Arthur
ME Patient-ly Waiting for Biomedical Research #GreatestMEdicalScandal @unreal_arthur
@notunpackedyet.bsky.social
Here to talk about #MEcfs, #MEspine, #hypermobility, #POTS, #hEDS, #LongCovid, #ChronicIllness and #disability ...but I also have opinions on other things. You have been warned :P
@murtoz.bsky.social
๐ณ๐ฑ/๐ด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ. He/Him. Lounge based Landscape Photographer. Medically Retired Hardware Engineer. Tired Tinkerer. FOSS Fan. Ally. PwME/LC. Volunteer with #MEAction Scotland. #BIPOCLivesMatter #EndGenocide #CovidIsAirborne #YallMaskin #CleanTheAir
@mediumwhite.bsky.social
Europhile ๐ณ๏ธโ๐, lived in ๐ฌ๐ง๐ฎ๐น๐จ๐ผ๐ง๐ช ๐ง๐ฉ. Dedicated follower of science. Former textile engineer, now a Mgmt consultant. I believe in believing people.
@decodemestudy.bsky.social
๐งฌ The worldโs biggest study of genetic causes of #MECFS. Launched September 2022. ๐งฌ https://www.decodeme.org.uk/
@scholenveilig.bsky.social
Advocate for Safe Schools with a focus on prevention like Clean Air to protect children from health risks like long Covid. Sharing data on child Covid hospitalizations, long Covid, and schools with clean air: scholenveilig.com ๐The Netherlands
@rbmdm.bsky.social
Sou'West UK. Have M.E. Likes; Nature, engineering, brewing and history. I also follow Russia's war against Ukraine so may post on the subject just a warning if it's difficult for anyone who might follow me.
@adrianramsay.bsky.social
Green MP for #WaveneyValley. Co-leader of the Green Party of England and Wales (@greenparty.org.uk) with @carladenyer.bsky.social Former charity CEO. Need to get in touch? ๐ง waveneyvalleyoffice@parliament.uk
@wendychambld.bsky.social
Liberal Democrat MP for North East Fife ๐ถ Chief Whip Shinty player ๐ถ Wendy.Chamberlain.mp@parliament.uk she/her
@matthewcort.land
๐๏ธ Lawyer, advocate, writer, public health nerd ๐ฆ Immunocompromised, chronically ill, disabled Then: SSI, SNAP, Medicaid Now: data & policy, disability, healthcare. ๐ patreon.com/mattbc ๐ณ๏ธโ๐nonbinary
@martinlewis.moneysavingexpert.com
Founded MoneySavingExpert, Money & Mental Health Policy Institute, (ish) the Martin Lewis Money Show ITV & Martin Lewis Podcast
@wheelerdax.bsky.social
Queer, enby (they/them), wheelchair using scientist โฟ๐ M.E/CFS, endometriosis, autism, mental health issues (and more!). Gamer ๐ฒ๐ฎ Pagan. Work in cancer research. ๐งฌ Yorkshire. @WheelerDax on X.
@thereforme.bsky.social
Calling for an NHS that's there for Long Covid & Myalgic Encephalomyelitis (ME) | www.thereforme.uk
@kmdenmark.bsky.social
Mostly just crocheting these days. Former USAF and maternity RN. #ME/CFS
@mephysio.bsky.social
UK 42 year old mum of preteen, had ME since early 20โs and I am a Specialist ME Physiotherapist www.mephysio.org.uk
@michelleb4.bsky.social
A mixture of stuff #MECFS #LongCovid #frailty #mtb #cycling #feelthefearanddoitanyway co-founder @PhysiosForME Views are all my own
@longcovidphysio.bsky.social
#LongCOVIDPhysio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with #LongCOVID & allies https://bio.site/longcovidphysio
@simonmcg.bsky.social
Sometimes try to explain and comment on ME researchh, or even contribute to it. And I advocate for more and better research.
