Riley
#MECFS is like attending your own funeral. You disappear, forced to watch the world move on without you, hoping that someday, you may rejoin the living. 🇺🇸🇬🇧
@chronicillnessfc.bsky.social
An inclusive community, resource hub & mutual support for people w/chronic & invisible illness. Friendship & Digital hangouts! 📍SF #EDS #MCAS #POTS #MECFS #PMDD #AuDHD #PTSD Mental health advocate, indigenous #LGBTQIA+🍉 Sign up at the form below🤍✨
@julialmv.bsky.social
Long COVID patient-researcher @ Scripps Research & Patient-Led Research Collaborative
@rowanwalrath.bsky.social
Life sciences reporter @cenmag.bsky.social. Texan Bostonian. Vaxed & masked. she/her. [email protected]. For sensitive tips, I'm on Signal @rowanwalrath.01 or email [email protected]
@luckytran.com
Public Health, Climate Justice, and Science Communication. Bylines in the Guardian, Washington Post, and more. WHO Fides member. Grist 50 Fixer. Opinions my own and do not reflect those of my employer. http://linktr.ee/luckytran
@claguenjc36.bsky.social
Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise incl CV/fatigue/mental health/ME/Longcovid/EDI/all views my own she/her
@coresinai.bsky.social
We are a center at Mount Sinai Hospital in NYC, advancing treatment and knowledge of Long COVID, Connective Tissue Disorders, ME/CFS, and Post-Treatment Tick and Vector Borne Illnesses. core.myflodesk.com
@postviraltrials.bsky.social
News and information about interventional trials for Long Covid, ME/CFS, POTS, and other post-viral illnesses. Message or tag me if you’re in a trial or otherwise have information to share.
@franceyme.bsky.social
https://amandafrancey.com/ illustrator, amateur photographer and bird telepath. Advocating for myalgic encephalomyelitis #MECFS #LongCovid #ClimateAction
@rippermd41.bsky.social
My life runs by the Murphy’s Law of illness: If something can go wrong, it will go wrong. Latest one is #MECFS but the laundry list is long. Live in New England
@charlesornstein.bsky.social
Managing editor/local at ProPublica, past prez of AHCJ, Detroit Lions fan. Email: [email protected]. Posts are my own.
@karenlhargrave.bsky.social
Co-founder #ThereForME | Calling for an NHS that’s there for ME & Long Covid | www.thereforme.uk Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
@topazstudioscom.bsky.social
Seeking casual remote work 🪷 Grandmother • 3 chronic illnesses in 2020 (longCOVID, ESKD, immunocompromised) 💙 Volunteer @renegaderesearch.bsky.social 🥩 animal-based keto
@anilvanderzee.bsky.social
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS #art2cureME #pwme #millionsmissing
@sammiemc.bsky.social
Long Covid Kids Founder & CEO Hoping to be on the right side of history. ♿️#LongCovid ✳️#CleanAir 🙋🏻♀️Campaigner 🧠🧡🫀#LongCovidKids 🌊#ColdWater 🧜🏻♀️#Swimming 🧘🏻#Pilates coach - #Pacing since 2020 🦠 😷 🫅🏼#CoronationChampion 💥#Volunteer
@katieklocksin.bsky.social
One of the #MillionsMissing with #LongCovid #MECFS // Once a radio and podcast producer, always a Transom alum 😷 Long covid is common 😷
@davetuller1.bsky.social
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. [email protected]
@johnvsjonvsme.bsky.social
#JohnVsJonVsME campaign to get John Oliver or Jon Stewart to bring the awful history of #MyalgicEncephelomyelitis #GreatestMEdicalScandal to light JohnVsJon.com
@albertvilella.bsky.social
Bioinformatics Scientist / Next Generation Sequencing, Single Cell and Spatial Biology, Next Generation Proteomics, Liquid Biopsy, SynBio, Compute Acceleration in biotech // http://albertvilella.substack.com
@scifri.bsky.social
Entertaining & educational conversations about science, tech, + more. Hosted by Ira Flatow and Flora Lichtman. From WNYCStudios #SciFriBookClub 📚 'Everything Is Tuberculosis' by John Green
@internethippo.bsky.social
@techmeme.com
Top news and commentary for technology's leaders, from all around the web. This account shares top-level Techmeme headlines. Visit https://techmeme.com/ for full context.
