Swifts and Swallows
My daughter had Severe ME, POTS & MCAS and died in 2024 after years of medical neglect.
I am also the parent carer of a younger daughter with ME & POTS.
Loves to see cute photos of cats, birds & animals so I can share with my daughter to brighten her day
@foxunderthemoon.bsky.social
Hi, I’m Stacey, the author of the Fox Under The Moon book series. My books focus on the emotional challenges of the human experience; love, grief, loss friendship, health and more. Conversations between Fox, Moon and Friends help find the right answer.
@hippymum.bsky.social
Happily married. Fighting to get through one day at a time. 42 years with M.E., hEDS, POTS, COPD, Fibromyalgia, Osteoarthritis, Scoliosis, Reynauds, and a whole heap of other crap. I've no quality of life, mostly bedbound and hate it.
@stevefifield.bsky.social
Informed decisions & verifiable facts please, not opinion & belief. UK. 🇬🇧 Mine of occasionally useful information. NHS and healthcare 💙 #Equality #Justbe #Inclusion #LGBTQ+ 🌈 ally #pwME #MECFS #Activetravel 🚲 #Sustainability #Gardening #VisibleApp
@christinalaw.bsky.social
Struggling with #MECFS, #celiac, #migraine Former Financial/Data Analyst and College Economics Lecturer. https://christinalawrence.me
@kristinwrites.bsky.social
Poet, Wife, Mom, LongCovid/MECFS Sufferer. Looking to connect and learning to advocate. Cofounder of #CripCoop. EIC, Poetry @epistemiclit.Bsky.social, @whirligiglit.bsky.social. Micropoetry chapbook Lift the Mask available widely. www.kristinhoulihan.com
@nature.com
Research, news, and commentary from Nature, the international science journal. For daily science news, get Nature Briefing: https://go.nature.com/get-Nature-Briefing
@knitty.com
knitty.com : the free online knitting + fibercraft mag, est. 2002. Amy, editor (she): est. quite a bit before that. 🧶 Free thanks to our Patrons! patreon.com/knitty #knitting #crochet #AuDHD #science #compassion #CDN #hamont 🇨🇦 Perpetually covid vaxxed💉
@fe-maiden.bsky.social
Lifelong Dem. Teacher. Chemistry 🥽 🧪. Fuck whatever this shit is, look at what you’ve done.
@scholenveilig.bsky.social
Advocate for Safe Schools with a focus on prevention like Clean Air to protect children from health risks like long Covid. Sharing data on child Covid hospitalizations, long Covid, and schools with clean air: scholenveilig.com 🌍The Netherlands
@cathnz.bsky.social
Quiet life in coastal Aotearoa New Zealand. Equity, empathy and compassion. Pro-cat. #pwME
@ukstarlings.bsky.social
We love Starling Murmurations and we log roost locations across the UK throughout the Autumn/Winter. We also have a large FB Group and online Forum,
@ednamacnamara.bsky.social
💙 M.E.Carer of son aged 31, ME for 12yrs 💙. RaisingAwareness for #PwME. #Carers #LCovid #greatestMEdicalscandal X Edna, M.E.Advocate 🇨🇮 https://www.irishexaminer.com/news/arid-40218716.html http://www.idonate.ie/aMothersWalkforMECFSresearch
@iconic-crip.bsky.social
Max | they/them | Ball of pissed off mast cells | trying to survive a collapse is stressful | autistic and disabled | I’m just here for the ride ♿️🏳️🌈
@tenaciousmumma.bsky.social
Mum & carer of Sophia, bedbound with very severe ME. Constantly searching for answers and a way out of the abyss. #lymedisease #severeME #POTS #chronicpain #allodynia #vertigo
@meassociation.bsky.social
A UK registered charity for people with #MECFS and Long Covid (and Post Covid ME/CFS). We inform, educate, raise awareness, fund medical research and campaign for positive change. RPs do not necessarily mean endorsement. www.meassociation.org.uk
@ozfish.bsky.social
Retired maths teacher. ME/CFS 35 years. Volunteer staff member on Science for ME international forum, www.s4me.info
@julesahouston.bsky.social
Body malfunctioning since 1998 #MECFS #PoTS #MCAS #hypermobility & other delights. I'm a #LongCovid #LongCovidKids and #Pans #Pandas ally. Here to make connections old & new. #CovidIsNotOver #CleanAirForAll #MasksInHealthcare #GreatestMEdicalScandal
@paulkeeble.co.uk
ME since 2017 (Mild), 2019 Moderate , 2020 Severe Long Covid since March 2020 (V Severe) Funcap55 = 1.9 ( (Severe)
@anilvanderzee.bsky.social
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS #art2cureME #pwme #millionsmissing
@cbme-mark.bsky.social
Severe ME/CFS with added Long Covid. Running a support group in Cambridge, UK. Pronouns: depends how the day pans out
@dom2023.bsky.social
ME since 2016. Have been working on microbiome since 2021. Finally got a test in 2023 with symptoms at 90% (first time in five years). Discovered four biomarkers in my sample correlated with 90%. Hope to maintain 90% in 2023/4.
