Ean They/Them
Ride bikes, cuddle dogs, sniff trees, laugh at silliness, bask in the rain
@moppety.bsky.social
Parisienne Buffalonian linguist spoonie mom. http://bcopley.com "The line separating good and evil passes...right through every human heart." -Solzhenitsyn
@sannara.bsky.social
#MECFS #MILLIONSMISSING #MEAwareness #PEM #POTS #MCAS #PostCovid #LongCovid #TeamWissenschaft #GdB https://www.mecfs.de/was-ist-me-cfs/
@benhmecfs.bsky.social
ME/CFS patient advocate, Open Medicine Foundation science correspondent. Bedbound. Former: exercise physiology, biochemist in training, athlete-Powerlifter, PT, Gym Manager. Jazz grad/Musician. F1/Boxing.
@cortjohnson.bsky.social
Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
@mildtin.bsky.social
Usually a lurker, Chronically Online for #LongCovid and other #IACC | Australia
@midcatecrisis.bsky.social
Chronically ill, autistic, demi/greyace (mostly in bed, mostly homebound) ME/CFS and probable LC π·π·π· Interests: climate, COVID, disability justice, nature, parenting, socialism Ltd cog energy, don't tend to follow back. Toronto, Canada She/her/they
@emmiskyten.bsky.social
Sustainability science studies on hold because of POTS + Long covid / suspected ME. Previously interesting, now mostly into resting. Here to connect with other sick people and for science stuff.
@twoshaws.bsky.social
#MyalgicEncephalomyelitis #pwME #SevereME #HyperPOTS #MCAS #PEM #PostExertionalNeuroImmuneExhaustion #PostExertionalSymptomExacerbation π·
@melindaiscomplex.bsky.social
My body has given up but I haven't... ME/CFS Patient Leader & Complex-Chronic Disease Advocate (on hiatus). Co-founder #MEAction Maryland. Bed-tethered disabled by severe ME & LC & comorbids. Orioles/Ravens/Caps fan. She/her
@fvrhijn.bsky.social
MD | rheumatology resident #ME due to #LongCovid Nonbinary ππππ | views are mine.
@guusontheinternet.bsky.social
Creative turned activist #NietHersteld - Long Covid since janβ21 βΏοΈ - posts with brain fog, so pls bear with me - eager to learn - posts in π¬π§ & π³π±
@uselesspriest.bsky.social
Long COVID, mild, since Apr 2022 ME / Long COVID diagnosed May 2024
@yogafogie.bsky.social
DMV native. COVID long hauler. Patient-Led Research Collaborative.
@julialmv.bsky.social
Long COVID patient-researcher @ Scripps Research & Patient-Led Research Collaborative
@katieklocksin.bsky.social
One of the #MillionsMissing with #LongCovid #MECFS // Once a radio and podcast producer, always a Transom alum π· Long covid is common π·
@lonniemarcumpt.bsky.social
Wife/Mother, Science Writer, PT, HC Admin, Disease Detective, Voracious Reader, Connoisseur of Coffee, Graduate CSUN, Olive Farmer, HHS 2019-2022 Tick-Borne Disease Working Group, CDC Fdn ICUE patient advocate.
@cuboidalhug.bsky.social
@rachelriggs.bsky.social
Author of IN GOOD HEALTH: Uncomplicated, Allergen-Aware Recipes For a Nourished Life instagram.com/the.rachel.riggs #EDS #MECFS #Food #paleo #glutenfree #dairyfree
@carolbarrel.bsky.social
I enjoy cats and bicycles. I much less enjoy my chronic illnesses. #pwME
@steigerecon.bsky.social
Assistant professor of economics on medical leave from Northeastern University; macroeconomics, growth and development. Severely ill with MCAS/POTS/EDS/ME. Catholic convert who loves the balance of faith and reason. Native Oregonian.
@naomidharvey.bsky.social
Zoologist & veterinary research. She/her. 22yrs with #MEcfs Pro-vax but vaccine injured. Life on pause due to moderate/severe ME/CFS βΏοΈ Patient Expert in ME/CFS, POTS and syndromic Long Covid. Please excuse my typos.
@dualiejulie.bsky.social
(She/her) In LongCOVID/M.E. hell looking for a way out! First wave Longhauler. Former engineering student. Trying to get my personality back from the disease. Very cute dog.
