Long Covid Starter Pack 4
4th starter pack for #LongCovid and Covid conscious people researchers and more to follow on Bluesky. Non-exhaustive. Suggestions welcome. Likewise, if you're on it and don't wish to be on it, please let me know and I'll remove you. Thank you.
Created by
@scribblerpen.bsky.social
@njbbari3.bsky.social
MBBS BSc Hons Infectious Diseases ๐ฌ๐ง ๐ฆ๐บ Zero COVID Australia NjbBari3@mastodon.social NjbBari3 on X
@ixabil.bsky.social
LongCovid. My child also has long covid. ๐ we both have the PEM, POTS and cognitive issues-sub (ME..) Love animals, science, nature, history. Once an active girl; swimming and hiking. Have 2 lady-cats. linktr.ee/ixabil
@salwitcher.bsky.social
Working to promote a safe #InclusiveNewNormal by maximising ongoing learning arising through the Covid pandemic and responses to it. #Masketeer
@sallybourliakas.bsky.social
Mum, scientist, Sci-Fi reader Studio Ghibli fanโฎ๏ธ ๐ ๐ช ! Iโve had #LongCovid for 4+years Covid is Airborne wear FFP2/3 masks! Air filtration needed in schools & workplaces now. #Teamclots #RejoinEU #FreePalestine
@marlinhoister.bsky.social
The sailor cannot see the North but knows the needle can. Full time carer for someone with LongCovid. Mostly photographs and thoughts connected to my immediate landscape in the ever decreasing circles of my life.
@thebrickcastle.com
Also known as Jenny. Grew up in Derby, lived in Manchester for 20 years, now in South West Scotland. Left of left. AFOL. LGBTQ+ ally. All humans are people. Once wrote something clever. Diarising COVID for far too long.
@scholenveilig.bsky.social
Advocate for Safe Schools with a focus on prevention like Clean Air to protect children from health risks like long Covid. Sharing data on child Covid hospitalizations, long Covid, and schools with clean air: scholenveilig.com ๐The Netherlands
@sars2isairborne.bsky.social
Has a few biology degrees. Zero covid zealotโข Hard-line scientistยฉ Covid avoider. #MECFS #pwME If I haven't used alt text it's because I don't have the spoons, please don't shout at me about it as it could make me crash.
@winnie71.bsky.social
Proud ๐จ๐ฆ mom of 2 amazing kids, wife and engineer!โท๏ธ๐ฅพ ๐ณ ๐ธ ๐ ๐ถ ๐ ๐งณ ๐ฏโโ๏ธ On a mission to share beauty, hope, strength & knowledge! Long COVID March 2020โค๏ธ โ๏ธ X: @cockapoowinnie
@orla-hegarty.bsky.social
Architect Asst Professor @UCDDublin @UCDArch FRIAI RIBA ARB opinions my own #Housing #Architecture #Construction #CovidIsAirborne #ClimateAction
@angelamarycasey.bsky.social
๐ด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟScottish. Retired NHS nurse. Finally back home in Glasgow after too long away. This is where I am meant to be. #FBLC
@hannahthemouse.bsky.social
Neurodivergent writer, poet, artist, Crohnie, etc ๐ฆ | she/her | host of the podcast Literary Lullabies | I wrote a book: https://www.amazon.ca/stores/Hannah-Poon/author/B09BP1ZRS7
@deepomove.bsky.social
Life on hold. In my last life I was free. Interested in research & discussion on Long Covid, Long Vax, MECFS, MCAS, POTS, CCI, EDS & all things complex illness, science, nature, psychology.
@lisa-was-here.bsky.social
Formula 1 ๐๏ธ Geek sidelined by Long COVID/ ME & POTS โฟ๏ธ๐ท Winner of the 8th grade Geography Bee ๐๐
@jimreedbbc.bsky.social
BBC health reporter covering the Covid inquiry and all things health (and a bit science) really.
