Real Life Disabled People
Want to hear from Real Life Disabled People? Here we are! Most of us have MECFS but we are all real humans living with disability. Message me to be added to the list. #mecfs #disability #pwME #disabled
Created by
@jesshoneybadger.bsky.social
@burrow.bsky.social
Disabled Trans Gender Anarchist AuDHD, Artist, ex-circus clown BI BI BI! IWW, cat parent, shark diver c. 1900s Ankh-Morpork Poster’s Guild THEY/THEM Top surgery consult: 05/22/25!! Sex worker CA: $AdoraBelle All my links: shibarinewbie.carrd.co/ ACAB
@asheradrienne.bsky.social
poet, artist, #longcovid since 2020 swears a lot since the election
@anyaphenix.bsky.social
she/they, demi/autistic/sapphic disabled by long covid trying to take care of my kids & help all marginalized folks I love nature and everything in it, including you 🥰 🌎🌞🌙 - my trinity Paypal.me/anyaphenix https://gofund.me/8f262228 pics by me
@rikkapik.bsky.social
Suffering from ME/CFS, turning to art to keep (almost) sane. PTSD survior, broken brain lefty and demiace Gen X.
@germainehypher.bsky.social
🧵🧶✍🏻🎨📷🌱🐈⬛📚 Author of Crafting A Path Through Illness - exploring creativity while chronically ill. Disabled by M.E & fibromyalgia since childhood. Enabled (in spirit, if not body) by humour & creativity. www.germainehypher.weebly.com
@crshannon.bsky.social
Psychologist, speaker, & consultant | Empowering families & advancing change| Blended expertise in multiculturalism, trauma, divorce, multi-system Chronic Complex Diseases & mental health #NothingAboutUsWithoutUs
@marafrommars.bsky.social
Chronically Ill, Queer, Artist, Socialist 🇨🇦 Just trying to get by. She/they
@sarahbrodsky.bsky.social
Freelancer writing about personal finance and business. Interested in science, math, books, cooking, languages. St. Louis, MO #pwME
@haecnicola.bsky.social
ADHD anticapitalist mom who was studying to be a therapist until #mecfs. Dopamine hits from accessible trauma-informed healthcare, EMDR, critical thinking, neurodivergence, mask advocacy, audiobooks, midlife crisis music, Sims 4 & garbage television. ❤️🩹✨
@eoineochaill.bsky.social
Former Health & Wellbeing Advisor, PT, Martial Artist, DJ/Presenter/Producer/Editor. Now, bedbound, chronic illness. MECFS, Long Covid, POTS, MCAS, EDS. Awestruck by stars, captivated by nature, perturbed for the future 🌍 AuDHD. Always learning 🧠 ☯️
@suzanneforbes.bsky.social
Fat queer disabled retired artist with MECFS in Berlin. Still respirator masking and isolating. Trans rights FOREVER. Sex worker ally. She/her.
@neongiggledog.bsky.social
👑 Sonic and Zelda Enthusiast 👑 Lvl 37 👑Black 👑 Dad 👑 💉 9/23/21 🔝11/03/20 👑 He/Him 👑 NO MINORS 👑 BLM 👑 Ko-fi.com/Riottherenegade 👑 $RiottheRenegade 👑 PayPal - sinistercyanide 👑 pfp: Sophieanimates
@migrainechat.bsky.social
Education researcher turned migraine advocate #MigraineChat host Vermont maple syrup aficionado 🚫 Unsolicited advice She/Her/Dr (PhD kind) Header: Dinosaurcouch MigraineChat Resources & Discord: https://campsite.bio/migrainechat MC feed/starter pack👇🏻
@emskware.bsky.social
Retired paralegal, blue dot in a red county on the Jersey Shore. Here for the camaraderie. #Disabled #ChronicPain. #ACLU. #MoveOn. #DemCast. If you can't be bothered to add a bio and at least several posts, I can't be bothered following you.
@quyetpawz.bsky.social
41 - Disabled polyam queer non-binary femme, geek living in Ottawa, Canada. ADHD, C-PTSD, Bipolar, Chronic Pain. Loves board games & 3D Printing. Retired CanFURence Co-Chair PFP is by jambiird.bsky.social Ask to DM because my DMs are off.
