe ME 30 years. @IrishMECFSAssoc trustee 28 years 26 publications in peer-reviewed journals Social media: https://me-pedia.org/wiki/Tom_Kindlon
@strangerandstranger.net
Author of "stranger and stranger”, letter writer, advocate and fundraiser for biomedical ME/CFS research.
@imjustkate.bsky.social
☆ Recently entered the world of chronic illness & disability with #ME/CFS. ☆ Personal & professional coach. ☆ Writer. ☆ Observer & listener. ☆ Lover of the magic of the universe, space & nature. ☆ Eternal optimistic realist. ☆ We're all connected 💜🕉
@janetdafoe.bsky.social
ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
@emmagl.bsky.social
Co-founder #ThereForME | Calling for an NHS that's there for Long Covid & ME | https://www.thereforme.uk/ Linguist, DELTA-qualified English 2nd lang teacher | https://hiveofactivities.wordpress.com Design | https://emmarubystudio.com/ She / her
@longcovidsupport.bsky.social
UK Charity Keeping people with #LongCovid at the centre • Support • Research • Advocacy • Education • #ResearchLongCovid #TreatLongCovid #CureLongCovid www.longcovid.org https://linktr.ee/longcovidsupport 📧info@longcovid.org
@longcovidadvoc.com
A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time... https://www.longcovidadvoc.com/ 🛍️ https://longcovidadvoc.shop/
@aaronca11.bsky.social
Billboard campaign/fundraiser here https://www.notrecovereduk.org
@longcovidkids.bsky.social
UK-based international charity supporting & advocating for children & young people with #LongCovid & related conditions. #LongCovidKids #LongCovid #PaediatricLongCovid #LongCovidAwareness
@physiosforme.bsky.social
A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME Find out more at physiosforme.com