Arthur
ME Patient-ly Waiting for Biomedical Research #GreatestMEdicalScandal @unreal_arthur
@longcovidcan-co.bsky.social
We provide support, resources & reliable science-based information to patients, parents or caregivers of those suffering from Long Covid in Canada in our FB support group. Engaging w our community& building collaborations. Because we are STRONGER TOGETHER.
@socialepi.bsky.social
Social Epidemiologist | Founder & President of the International Social Epidemiology Society
@anneinayrshire.bsky.social
Long term living with ME (over 30 yrs) Have a lot of crashes but Still trying Still hoping Largs, Scotland
@somethingchronic.bsky.social
95% bedbound by ME/CFS, POTS, hEDS, MCAS and more. Chronically hopeful for better days. Determined to rise up against injustice for a world where pwME and LC are treated with the same understanding, kindness and belief as any other serious physical illness
@weselymd.bsky.social
Husband & Dad. ICU Doc. Vanderbilt. @CIBScenter studies Covid & Long Covid, ICU Survivorship, Dementia, Delirium, PICS. Fighting misinformation. Posts my own. Still learning.
@maryepworth.bsky.social
Write/produce/compose music Run Hand Of Glory Records. https://bsky.app/profile/handofglory.bsky.social Also: glow worms, Czech, Prog, HI-NRG, zero covid zealot. Perpetually exhausted thanks to #mcas #mecfs www.maryepworth.com
@ladylonghaul.bsky.social
Born 324 ppm. small spoons & sensory spaces. 🥄🎧 #ADHD #hEDS #LongCovid #MCAS #pwME #Migraine #POTS #PsoriaticArthritis #Tinnitus #Disability #Adoptee #Climate ko-fi.com/ladylonghaul LongCovidKids Awareness Banner 5 years since Long Covid Changed Lives
@renegaderesearch.bsky.social
Renegade Research (RR) is a non-profit 501c3 decentralized organization pioneering patient and caregiver led research focused on ME/CFS and LongCovid... Website: https://renegade-research.org 💙 Project: @remissionbiome.bsky.social
@scishow.bsky.social
Check out our 2025 WEBBY HONOREE An Ancient Roman Shipwreck May Explain the Universe: https://www.youtube.com/watch?v=o0A9M5wHBA4
@drseanmullen.bsky.social
Research Director of the #Exercise #Technology & #Cognition Lab | #Movement #Neuroscience | Husband | Dad | #MartialArtist | #FlowArtist | #Tennis Teaching Pro | Advocate for Persons with Long Covid
@laelyonker.bsky.social
The Yonker Lab focuses on mucosal immunity and disease responses related to airway infections in children.
@ashleydaltonmp.bsky.social
Labour MP for West Lancashire, email casework to ashley.dalton.mp@parliament.uk |Minister for Public Health | Living with metastatic breast cancer 🔗www.ashleydalton.uk
@sarahoc1.bsky.social
#pwME patient 12 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover
@petertatchellfdn.bsky.social
The Peter Tatchell Foundation is a #HumanRights charity with a strong #LGBT+ focus. We are Speaking Out for Human Rights. Linktree: https://linktr.ee/petertatchellfdn
@lcaireland.bsky.social
The voice for Long Covid in Ireland. An advocacy group comprised of Long Covid patients fighting for awareness of LC & adequate services in Ireland for all patients. https://longcovidadvocacyireland.com
@greendarrenshipley.bsky.social
Green Party Campaigner | Living with Long Covid | Bradford | Shipley Town Councillor 2020-24 | https://linktr.ee/darrenparkinson Promoted by D Parkinson (Bradford Green Party) at 88 Hirst Wood Road, Shipley, BD18 4BU.
@dovsz.bsky.social
He/him. Spoonie. Why couldn’t we be bonobos. Protect trans kids. Trans rights are human rights. Cohost pempod (pempod.com) podcast about life with ME and long covid.
@crunchme.bsky.social
CrunchME is a patient-led organisation, creating the evidence and insight base needed to crunch infection-associated chronic conditions (IACCs), including #MECFS and #LongCovid. 📍 https://crunchme.org/
@hildabast.bsky.social
Scientist (PhD; she/her), writer, cartoonist. Blogging & Newsletter: Living With Evidence https://hildabastian.wordpress.com/ Mastodon enthusiast: @hildabast@mastodon.online
@kaufmanmd.bsky.social
Physician/Internist focused on complex illness including Long Covid, ME/CFS, dysautonomia/POTS, MCAS, connective tissue disorder, and of course SIBO/Leaky Gut. And sadly, the ongoing coup.
@precisionlife.bsky.social
Precision medicine for complex diseases. Creating better, more personalized diagnostics & treatments for unmet medical needs. Join us for world-leading AI-led science, healthcare, diagnostics, & drug development.
