@baronrobert.bsky.social
@alexandresacha.bsky.social
Direction OBNL, Frayeurs d’Ailleurs, petite teigne.
@carriemcginn.bsky.social
Infection-associated chronic illness advocate | Life sidelined by #LongCovid #MECFS #POTS | #PatientPartner | MSc | Mom | She/Her | 🇨🇦 #Canada #Quebec #CovidConscious #StillMasking #MyalgicEncephalomyelitis #pwME #EMSFC #CovidLongue #CovidLong #pwLC
@majulli.bsky.social
ME CFS, Long COVID, Comorbidities & disability advocate | Former social worker | She/Her/Elle | #MECFS #EMSFC #LongCovid #CovidLongue #DisabilityJustice Tiohtià:ke | Montreal 🇨🇦
@platouche.com
Business Analyst | #longcovid #PASC #patientpartner | Long Covid advocate Analyste d'affaires | #covidlongue #covidlong #PACL #patientpartenaire #quebec | Défenseur de la COVID longue
@aqem.bsky.social
L’AQEM vise l'avancement de la connaissance et la reconnaissance de l' #EMSFC et au mieux-être des #paEM | #Canada #Quebec | www.aqem.ca | IG/X @aqem_sfc #EncephalomyeliteMyalgique #MyalgicEncephalomyelitis #MECFS #pwME #CovidLongue #CovidLong #LongCovid
@julianlenfant.bsky.social
British/Canadian; Educational Developer/Adjunct Prof. @ Saint Mary's University; CELTA Tutor/Assessor; Doctoral Researcher (AI in Education); MEd Plurilingual Education; Husband and Dad.
@icancmeresearch.bsky.social
Interdisciplinary #Canadian Collaborative #MyalgicEncephalomyelitis Research Network (created in 2019). #MECFS #PwME #LongCovid (Account managed by Sabrina.)
@ninjazz636.bsky.social
#LongCovid-disabled first waver. Loves gardening and decorating. Cheese addict. Science. Climate. 🏳️🌈 ally. Pardon my French! 💚 Green means hope. #AirborneAware 😷 #FuckTrump #SlavaUkraini 🇺🇦
@clau-prudhomme.bsky.social
#MECFS #POTS #Fibro patient/atteinte d’EM/POTS/Fibro- since 2008 🇨🇦 New caregiver of my 19yr old son with severe #LONGCOVID/ME #POTS 😢😭 Former veterinarian Membre comité scientifique AQEM- ICanCME patient partner- post infectious illness interest
@anniesavardfilion.bsky.social
@batemanhornecenter.bsky.social
The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
@sunsopeningband.bsky.social
Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
@journaldequebec.com
Un vrai journal, un journal vrai. Abonnez-vous à nos infolettres: https://journaldequebec.com/infolettres Vous avez un scoop? jdq-scoop@quebecormedia.com
@actualites.qcbot.dev
Les actualités des médias du Québec ⚜️ en Français 🇫🇷. Sert à héberger le fil d'actualité (feed) pour les médias québécois (voir Fils d'actu dans mon profil). Ce bot ne publie plus par lui-même. Admin: @devcaptain.qcbot.dev
@quinnlenfant.bsky.social
Music / #Swiftie / Video Games / Friends / Family (Unceded) Canada
@twomby.bsky.social
Québécois based in Southeast Asia. Interest in Intl. Affairs & Politics, History, Photography, Tech, Retro games, Pixel Art, Sci-Fi, Biotech & Neurology, Linux, & Sourdough. Dark humor & sarcasm. Français, English & ไทย. MA in International Affairs.
@chromatowski.bsky.social
This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing. ME ‘05, LC ‘23, many of their friends along the way. Very severe (FUNCAP 0.8), thanks for your patience.
@julierehmeyer.bsky.social
Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. I mostly write about complex chronic illness and math. Bylines in NYT, WashPost, Discover, Wired, Slate, Stat News, Science News, lots more. She/her.