@franceyme.bsky.social
https://amandafrancey.com/ illustrator, amateur photographer and bird telepath. Advocating for myalgic encephalomyelitis #MECFS #LongCovid #ClimateAction
@campaignfdj.bsky.social
A UK-wide campaign run by Disabled people, for Disabled people, run by a local charity @inclusionbarnet.bsky.social Join our campaign for updates: https://www.campaignfordisabilityjustice.org.uk/sign_up_to_support
@fstevenchalmers.bsky.social
Retired person, was in tech industry for 37 years Self and family got multiple chemical sensitivity from a sick house incident in the mid 1990s Heretic, with a heretical research hypothesis on the nature of MCS and a dozen other complex chronic illnesses
@birbsarereal.bsky.social
Forty-something retired biologist and ME advocate. Lover of birds and yarn. Former athlete. Wife. For kindness, empathy, inclusion, and accessibility. She/her. Crochet artist; https://www.ravelry.com/stores/stitches-by-sarah
@unitetofight.bsky.social
LongCovid & ME/CFS conference project. We’re a small group of affected people living with LC & ME/CFS, alongside dedicated supporters. #UniteToFight2024 www.youtube.com/@unitetofight2024
@phoenixme.bsky.social
Bed-bound activist with severe ME/CFS. ME/CFS, chronic illness, #AusPol, #USPol, climate justice, social justice, crochet, cats, sci fi. Views expressed are my own. If I had any spoons, I'd be dangerous. Boonwurrung country, Australia
@clanman.bsky.social
Running The York ME Community & Caring about Accessibility in York UK. Could talk football all day long. Like to Word Doodle (some call it poetry) The Word Doodle Trilogy is out on Amazon now !
@notunpackedyet.bsky.social
Here to talk about #MEcfs, #MEspine, #hypermobility, #POTS, #hEDS, #LongCovid, #ChronicIllness and #disability ...but I also have opinions on other things. You have been warned :P
@actionforme.bsky.social
Providing support & holistic healthcare services to people of all ages affected by #MECFS
@thereforme.bsky.social
Calling for an NHS that's there for Long Covid & Myalgic Encephalomyelitis (ME) | www.thereforme.uk
@veganmama72.bsky.social
Vegan mama of two utterly brilliant autistic people ~ Former home educator still supporting the UK home ed community via our group PopArt Home Education ~ Van Dweller for the last decade ~ Interested in Nature, Art, History and saving our planet! 💚
@c19lap.bsky.social
A U.S. based #grassroots, #patientled, all-volunteer 501(c)(3) #nonprofit organization advancing the understanding of & expediting solutions for #LongCOVID. #FBLC #IACC #Disability #PublicHealth https://www.longhauler-advocacy.org
@adarkenedroom.bsky.social
One of the #millionsmissing || Raising awareness of the most severe form of #MyalgicEncephalomyelitis
@joannesmith.bsky.social
ME since 1991.Owned by Shih Tzu called Teddy 🐾 Interested in ME advocacy & research.Dogs inc.welfare eg #LucysLaw .Wildlife. Books. Bit of Politics. #pwME Twitter Handle @_joannesmith
@avelaretas.bsky.social
Elder statesman of the Peter Pan Club. 😔 #mecfs #fibromyalgia #SFN Bullshit Artist formerly known as Max Bond, Murray Huana, Elrond Hubbard, Arsen Balls and Anita Schitt. Living on unceded Kokatha land. Sometimes I lie for comedic effect.
@betsyambassador.bsky.social
Betsy was rescued from a cruel laboratory dog breeder. She now helps end the failed practice of animal experiments, as Beagle Ambassador for the science-based campaign For Life On Earth (FLOE) https://www.betsybeagle.org https://www.operationbeagle.org
@holistichv.bsky.social
🇬🇧Holistic, inclusive, trauma-informed, neurodivergent experience and inequalities aware, paediatric Nurse, Health Visitor &researcher (with lived experience of ADHD, hEDS,CRPS & SEND parenting). Think KPI (not ✅ box)- Keeping People Included! Views my own.
@gotnospoons.bsky.social
Mom, wife, web developer, artist. Chronically ill with #LongCovid / #POTS / #MECFS . I make custom armbands for the Visible app which is a lifesaver for me.