@jujuliagrace.bsky.social
Chief Executive of EveryDoctor, and I write a personal newsletter called Call to Action! Click on my linktree for info: https://linktr.ee/jujuliagrace
@banhamgemma.bsky.social
Nephrologist. Interests vasculitis/immune mediated kidney disease, dysautonomia, mast cells. Translational medicine/therapeutics PhD. Views own
@disabledinstem.bsky.social
We are here to affirm that you DO belong in STEM! This is a safe space for people with disabilities in STEM to connect. Contact: disabledinstem@gmail.com
@patientsafetywatch.bsky.social
Patient Safety Watch researches avoidable harm in healthcare and advocates for changes to build safer healthcare systems - https://www.patient-safety-watch.com
@patientsafetylearning.org
Patient Safety Learning is a charity and independent voice for improving patient safety. ๐Our website: https://www.patientsafetylearning.org/ ๐the hub, our platform to share learning for patient safety: https://www.pslhub.org/
@shaunlintern.bsky.social
Health Editor at The Sunday Times. Health Journalist of the Year 2023. Helped expose #MidStaffs. Public interest journalism matters #E17 #patientsafety ๐ฐ https://www.thetimes.co.uk/profile/shaun-lintern ๐ DMs open ๐จ shaun.lintern@sundaytimes.co.uk
@suzettew.bsky.social
๐ฆ Professor #ptsafety expert for over 25 years and 45 in #NHS - author of 3 books so far! Still learning ๐ค. Patient Safety Now - on sale - contact and blog via suzettewoodward.org #safetysky #hfesky
@drbalsamahmad.bsky.social
Consultant of Public Health in the #NHS Passionate about art & science #PlanetaryHealth; Mother #SEND โฟ๏ธ Ally #LivedExperience #SocialJustice anti-war, loves #parkrun ๐โโฌ ๐ & cooking/catering Views are own; reposts # endorsements; lives in the proper North!
@jimmcmanusph.bsky.social
Posts mine ๐ณ๏ธโ๐ |National Director, PublicHealthWales |Visiting Prof Unis of Herts & Bangor| Chair www.prisonadvice.org.uk | Trustee St Joseph's Hospice |Theology, Uni Roehampton |Caritas CSAN Theological Ref Grp Member| https://linktr.ee/jimmcmanus
@adamjkucharski.bsky.social
Epidemiologist/mathematician. Professor at London School of Hygiene & Tropical Medicine. Author of The Rules of Contagion and The Perfect Bet. Views own. New book Proof: The Uncertain Science of Certainty available now: proof.kucharski.io
@healthfoundation.bsky.social
We are an independent charitable organisation working to build a healthier UK. www.health.org.uk
@mileswgriffis.bsky.social
Co-founder/editor @TheSickTimes.bsky.social Columnist @HighCountryNews.org miles@thesicktimes.org #LongCOVID
@emilyesfraser.bsky.social
Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
@davidelfstrom.bsky.social
P.Eng, Energy management, measurement & verification. Toronto, Canada. Born 327ppm CO2. Climate Action & electrification; Safer infrastructure; cycling; air filtration & ventilation
@friendlycovid19.bsky.social
Novel coronavirus looking for friends. Always evolving. Pronouns it/its.
@plaguepoems.bsky.social
A record of the plague years. ZโL. https://librarianshipwreck.wordpress.com/plague-poems/
@riemerville.bsky.social
Salty | #LongCovid,#POTS & #ME | Books, Music, Food, Art #ATXRE | Excuse my typos We are living in a choose-your-own dystopian novel
@richellesepulveda.bsky.social
Long Covid, MECFS, ADHD, etc. Patient-led research is my jam. A bit obsessed with GIP.
@betsyladyzhets.bsky.social
editor/co-founder @thesicktimes.bsky.social | journalist covering Long COVID & related crises | she/her/๐ณ๏ธโ๐ email: betsy@thesicktimes.org | signal: betsyladyzhets.25 | https://thesicktimes.org/
@brianklaas.bsky.social
Associate Professor in Global Politics @UCL. Author of โFluke." Writer @TheAtlantic. Host, Power Corrupts podcast. The Garden of Forking Paths Substack.
