Petra Ponsch
ME/CFS seit 2018
#MECFS #Lyme #Fibromyalgie #millionsmissing #MEawareness
@meadvocacyproject.bsky.social
The ME Advocacy Project is a grassroots initiative founded by individuals living with post-infectious illnesses Myalgic Encephalomyelitis and/or Long COVID. Unceded Canada
@bmhughes.bsky.social
Concerned citizen • Prof Psych • Writer • Galway • he/him A blog: https://thesciencebit.net/ A bio: https://brianmhughes.com/ A book: https://bloomsburycp3.codemantra.com/viewer/63721f10ee35880001aafadc 📷 https://www.photoblogism.net
@remissionbiome.bsky.social
Community Science Project http://RemissionBiome.org
@koniginerl.bsky.social
#MECFS seit 25 Jahren 🦽 statt 🏍,#Longcovid, #Postcovid MECFS ist somatisch,Humanoides Oxymoron 🖤->einmal Gruftie immer Gruftie(fast nur noch im 🖤)#noAFD#FQToxicity #ArmutAbschaffen,Armutsbetroffen, suchte den Stein der Weisen+fand den Fels der Narren
@bettinasemolina.bsky.social
#millionsmissing (sie/ihr) "Es ist hoffnungslos, aussichtslos und ermüdend, aber noch schlimmer wäre es, wenn wir aufgeben würden."
@birgit3.bsky.social
MECFS seit vielen Jahren. Ich gebe die Hoffnung nicht auf uns versuche das Leben innerhalb meiner Grenzen zu meistern
@michelleb4.bsky.social
A mixture of stuff #MECFS #LongCovid #frailty #mtb #cycling #feelthefearanddoitanyway co-founder @PhysiosForME Views are all my own
@talaattanagra.bsky.social
Here for science, nature, humanism, philosophy, mycology, history, advocacy, Afroasiatic languages, linguistics in general. Former analyst—medically retired by MEcfs. Existentialist. Epicurean. DMV-area forager. SCA, Atlantia. Harvard, GSE. Tinzouline ⵣ♡.
@danwyke.bsky.social
M.E. inactivist, person-centred counsellor, recovering poet (Rack & Waterloo Press)
@sabrinapoirier.bsky.social
#CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis + #MECFS & #LongCovid #ResearchPartner & #Advocate • Chair of #MedicalEducation Group • #PwME #Disability (Unceded) #Canada https://linktr.ee/sabrinapoiriercanada
@cyruxime.bsky.social
Energetically compromised (bedridden) by severe #MECFS. All systems operating at minimum capacity & overloaded. In a previous life: comp sci x math, powerlifting. #LongCovid ally.
@pfortlage.bsky.social
Photographic Artist and Storyteller based in Los Angeles. MG and MECFS. Chronic Illness/Disability Awareness. On a mission to close the gender gap in power and respect. https://linktr.ee/patriciafortlage
@sobicla.bsky.social
Frau mit Herz und Hirn. Ärztin. Psychotherapeutin. Philosophin. Mutter. Wenn ich oberflächlich den Überblick verliere, geh' ich tiefsehtauchen.
@hcstrien.bsky.social
Linksliberal. Gegen Extremisten von rechts, links und sonstwo. Team Wissenschaft (Archäologie - nutzlos, aber schön) Hier wegen Ukraine und Syrien, versuche möglichst sachliche Lagebeschreibungen zu liefern.
@franceyme.bsky.social
https://amandafrancey.com/ illustrator, amateur photographer and bird telepath. Advocating for myalgic encephalomyelitis #MECFS #LongCovid #ClimateAction
@purplespeedwell.bsky.social
Mostly bedridden with #MyalgicEncephalomyelitis, a devastating illness with little funding and no treatment. Toronto, Canada Ally of #pwLC #pwME #LongCovid #POTS #MCAS #MEcfs
@lizwhatsherface.bsky.social
abolitionist artist / CEO of GAY ARBYS / sentient sandwich linktr.ee/lizwhatsherface realgayarbys.com
@toveharris.bsky.social
@drdanielloy.bsky.social
Ehemann, Jurist. #MECFS. Team #SIGNforMECFS. Team #GOfundMECFS. One of the #MillionsMissing.
@olivian.bsky.social
Your lovely radical færie 🏳️🌈🦄 Hausmutter des Hauses Tarabiscoté*e 🪻🖤 Irgendwas mit DaF/Z & Queer Studies PN: hen/hens (deutsch)/they/them (English)/êlu (português) if you are queer, the gay she is also welcome https://ko-fi.com/olivian17331
@abaerbock.diplo.de
Offizieller Bluesky Account von Außenministerin Annalena Baerbock | Official Bluesky Account of Foreign Minister Annalena Baerbock
@pinam.bsky.social
GRADUATE PRODUCT DESIGNER, INTERIOR DESIGN Against FASCISM, any kind of RACISM and STIGMATIZATION of illness, especially MECFS Live with: Primary immunodeficiency (PID) Cancer ME(CFS) with humor, love for design, architecture, art...
