Nina
Industrial engineer with severe M.E.
Art, astronomy, writing, podcasts, thunderstorms.
@peony386.bsky.social
früher auf Berggipfeln und am Meeresgrund nun in den eigenen 4 Wänden #LC #MECFS für saubere Luft und Schutz für vulnerable Maskenträgerinnen
@alejandrajohanna.bsky.social
Barbara Hershey fan 24/7❣️ Mostly here for Barbara Hershey content My honest fan love: https://x.com/forbhershey https://www.youtube.com/watch?v=WIGk7GXY7jk #MECFS PENE / #PEM since 1997 https://www.youtube.com/watch?v=HIyHtGkV7G8
@whitneydafoe.bsky.social
Severe ME/CFS patient and advocate. Writer, photographer, filmmaker. artist, activist, creative. Bedridden since 2013 sick since 2004. Never. Giving. Up. ✊
@moritzmuehlbacher.bsky.social
Psychiatrist Salzburg, Austria www.praxis-muehlbacher.at. Threema-ID: https://threema.id/BMH9H2S7 The absence of typos in my posts might be a strong indicator that my profile has been hacked.
@antjeg.bsky.social
I am an arranger/composer of piano sheet music. Hobbies: Photography, astronomy, reading, music... and I like to broaden my mind :-) Find (and follow ;-) ) me on YouTube: https://www.youtube.com/@afsg2410
@stickmancomms.bsky.social
Stickmen helping to build understanding and acceptance of hidden disabilities and chronic illness, in a way that empowers us. (Run by Hannah Ensor - who has #hypermobility #PoTS and probably other stuff.) +talking about personal experience of #disability
@bserienjunkie.bsky.social
Bitte keine Listen/Starterpacks mit meinem Namen #ME/CFS #DerGeplanteCrash #Symptombingo #HSP #notjustsad #Essenszeit #nuschelzig #afdVERBOTjetzt
@ramsestemmerman.bsky.social
Former DJ/Event Manager | Administrator #MEcvs Infokanaal (Youtube) | Advocate for more biomedical research for post-infectious #MEcfs & #LongCovid.
@donata1608.bsky.social
Nach EBV Reaktivierung und #longcovid an #MECFS erkrankt. https://x.com/donata1608?s=21&t=F8uKwluVNekKRdF5TBO1Pg
@katha1970.bsky.social
Here for research and info on #Migraines #MECFS #LongCovid #MCAS #MCS #ChronicPain #MetabolicHealth #Neuroscience #Psychology #MedicalGaslighting, posts German & English, hobby songwriter
@veronikakracher.bsky.social
Beruflich: Monitoring|Recherche|Analyse belastender Dinge nicht nur im Internet. Geschlechterverhältnis, Online-Radikalisierung, extreme Rechte. Bildungsarbeit. Privat: Popkultur,(TT)RPGs, Kochen. Immer: Materialistische Feministin. Currently on a break.
@ashleyhultman.bsky.social
#TeachMETreatME #hEDS #MyalgicEncephalomyelitis #MESpine #CCI #POTS #longCovid #AuDHD #endo • Capitol Hill, AFL-CIO, and AFT alum • She/her
@mecfsnanoneedle.bsky.social
Severe #MECFS Patient Bedridden. No energy to speak. #MECFSDiagnosticBiomarkers Drug companies need a #MECFS and #LongCovid diagnostic blood test for successful clinical trials. https://mecfsdiagnosticbiomarkers.substack.com/
@miriametucker.bsky.social
Writer/journalist specializing in medicine/health. Living with type 1 diabetes since 1973.
@me-cfs.bsky.social
Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak. I care. My ME/CFS News Aggregator: @me-cfs.mastodon.social.ap.brid.gy Ⓐ💚, (FR/DE/EN, but posts in english) Clinging onto the ledge above the abyss.
@andrewgiffordphoto.bsky.social
Hello, welcome :) This Invisible Illness: my first long form photography project, about ME/CFS a complex & challenging health condition - like Long Covid. https://linktr.ee/andrewgifford.photography Bristol, UK. 335.42 ppm. He/him/oi.
