Patient Partnership in Canada
These are individuals and groups in Canada working to ensure that those most affected by research are helping to design and co-lead it as full partners in the research process.
Created by
@sabrinapoirier.bsky.social
@lli-1.bsky.social
Professor of Physical Therapy | Harold Robinson Chair in Arthritic Diseases @UBC @Arthritis-UBC | health services & implementation scientist https://arthritis.rehab.med.ubc.ca/
@hettymulhall.bsky.social
Associate Scientific Director at CIHR-IMHA | Views my own, reposts not endorsements | Non-practising Veterinary Surgeon
@proulxlaurie.bsky.social
All about patient engagement, especially in pharmaceutical policy & research. Living with juvenile rheumatoid arthritis since I was 14. Writer, cat lover, and classical music nerd 🧐
@pxphub.bsky.social
👉For Patients, By Patients 👈 The PxP initiative brings together resources for the patient engagement community in health research.
@longcovid-adri.bsky.social
Lead of Long Covid Canada Collaborative grp. ANIMAL LOVER. Former int. Competitive swimmer. Disabled by LC since Xmas 2020. #Covid #LongCovid #MECFS science-based advocate w several orgs. #FBLC We must #Unite2Fight strong together in this chaos! 🖤🤘
@maggiekeresteci.bsky.social
I care about improving lives of patients & caregivers | Author | Speaker | Advocate | Caregiver | Patient | co-design | Healthcare Policy | Health Services & Policy Research | Views are my own, influenced by many
@clairesnyman.bsky.social
#Braintumor | Healthcare advocate | Patient experience consultant | Pnt Engagement/Pnt Experience are essential | Author & #TEDx speaker | Two Steps Forward |
@vickyyyf.bsky.social
Patient engagement professional, "retired" cancer research scientist, cancer survivor, science and health writer. Leafs/Toronto Sceptres fan. Hockey player in training. https://www.drvickyforster.com/
@mommyhascancer.ca
Using my story to advocate for better screening, cancer care and research in Canada. Author of an animated comic strip series about a young family with a terminally ill parent, based on my and my kids’ experiences. 🔗 https://linktr.ee/mommyhascancer
@manojlalu.bsky.social
Anesthesiologist and Scientist from Ottawa. Interested in accelerating translation of therapies through preclinical systematic reviews, multilabstudies, and patient engagement.
@ritamc.bsky.social
🇨🇦Family doctor & primary care researcher. Settler on Tsleil-Waututh, the Musqueam & Squamish lands (aka Vancouver, BC) Imperfect parent. Slow runner. Unsatisfied with the status quo & can't stop 📢 about changing it. she/her & here for🌈🏳️⚧️ Posts my own.
@ctzenimprover.bsky.social
Lover of chocolate and equity. access + equity + healthcare, ally, tea-drinking, babywearing educator. Opinions are my own.
@ferprogram.bsky.social
We train, mentor, and mobilize today’s advocates, champions, and leaders in family engagement.
@dawnrichards.bsky.social
Living life with #Arthritis along for the ride. Posting & passionate about #Research, arthritis, #PatientEngagement, #PPI. Opinions my own.
@drmroz.bsky.social
Vancouver BC Canada (Formerly @DrMroz on twitter) #PatientOrientedResearch Capacity Development, BC SUPPORT Unit, Michael Smith Health Research BC. #SPOR, #CIHR Posting on #PatientEngagement in research, #POR, #LearningHealthSystems & #LearningCommunities
@savaslab.bsky.social
Science, public conversations on cancer, community engagement, news & flower pics I don't engage with folks who troll/insult Opinions mine. RTs-likes-mentions not endorsements No DMs Prof. at Memorial University, NL, Canada https://strength-in-community.ca
@platouche.com
Business Analyst | #longcovid #PASC #patientpartner | Long Covid advocate Analyste d'affaires | #covidlongue #covidlong #PACL #patientpartenaire #quebec | Défenseur de la COVID longue
@brynphd.com
A creative and curious sort, writing poetry and photographing all the birds on Wolastoqey lands. UNB PhD '10. Wife, stepmom, she/her. 🏳️🌈🏳️⚧️☕️ Campfire Notebook: brynphd.com Book Reviews: @theseaboardreview.ca
@guyaneb.bsky.social
@seastarbatita.bsky.social
New platform. New bio. Nerd. Disabled. Honesty is kindness. Even when it’s hard. #PatientsIncluded #ItDoesntHaveToHurt #PatientPartnership #PatientEngagement (avatar by @blackmudpuppy)
@coffeeandresearch.bsky.social
Research Knowledge Broker, speaker, knowledge mobilization, cancer, childhood disability, rare disease, spoonie, coffee drinker. Opinions are my own.
@profkarimkhan.bsky.social
@jefferysmithme.bsky.social
Lover of old films, books, Doris Day and Rosemarys Baby and other who-haa. Cranky empath. Dealing with servere ME. and cancer. Politically sensible, sensitive and left.
@majulli.bsky.social
ME CFS, Long COVID, Comorbidities & disability advocate | Former social worker | She/Her/Elle | #MECFS #EMSFC #LongCovid #CovidLongue #DisabilityJustice Tiohtià:ke | Montreal 🇨🇦
@carriemcginn.bsky.social
Infection-associated chronic illness advocate | Life sidelined by #LongCovid #MECFS #POTS | #PatientPartner | MSc | Mom | She/Her | 🇨🇦 #Canada #Quebec #CovidConscious #StillMasking #MyalgicEncephalomyelitis #pwME #EMSFC #CovidLongue #CovidLong #pwLC
@lhunter1310.bsky.social
Retired nurse and healthcare executive; now a patient partner in research. Live life with #spinalstenosis #arthritis #fibromyalgia #DDD #IBS #endometriosis “Turning negatives into positives daily” 🇨🇦
@jillianengages.bsky.social
Patient partnership in research. Team Lead, #PatientPartnership for Institute of Genetics, Canada. #RareDisease. Disabled. Opinions mine & not that of my employer. She/her
@sabrinapoirier.bsky.social
#CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis + #MECFS & #LongCovid #ResearchPartner & #Advocate • Chair of #MedicalEducation Group • #PwME #Disability (Unceded) #Canada https://linktr.ee/sabrinapoiriercanada