@shelleyjules.bsky.social
MECFS from the long before times but not diagnosed for 23 yearsβ¦LC since 2020 - interested in advancing patient led research (Renegade Research & Remission Biome) & all avenues that lead to effective treatments for everyone. She/her. Love is my language. π
@riemerville.bsky.social
Salty | #LongCovid,#POTS & #ME | Books, Music, Food, Art #ATXRE | Excuse my typos We are living in a choose-your-own dystopian novel
@vashetc.bsky.social
ph.d. perpetually horizontal. writer, researcher. βπ½ v ash e t c [dot] com β vashetc.com banner: lake & mntn @ sunset. Thereβs a silhouette of a family in the water
@rejayjay.bsky.social
Silly Chicago girl, marketing professional, long covid patient. No DMs unless you donate to the mutual aid I repost. π
@wanderingkayli.bsky.social
@wandering on Instagram βπ» Disabled with Long Covid 40+ months Long COVID Researcher @sfu-fhs.bsky.social Masterβs Student @sfucmns.bsky.social writing on biopolitics & Long COVID https://beacons.ai/wanderingkayli
@wilhelminaj.bsky.social
Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
@bshuell.bsky.social
Former software developer with myalgic encephalomyelitis, Living a limited life, missing from many places. Aspiring to be well again. Dog Dad. Occasionally bipedal. Twitter/X refugee. #mecfs
@karriehiggins.bsky.social
Writer, Artist, Ink-Maker, Psychogeographer. Two Best American Essays notables; Schiff Award; NEA/Iowa Arts Council grantee. http://www.karriehiggins.com
@jendupuis.bsky.social
Disabled librarian turned writer β’ π β’ Mom to rescue dog Clara & cat lover β’ #pwme #migraine #amquerying GenX upmarket/womenβs fiction jendupuis.com | Detroit, MI | she/her
@mariefollayttar.bsky.social
@MaineAllCare #UniversalHealthcareNow Sea Glass Collector -Advocate - Artist - Poet-Community Organizer - Political Strategist Disabled Director of Mainers for Accountable Leadership(leave) Rare Chronic Cancer survivor Long Covid, Me/CFS Autistic Wabanaki
@paulaknight.bsky.social
Author, illustrator, comics memoir THE FACTS OF LIFE (Myriad) Kidlit Books x3 Writing illustration comics poetry photography Disabled nonambulatory bedridden 7yr #pwME No DMs pls https://linktr.ee/paulajknight https://ko-fi.com/bedscape She/Her
@ckshowalter.bsky.social
Chief Cat wrangler @ HouseOfPotats. I foster cats and tiny kittens. I also do pet hospice mentoring. [email protected] Home of KittenHappyHour βΏοΈ Longπ¦ ,π, TexPat, CO, Wx junkie, Swiftie, https://linktr.ee/houseofpotats
@colleensteckel.bsky.social
Advocate for #MyalgicEncephalomyelitis using ME-ICC. Contracted ME in 1989 Substack: https://colleensteckelmeiccinfo.substack.com/ Volunteer at www.MEadvocacy.org Aspiring writer of paranormal fiction
@colocharachel.bsky.social
the truest thing I can say tonight is that being disabled out of the workforce was one of the best things that ever happened to me. β’ βIβm just an asshole who tries hardβ -Kelly Hayes β’ Dakota land; Minnesota but no longer Minneapolis β’ she/her
@sleepymidwife.bsky.social
midwife on a sleepy sabbatical; listening for those as yet unheard; mama to many; DJ; lover of history, botany, physiology, music, justice, & kindness; BLM ~living with ME/CFS π«
@tyffiboo.bsky.social
π©π½βπ¦―π¦π₯ ~Tiff E. Boo ~My love languages are oxtail and mangoes ~Pronouns: Her/She/G ~Adjectives: Bootylicious ~Hoochie Mama Advocate ~Perfecta of the Osteogenesis π π½π¦΄ -Wear yo MASK π·
@leeram.bsky.social
The true north is indeed strong and free. Dabble in many art forms when able. #HSP #ME/CFS, #goldendoodlemama
@joeblow604.bsky.social
Living with Myalgic Encephalomyelitis since 2011. Artist, Advocate, Creative Former Electro-Mechanical Prototyper Inclusive #pwME #MECFS #MCAS #POTS #Fibro #LongCovid #Disability #chronicillness #art #artist #painting #oilpainting #digitalart #photography
@anjalifp.bsky.social
2-time Paralympian & Medalist. Disabled Researcher. Disability Activist.
@lindaoh.bsky.social
Interested in history, disability, politics, chronic illness. Loves animals, dry white wine, chocolate and my bed. Irish. Actually Autistic, ADHD, ME sufferer. Cat and dog person. @shurlookit in the bad place
@fioname.bsky.social
Victoria, Australia. Former professional wordsmith. 14+ years living with the hell of myalgic encephalomyelitis (ME/CFS). Prone to so-called left-wing views & bingeing good TV π€
@steviesafespaces.com
Swarm of Bees in a Trenchcoat ππππππππ ππππππ ππππ ππ ππ
@grammacolleen.bsky.social
A little weird is good. Unconventional, "senior" . I do what I want - coffee, recovery, reading comics, graphic novels, illustrators, pretending to write, comiccons. Wish I had started it all years ago instead of trying to conform. But, I'm here now
@bsky.app
official Bluesky account (check usernameπ) Bugs, feature requests, feedback: [email protected]