@louiseathome.bsky.social
Patiently (mostly) persevering with pacing #LongCovid #pwME #MECFS #POTS 🏳️🌈😷 cats • science • cats • FPL • cats
@ack025.bsky.social
Links+follows related to: Ehlers-Danlos + Lyme + MEcfs + Autoimmune (Myasthenia Gravis, Sjogren’s, Hashimoto’s) + POTS + Mast Cell + ApoE (4/4) + Bilateral Vestibulopathy + BPPV + SIBO + migraine + mito myopathy + Long COVID + LMCA & Celiac Artery Stenosis
@hedsphysicist.bsky.social
X @hEDS_Physicist | Insta @hypermobile_physicist #Bisexual PhD Physicist & industry engineer journeying and blogging through #ChronicPain with #hEDS #MCAS #dysautonomia. Posts not medical advice. #BLM https://linktr.ee/hypermobilephysicist
@bendybrain.bsky.social
#hypermobility (and related conditions) brain-body neuro #research @bsmsmedschool UK | Dr Jessica Eccles | http://Linktr.ee/bendybrain | views own | https://www.bsms.ac.uk/about/contact-us/staff/dr-jessica-eccles.aspx
@karenlhargrave.bsky.social
Co-founder #ThereForME | Calling for an NHS that’s there for ME & Long Covid | www.thereforme.uk Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
@ohtwist.bsky.social
Oh That's Why I'm So Tired - Ehlers-Danlos syndromes blogger and medical educator, co-author EDS Toolkit for Doctors 2018, book on EDS and autism coming 2025 (tbd) (toes crossed) https://ohtwist.com
@investinmeresearch.bsky.social
An independent UK charity finding, funding, facilitating biomedical research into ME and providing better education and awareness of this disease in UK & Europe (charity nr. 1153730) www.investinme.org
@rthm.bsky.social
RTHM connects you with a digital care team specializing in Long COVID and ME/CFS that provides access to therapies based on the latest research. https://direct.rthm.com/?utm_source=bs&utm_medium=link&utm_campaign=bio&utm_id=profile&utm_term=web&utm_conten
@buonsenso.bsky.social
Pediatric Infectious Disease doctor. Fighting to care for children with Long Covid & ME/CFS. My book on my LONG COVID JOURNEY: https://tinyurl.com/4tsvhwat
@karencosta.bsky.social
#HigherEd · Climate Action Pedagogy · faculty & student success · online learning advocate · trauma-aware teaching · ADHD/ND · adjunct · author of 99 Tips https://linktr.ee/KarenRayCosta
@ptswithpower.bsky.social
Rogue neuroscientist fighting for medicine based on science; not bias⚡️ Health scams & dodgy science 🧐 Patient rights & power dynamics 🦾 I like solving puzzles. #NEISvoid #MedicalGaslighting
@independentsage.bsky.social
An independent group of scientists providing transparent advice during the COVID crisis.
@threadwriter.bsky.social
Write threads in a nice text editor, automatically chops it into chunks of less-than-300 chars, numbers them, and more. Add returns where you want a new post. Click button to publish your thread. RSS feed included. https://this.how/threadWriterForBluesky/
@karlaliliana.bsky.social
Part chaplain, part cross-pollinator, part coach, part builder. Multiracial multicultural institution dreamer. Brava pero vulnerable. www.bravaleaders.com
@danwyke.bsky.social
M.E. inactivist, person-centred counsellor, recovering poet (Rack & Waterloo Press)
@openmedf.bsky.social
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
@juliametraux.bsky.social
Disability Reporter @ Mother Jones • jmetraux@motherjones.com • She/her • Berkeley Journalism alum • Signal: @juliametraux.49 Author page: https://www.motherjones.com/author/julia-metraux/ Free monthly newsletter: bit.ly/3Ee9lRO
@phicd.bsky.social
Another Australian (Cypriot & Greek) designer existing in Berlin. Been to hell & back thanks to the pandemic. End #prescribedharm #longcovid #MECFS check @sophsoph.psd & @berlin_buyers_club on the gram
@itswhitneywitch.bsky.social
Disability Justice Living with ME, EDS, POTS, MCAS, vascular compressions, spinal comorbidities & more Ambulatory wheelchair user Cozy gamer, lazy gardener, hopeful baker
@wendykloiber.bsky.social
So did the divine right of kings. Long covid class of March 2020, the kind with ME. Would like one more tattoo, minimum. She/her.
@reallandsend.bsky.social
co-host Death Panel Podcast | co-author Health Communism with Artie Vierkant | blind/sick/surplus www.deathpanel.net www.patreon.com/deathpanelpod www.beatriceadlerbolton.com
@longcovidjustice.org
We are leading grassroots efforts to confront the Long COVID crisis, while centering racial, social, economic & disability justice. Our work is done by and for chronically ill & disabled people, our families and communities. linktr.ee/longcovidjustice
@angelamswinca.bsky.social
🦠😷♿️#LongCovid disabled | 📢Chicané activist | 🏠LAX | ⚖️health justice | ✊🏽✊🏾✊🏿racial justice alt text profile pic: tan skinned person in a tan KN95 mask and suit, dark wavy hair with short bangs
@mvgutierrezmd.bsky.social
Professor & Chair of Rehab Med at UT Health San Antonio | Mom, runner, #LatinasInMedicine, #Physiatry, #LongCOVID
@ellecarnitine.bsky.social
immunocompromised • made & kept sick by the state • 🇵🇸🇵🇸🇵🇸
@imperfectkira.bsky.social
Sick bish living richly. ME/CFS+ https://imperfectworkingorder.substack.com/
@dguckenheimer.bsky.social
🥄 Sociologist, writer, feminist, anti-facist, anti-racist, disability justice activist. 🏳️🌈 Pronouns: she/they #livingwithableism #resist
@daniellemors.bsky.social
Audiobook Narrator. She/her. hEDS and ME/CFS patient and advocate. Please wear a mask.