@petecaruso.bsky.social
Treat Long COVID, ME, POTS, Sjogrens, Mast Cell, and Chronic Lyme. Develop safe vaccines, treat vax. injury. Spouse has ME 30+ yrs. Pfp: A man wearing a green face mask Banner: Colorful posters & MEmes from patient-led Long COVID and ME awareness
@christianscharun.de
Wissenschaftlicher Autor @MaiThinkX 🤓 | Podcast "Nerds at Work" 🧠🌍 | Science Slammer, Speaker, Moderator 🎤 | Klima & Kommunikation 🔥💬 | All puns intended! 😅
@cordulasoulmate.bsky.social
Pädagogin, Behinderten- u. Altenpflege, Herzensmensch, vieles war einmal #MECFS nach #PostCovid #CovidIsNotOver #LearnAboutMe
@schildi333.bsky.social
beruflich und privat interessiert an Gesundheit, Klimaschutz, Demokratie, #TeamVorsicht, Familien- und Hundemensch, Apothekerin im #TeamWissenschaft #CovidIsNotOver
@drchronically.bsky.social
Bitte keine Hilferufe über Social Media! #MECFS #LongCovid #Schattenfamilie #PflegendeEltern #Praxis #NoAfD #ÄrzteGegenRechts #Löwinnenrudel Mach dich selbstständig, haben sie gesagt. Dann hast du es viel leichter mit den Kindern, haben sie gesagt.
@momakil.bsky.social
Viel Witz und wenig Verstand. Bemüht und manchmal nachdenklich. Heißluftfritteusen-Influencer: Werbe gern mit heißer Luft
@katealexandra.bsky.social
AuDHD, POTS and MCAS, pro UBI, fan of baseball, women's hockey, reading, learning crochet. I have a body doubling service with weekly zooms - https://www.patreon.com/c/BodyDoublingwithKate. Let me keep you company while you work on your goals!
@julesahouston.bsky.social
Body malfunctioning since 1998 #MECFS #PoTS #MCAS #hypermobility & other delights. I'm a #LongCovid #LongCovidKids and #Pans #Pandas ally. Here to make connections old & new. #CovidIsNotOver #CleanAirForAll #MasksInHealthcare #GreatestMEdicalScandal
@eddieschefin.bsky.social
#CovidIsNotOver #DieMaskeBleibtAuf #FckAfD #Klimakrise #Nordsee Bissige alte Frau mit Hund, Mann und erwachsenen Kindern. Selbständig in Männerbranche, Dompteuse des Wahnsinns. Hat Long Covid. Mag die Welt BUNT.
@katztoffelbrei.bsky.social
Just a teacher who loves Pokémon and Kurzgesagt. #LongCovid #MECFS since 09/2021 Dunking on political topics with autistic pettyness and humor. We live in the darkest timeline, but might laughter at the absurdity be humankind's final resources.
@bertaschodlok.bsky.social
#KinderDurchseuchungStoppen #neurodivers #extremelydemandavoiding #Schattenfamilien #YesToNoCovid worldhealthnetwork.global #PAPRdependent 💚 Naturgarten
@allyann.bsky.social
Living with & advocating for ME, POTS & FM, ex-IT. Homebound & at times bedridden. News and Recipe junkie. Living in Millowl, home of the Bunurong people, Victoria, Australia
@filowenstein.bsky.social
writer + journalist covering health justice, wellness culture, LGBTQ+ stuff + more... https://www.fionalowenstein.com/ The Long COVID Survival Guide: https://theexperimentpublishing.com/catalogs/fall-2022/long-covid-survival-guide/ they/them
@mildtin.bsky.social
Usually a lurker, Chronically Online for #LongCovid and other #IACC | Australia
@mileswgriffis.bsky.social
Co-founder/editor @TheSickTimes.bsky.social Columnist @HighCountryNews.org miles@thesicktimes.org #LongCOVID
@maosbot.bsky.social
Parent, spouse, Australian, cyclist, Professor of Machine Learning in Oxford. Bayesian ML, Long Covid, photos of dog, AI must be good for humans, https://www.robots.ox.ac.uk/~mosb
@trishgreenhalgh.bsky.social
Prof of Primary Care Health Sciences, Oxford. Researching digital health/ inequities, covid prevention (masks/ air quality). Wild swimmer. Mum to Rob (marine bio) & Al (doc). She/her. https://scholar.google.com.au/citations?user=QDCqsJwAAAAJ&hl=en&oi=ao
@angelamswinca.bsky.social
🦠😷♿️#LongCovid disabled | 📢Chicané activist | 🏠LAX | ⚖️health justice | ✊🏽✊🏾✊🏿racial justice alt text profile pic: tan skinned person in a tan KN95 mask and suit, dark wavy hair with short bangs
@epiellie.bsky.social
Epidemiologist and science communicator | newsletter: epiellie.substack.com | cohost @casualinfer podcast | Causal inference for public health #epitwitter | Canadian in US 🇨🇦 | she/her/Dr
@erictopol.bsky.social
physician-scientist, author, editor https://www.scripps.edu/faculty/topol/ Ground Truths https://erictopol.substack.com SUPER AGERS https://www.simonandschuster.com/books/Super-Agers/Eric-Topol/9781668067666
@evalein.bsky.social
betriebsraetin, married, doggos, vaccinated, nonazis, lgbtqia+ welcome, feministin sie/she