@craftymissb.bsky.social
Politically Adrift, Crafter, Pwme, Medically Retired, Mum, Grandma, Dog Mum. UK, Newcastle. No DMs. https://craftymissbcrafts.etsy.com
@omfcharitymugs.bsky.social
Severe ME/CFS patient since 2006, fundraising for the Open Medicine Foundation, all proceeds from all sales go directly to OMF, Worldwide shipping🩵 https://omfcharitymugs.teemill.com
@freud4a.bsky.social
Engineer, Mom, Feminist, interested in politics, history, fantasy novels, music and cycling posts in German and English
@topazstudioscom.bsky.social
Grandma 🪷 Retired • 3 #chronic illnesses since 2020 #ESKD #longCOVID #immunocompromised #pericarditis #myocarditis 💙 Volunteer @renegaderesearch.bsky.social 🥩 #carnivore
@ferrygodmother.com
#VR #Rollerskating #event space spotlighting #TouretteSyndrome, #Neurodivergent, #AuDHD, #ADHD, #Autism. Has a #Veterans art gallery & VIP loft. For #businesses, org. #clubs, #community #groups. We are artists, 2d/3d animators, programmers. No Soliciting
@jennysrp.bsky.social
Multi-media Producer, mystic, multi-potentialite, expat 🇺🇸🇬🇧 https://www.jennysrp.com/links
@batemanhornecenter.bsky.social
The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
@drbevans.bsky.social
Professor of Human Geography at Uni of Liverpool, research on chronic illness, energy limiting conditions, fat embodiment. Feminist, Fat Activist, Spoonie, PwME, Friend, Sister, Daughter, Person. Hobbies: SF, cats, knitting/crochet. she/her or they/their 🏳️⚧️
@profmarkfaghy.bsky.social
Professor of Clinical Exercise Science - Clinical Exercise Physiologist - Researcher in #LongCOVID - Nature Research Award Winner 2024 - Derby UK
@elizacharley.bsky.social
Actress on Pause with Myalgic Encephalomyelitis 🌍 Florence, Italy <-> Melbourne, Australia 🎙️ Writer, Producer, Actor 🦋Living that Stockdale Paradox life
@dreamsatstake.bsky.social
Mostly bedridden with severe myalgic encephalomyelitis/ME Interests: health, reading, nature, film, photography, art, travel, social issues Former blog: www.dreamsatstake.com
@elinz.bsky.social
ME/CFS, science, history of ideas, disability, photography, film, board games, curiousity, history of medicine. Location: Sweden #pwME #MECFS #NEISvoid #ChronicIllness Came here from: https://twitter.com/ezchili
@mswcreations.bsky.social
Medicine Song Woman. 🎤😷Indigenous Keynote Speaker/Singer, Hand Drummer. Long COVID, CFS/ME & CPTSD. GenX. Trauma-informed virtual circles and mentoring for COVID-conscious women. NO DMs without permission. https://medicinesongwoman.com 😷she/her
@faithie.bsky.social
SevereME/vax injured. Can't read, write, watch, walk or talk much. Just me, my bed & my swollen brain. Trying to stay sane. Roy Kent is my spirit animal.
@karenlhargrave.bsky.social
Co-founder #ThereForME | Calling for an NHS that’s there for ME & Long Covid | www.thereforme.uk Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
@tenaciousmumma.bsky.social
Mum & carer of Sophia, bedbound with very severe ME. Constantly searching for answers and a way out of the abyss. #lymedisease #severeME #POTS #chronicpain #allodynia #vertigo
@martinangler.com
Science Journalist #LongCovid Context ABSW 2024 Awards Finalist theMHS 2024 Awards "Highly Commended" Portfolio https://muckrack.com/martinangler
@mariefollayttar.bsky.social
@MaineAllCare #UniversalHealthcareNow Sea Glass Collector -Advocate - Artist - Poet-Community Organizer - Political Strategist Disabled Director of Mainers for Accountable Leadership(leave) Rare Chronic Cancer survivor Long Covid, Me/CFS Autistic Wabanaki
@sumonkyawmyint1.bsky.social
population health, scientist, feminist, living with rare disease, disability and chronic illnesses, NDIS, lover of books & science, all posts are personal
@franfriel.bsky.social
Author, Nature Rewilder🌱 Science/SF Geek🚀 Painter, Two-time Bram Stoker Award Finalist, Black Quill Award Winner, Ireland via California, LCFirstWave
@juliadoubleday.bsky.social
Writer of The Gauntlet, about COVID and public health. Read: thegauntlet.news Subscribe: thegauntlet.news/subscribe
@andrewgiffordphoto.bsky.social
Hello, welcome :) This Invisible Illness: my first long form photography project, about ME/CFS a complex & challenging health condition - like Long Covid. https://linktr.ee/andrewgifford.photography Bristol, UK. 335.42 ppm. He/him/oi.
