Kira Stoops // Imperfect Working Order
Sick bish living richly. ME/CFS+ https://imperfectworkingorder.substack.com/
@untonuggan.bsky.social
angry mast cells (HaT and #MCAS) + #POTS + neurodivergent. ♿ queer. white. emperor of typos. brain fog zone ⚠️. they/them 🎶 iii'm still masking 🎶 working on porting more of my body science infodumps and such to: liminalnest.wordpress.com #NEISvoid
@carolbarrel.bsky.social
I enjoy cats and bicycles. I much less enjoy my chronic illnesses. #pwME
@danwyke.bsky.social
M.E. inactivist, person-centred counsellor, recovering poet (Rack & Waterloo Press)
@grachstephanie.bsky.social
Physician specializing in ME/CFS, Long COVID, & associated complex disease | Assistant Professor of Medicine | She/Her/Hers | https://t.co/TkYm2MXvir
@patientled.bsky.social
Patient-Led Research for #LongCovid! http://patientledresearch.com
@openmedf.bsky.social
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
@meactnet.bsky.social
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet #pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
@odyody.bsky.social
Chronically ill. Medical research, better care for underresearched & rare conditions, disability rights & ethics. @OdyO11 at 🐦
@mecfssd.bsky.social
ME/CFS San Diego, a 501c3 public charity, is working locally to raise awareness of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), to help educate healthcare workers and researchers, to increase access and support for ME/CFS patients.
@kateviolette.com
Multipurpose nerd. Engineering manager currently waylaid by a complex illness. On a mission to watch every Katharine Hepburn movie. 🏳️🌈 they (🇬🇧), elle (🇫🇷) Currently residing in Portland OR. Always a Mainer. Blog at my username!
@neuroweaveratl.bsky.social
GSU • UNG Chronic Disease Researcher ME Action • Board Member #Neuroscience #ChronicIllness *views my own*
@beffie.bsky.social
A humorous slice-of-life feed by E. Stoops. Guaranteed to cheer you up. Need a stronger dose of the good stuff? Check out my novels over at https://www.amazon.com/stores/E.-Stoops/author/B0072AIFRQ. #booksky
@lonniemarcumpt.bsky.social
Wife/Mother, Science Writer, PT, HC Admin, Disease Detective, Voracious Reader, Connoisseur of Coffee, Graduate CSUN, Olive Farmer, HHS 2019-2022 Tick-Borne Disease Working Group, CDC Fdn ICUE patient advocate.
@phoenixme.bsky.social
Bed-bound activist with severe ME/CFS. ME/CFS, chronic illness, #AusPol, #USPol, climate justice, social justice, crochet, cats, sci fi. Views expressed are my own. If I had any spoons, I'd be dangerous. Boonwurrung country, Australia
@britborg.bsky.social
Dutch. Severe ME. Previously journalist. #Fraudevinkje #code98 @brit_borg on Twitter/X #JournalismIsNotACrime
@turnoftheshrew.bsky.social
Here for the latest research + advocacy for Long Covid, ME/CFS, dysautonomia, connective tissue disorders, etc + disability justice community. Former HCP.
@cortjohnson.bsky.social
Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
@emilyesfraser.bsky.social
Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
@exceedhergrasp1.bsky.social
Scientific Director, #MEAction Stanford Med Université de Montréal TIME100 Health 2024 #ME, #EDS, #POTS, #LongCOVID Views my own exceedhergrasp1 on Twitter
@chromatowski.bsky.social
This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing. ME ‘05, LC ‘23, many of their friends along the way. Very severe (FUNCAP 0.8), thanks for your patience.
@benhmecfs.bsky.social
ME/CFS patient advocate, Open Medicine Foundation science correspondent. Bedbound. Former: exercise physiology, biochemist in training, athlete-Powerlifter, PT, Gym Manager. Jazz grad/Musician. F1/Boxing.
@janetdafoe.bsky.social
ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
@drjengunter.bsky.social
Doctor, writer, Canadian Spice, lasso of truth, I speak for no one but me. 2X NYT bestsellers. More thoughts at TheVajenda.com
@erictopol.bsky.social
physician-scientist, author, editor https://www.scripps.edu/faculty/topol/ Ground Truths https://erictopol.substack.com SUPER AGERS https://www.simonandschuster.com/books/Super-Agers/Eric-Topol/9781668067666
@legalnomads.com
Once a lawyer, then a travel writer. Now disabled, writing about curiosity, health, & loss. Travel writing, & celiac translation cards: legalnomads.com The best things I read each month: jodiettenberg.substack.com MCAS & health: jodiettenberg.com
@edyong209.bsky.social
Writer, journalist. Science, health. Pandemics, animals. Birder, photographer. Many words, some awards. AN IMMENSE WORLD, I CONTAIN MULTITUDES. Married to Liz Neeley, parent to Typo. he/him 📷 Canon R6mkii + RF 800mm Edyong.me
@ahandvanish.bsky.social
Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
@weselymd.bsky.social
Husband & Dad. ICU Doc. Vanderbilt. @CIBScenter studies Covid & Long Covid, ICU Survivorship, Dementia, Delirium, PICS. Fighting misinformation. Posts my own. Still learning.
@maosbot.bsky.social
Parent, spouse, Australian, cyclist, Professor of Machine Learning in Oxford. Bayesian ML, Long Covid, photos of dog, AI must be good for humans, https://www.robots.ox.ac.uk/~mosb
@bennessb.bsky.social
currently: sick / haunted in Western Mass, host of No End In Sight - a podcast about life with chronic illness, creator of #NEISVoid | previously: Stories We Don’t Tell in Toronto | she / her
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 36 years, severe ME 30 years. @IrishMECFSAssoc trustee 28 years 26 publications in peer-reviewed journals Social media: https://me-pedia.org/wiki/Tom_Kindlon
@joolie.bsky.social
I'm @jmatwood on Twitter. Featuring: Immature/informative/TMI posts about: birds, plants, bees, disability, chronic illness, silliness, my own health, etc 🦜🌱🐝♿😷🪿🏥 #pwME NO TERFS, NO UNSOLICITED ADVICE User pic is from Effin Birds (used w/permission)
@julierehmeyer.bsky.social
Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. I mostly write about complex chronic illness and math. Bylines in NYT, WashPost, Discover, Wired, Slate, Stat News, Science News, lots more. She/her.