ThisisMEtweeting
Apparently I don’t like viruses. #MEcfs as a child; post viral syndrome as an adult; now #LongCovid; #fibro; #hypermobility;
#hEDS #pwME. Kiddo with #LC. #ND. #HealthPolicy research. (Yes I know it’s Skeeting & hashtags don’t work the same. Give me time.)
@broadwaybabyto.bsky.social
Disabled & chronically ill writer. Former theatre critic. Clean air is a human right & vulnerable people aren’t expendable. Covid is airborne 😷 https://www.disabledginger.com A redheaded snippet who loves Sondheim. Once fainted into Hugh Jackman.
@ginnybraun.bsky.social
Pākehā/Tangata Tiriti; critical psych, health/disability, feminism/gender/politics, bodies, equity & social justice. #ThematicAnalysis #QualitativeResearch! www.thematicanalysis.net www.storycompletion.net https://profiles.auckland.ac.nz/
@panickedfoodie.bsky.social
Scientist | Cornell Alum | Bedbound w/ severe illness | Gamer | #FluidMechanics #HeatTransfer #CovidIsAirborne #MayThurnerSyndrome #NutcrackerSyndrome #Endometriosis Bell: 10-20 TikTok, YT: The Panicked Diaries disabled.social Mastodon server admin
@profstevegriffin.bsky.social
Professor of Cancer Virology, University of Leeds. Co-Chair, Independent SAGE
@binitakane.bsky.social
Long COVID/ME interested lung doctor | Campaigner for race equality, clean air & patient voice | Independent SAGE | Co-Founder South Asian Heritage Month YouTube: @LCCWYCD Enquiries: [email protected] Linktree: https://linktr.ee/binitakane
@stevefifield.bsky.social
Informed decisions & verifiable facts please, not opinion & belief. UK. 🇬🇧 Mine of occasionally useful information. NHS and healthcare 💙 #Equality #Justbe #Inclusion #LGBTQ+ 🌈 ally #pwME #MECFS #Activetravel 🚲 #Sustainability #Gardening #VisibleApp
@katybrc.bsky.social
Myalgic Encephalomyelitis - M.E + POTS for 38 years Donor to the UK MEcfs Biobank for 10 years & @DecodeMEstudy Please watch http://dialogues-mecfs.co.uk/videos/ London, UK No DMs please #pwME
@julesahouston.bsky.social
Body malfunctioning since 1998 #MECFS #PoTS #MCAS #hypermobility & other delights. I'm a #LongCovid #LongCovidKids and #Pans #Pandas ally. Here to make connections old & new. #CovidIsNotOver #CleanAirForAll #MasksInHealthcare #GreatestMEdicalScandal
@njbbari3.bsky.social
MBBS BSc Hons Infectious Diseases 🇬🇧 🇦🇺 Zero COVID Australia [email protected] NjbBari3 on X
@untonuggan.bsky.social
angry mast cells (HaT and #MCAS) + #POTS + neurodivergent. ♿ queer. white. emperor of typos. brain fog zone ⚠️. they/them 🎶 iii'm still masking 🎶 working on porting more of my body science infodumps and such to: liminalnest.wordpress.com #NEISvoid
@mefoggydog.bsky.social
Award-winning #socialenterprise in #UK. Working for #socialchange for the #MECFS community. Linktree - http://bit.ly/408o6LI
@lessorfewer.bsky.social
PhD geography: money & finance • Life mostly on hold from Long Covid 03/2021 • 개리말고 가리 ________________ 🇮🇪 | https://linktr.ee/g_a_r_y
@ninahatfield.bsky.social
she/her, Writer, Learner, Mythologist, chronically ill with #MECFS I host community peer groups www.co-resting.org #PWME #Mythology #MyalgicEncephalomyelitis #ChronicFatigue #CFS #Resting #CoResting #Pacing #PEM #MCAS #NEISvoid
@paulaknight.bsky.social
Author, illustrator, comics memoir THE FACTS OF LIFE (Myriad) Kidlit Books x3 Writing illustration comics poetry photography Disabled nonambulatory bedridden 7yr #pwME No DMs pls https://linktr.ee/paulajknight https://ko-fi.com/bedscape She/Her
@grachstephanie.bsky.social
Physician specializing in ME/CFS, Long COVID, & associated complex disease | Assistant Professor of Medicine | She/Her/Hers | https://t.co/TkYm2MXvir
@richellesepulveda.bsky.social
Long Covid, MECFS, ADHD, etc. Patient-led research is my jam. A bit obsessed with GIP.
@stevesilberman.bsky.social
Award-winning science writer, author of the New York Times bestseller "NeuroTribes: The Legacy of Autism and the Future of Neurodiversity," and an upcoming book on cystic fibrosis, "The Taste of Salt."
@disabilitystor1.bsky.social
Historian, occasional anthropologist, working on disability, race and Empire; histories of public health. Eternal immigrant, writer, teacher. Indifferent cook. There will be many dogs on this feed. Luddite, yes, in the best way. Lives with epilepsy.