@carolinechristian.bsky.social
Professor #ssu, writer, mother disabled by #hEDS #MECFS #LC; I write a blog called Frozen in Amber about the science of and lived experience w/ #hEDS #MECFS #LC | chronicallycaroline.com
@akaemilo.bsky.social
Derailed by #MCAS #hEDS #MEcfs #Dysautonomia #GravesDisease Animals deserve better. Missing Ireland. Writer at ElizabethMilo.com #MaskUp
@meg01.bsky.social
Lover of the smell of rain in the desert, free flowing rivers, a good monsoon storm and veggie gardens. Perpetual student of Feldenkrais and Organic Intelligence. Former river advocate on a life detour from ME/CFS.
@rhymeswithvery.bsky.social
ACT I: Books, bookstores, publishing, the Bay Area, my dog, trees, rocks, crows, large bodies of water. ACT II: #FcktheNIH, post-vaccine syndrome, #ME, other new health disasters, good people, disability justice. ACT III:
@mecfshawaii.bsky.social
Patient Advocate + Caregiver to pwME/Septad 🦓🦒 #ME #EDS #POTS #MCAS #LongCOVID #MEActionHawaii
@postviraltrials.bsky.social
News and information about interventional trials for Long Covid, ME/CFS, POTS, and other post-viral illnesses. Message or tag me if you’re in a trial or otherwise have information to share.
@melodyschreiber.com
Health/science + Arctic journalist Email: melodyschreiber@proton.me Signal: melodyschreiber.06 Newsletter: notadoctor.news Book: WHAT WE DIDN'T EXPECT
@kendrawrites.com
What's the opposite of apocalypse? Trying to chronicle that. Climate reporter based in NYC. Only speaking for myself. Tips? Reach me on Signal kendrawrites.04
@melissagiragrant.com
staff writer, The New Republic // A WOMAN IS AGAINST THE LAW (Little, Brown) out in 2026 // PLAYING THE WHORE (Verso) // member, NewsGuild of NY » email: melissa@melissagira.com » press releases/lists: mggrant@tnr.com » Signal: melissagira.01 (link below)
@deathpanel.bsky.social
podcast feat. Beatrice Adler-Bolton, Artie Vierkant, Phil Rocco & Jules Gill-Peterson. Stay alive another week patreon.com/deathpanelpod
@avierkant.bsky.social
Death Panel podcast, wrote Health Communism with Beatrice Adler-Bolton patreon.com/deathpanelpod
@lizwhatsherface.bsky.social
abolitionist artist / CEO of GAY ARBYS / sentient sandwich linktr.ee/lizwhatsherface realgayarbys.com
@legalnomads.com
Once a lawyer, then a travel writer. Now disabled, writing about curiosity, health, & loss. Travel writing, & celiac translation cards: legalnomads.com The best things I read each month: jodiettenberg.substack.com MCAS & health: jodiettenberg.com
@mervetepephd.bsky.social
PhD Microbiologist // Biomineralization, AMR & Biofilms // @remissionbiome.bsky.social team Defend science, resist ignorance https://twitter.com/mervetepePhD http://mastodon.online/@MerveTepe http://post.news/@/mervetepephd Ankara/New York/Tel Aviv
@lisadiedrich.bsky.social
Current projects: #IllnessPolitics, Keywords/Images in Graphic Medicine, & Multi-modal Pedagogies in Action. Author of ILLNESS POLITICS & HASHTAG ACTIVISM, TREATMENTS, & INDIRECT ACTION. Blogging at: lisadiedrich.org
@thellpsx.bsky.social
writer,The Future Is Disabled,Care Work,Bodymap,Dirty River co-ed w/@ejeris of Beyond Survival. transformative & disability justice structural engineer,1/3rd of http://cripsforesimsforgaza.org. older cousin w great tits & opinions,they/we brownstargirl.org
@untonuggan.bsky.social
angry mast cells (HaT and #MCAS) + #POTS + neurodivergent. ♿ queer. white. emperor of typos. brain fog zone ⚠️. they/them 🎶 iii'm still masking 🎶 working on porting more of my body science infodumps and such to: liminalnest.wordpress.com #NEISvoid
@filowenstein.bsky.social
writer + journalist covering health justice, wellness culture, LGBTQ+ stuff + more... https://www.fionalowenstein.com/ The Long COVID Survival Guide: https://theexperimentpublishing.com/catalogs/fall-2022/long-covid-survival-guide/ they/them
@weselymd.bsky.social
Husband & Dad. ICU Doc. Vanderbilt. @CIBScenter studies Covid & Long Covid, ICU Survivorship, Dementia, Delirium, PICS. Fighting misinformation. Posts my own. Still learning.