@joshgerstein.bsky.social
Sr. Legal Affairs Reporter, @POLITICO Priors: ABC White House & China correspondent, CNN, NY Sun 🇺🇸🇦🇺[email protected]. DM for signal
@elisaperego78.bsky.social
#LongCovid | researcher | Covid | infectious disease | health, disability, inequality in present and past | human-environment interactions | big data | medicine history | patient-led research | MA PHD| ≠ MD |
@sarahoc1.bsky.social
#pwME patient 12 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover
@lcaireland.bsky.social
The voice for Long Covid in Ireland. An advocacy group comprised of Long Covid patients fighting for awareness of LC & adequate services in Ireland for all patients. https://longcovidadvocacyireland.com
@petebuttigieg.bsky.social
Husband, dad, veteran, writer, and proud Midwesterner. 19th US Secretary of Transportation and former Mayor of South Bend.
@decodemestudy.bsky.social
🧬 The world’s biggest study of genetic causes of #MECFS. Launched September 2022. 🧬 https://www.decodeme.org.uk/
@strangerandstranger.net
Author of "stranger and stranger”, letter writer, advocate and fundraiser for biomedical ME/CFS research.
@camregier.bsky.social
Husband, Father, Engineer, Buildings Nerd, IAQ, LongCOVID, MCAS, ME/CFS. He/Him. Views are my own. Likes and retweets are not endorsements. Winnipeg, MB
@kityates.bsky.social
Author. Prof of Math Bio and Public Engagement. Member of Independent Sage since October 2020. @Kit_Yates_Maths on twitter Books - Math(s) of Life and Death How to Expect the Unexpected Get them here: https://tinyurl.com/37rx2yuv He/Him
@wilhelminaj.bsky.social
Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
@democracynow.org
Independent, daily global news hour. Support our work: http://democracynow.org/donate Daily News Digest: http://democracynow.org/subscribe
@viralpersistence.bsky.social
fund research and clinical trials for infection associated chronic illnesses now, and furthermore provide clean energy-powered hotel cold on demand for free. medicaid, not medicare, for all. aspiring #burquesky member.
@chromatowski.bsky.social
This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing. ME ‘05, LC ‘23, many of their friends along the way. Very severe (FUNCAP 0.8). No unsolicited advice please!
@dgcomedy.bsky.social
@mrsbettybowers.bsky.social
I am America’s Best Christian™. But you knew that. You can find exclusive content here: https://www.patreon.com/c/MrsBettyBowers TITHE: https://www.paypal.com/donate/?hosted_button_id=Q6REDKBBVUJLU
@cabruce.bsky.social
Previously a psychotherapist. Bedridden #ME 32years Daughter severe ME, eldest son MS. I like art, nature, books, people, music, poetry and podcasts!
@oonaghcousins.bsky.social
@jesshoneybadger.bsky.social
Chaotic good writer and scientist with severe, bed bound MECFS. Writing wholesome stories, science stuff, and funny anecdotes from bed. Lover of memes. jesshoneybadger.substack.com
@thesicktimes.bsky.social
A nonprofit news site chronicling the #LongCOVID crisis. Founded by journalists @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social Website: thesicktimes.org Newsletter: thesicktimes.org/newsletter Donate: the-sick-times.fundjournalism.org
@betsyladyzhets.bsky.social
editor/co-founder @thesicktimes.bsky.social | journalist covering Long COVID & related crises | she/her/🏳️🌈 email: [email protected] | signal: betsyladyzhets.25 | https://thesicktimes.org/
@solveme.bsky.social
Solve M.E. is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid, and other infection-associated chronic conditions.