Lessi
Leben auf dem Abstellgleis. Tanzen auf dem Scherbenhaufen.
ME/CFS . Fibromyalgie . Small-fiber-Neuropathie
@drdanielloy.bsky.social
Ehemann, Jurist. #MECFS. Team #SIGNforMECFS. Team #GOfundMECFS. One of the #MillionsMissing.
@mecfs.at
💛 Österreichische Ges. für #MECFS ⚡ NEWS zu #MECFS #pwME #myalgicE 👇 Informationen, Spenden, Kontakt http://linktr.ee/oeg_mecfs https://mecfs.at/
@sgme.bsky.social
💙 Fighting tirelessly for ME patients in Switzerland and worldwide 💙 #MyalgicE #MEawareness #MyalgischeEnzephalomyelitis
@fatigatioev.bsky.social
Wir unterstützen Menschen mit ME/CFS (Myalgische Enzephalomyelitis / Chronisches Fatigue Syndrom) und setzen uns seit 1993 für Versorgung, Forschung und Aufklärung ein. Größte deutsche Patientenorganisation mit gut 3.000 Mitgliedern.
@vmuecke.bsky.social
Internistin, Diabetologin, Ernährungsmedizin, Berufspolitik, Umweltschutz, Bündnis für Datenschutz und Schweigepflicht (BfDS). Am Wochenende Hühnercontent.
@guusontheinternet.bsky.social
Creative turned activist #NietHersteld - Long Covid since jan’21 ♿️ - posts with brain fog, so pls bear with me - eager to learn - posts in 🇬🇧 & 🇳🇱
@carriemcginn.bsky.social
Infection-associated chronic illness advocate | Life sidelined by #LongCovid #MECFS #POTS | #PatientPartner | MSc | Mom | She/Her | 🇨🇦 #Canada #Quebec #CovidConscious #StillMasking #MyalgicEncephalomyelitis #pwME #EMSFC #CovidLongue #CovidLong #pwLC
@blomechristine.bsky.social
COVID nerd | Post-COVID & ME/CFS researcher | no MD | http://patient-reported-outcomes.com | Hamburg Center for Health Economics @hche-uhh.bsky.social | derm PROMs | Botschafterin @dagl.bsky.social | DMs open
@meactnet.bsky.social
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet #pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
@lvstiftung.bsky.social
Wir setzen uns für die Schaffung von Anlaufstellen für Menschen mit ME/CFS in Deutschland ein und unterstützen Forschungsaktivitäten.
@leiss.bsky.social
Juristin. Patient:innenvertreterin. Scientist. Interested in and suffering from #MECFS #PostCovid. Personal opinions.
@gaby0605.bsky.social
CEO @weandmecfs Supporting our sons and everyone else fighting with #MECFS and #PAIS
@elkeasen.bsky.social
MSc Economics Student @LSE | former tax policy analyst | Life on Pause since Dec 2021 due to #LongCovid
@janetdafoe.bsky.social
ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
@thoredpfalz.bsky.social
#Longcovid seit 09/23 #PlötzlichIstAllesAnders #MECFS #PEM #POTS #CouchBettUndZurück
@astralsky.bsky.social
I've been struggling with ME/CFS for 16 years, but I'm not giving up! #ME/CFS I support Canada!🇨🇦 Slava Ukraine! 🇺🇦🇺🇦 Gaza isn't Trump's!🇵🇸 Proud Dem and Kamala voter #itsacoup Do NOT obey in advance! We will fight, and we will not roll over and take it.