@brianvastag.sciencemastodon.com.ap.brid.gy
Occasional science reporter at The Washington Post and elsewhere. Disabled by complex chronic post-viral illness. Living on #Kauai #Hawaii. Sometimes [โฆ] [bridged from https://sciencemastodon.com/@brianvastag on the fediverse by https://fed.brid.gy/ ]
@angelamswinca.bsky.social
๐ฆ ๐ทโฟ๏ธ#LongCovid disabled | ๐ขChicanรฉ activist | ๐ LAX | โ๏ธhealth justice | โ๐ฝโ๐พโ๐ฟracial justice alt text profile pic: tan skinned person in a tan KN95 mask and suit, dark wavy hair with short bangs
@mvgutierrezmd.bsky.social
Professor & Chair of Rehab Med at UT Health San Antonio | Mom, runner, #LatinasInMedicine, #Physiatry, #LongCOVID
@postviraltrials.bsky.social
News and information about interventional trials for Long Covid, ME/CFS, POTS, and other post-viral illnesses. Message or tag me if youโre in a trial or otherwise have information to share.
@alyssaharad.bsky.social
Writer. Reader. I live in a box of paints. She/her. Banner: a detail from Remedios Varoโs Vampiros Vegetarianos. Three vampires in fantastical golden outfits sip fruit through extra long straws.)
@bilboyaga.bsky.social
Somewhere between a hobbit and a hag. PhD, HCW, writer, organizer, displaced Appalachian. Loves books, nature, science & all things nerdy, cozy, or spooky. Loud about disability justice, public health & collective liberation. Vax, mask, & #CleanTheAir! ๐ท
@equalaccesspublicmedia.org
A nonprofit media org dedicated to making news and newsrooms accessible. A project with ANF, a 501(c)(3) supporting independent watchdog journalism. #AccessibilityFirst #AccessibleNews #NonprofitNews https://www.equalaccesspublicmedia.org
@kannamac.bsky.social
๐ท = care and accessibility | COVID cautious MPS student (psychospiritual care) Joy in everyday things: ๐ณ๐พ๐ซ๐จ๐๐ถโ๐ป๐ชป๐ฅพ CF, CFRD, Double Lung Tx, Immunocompromised ๐ณ๏ธโ๐๐ค๐ฉถ๐ค๐ ๐จ๐ฆ
@parodybit.bsky.social
Friendly tech and bird nerd; also a librarian, engineer, & data pusher, currently doing web dev & systems admin in academic libraries. Very caffeinated. ๐ถ๏ธ๐ง , chronically ill, immunocompromised. #CovidIsntOver. On Wabanaki land (Maine).
@missalyssaread.bsky.social
She/Her, Disabled Comic Artist and Illustrator. Feral House Cryptid. My website is HERE: missalyssaread.com Read my webcomic The Emperor's Feast on Tapas: https://tapas.io/series/The-Emperors-Feast/info My Ko-fi: https://ko-fi.com/missalyssaread
@johnsnowproject.bsky.social
Reliable, honest information on COVID-19 from public health, clinical, and research experts. http://johnsnowproject.org
@johnpring.bsky.social
Editor/founder of Disability News Service; author of The Department, published by Pluto Books, August 2024; disabled journalist and author; autistic.
@blokeonwheels.bsky.social
Can't stand the Tories, passionate about disability rights and especially #RightToLove Football: NUFC and Brackley Town Also @aifantasy19.bsky,Social (NSFW) Pink One: @Sharronhoney@bsky.social
@rachelcdailey.bsky.social
Disability rights & sausage pics. Author & columnist. PREORDER Ramping Up Rights (out July) โฌ๏ธ {She/they} https://linktr.ee/rachelcdailey
@brailemom.bsky.social
NJ mom with Long Covid caring for Long Covid kid. Copyeditor when time & energy allow. Masking is both self and community care. #LongCovidKids #LongCovid Need masks? Happy to help.