@jaseygalore.bsky.social
Disabled by #MyalgicEncephalomyeltis ° Ambulatory wheelchair user ° Nazi lives don't matter ° Science is real ° #AuDHD ° Free Palestine ° Dutton can kiss my dot ° #doomer in #Lutruwita I mostly repost things because my mind isn't sharp and lively anymore
@4spooniesupport.bsky.social
#cerebralpalsy warrior, #cat mom, #chronicallyill, #trauma survivor, #stoner, #disabled, #mentalhealth advocate, standing up for #abuse survivors and sharing my story since 2016. I'm nothing special. I'm just me #spoonie
@sabina.kneisly.org
Activist: Queer Nation, ACT-UP, WHAM, BARF, clinic escort, Feminist. Queer Femme, Bastard/adult adoptee, T2D, Covid infuriated, masking. Spent the last couple decades researching wingnuts. A cranky Cassandra at times https://linktr.ee/laurensabinakneisly
@threebucks.bsky.social
#LongCovid OG, #PEM #ME (formerly #MECFS) #pwME #vWD #BleedingDisorders #ADHD #Teacher on medical leave, #design nerd, Mac lover, dog mama, #Illini fan, kind of ok at #pacing, really good at doing too much.
@aankphd.bsky.social
She/they. Nonprofit grant writer. PhD, research and evaluation nerd. Mom of 4 wonderful young adults. Queer, polyfi, disabled. Grateful for love, art, music, birds, gardening, and my service dog. 🏳️🌈🏳️⚧️🤎🖤♿️
@bluezebra30.bsky.social
M.E. since 1976. In the golden rolling hills of California. Looking at screens sets my eyeballs on fire so there will be pauses.
@glimmersofrose.bsky.social
🌈Queer • 📖Bookworm • 🥄Spoonie 🕊️Spiritual • ✍️Writer • 🎮Cozy Gamer 🫖Lover of picnics, potlucks & tea parties IG: @_glimmersofrose
@caseydoherty.bsky.social
Disability policy analyst @americanprogress.bsky.social by day, disability studies PhD student by night, disabled activist by later night. ME/Long Covid/Lyme/MCAS/etc. Cat mom! she/her
@alexisme.bsky.social
Consultant in Health Protection, FFPH (2020) MPH MBBS BSc | Severe ME, Long Covid and POTS patient | Global health Most active on IG stories: https://www.instagram.com/alexis___me/
@brianamillslmft.bsky.social
Licensed Marriage and Family Therapist (#134337)(#4930-R). Not your therapist. Bi. Specializing in disability, EMDR, and LGBT. Live in California or Nevada and would like to see a disabled therapist? Schedule a free consultation at BrianaMills.com
@treesofreverie.bsky.social
they/them 🏳️⚧️ queer, trans non-binary | disabled. neurodivergent. chronic illnesses. | artist. reader. writer. | cats: Charlie & Lola | Ex-Bookseller 7yrs. Housebound and mostly bedbound with Severe ME. #MECFS #MillionsMissing #pwME
@thingsyoujustcant.bsky.social
Living with M.E. type LC. Fighting for remission. Tea, cocoa, petitions, snacks, memes, and bedside musings. For now, on IG as @thingsyoujustcantspeak #mecfs #longcovid #pWme
@spoonfuloflindsay.bsky.social
chronic illness life & disability lit 📚🪴🌊🐕 honoring the hard & finding joy along the way migraine | SF neuropathy | POTS | ME/CFS | long COVID | MCAS | ambulatory ♿
@oppklipt.bsky.social
Uhm, yes hello! 👋🏻 31 y/o Norwegian coke zero drinking PS5 gamer and a Twitter migrant cursed with ME. Currently learning Spanish and love painting/drawing. Recently started sewing 🧵🪡 Trying to survive this crazy timeline I’m forced to exist in.