@edyong209.bsky.social
Writer, journalist. Science, health. Pandemics, animals. Birder, photographer. Many words, some awards. AN IMMENSE WORLD, I CONTAIN MULTITUDES. Married to Liz Neeley, parent to Typo. he/him 📷 Canon R6mkii + RF 800mm Edyong.me
@evonnetcurran.bsky.social
Spent a career in IPC. Now just wanting IPC guidance to acknowledge the evident mode of transmission for SARS-CoV-2 and other respiratory pathogens - airborne. Without good guidance there is no person safety. Doctor of Nursing.
@ravihvj.bsky.social
Post-Covid ME/CFS since March 2021. Before then, a life I loved. Stanford History | 2021 Schwarzman Scholar
@kityates.bsky.social
Author. Prof of Math Bio and Public Engagement. Member of Independent Sage since October 2020. @Kit_Yates_Maths on twitter Books - Math(s) of Life and Death How to Expect the Unexpected Get them here: https://tinyurl.com/37rx2yuv He/Him
@cyruxime.bsky.social
Energetically compromised (bedridden) by severe #MECFS. All systems operating at minimum capacity & overloaded. In a previous life: comp sci x math, powerlifting. #LongCovid ally.
@mfairma.bsky.social
ME. Spouse w LC, ME. Writer, bread baker, daydreamer. Still waiting on fair funding and apology from HHS. Masking like someone’s life depends on it.
@rfh1955.bsky.social
ME/CFS archive, especially RFH 1955. For education, not profit. Relocated from Twitter. Researched since 2011 by @continuitytweets.bsky.social & @ciaranj_farrell. https://rfh1955.blogspot.com/
@bennessb.bsky.social
currently: sick / haunted in Western Mass, host of No End In Sight - a podcast about life with chronic illness, creator of #NEISVoid | previously: Stories We Don’t Tell in Toronto | she / her
@blackgirllostkeys.bsky.social
#ADHD I blackgirllostkeys.com | Professional loudmouth | Amateur adult | she/her Email, no direct messages: [email protected]
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: [email protected]
@putrinolab.bsky.social
@franceyme.bsky.social
https://amandafrancey.com/ illustrator, amateur photographer and bird telepath. Advocating for myalgic encephalomyelitis #MECFS #LongCovid #ClimateAction
@sarashaw.bsky.social
Professor of Health Policy & Practice, University of Oxford; studying technology-in-use and sustainability (sometimes both together); #AcademicSky
@trishgreenhalgh.bsky.social
Prof of Primary Care Health Sciences, Oxford. Researching digital health/ inequities, covid prevention (masks/ air quality). Wild swimmer. Mum to Rob (marine bio) & Al (doc). She/her. https://scholar.google.com.au/citations?user=QDCqsJwAAAAJ&hl=en&oi=ao
@vladvexler.bsky.social
Philosopher - ethics, politics, music | Slowly writing a book on Isaiah Berlin | Born in USSR, home is London | Living with ME since 2003. youtube.com/vladvexler (main channel) youtube.com/vladvexlerchat (chat channel) youtube.com/@vladvexlerphilosophy
@justjo.bsky.social
Interested in goings on. Small life lived in a small house. Past best before date. Lefty. ME/POTS #Anti-RecoveryActivist
@bmhughes.bsky.social
Concerned citizen • Prof Psych • Writer • Galway • he/him A blog: https://thesciencebit.net/ A bio: https://brianmhughes.com/ A book: https://bloomsburycp3.codemantra.com/viewer/63721f10ee35880001aafadc 📷 https://www.photoblogism.net
@no1sarah.bsky.social
She/her. 🏳️🌈🏳️⚧️ ally @sarahslowsdown on the bird app In healthier times: Health & social care; homelessness & housing. Music, music, music. 🎶 Mostly here to connect with #LongCovid #MECFS #ChronicIllness #Dysautonomia #hEDS #MCAS
@talmandaniel.bsky.social
Curious & exhausted peace seeker, co-host of Post-Exertional Mayonnaise podcast, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
@patientled.bsky.social
Patient-Led Research for #LongCovid! http://patientledresearch.com
@dysautonomia.bsky.social
We are the leading non-profit advocating for over 70M people around the world living with autonomic nervous system disorders. Research, Clinician Education, Patient Empowerment, Public Awareness & Advocacy is what we do. DysautonomiaInternational.org
@stephenmia.bsky.social
Former Skier, Cyclist, Climber, Hill Walker, Diagnostic Radiographer and functioning human. Now - ME, POTS, LC, Vax Injury - Pro Vax - Still finding the joy
@anilvanderzee.bsky.social
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS #art2cureME #pwme #millionsmissing
@kunstjonas.bsky.social
Professor of Communication and Psychology at BI Norwegian Business School and the University of Oslo Past Yale, Harvard, UiB. Editor-in-Chief at Advances.in Father. Views are my own.
@janetdafoe.bsky.social
ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.