@aaronca11.bsky.social
Billboard campaign/fundraiser here https://www.notrecovereduk.org
@longcovidadvoc.com
A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time... https://www.longcovidadvoc.com/ ๐๏ธ https://longcovidadvoc.shop/
@longcovidfam.bsky.social
A US non-profit supporting children with Long Covid and their families.
@drbevans.bsky.social
Professor of Human Geography at Uni of Liverpool, research on chronic illness, energy limiting conditions, fat embodiment. Feminist, Fat Activist, Spoonie, PwME, Friend, Sister, Daughter, Person. Hobbies: SF, cats, knitting/crochet. she/her or they/their ๐ณ๏ธโโง๏ธ
@greensagainstcovid.bsky.social
#GreenParty #covid and #longcovid campaign working group. https://linktr.ee/greensagainstcovid
@covidactionscot.bsky.social
www.covidactionscotland.org #COVIDAwareness #LongCOVID #COVID #PublicHealth
@lindaoh.bsky.social
Interested in history, disability, politics, chronic illness. Loves animals, dry white wine, chocolate and my bed. Irish. Actually Autistic, ADHD, ME sufferer. Cat and dog person. @shurlookit in the bad place
@panickedfoodie.bsky.social
Scientist | Cornell Alum | Bedbound w/ severe illness | Gamer | #FluidMechanics #HeatTransfer #CovidIsAirborne #MayThurnerSyndrome #NutcrackerSyndrome #Endometriosis Bell: 10-20 TikTok, YT: The Panicked Diaries disabled.social Mastodon server admin
@thepotspostman.bsky.social
Just a mailman with #POTS Here to spread awareness and advocate for those with #dysautonomia and #chronicillness
@rebelwheelsnyc.bsky.social
Nerdy, Intersectional Activist, Queer/Bi (Love Is About The Soul), Artist, Writer, Poet, Disabled AF (as in proudly disabled & anti-fascist), Neurodivergent, anti-Zionist Jew & Vegan (she/they) โฟ๐ท โโค๏ธ๐๐ Creator of What Is Ableism Linktr.ee/rebelwheelsnyc
@chronicchannel.bsky.social
Youtube Channel covering Chronic Illness, Universal Basic Income and Air Quality. https://www.youtube.com/@ChronicIllnessChannel Clean The Air http://bit.ly/CleanTheAirUK
@theautisticcoach.bsky.social
I build neuroaffirming communities by empowering my fellow autistic humans with advocacy & self-care tools for navigating an NT world based on productivism AuDHD โพ๏ธ ๐ ืืืฉืขื ืืขืจึพืืจืืืฃ #POTS #Dyspraxia โฟ๏ธ theautisticcoach.com Also @autisticrabbi.bsky.social
@jceason.bsky.social
She/Her. Still masking; you should too! ME/CFS for two decades plus. Pro Abortion Extremist.
@joffirphd.bsky.social
Ph.D. in social psychology. Former researcher in pandemic behavioral risk reduction (non-pharma intervention). Only here to keep up. @joffir@med-mastodon.com
@htownqueer.bsky.social
HIV+ Long Covid GENDERQUEER pronouns:any Politics: 1 paycheck away from homelessness, earn less money than 20 years ago while cost of living increases. USA politics is oligarchy. Not democracy.
@slooterman.bsky.social
Disabled disability and aging reporter at The 19th. Opinions are my own. Signal: slooterman.18 Email: sluterman at 19thnews dot org On parental leave. Will be back at work July 30.
@daveghoul.com
Philly artist, DJ, & streamer | Loves spooky stuff & plays too much Fallout | Dyslexia, Dysgraphia, Dercum's Disease, Long Covid | He/him Game: https://twitch.tv/DaveGhoul DJ: https://twitch.tv/DaveGhoulDJ Stuff: https://linktr.ee/DaveGhoul
@besswww.bsky.social
writer/researcher/professor of design (mostly things that do not work). Author ACCESSIBLE AMERICA. On the internet since 1996 so kinda skeptical. Newly in North Carolina, USA
@kateviolette.com
Multipurpose nerd. Engineering manager currently waylaid by a complex illness. On a mission to watch every Katharine Hepburn movie. ๐ณ๏ธโ๐ they (๐ฌ๐ง), elle (๐ซ๐ท) Currently residing in Portland OR. Always a Mainer. Blog at my username!