@keristars.bsky.social
I love museums and history. ★ bed-tethered disabled! AuDHD, POTS, MCAS, and ME/CFS. ★🧑🦽★ I miss traveling and being in nature and sewing. location: Jacksonville, Florida (agender ace ey/em/eir)
@meighanstone.bsky.social
Executive Director of Long COVID Campaign @lccampaign.bsky.social. Past: President Malala Fund, Senior Fellow Council on Foreign Relations & Harvard fellow. Single mom living with #LongCOVID #MECFS #POTS #MCAS one day at a time ♿
@criquaer.bsky.social
Queer, humanist, pantheistic Quaker. Politically non-partisan. Disabled & chronically ill #pwME #MyalgicEncephalomyelitis #SevereME 🇪🇺🗣️ 🏴🇦🇹🇩🇪🇪🇸🇫🇷🇵🇹
@petecaruso.bsky.social
Treat Long COVID, ME, POTS, Sjogrens, Mast Cell, and Chronic Lyme. Develop safe vaccines, treat vax. injury. Spouse has ME 30+ yrs. Pfp: A man wearing a green face mask Banner: Colorful posters & MEmes from patient-led Long COVID and ME awareness
@andrewperpetua.bsky.social
If you think I deserve a tip: http://paypal.me/ukrdailyupdate to view my map: http://map.ukrdailyupdate.com
@rachelsalvidge.bsky.social
Environmental journalist. Founder of investigative journalism non-profit https://watershedinvestigations.com/ Bylines: @guardian @thetimes @bbc @SkyNews @itv Ex: @TheENDSReport @PenguinUKBooks @independent Rachel.salvidge@watershedinvestigations.com
@sallywrites.bsky.social
MG author: Toby and the Silver Blood Witches, Max and Monty with Collins Primary Winner of the Book Bloggers' Novel of the Year Award 2022 Owned by three-legged rescue dog ME/CFS https://linktr.ee/SallyDoherty
@lisabd.bsky.social
@drannanz.bsky.social
Immunologist | Flow Cytometrist Immunometabolism, Infectious Diseases, Immune dysfunction, Long Covid & ME/CFS Senior Research Fellow Liggins Institute | University of Auckland DysImmune Research Aotearoa www.dysimmune.nz 🇳🇿🥝🩸🧬🧪🔬👩🏼🔬
@davidjoffe64.bsky.social
Respiratory and Sleep Medicine Neurobiology and Long Cövid WHN Long Covid Working Group Vice Chair
@profhelenward.bsky.social
Prof Public Health Imperial College. she/her. Social, genetic & environmental factors in health. Research & advocacy in long COVID, STI/HIV, inequalities. Patient Experience Research Centre
@ian-goodfellow.bsky.social
Research Scientist at DeepMind. Opinions my own. Inventor of GANs. Lead author of http://www.deeplearningbook.org . Chronically ill: bilateral Ménière’s disease + long COVID. Founding chairman of www.publichealthactionnetwork.org
@david.notesforfriends.com
Passionate healthcare IT professional dedicated to improving lives in the neurodivergent community. Advocate for innovative health practices in primary care. My articles are posted here for free. https://www.notesforfriends.com/
@christinalaw.bsky.social
Struggling with #MECFS, #celiac, #migraine Former Financial/Data Analyst and College Economics Lecturer. https://christinalawrence.me
@lcket.bsky.social
Long Covid sufferer and advocate. ME/CFS hEDS PoTS the list is endless. Seen more Ologists than I can count. 🥺
@precisionmedicine.bsky.social
Associate Director of Bioinformatics and Software at Illumina. Unleashing the power of the genome through SW and AI. #PrecisionMedicine #Cancer #MECFS #RareDisease
@tessamunt.bsky.social
LibDem MP for Wells and Mendip Hills. Passionate to serve my home area with energy, experience, and deep care for people. tessa.munt.mp@parliament.uk
@joplatt.bsky.social
Labour & Co-operative Member of Parliament for Leigh and Atherton. This includes Golborne, Lowton, Tyldesley and Astley. For constituency queries, email Jo.platt.mp@parliament.uk
@matthewjdalby.bsky.social
@resiapretorius.bsky.social
Distinguished professor, Stellenbosch University and Honorary professor, University of Liverpool.
@putrinolab.bsky.social
@aaronca11.bsky.social
Billboard campaign/fundraiser here https://www.notrecovereduk.org
@polybiorf.bsky.social
501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
@d2p.bsky.social
Paediatric Radiologist, Aotearoa New Zealand Following more immunologists than radiologists #MECFS #LongCOVID and a bit of #MacDev #iOSDev he/him https://ddp.nz | https://dysimmune.nz
@sammiemc.bsky.social
Long Covid Kids Founder & CEO Hoping to be on the right side of history. ♿️#LongCovid ✳️#CleanAir 🙋🏻♀️Campaigner 🧠🧡🫀#LongCovidKids 🌊#ColdWater 🧜🏻♀️#Swimming 🧘🏻#Pilates coach - #Pacing since 2020 🦠 😷 🫅🏼#CoronationChampion 💥#Volunteer