Not Recovered Belgium
Met Not Recovered Belgium komen we op voor alle patiënten met Long Covid, ME/CVS, POTS, Lyme en fibromyalgie.
We ijveren voor betere zorg, het oprichten van kenniscentra, registratie van patiënten, ...
@lcaireland.bsky.social
The voice for Long Covid in Ireland. An advocacy group comprised of Long Covid patients fighting for awareness of LC & adequate services in Ireland for all patients. https://longcovidadvocacyireland.com
@minofmeer.bsky.social
Myalgische Encefalomyelitis, POTS, 22/7 bedgebonden https://minofmeer.blog https://www.facebook.com/share/1CwgxEYgQNZSDevd/
@buonsenso.bsky.social
Pediatric Infectious Disease doctor. Fighting to care for children with Long Covid & ME/CFS. My book on my LONG COVID JOURNEY: https://tinyurl.com/4tsvhwat
@ludiekje.bsky.social
editor-in-chief ME Global Chronicle, co-founder & mod/adm ME Centraal
@begrepenklachten.bsky.social
Ondersteuning van patiënten met langdurige (onvoldoende verklaarde) klachten. https://www.begrepenklachten.nl
@anilvanderzee.bsky.social
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS #art2cureME #pwme #millionsmissing
@niethersteld.bsky.social
Wij laten zien welke mensen we missen in de maatschappij omdat ze #NietHersteld zijn. 📣Actiegroep die zich inzet voor de honderdduizenden met Post Acute Infectieuze Syndromen (PAIS) zoals Long Covid, ME, Lyme, Q-koorts, Post Sepsis
@longcovidnederland.bsky.social
Onafhankelijke patiëntenvereniging voor én door #LongCovid patiënten. Volg ons ook op FB, X, LinkedIn en Instagram. Lid van oa Post Covid Netwerk Nederland en Long Covid Europe. longcovidnederland.com
@meactnet.bsky.social
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet #pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
@ntisec.bsky.social
Father, creative, thinker, asks questions. Since 1997 mild MEcfs, since early March 2020 rather severe longcovid. Dutch & English
@ditispots.bsky.social
POTS - de meest voorkomende ziekte waar je nog nooit van hebt gehoord. Volg ons om POTS op de kaart te zetten en meer erkenning te creëren Voor meer informatie zijn we te vinden op: www.ditispots.org
@mecentraal.bsky.social
Platform voor mensen met Myalgische Encefalomyelitis, hun familie, vrienden, verzorgers & geïnteresseerden. https://mecentraal.wordpress.com https://www.facebook.com/MECentraal [email protected]
@aaronca11.bsky.social
Billboard campaign/fundraiser here https://www.notrecovereduk.org
@longcovidphysio.bsky.social
#LongCOVIDPhysio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with #LongCOVID & allies https://bio.site/longcovidphysio
@longcovidadvoc.com
A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time... 💙📚Home to the #pedanticzebra book club. https://www.longcovidadvoc.com/ 🛍️ https://longcovidadvoc.shop/
@longcovidkids.bsky.social
UK-based international charity supporting & advocating for children & young people with #LongCovid & related conditions. #LongCovidKids #LongCovid #PaediatricLongCovid #LongCovidAwareness
@longcovidsupport.bsky.social
UK Charity Keeping people with #LongCovid at the centre • Support • Research • Advocacy • Education • #ResearchLongCovid #TreatLongCovid #CureLongCovid www.longcovid.org https://linktr.ee/longcovidsupport 📧[email protected]
@nature.com
Research, news, and commentary from Nature, the international science journal. For daily science news, get Nature Briefing: https://go.nature.com/get-Nature-Briefing
@who.int
We (The World Health Organization) are the United Nations’ health agency championing Health For All. Always check the latest posts for updated advice/information. We will remove misinformation, spam and hate speech here. www.oneworldhealthforall.org
@scheibenbogen.bsky.social
Immunologist and ME/CFS researcher @Charité https://cfc.charite.de/
@johanvawe.bsky.social
Immunologist curious about viruses, cancer, evolution and all things human Likes all #systems thinking and still working out all the #omics 🤓 #immunosky #medsky #idsky
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: [email protected]