@eleanorsews.bsky.social
Retired lecturer/therapist. Interested in politics, music, culture, science, languages and disability-woke AF I’ve been in the #ME owners club for decades 👩🏼🦼➡️ Angry but peaceful. She/her Uninvited DMs = Instant Block Maker of #FanningTheFlames cartoons
@lydiamorsman.bsky.social
😶🌫️ Creative writer with a foggy brain 📝 Reluctant poet ♿️ Disability advocate - me/cfs, cptsd 🫖 Tea drinker 🌈 bi/ace spectrum 💃 LNK, bring me the cats 👩❤️👨 Married to my twin sloth 🦥 💗 Love wins A Cocktail of Poems 🍸 https://amzn.eu/d/gkoSR4R
@cathrynworrell.bsky.social
🎨 Artist, illustrator, lover of Moomins (she/her) 🍃 Navigating a creative life with chronic illness (ME/CFS) https://cathrynworrell.com/links
@lovewarriorhugs.bsky.social
Smiles for miles-not letting #ChronicIllness stop me My opponents- #Epilepsy, #MultipleSclerosis, #chronicpain #TrigeminalNeuralgia #OccipitalNeuralgia, #Asthma, #IBS Allies #spoonie #spoonies Https//:linktr.ee/lovewarriorhugs
@jacysonne.bsky.social
Disability Advocacy ♿️ #FMMECFS #Migraineur #POTS #Dystonia #Spoonie #MyotonicDystrophy Rare brain tumor survivor Too many med dx to list here Domestic Violence and the Disabled Pro: Science LGBTQ BIPOC AAPI
@michigangoat.bsky.social
A Chicago #Cubs fan. Suffering from #MultipleSclerosis for 30 years. F-CK the Orange King! He will prevent any life-changing medical breakthroughs to keep me alive. I am the #marxist #communist, #wokeAF #liberal you hear about. 🤬I WILL NOT BE SILENCED! 😡
@creativetiff78.bsky.social
I'm in N. California, 46 y/o Married, Chronically Ill ( #SmallFiberNeuropathy, #mecfs, #migraine, #dysautonomia, #hEDS, #fibromyalgia, #HS) LCSW, disabled #artist #knitter #witch #advocate #writer Bi 🌈🧙♀️🦥🥄🧶🎨🌻💙🌊 https://linktr.ee/CreativeTiff78
@m-i-hermit.bsky.social
• Slipping through the cracks = Medically Induced Hermit • I enjoy Nature & Wildlife Photography 📷 • Spoonie • Worked in Healthcare (COTA) until Disabled with multiple chronic illnesses (including #ME/CFS) & chronic pain • Armchair Traveler • HERmit •
@autumnsun9.bsky.social
Joined Bluesky Nov 7, 2024. 🦋 Ocean girl forever 🐬 🚫 crypto 🚫 money 🚫 weird I ❤️🔥 science, nursing, art, protector of animals, people, ocean & earth, 60s70s rock, lite jazz, ⬆️ humor. Knock fake Christians not the GoodBook 🫶 🌎 🐋
@themeeplife.bsky.social
#pwME since 2004, when I was 22. Homebound, mostly bed bound. Currently battling breast cancer. #postviral #MECFS / #POTS / probably #MCAS #actuallyautistic I make websites. G+ person.
@litsadremousis.bsky.social
ALTITUDE SICKNESS (Future Tense Books). Upcoming: FIRE IN THE HOLE: A EULOGY FOR THE LIVING. Left WaPo b/c of Bezos. Esquire, NY Mag, PW, The Blvr, NPR, NYT, P&W, The Rumpus, McSwy's, et al. Cohost of PEM Pod. #pwME in #Seattle. https://litsadremousis.com
@acap42.bsky.social
Surviving on spite & Eurovision hype She/her 💖💜💙 @acap42 on Twitter @chibiusa40@mas.to 😷🛡️🥄🦓
@snazzypants01.bsky.social
🦋Resister 🌎Amateur Wordsmith | 🐢Introverted Soul w/ Extroverted Moments | 💜Animals 🧡Music 💚Nature 🩵Photography | 🦚Optimistic Survivor | 🦥 Weirdo, but in a good way | 🏳️🌈#LGBTQ+ | 🦔 #Booster | 🦩Married | 🦒Quirky | 🐳 🚫Crypto 🚫Porn 🚫DMs
@michaelnobbs.bsky.social
Artist and tea drinker living on a hillside in Wales. Learning to live a gentle creative life and encouraging others to do the same. Diagnosed with #MECFS in 1997. www.patreon.com/gogently https://linktr.ee/michaelnobbs ✍️🧶
@beckisliving.bsky.social
22 yo w/ ME, PoTS, MCAS & ASD wheelchair user covid cautious previously severe, now moderate-severe she/he, genderfluid lesbian http://lifeasbeck.wordpress.com
@technodivergent.bsky.social
Information Security Professional | 🏳️⚧️🏳️🌈 Nonbinary Lesbian | #ActuallyAutistic #ADHD | she/they
@sannibenke.bsky.social
Originally a creator of colorful things but all i have left is my sword of words written in the dark. Former psychologist. Mom x 2. Life on hold by very severe #mecfs. Here to join the #pwme community. Sharing #bookrewievs and #liMEricks.
