ME félag Íslands
The Icelandic ME association #MEawareness #mefelag #longcovid #vitundarvakning
@lcaireland.bsky.social
The voice for Long Covid in Ireland. An advocacy group comprised of Long Covid patients fighting for awareness of LC & adequate services in Ireland for all patients. https://longcovidadvocacyireland.com
@danielmissailidis.bsky.social
Researching the cell biology of ME/CFS since 2016, now also Long COVID and PD. Papers: https://scholars.latrobe.edu.au/d2missailidi/publications
@sandz-p.bsky.social
Animal lover (currently cat mum to three 😻😻😻), Kiwi in Oz 🔑🟤, Invisible disabilities 🌻 (ME & FM), Neurodiverse (AuDHD) & multiple chronic health challenges - my dark & cheeky sense of humour keeps me going 😝
@fatigatioev.bsky.social
Wir unterstützen Menschen mit ME/CFS (Myalgische Enzephalomyelitis / Chronisches Fatigue Syndrom) und setzen uns seit 1993 für Versorgung, Forschung und Aufklärung ein. Größte deutsche Patientenorganisation mit gut 3.000 Mitgliedern.
@topazstudioscom.bsky.social
Grandmother 🪷 Retired • 3 #chronic illnesses since 2020 #ESKD #longCOVID #immunocompromised 💙 Volunteer at @renegaderesearch.bsky.social 🥩 animal-based #keto
@advancedtweaker.bsky.social
Respirator Fit Testing. #Covid/#LongCovid stuff. Science over everything. Optimist and problem solving addict.
@eswinfluenza.bsky.social
🇪🇺 Scientific Working group on #Influenza & other Respiratory Viruses #RSV #COVID19 #ESWI2025 #ESWIAirborne #ESWIEducationHub #InfluenzaDiabetesCommunity
@mecfs-advocate.bsky.social
ME/CFS patient advocating for research, medical education, treatment and support re: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
@brokenwingpoet.bsky.social
Poet. Writing on disability & eco justice. Bedbound with Long COVID and Severe ME. 🍉 🇵🇸 🌲 🐦 😷 #millionsmissing #disabilityjustice
@jcontraire.bsky.social
Interests: Civility | Democracy | Long Covid | ME/CFS | MCAS | Autism | PDA | Alexithymia | Repost/Follow doesn't imply endorsement
@emoyvonne.bsky.social
Navigating life with Long Covid. Dreaming about disability justice, anti-ageism, poetry, policy, the sky & the sea. 🖤🖤🖤
@longcovidcan-co.bsky.social
We provide support, resources & reliable science-based information to patients, parents or caregivers of those suffering from Long Covid in Canada in our FB support group. Engaging w our community& building collaborations. Because we are STRONGER TOGETHER.
@lydiafd.bsky.social
Living with post-Covid ME/CFS, dysautonomia and Functional Neurological Disorder since a 2nd Covid reinfection in May 2022
@astridmeyerknutsen.bsky.social
Interests: ME/CFS, Long Covid, politics, science, nature and animals. Norwegian but post mostly in English. Newbie allotment gardener.
@luckypetie.medsky.social
Medicine, Covid science, politics, literature, science, emotions, neuroscience, philosophy, humor, Mama, infinitely curious, still working on my magical thinking m, DEMOCRACY
@asociacionpem.bsky.social
Asociación de Personas con Encefalomielitis Miálgica (PEM) - ONG PEM - Asociación de ámbito nacional. www.ongpem.org [email protected] #EncefalomielitisMiálgica #TestimoniosPEM #pwME #MyalgicEncephalomyelitis
@lisawiedemann.bsky.social
researcher/lecturer/STS science and technology studies/working on ME/CFS/LongCovid/digital health/type 1 diabetes care/material semiotics
@suyetarose.bsky.social
She/Her: Mom♀️,Wife 👰🏻 , Programmer💻, Gamer🎮, Nature Lover 🌹,Fan of common sense🏳️🌈 with ME/CFS 👩🦽.
@meactionuk.bsky.social
Our movement fights for recognition, education, and research so that one day all people with ME (myalgic encephalomyelitis) will have access to rapid diagnosis, and compassionate, effective care.