@investinmeresearch.bsky.social
An independent UK charity finding, funding, facilitating biomedical research into ME and providing better education and awareness of this disease in UK & Europe (charity nr. 1153730) www.investinme.org
@meresearchuk.bsky.social
ME Research UK is a charity which funds scientific (biomedical) investigation into the causes, consequences and treatment of ME/CFS (charity number SC036942)
@medibyte.bsky.social
Medibyte distills clinical research into concise highlights, streamlining content review and deep exploration, saving time and costs without subscriptions.
@susankmecfs.bsky.social
Scientist. Current interest in #IACC. Progressive worsening of #mecfs triggered by virus, Feb 1996.
@actionforme.bsky.social
Providing support & holistic healthcare services to people of all ages affected by #MECFS
@suffolksky.bsky.social
Severe M.E. for over 20 years. Just getting through the day. Living in Suffolk.
@erturklab.bsky.social
AI and tissue clearing-based technologies for health. Director at Helmholtz Munich, Full professor at LMU Munich, and CEO of Deep Piction (@deeppiction.bsky.social) Weโre๐ฉ๐ช๐น๐ท๐ญ๐ท๐จ๐ณ๐ฎ๐น๐ฎ๐ณ๐ธ๐ฎ๐ด๐ฒ๐จ๐ฑ๐ญ๐บ๐ง๐ฌ๐บ๐ฆ๐ท๐ด๐ฆ๐น๐น๐ผ๐ณโ๐
@buonsenso.bsky.social
Pediatric Infectious Disease doctor. Fighting to care for children with Long Covid & ME/CFS. My book on my LONG COVID JOURNEY: https://tinyurl.com/4tsvhwat
@meassociation.bsky.social
A UK registered charity for people with #MECFS and Long Covid (and Post Covid ME/CFS). We inform, educate, raise awareness, fund medical research and campaign for positive change. RPs do not necessarily mean endorsement. www.meassociation.org.uk
@rory-stewart.bsky.social
@erinraeburn.bsky.social
Scribbler of stories, bookworm, nocturnal hermit, nature & whimsy lover, ME/CFS & fibromyalgia+, vaxxed/masked, socially-minded lefty on Wolastoqiyik territory. (New Brunswick, Canada) She/her.
@disrightsuk.bsky.social
We one of the UKโs leading Disabled People's Organisation run by and for Disabled people, working for justice and equality for all. https://linktr.ee/disabilityrightsuk
@clarejdaly.bsky.social
ME/CFS (1993) | Long Covid (2020). Occasionally Support @ Visible Health
@plantingforbees.bsky.social
Mum. Scot. Cat slave. Coffee, crime fiction, crochet, politics & plants. RHS Plants For Pollinators is my bible. Yarn hoarder. Animals โ food/sport. Decency in healthcare for #pwME. FM. ๐ฅ Ovarian Cancer - know the signs.
@hannahpreston.bsky.social
Research Communications Manager at Leeds University Business School, University of Leeds. Big fan of reading (literary fiction, historical fiction, memoirs, anything to do with circuses or lighthouses...), and going to gigs and the theatre.
@curelongcovid.bsky.social
Program Manager of The Covid Recovery Center at Brigham and Womenโs Hospital in Boston MA. Opinions are my own. Here to advocate and educate (she/her) ๐
@karenlhargrave.bsky.social
Co-founder #ThereForME | Calling for an NHS thatโs there for ME & Long Covid | www.thereforme.uk Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
@bekhonl.bsky.social
Life on hold since 2021 #LongCovid #POTS #ME Psychologist for 25 years CBT, EMDR, ACT. Here to advocate for biomedical research & treatment #PAIS #IACC. Painfully aware of the harm that was done by my profession to PAIS patients.
@amlown1.bsky.social
@tamararivc.bsky.social
Published an ME/CFS Hypothesis of Noradrenergic Neuron Dysfunction and Phosphatidylcholine Deficiency - https://www.preprints.org/manuscript/202409.1467/v2
@clrblwrs.bsky.social