@fstevenchalmers.bsky.social
Retired person, was in tech industry for 37 years Self and family got multiple chemical sensitivity from a sick house incident in the mid 1990s Heretic, with a heretical research hypothesis on the nature of MCS and a dozen other complex chronic illnesses
@sunsopeningband.bsky.social
Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
@dreamsatstake.bsky.social
Mostly bedridden with severe myalgic encephalomyelitis/ME Interests: health, reading, nature, film, photography, art, travel, social issues Former blog: www.dreamsatstake.com
@adarkenedroom.bsky.social
One of the #millionsmissing || Raising awareness of the most severe form of #MyalgicEncephalomyelitis
@pamelarbishop.bsky.social
Was research professor, now disabled by #LongCOVID (12/7/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
@catkajsa.bsky.social
#pwme #MyalgicE #ME Dream of being alive again, before I die. Brain’s consistently out of order. My cats forever in my heart. … Ukraine/#NafoCatsDivision = @catskajsa.bsky.social
@tapanuiflu.bsky.social
Myalgic Encephalomyelitis since 1983 Tapanui Flu epidemic | #ME | #PwME | #LongCovid ally | Covid cautious Grandmother | Ex social scientist | Mostly housebound | On welfare Website: tapanuiflu.blog Aotearoa | New Zealand
@pinam.bsky.social
GRADUATE PRODUCT DESIGNER, INTERIOR DESIGN Against FASCISM, any kind of RACISM and STIGMATIZATION of illness, especially MECFS Live with: Primary immunodeficiency (PID) Cancer ME(CFS) with humor, love for design, architecture, art...
@katybrc.bsky.social
Myalgic Encephalomyelitis - M.E + POTS for 38 years Donor to the UK MEcfs Biobank for 10 years & @DecodeMEstudy Please watch http://dialogues-mecfs.co.uk/videos/ London, UK No DMs please #pwME
@fakedoctorrealdata.bsky.social
Bin wirklich kein Doktor und auch kein Agentur-Account (Humbug-Framing) aber #TeamWissenschaft! Aktuelles zu #PostVacFake #FakeNius und sonstigen Schwurbel ehemals https://xcancel.com/fakedoctorreal1
@dirkholzinger.bsky.social
Pediatrician at University Hospital Essen, scientist, nurse caring for childrens’ health and climate change. Professor for pediatrics at HS Gesundheit Bochum
@janboehm.bsky.social
🇪🇺 // JOIN ME ON MASTODON: https://edi.social/@janboehm // @ZDF Magazin Royale 🦠/ fest & flauschig @Spotify / hotline +49 30 959997666 / ❤️✊️😉
@mcdrowsy.bsky.social
Leah #pwME Lives in a small town by the sea, heart in the city. Life interrupted by chronic illness 🛌 #mecfs #fibro Anti poverty. Social justice. Classic + indie film. 🇦🇺 native flowers + birds. Vintage clothing. Architecture + design.
@unbewegter-beweger.bsky.social
Scientist@Ruhr-Uni-Bochum Mathematical and Statistical Modelling Engagement, Interests, Curiosity (both professional & private): - Antibiotic Resistance - ME/CFS - Selective Mutism - Critique of EbM, Causality, AI Conclusion: I criticize, therefore I am
@flaschenpostroman.bsky.social
kulturschaffende Durchseuchungsgegnerin. Antifaschistin. lieber bei meinParalleluniversumistkrank@det.social
@juchti.bsky.social
Lehrerin, Union Berlin Fan, seit 08/23 schwer an #MECFS erkrankt und überwiegend bettlägerig. #eisern http://www.me-christina.de
@paulaknight.bsky.social
Author, illustrator, comics memoir THE FACTS OF LIFE (Myriad) Kidlit Books x3 Writing illustration comics poetry photography Disabled nonambulatory bedbased 6yr #pwME No DMs pls https://linktr.ee/paulajknight https://ko-fi.com/bedscape She/Her
@drchronically.bsky.social
Bitte keine Hilferufe über Social Media! #MECFS #LongCovid #Schattenfamilie #PflegendeEltern #Praxis #NoAfD #ÄrzteGegenRechts #Löwinnenrudel Mach dich selbstständig, haben sie gesagt. Dann hast du es viel leichter mit den Kindern, haben sie gesagt.
@gurkigurkmeister.bsky.social
Finally managed to migrate to bluesky from Twitter (June '24) Temporarily embarrassed healthy person #pwME 🛌 seit vor 2010 - Skeets in german and english - still a #Novid Stuttgart
@kaneelkoffje.bsky.social
Lesbischer intergeschlechtlicher Hobbit // Franzbrötchen und Zimtschnecken Fan // 🏳️🌈 // paypal.me/MiraLuna Pronomen: sie/ihr
@mflares.bsky.social
PhD in physics, former scientist, educator, and athlete, now housebound due to ME/CFS and POTS from SarsCov2, she/her
@rolandimhoff.bsky.social
Social Psychologist: Categorization, Stereotypes, Conspiracy Mentality; EASP Executive Committee; https://scholar.google.de/citations?user=PJwzk1EAAAAJ
@liegenddemo.bsky.social
Info zu den Liegenddemos, zu den Kampagnen und vieles mehr unter unter http://mecfs-info.de
@davetuller1.bsky.social
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
@rustycage.bsky.social
I'm gonna break my rusty cage and run... ME/CFS since "just the flu" in 2018.