@coastalthinking.bsky.social
Sea-creature, shore-dweller, gardener. #LongCovid #MECFS #POTS. Engaged Buddhism. i used to think read write teach (literatures of the South/Africa/Australasia/Indian Ocean & climate, colonialism, environment, littorals, the sea, water, women’s stories)
@isntbel.bsky.social
22 🏳️🌈🏳️⚧️♿️ cursed by god but can’t die queer disabled jew for a free palestine 🇵🇸 former: biggest baby in the NICU current: out of work with a 2nd brain injury and living in the moment 🤪 MA links: linktr.ee/isntbel
@mikrosenhofer.bsky.social
Formerly Mik Everett. Author of MEMOIRS OF A HOMELESS BOOKSTORE OWNER. Believer in hope & holobionts. My W.I.P. is called either LAND OF PLENTY or BANANALAND depending on my mood. https://linktr.ee/mikrosenhofer
@hippymum.bsky.social
Happily married. Fighting to get through one day at a time. 42 years with M.E., hEDS, POTS, COPD, Fibromyalgia, Osteoarthritis, Scoliosis, Reynauds, and a whole heap of other crap. I've no quality of life, mostly bedbound and hate it.
@americanabroad.bsky.social
Wear a 1943 Liberty coin necklace b/c in 1943 WWII shifted against fascism. Politics poster. 🌏🏳️🌈🇺🇸🇬🇧AuDHD ME/CFS 🏳️⚧️🇺🇦🇵🇸 DMs only if we've an established relationship.
@radicalchick24.bsky.social
Disabled former special collections archival processor and historian. ME/CFS and POTS since '04, Long COVID since '23, Chronic Migraine, Connective Tissue Disorder, CSF leak, etc. 😷 Mask up! COVID isn't over! ♿️ She/Her There will be cats 🐈⬛️
@abbyneedsanap.bsky.social
Housebound neurodivergent artist with Myalgic Encephalomyelitis #MECFS, POTS, MCAS, FM. Enjoyer of cozy fluffy things, tea, books, and the way the light filters through the forest. Passionate about animal welfare + nutrition, the paranormal, & weather.
@platouche.com
Business Analyst | #longcovid #PASC #patientpartner | Long Covid advocate Analyste d'affaires | #covidlongue #covidlong #PACL #patientpartenaire #quebec | Défenseur de la COVID longue
@stewartoons.com
Visually impaired indie animator and all-around cool guy. Creator of Vamps' Scamps. ♿ POTS/MALS/Visual Snow/Eye Stroke Awareness. 🏳🌈 Previous Work: Freelance Animator @ Adult Swim | Clean-Up on HarmonQuest. Current: Writer @ TAPAS. COMMISSIONS: Closed
@birdbone.bsky.social
life on pause. mostly here for #LongCovid #MECFS community. currently very severe. other interests may include climate, music, sports, queer stuff (she/her)
@resiliencebeast.bsky.social
Ecology-botany nerd, #Herbalism, sustainable food & #Organic, agricultural policy, farming, leftist, #Disability and chronic illness advocate, trans non-binary queer, writer and artist. #Agroecology #HumanRights 🍉♿️
@gmuzz.bsky.social
Looking for a quieter life away from X. 20+ years in #sustainability and still fighting the good fight. Also championing / struggling with #mentalhealth and #MECFS since 2017. #PwME. Might even mention #LFC occasionally. #YNWA Feel free to connect. 😁
@celticghirl1888.bsky.social
Family & Friends .. Celtic FC .. Scottish Independence Supporter .. Walking .. Music .. Cats .. Darts .. Festivals .. Theme Parks .. Laughter .. Mental Health Awareness .. Chronic Pain Warrior 💚
@mxworldwide.bsky.social
They/them | 28 | ME/CFS since 2016, very/severe since 2022 after covid | Severe hyperacusis Mostly post about ME but will share things relating to disability justice, leftist & queer issues and Palestine 🇵🇸 In "Australia" on Wurundjeri Country