@edyong209.bsky.social
Writer, journalist. Science, health. Pandemics, animals. Birder, photographer. Many words, some awards. AN IMMENSE WORLD, I CONTAIN MULTITUDES. Married to Liz Neeley, parent to Typo. he/him 📷 Canon R6mkii + RF 800mm Edyong.me
@karlaliliana.bsky.social
Part chaplain, part cross-pollinator, part coach, part builder. Multiracial multicultural institution dreamer. Brava pero vulnerable. www.bravaleaders.com
@mileswgriffis.bsky.social
Co-founder/editor @TheSickTimes.bsky.social Columnist @HighCountryNews.org miles@thesicktimes.org #LongCOVID
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 36 years, severe ME 30 years. @IrishMECFSAssoc trustee 28 years 26 publications in peer-reviewed journals Social media: https://me-pedia.org/wiki/Tom_Kindlon
@thesicktimes.bsky.social
A nonprofit news site chronicling the #LongCOVID crisis. Founded by journalists @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social Website: thesicktimes.org Newsletter: thesicktimes.org/newsletter Donate: the-sick-times.fundjournalism.org
@exceedhergrasp1.bsky.social
Scientific Director, #MEAction Stanford Med Université de Montréal TIME100 Health 2024 #ME, #EDS, #POTS, #LongCOVID Views my own exceedhergrasp1 on Twitter
@ahandvanish.bsky.social
Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
@patientled.bsky.social
Patient-Led Research for #LongCovid! http://patientledresearch.com
@danwyke.bsky.social
M.E. inactivist, person-centred counsellor, recovering poet (Rack & Waterloo Press)
@emilyesfraser.bsky.social
Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
@meactnet.bsky.social
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet #pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
@grachstephanie.bsky.social
Physician specializing in ME/CFS, Long COVID, & associated complex disease | Assistant Professor of Medicine | She/Her/Hers | https://t.co/TkYm2MXvir
@openmedf.bsky.social
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
@lisamccorkell.bsky.social
formerly a patient-led research collaborative co-lead, always a co-founder | MPP | she/her | natures 10 in 2022
@bennessb.bsky.social
currently: sick / haunted in Western Mass, host of No End In Sight - a podcast about life with chronic illness, creator of #NEISVoid | previously: Stories We Don’t Tell in Toronto | she / her
@janetdafoe.bsky.social
ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
@juliametraux.bsky.social
Disability Reporter @ Mother Jones • jmetraux@motherjones.com • She/her • Berkeley Journalism alum • Signal: @juliametraux.49 Author page: https://www.motherjones.com/author/julia-metraux/ Free monthly newsletter: bit.ly/3Ee9lRO
@richellesepulveda.bsky.social
Long Covid, MECFS, ADHD, etc. Patient-led research is my jam. A bit obsessed with GIP.
@phicd.bsky.social
Another Australian (Cypriot & Greek) designer existing in Berlin. Been to hell & back thanks to the pandemic. End #prescribedharm #longcovid #MECFS check @sophsoph.psd & @berlin_buyers_club on the gram
@itswhitneywitch.bsky.social
Disability Justice Living with ME, EDS, POTS, MCAS, vascular compressions, spinal comorbidities & more Ambulatory wheelchair user Cozy gamer, lazy gardener, hopeful baker
@wendykloiber.bsky.social
So did the divine right of kings. Long covid class of March 2020, the kind with ME. Would like one more tattoo, minimum. She/her.
@matthewcort.land
🖋️ Lawyer, advocate, writer, public health nerd 🦠 Immunocompromised, chronically ill, disabled Then: SSI, SNAP, Medicaid Now: data & policy, disability, healthcare. 🔗 patreon.com/mattbc 🏳️🌈nonbinary
@sfdirewolf.bsky.social
Author, editor, activist, cat lover. Founder of the Disability Visibility Project. #DisabilityJustice feed I created: https://bsky.app/profile/did:plc:65kss3ewg5ida5mjyuk73v5r/feed/aaaba7ikg4sho More about me https://linktr.ee/disability_visibility
@reallandsend.bsky.social
co-host Death Panel Podcast | co-author Health Communism with Artie Vierkant | blind/sick/surplus www.deathpanel.net www.patreon.com/deathpanelpod www.beatriceadlerbolton.com