@der-die-das-helmut.bsky.social
#MECFS #maffskala #DasLebenIstBunt🌈 #SCFREIBURG #Lautre #Pfalz #Demokratie-braucht-jeden #Die-Alternative-wird-nie-gelebt-warum-also-soviel-Lebenszeit-damit-verschwenden https://bz-talk.mecfs-jetzt.de https://spende.mecfs-jetzt.de https://maff-skala.de/
@minesonnenschein.bsky.social
Katzenbesitzerin 🐈, Gartenliebhaberin 🍓🦋🌱, Sportmuffel, von ME betroffene Angehörige durch krankes Kind nach Corona 🥲
@eklo.bsky.social
historian, author, literary scholar 😷 team science + health 🌍💉+🌈 ROMA IN AETERNUM
@christinalaw.bsky.social
Struggling with #MECFS, #celiac, #migraine Former Financial/Data Analyst and College Economics Lecturer. https://christinalawrence.me
@alwaysjustme.bsky.social
* Überlebende * Autorin & Bloggerin * MECFS & MCAS & kPTBS * Pacing ist das A & O bis hin zum Zett * www.barbara-denkt.de
@rehaqueen.bsky.social
Diplompsychologin Beruf & Gesundheit Berufliche Rehabilitation #LongCOVID #PTBS #SHV #Abhängigkeitserkrankungen Berlin | Germany
@constanzeertl.bsky.social
journalist, ORF, Vienna persistence > contacts + competence :)
@ffhambu.bsky.social
Dr. phil.; former professor; #Sozialpädagogik #Demokratiebildung #KinderundJugendarbeit #socialwork #Antifaschist #fcsp 🤎🤍❤️ Now #longcovid #mecfs 12/23, Bell 20-30 emptystands.me Homepage: https://www.bildung.uni-siegen.de/mitarbeiter/fritz
@bergluftliebe.bsky.social
#StandWithUkraine 🇺🇦💙💛 #fcknzs #noAfD #noSVP #Klimakatastrophe #Umweltschutz #Vegan 💚🌱 #LGBTQIA+ #Menschenrechte #TeamWissenschaft ✪🅐🅝🅣🅘🅕🅐✪
@seebruecke-frankfurt.de
sometimes SEARCH AND RESCUE SOLIDARITY AND RESISTANCE allways 🔗 https://www.seebruecke-frankfurt.de/
@fibrotamz.bsky.social
ME / CFS / Long Covid / Fibromyalgia /spoonie / Chronic Illness / Chronic Pain / Mum / Autism & ADHD Advocate/ SEN Advocate I’m a bit crazy, with a love for animals, wrestling and horror from the UK
@freulingskind.bsky.social
Bücherliebende Nachteule, Mama, IT Alltag mit PostCovid, Familie, Liebe, Lachen, Tränen, Träumen & vielen Kompromissen. she/her #CovidIsNotOver #CleanAir #keinSchrittNachRechts #thereIsNoPlanetB #MECFS #MCAS #CallForPublicHealthAction 📣
@parunzel.bsky.social
Ecologist, NEISVoid, science, NoCovid, ME/CFS ALT-Texts Profile Pic: the sculpture of a woman with a drawn bow & arrow, turned away from the viewer, made of thin willow twigs. Artist: Anna and the Willows Header: Lots of Lycopodium, a clubmoss
@chaosimkittel.bsky.social
Epidemiologie-Philosophin mit medizinischem Background.
@nordseekind.bsky.social
Aus Berlin an die Küste. Hamburg im Herzen. St.Pauli ist die einzige Möglichkeit. 4 Kinder, 5 Nähmaschinen, PostCovid und der ganze Rest. Chaos galore. Demokratie leben. 💚🌻💚 Kein Fußbreit den Faschisten. #noA*D #notjustsad
@mariahwa.bsky.social
Mutter und caregiver eines young adults mit MEcfs + Non24. Selber chronisch krank. Armutsbetroffen. Manchmal mit Kamera.
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 36 years, severe ME 30 years. @IrishMECFSAssoc trustee 28 years 26 publications in peer-reviewed journals Social media: https://me-pedia.org/wiki/Tom_Kindlon
@notunpackedyet.bsky.social
Here to talk about #MEcfs, #MEspine, #hypermobility, #POTS, #hEDS, #LongCovid, #ChronicIllness and #disability ...but I also have opinions on other things. You have been warned :P
@openmedf.bsky.social
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
@mfairma.bsky.social
ME. Spouse w LC, ME. Writer, bread baker, daydreamer. Still waiting on fair funding and apology from HHS. Masking like someone’s life depends on it.
@mmissingholland.bsky.social
Actiegroep #MillionsMissing Holland wil betere zorg & sociale gelijkheid voor ME-patienten.
@mmissingaus.bsky.social
There are #MillionsMissing from their lives due to ME (Myalgic Encephalomyelitis or #MECFS). We're fighting to make their voices heard. Sadly, many ppl with #LongCovid meet #ME diagnostic criteria - adding many more to the ME ranks.
@howardtayler.bsky.social
Vaxxed & 7x-Boosted, He/Him, Husband to Sandra Tayler, Father of Four, #mecfs/#LongCovid, howardtayler.com, schlockmercenary.com, writingexcuses.com
@allyann.bsky.social
Living with & advocating for ME, POTS & FM, ex-IT. Homebound & at times bedridden. News and Recipe junkie. Living in Millowl, home of the Bunurong people, Victoria, Australia
@fightinglc.bsky.social
#LongCovid since Summer 2022. Doctor of Humanities. On Pause. Curious. Arty. Messy. A #Renegade50 with @RemissionBiome! #TreatLongCovid #MECFS