@wordsbychloe.bsky.social
freelance books, culture & ♿ journo/editor/copy | author 🖋️ romantasy w/ messy, disabled girls | rep: Maria Whelan @ Inkwell | words: Independent, R29, Grammys, Fast Company, Bookseller etc | AuDHD | https://linktr.ee/WordsbyChloe | chloe@wordsbychloe.com
@slh82.bsky.social
Lover of animals and wildlife/nature 🐶🌷 TV dramas, films, photography, art, news/current affairs Living with severe M.E #pwme #mecfs #fibromyalgia
@skibbityflee.bsky.social
Health and mental health advocate Schizoaffective BP1, BPD, CPTSD Leukemia, Fibromyalgia, CFS
@jeannemcardle.bsky.social
@andrewgiffordphoto.bsky.social
Hello, welcome :) This Invisible Illness: my first long form photography project, about ME/CFS a complex & challenging health condition - like Long Covid. https://linktr.ee/andrewgifford.photography Bristol, UK. 335.42 ppm. He/him/oi.
@carriemcginn.bsky.social
Infection-associated chronic illness advocate | Life sidelined by #LongCovid #MECFS #POTS | #PatientPartner | MSc | Mom | She/Her | 🇨🇦 #Canada #Quebec #CovidConscious #StillMasking #MyalgicEncephalomyelitis #pwME #EMSFC #CovidLongue #CovidLong #pwLC
@andrewg76201347.bsky.social
ME/CFS, POTS, MCAS, lupus, Hashimoto’s. Patient & carer. Disabled scientist. Female - using fake name bc I post about son's illness. Location: Australia
@fioname.bsky.social
Victoria, Australia. Former professional wordsmith. 14+ years living with the hell of myalgic encephalomyelitis (ME/CFS). Prone to so-called left-wing views & bingeing good TV 🤓
@lindaoh.bsky.social
Interested in history, disability, politics, chronic illness. Loves animals, dry white wine, chocolate and my bed. Irish. Actually Autistic, ADHD, ME sufferer. Cat and dog person. @shurlookit in the bad place
@anjalifp.bsky.social
2-time Paralympian & Medalist. Disabled Researcher. Disability Activist.
@joeblow604.bsky.social
Living with Myalgic Encephalomyelitis since 2011. Artist, Advocate, Creative Former Electro-Mechanical Prototyper Inclusive #pwME #MECFS #MCAS #POTS #Fibro #LongCovid #Disability #chronicillness #art #artist #painting #oilpainting #digitalart #photography
@leeram.bsky.social
Animal lover with a slightly unhealthy interest in U.S. Politics and distain for their new Con-mander-in-thief. Dabble in many art forms when able. #HSP #ME/CFS, #goldendoodlemama
@tyffiboo.bsky.social
👩🏽🦯🦓🥄 ~Tiff E. Boo ~My love languages are oxtail and mangoes ~Pronouns: Her/She/G ~Adjectives: Bootylicious ~Hoochie Mama Advocate ~Perfecta of the Osteogenesis 💅🏽🦴 -Wear yo MASK 😷
@sleepymidwife.bsky.social
midwife on a sleepy sabbatical; listening for those as yet unheard; mama to many; DJ; lover of history, botany, physiology, music, justice, & kindness; BLM ~living with ME/CFS 🫘
@colocharachel.bsky.social
the truest thing I can say tonight is that being disabled out of the workforce was one of the best things that ever happened to me. • “I’m just an asshole who tries hard” -Kelly Hayes • Dakota land; Minnesota but no longer Minneapolis • she/her
@colleensteckel.bsky.social
Advocate for #MyalgicEncephalomyelitis using ME-ICC. Contracted ME in 1989 Substack: https://colleensteckelmeiccinfo.substack.com/ Volunteer at www.MEadvocacy.org Aspiring writer of paranormal fiction
@ckshowalter.bsky.social
Chief Cat wrangler @ HouseOfPotats. I foster cats and tiny kittens. I also do pet hospice mentoring. companionanimalpawspice@gmail.com Home of KittenHappyHour ♿️ Long🦠,🐈, TexPat, CO, Wx junkie, Swiftie, https://linktr.ee/houseofpotats