@8thirtythreeforme.bsky.social
Mit Spenden können wir die Forschung für #MECFS auf ein angemessenes Level bringen und Therapien entwickeln. Dafür reichen pro Patient:in 8,33€ im Monat, oder 100€ im Jahr - weniger als ein Abo bei einem Streamingdienst kostet.
@pine-no-tree.bsky.social
Currently out of order due to Long Covid and ME/CFS Graphic design student she/her
@naomidharvey.bsky.social
Zoologist & veterinary research. She/her. 22yrs with #MEcfs Pro-vax but vaccine injured. Life on pause due to moderate/severe ME/CFS ♿️ Patient Expert in ME/CFS, POTS and syndromic Long Covid. Please excuse my typos.
@janetdafoe.bsky.social
ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
@drannanz.bsky.social
Immunologist | Flow Cytometrist Immunometabolism, Infectious Diseases, Immune dysfunction, Long Covid & ME/CFS Senior Research Fellow Liggins Institute | University of Auckland DysImmune Research Aotearoa www.dysimmune.nz 🇳🇿🥝🩸🧬🧪🔬👩🏼🔬
@neurostingl.bsky.social
Facharzt für Neurologie ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin
@laurajmg.bsky.social
Six SF novels. Environmental engineer. Spousal unit & motherbeast. NM Hatch chile love. Severe MECFS. Black Lives Matter & Water is Life. Hang tough, my moops. [I don’t accept DMs unless I know you.]
@ottomanvampire.bsky.social
Award losing academic. Not a thought leader. Killjoy. Neurospicy. ME/CFS. Post-Ottoman subject. Feels alterity sickness everywhere. Still coviding. She/they Background: Last scene from Through the Olive Trees Profile: Portrait of Sylvia von Harden
@me-cfs.bsky.social
Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak. I care. My ME/CFS News Aggregator: @me-cfs.mastodon.social.ap.brid.gy Ⓐ💚, (FR/DE/EN, but posts in english) Clinging onto the ledge above the abyss.
@lyndseydoob.bsky.social
Constantly battling between needing to be informed, and having a good day. Vegan 🐷, leftie, Chronic sufferer (ME CFS) Always on the side of the underdog. Free 🇵🇸🇨🇬🇸🇩🇸🇸🏴 Petition pusher Shine some sunshine on ever darkening days. 🚫DMs. 🚫 go fund me.
@meresearchuk.bsky.social
ME Research UK is a charity which funds scientific (biomedical) investigation into the causes, consequences and treatment of ME/CFS (charity number SC036942)
@scheibenbogen.bsky.social
Immunologist and ME/CFS researcher @Charité https://cfc.charite.de/
@whitneydafoe.bsky.social
Severe ME/CFS patient and advocate. Writer, photographer, filmmaker. artist, activist, creative. Bedridden since 2013 sick since 2004. Never. Giving. Up. ✊
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 36 years, severe ME 30 years. @IrishMECFSAssoc trustee 28 years 26 publications in peer-reviewed journals Social media: https://me-pedia.org/wiki/Tom_Kindlon
@meactnet.bsky.social
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet #pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
@batemanhornecenter.bsky.social
The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
@renegaderesearch.bsky.social
Renegade Research (RR) a non-profit 501c3 decentralized organization pioneering patient/caregiver led research focused on ME/CFS and LongCovid • https://renegade-research.org 💙 Project @remissionbiome.bsky.social • Donate now ▶️ https://tinyurl.com/44azdsxm
@cancovsoc.bsky.social
At the Canadian Covid Society, we strive to protect the health and safety of people in Canada against the harms of COVID-19 and long Covid, through education, engaging and empowering the public and organizations with scientific knowledge.
@longcovidch.bsky.social
Long Covid Switzerland. The voice of people affected by long covid and long covid kids. Evidence-based, provaxx, promask, protect the kids.
@maskedcounsellor.bsky.social
Covid safe counsellor in Australia. Clean the air, wear those masks! I love horses, all things comedy and video games. Taking new clients. https://www.psychologytoday.com/au/counselling/belinda-louise-quantock-dunkeld-vic/971960
@apresj20.bsky.social
Compte officiel #ApresJ20 Association Covid Long France visant à favoriser la Reconnaissance, les Soins, la Recherche et la Communication sur le #LongCovid