@no1sarah.bsky.social
She/her. 🏳️🌈🏳️⚧️ ally @sarahslowsdown on the bird app In healthier times: Health & social care; homelessness & housing. Music, music, music. 🎶 Mostly here to connect with #LongCovid #MECFS #ChronicIllness #Dysautonomia #hEDS #MCAS
@ylangirl.bsky.social
Small but mighty, early educator teaching through the early pandemic years. 30 years teaching at-risk children & home visiting families. No longer essential now #LongCovid and #ME. Speak truth to power. #MaskUp 😷#EduSky #EarlyChildhoodEducation #VERMONT
@usuallyflannel.bsky.social
Librarian in the before times, artist, isolated. Disabled not disposable. There will be cats. She/Her Label⬇️applied manually so pronouns appear on posts.
@lindaoh.bsky.social
Interested in history, disability, politics, chronic illness. Loves animals, dry white wine, chocolate and my bed. Irish. Actually Autistic, ADHD, ME sufferer. Cat and dog person. @shurlookit in the bad place
@paulkeeble.co.uk
ME since 2017 (Mild), 2019 Moderate , 2020 Severe Long Covid since March 2020 (V Severe) Funcap55 = 1.9 ( (Severe)
@camillebuckner.bsky.social
My pen is huge and I love sentences. And words. Like wombat and elixir. People and planet over profits. Build new systems. Equity. Inclusion. Justice. #BLM #LandBack #DefundHate #LongCovid (3/2020) #MECFS #Poetry #AcademicSky
@mefoggydog.bsky.social
Award-winning #socialenterprise in #UK. Working for #socialchange for the #MECFS community. Linktree - http://bit.ly/408o6LI
@franceyme.bsky.social
https://amandafrancey.com/ illustrator, amateur photographer and bird telepath. Advocating for myalgic encephalomyelitis #MECFS #LongCovid #ClimateAction
@quinnlenfant.bsky.social
Music / #Swiftie / Video Games / Friends / Family (Unceded) Canada
@itsmepz.bsky.social
Music 🎶 Film 🎞️ Long form journalism 🧐 Hot Chips 🍟 Happiest by the sea 🌊 Here to hang with chronically ill & socially isolated peeps and advocate for better care for #pwME. Living small with ME on unceded Whadjuk Noongar country ("Australia")
@richardvallee.bsky.social
I play language. Mostly irreverent. Debugger. AI. Global warming. Integrity. Health. Science. Chronically ill punk rocker. I think about the future a lot.
@covidchronicles.bsky.social
Chronicling my journey through purgatory, graphically. Former athlete/composer/writer/woodworker. Saddled with debilitating COVID-induced metabolic dysfunction since Nov 2022. #LongCOVID #LC #MECFS #PEM #SickJokes
@birbsarereal.bsky.social
Forty-something retired biologist and ME advocate. Lover of birds and yarn. Former athlete. Wife. For kindness, empathy, inclusion, and accessibility. She/her. Crochet artist; https://www.ravelry.com/stores/stitches-by-sarah
@purplespeedwell.bsky.social
Mostly bedridden with #MyalgicEncephalomyelitis, a devastating illness with little funding and no treatment. Toronto, Canada Ally of #pwLC #pwME #LongCovid #POTS #MCAS #MEcfs
@ruhisleep.bsky.social
Mom, humanist, anti-extractive. I do research - biomedical sciences through the lens of humanities & society with a focus on praxis. Settler on Turtle Island. Better Society 🔄Better Sleep Current focus MECFS & Long COVID research/care/community
@erinsandersnp.bsky.social
Proud Mama & Wife | #Disabled ♿️ | #WomxnsHealth Nurse Practitioner & Clinical Scientist | Prev MIT, Stanford | Catalyst | Connector | Healing | #JusticeAccomplice | She/Her
@buonsenso.bsky.social
Pediatric Infectious Disease doctor. Fighting to care for children with Long Covid & ME/CFS. My book on my LONG COVID JOURNEY: https://tinyurl.com/4tsvhwat
@julianlenfant.bsky.social
British/Canadian; Educational Developer/Adjunct Prof. @ Saint Mary's University; CELTA Tutor/Assessor; Doctoral Researcher (AI in Education); MEd Plurilingual Education; Husband and Dad.
@icancmeresearch.bsky.social
Interdisciplinary #Canadian Collaborative #MyalgicEncephalomyelitis Research Network (created in 2019). #MECFS #PwME #LongCovid (Account managed by Sabrina.)
@aqem.bsky.social
L’AQEM vise l'avancement de la connaissance et la reconnaissance de l' #EMSFC et au mieux-être des #paEM | #Canada #Quebec | www.aqem.ca | IG/X @aqem_sfc #EncephalomyeliteMyalgique #MyalgicEncephalomyelitis #MECFS #pwME #CovidLongue #CovidLong #LongCovid
@kimpie.bsky.social
24 | Living with ME, Endometriosis & … | Looking for some connection | she/her ☀️
@vonhatti.bsky.social
Unwell book editor, once actor/cabaret. Fake name, real face. #ChronicIllness #Publishing #Cats #Languages #ComicSongs https://m.youtube.com/@Theheraldpatch
@writebiggs.bsky.social
Reader, writer, sleeper agent Loves history, folklore & growing things ME + expansion packs ADCI network ♿️ | she/her Curtis Brown Breakthrough winner ‘24, Jericho Writers Mentorship, Novelry Octopus winner ‘23. LL Lucy Cavendish Prize ‘24