@paulaknight.bsky.social
Author, illustrator, comics memoir THE FACTS OF LIFE (Myriad) Kidlit Books x3 Writing illustration comics poetry photography Disabled nonambulatory bedbased 6yr #pwME No DMs pls https://linktr.ee/paulajknight https://ko-fi.com/bedscape She/Her
@mariefollayttar.bsky.social
@MaineAllCare #UniversalHealthcareNow Sea Glass Collector -Advocate - Artist - Poet-Community Organizer - Political Strategist Disabled Director of Mainers for Accountable Leadership(leave) Rare Chronic Cancer survivor Long Covid, Me/CFS Autistic Wabanaki
@jendupuis.bsky.social
Disabled librarian turned writer • 📚 • Mom to rescue dog Clara & cat lover • #pwme #migraine 😷 #amquerying GenX women’s fiction jendupuis.com | Detroit, MI | she/her
@karriehiggins.bsky.social
Writer, Artist, Ink-Maker, Psychogeographer. Two Best American Essays notables; Schiff Award; NEA/Iowa Arts Council grantee. http://www.karriehiggins.com
@bshuell.bsky.social
Husband to a wonderful wife, father to 2 amazing kids, advocate, former software developer with myalgic encephalomyelitis, Living a limited life, missing from many places. Aspiring to be well again. Dog Dad. Occasionally bipedal. Twitter/X refugee. #mecfs
@wilhelminaj.bsky.social
Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
@wanderingkayli.bsky.social
@wandering on Instagram ✍🏻 Disabled with Long Covid 38+ months Long COVID Researcher @sfu-fhs.bsky.social Master’s Student @sfucmns.bsky.social writing on biopolitics & Long COVID https://beacons.ai/wanderingkayli
@rejayjay.bsky.social
Silly Chicago girl, marketing professional, long covid patient. No DMs unless you donate to the mutual aid I repost. 💜
@vashetc.bsky.social
ph.d. perpetually horizontal. writer, researcher. ✍🏽 v ash e t c [dot] com — vashetc.com profile ID: brown person poses in wheelchair in front of a wall of pink paperflowers. banner: lake & mntn @ sunset. There’s a silhouette of a family in the water
@riemerville.bsky.social
Salty | #LongCovid,#POTS & #ME | Books, Music, Food, Art #ATXRE | Excuse my typos We are living in a choose-your-own dystopian novel
@shelleyjules.bsky.social
MECFS from the long before times but not diagnosed for 23 years…LC since 2020 - interested in advancing patient led research (Renegade Research & Remission Biome) & all avenues that lead to effective treatments for everyone. She/her. Love is my language. 💖
@dualiejulie.bsky.social
(She/her) In LongCOVID/M.E. hell looking for a way out! First wave Longhauler. Former engineering student. Trying to get my personality back from the disease. Very cute dog.
@naomidharvey.bsky.social
Zoologist & veterinary research. She/her. 22yrs with #MEcfs Pro-vax but vaccine injured. Life on pause due to moderate/severe ME/CFS ♿️ Patient Expert in ME/CFS, POTS and syndromic Long Covid. Please excuse my typos.
@steigerecon.bsky.social
Assistant professor of economics on medical leave from Northeastern University; macroeconomics, growth and development. Severely ill with MCAS/POTS/EDS/ME. Catholic convert who loves the balance of faith and reason. Native Oregonian.
@carolbarrel.bsky.social
I enjoy cats and bicycles. I much less enjoy my chronic illnesses. #pwME
@rachelriggs.bsky.social
Author of IN GOOD HEALTH: Uncomplicated, Allergen-Aware Recipes For a Nourished Life instagram.com/the.rachel.riggs #EDS #MECFS #Food #paleo #glutenfree #dairyfree