@ashleyshoo.bsky.social
#PhilTech #STS #DisabilityStudies #Cyborg #Bioethics #DisCoTec. Disabled person. Strong opinions and typos my urn.
@levin.bsky.social
Digital & narrative trainings @NewMediaMentors. Host of Graphic Policy Radio: a podcast on genre media & movements for social change. ๐ค๐ป ๐ณ๏ธโ๐ ๐๐ป Public Health, unions, NYC, comic books, music history & DS9. https://graphicpolicy.com/radio/
@thellpsx.bsky.social
writer,The Future Is Disabled,Care Work,Bodymap,Dirty River co-ed w/@ejeris of Beyond Survival. transformative & disability justice structural engineer,1/3rd of http://cripsforesimsforgaza.org. older cousin w great tits & opinions,they/we brownstargirl.org
@gmhazardscentre.bsky.social
GMHC is an independent organisation giving help and advice with any health, safety and welfare problems to do with work. We work across the North West.
@dralig.bsky.social
Urgent Care GP ๐ #SOSNHS #COVIDIsAirborne #AlwaysEuropean #StandWithUkraine๐บ๐ฆ #StopArmingIsrael ๐ #Humanity
@davidsteadson.bsky.social
Public Health academic back when Public Health was a thing. Now Entrepreneur, Raconteur, and Karateka. #LongCovid (recovered) #LongCovidKids #Kyokushin #NAFO Currently volunteering in Kyiv
@chromatowski.bsky.social
This account will prob be about biomed researchโcomplex chronic illnesses and Covidโw/some material on disability justice and organizing. ME โ05, LC โ23, many of their friends along the way. Very severe (FUNCAP 0.8), thanks for your patience.
@reesiepeacie.bsky.social
hi! ๐ (she/her) hard of hearing, AuDHD, bi, immigrant ๐ต๐ญ, โญ, Long COVID โ give a shit, mask up to protect yourself & those around you
@mssinenomine.bsky.social
Outgoing co-chair of Vancouver City Planning Commission, Co-founder of Disability Filibuster, words in Policy Options, Macleans, CBC & chapter author in 3 anthologies. Disabled af. Poor af. Lived experience + learned expertise applied to policy analysis.
@keraoregan.bsky.social
Kฤi Tahu ยป Climate Change ยป Indigenous & Disability Rights ยป Papatลซฤnuku ยป RTs and Follows =\= agreement etc ยป #Mask4YourMates !
@jasmineeharris.bsky.social
Law Prof. @ University of Pennsylvania Carey Law School Researching Disability Law, Legal Rules, Social Norms, Antidiscrimination Law, Evidence Research: https://papers.ssrn.com/sol3/cf_dev/AbsByAuth.cfm?per_id=2221819 #TheBronx #FirstGen #Latina #pwd
@lisadiedrich.bsky.social
Current projects: #IllnessPolitics, Keywords/Images in Graphic Medicine, & Multi-modal Pedagogies in Action. Author of ILLNESS POLITICS & HASHTAG ACTIVISM, TREATMENTS, & INDIRECT ACTION. Blogging at: lisadiedrich.org
@lauraannecasey.bsky.social
@wsjmag / @wsj / @IAPE1096 board Journalist. Past: WSJ Trust fellow, disability coverage. Views are my own. NYC https://www.wsj.com/news/author/laura-casey
@flomask.bsky.social
Winner of 2021 BARDA Phase 1 Mask Challenge. Runner up in 2022 Phase 2 Mask Challenge led by NIOSH/BARDA/NIST. www.flomask.com www.flomaskeu.com
@jljcolorado.bsky.social
Dist. Prof. Chem. & CIRES, Univ. Colorado. #HighlyCited2022, Fellow AAAR & AGU. http://Bit.ly/TenSR http://Bit.ly/ATRVs Aerosols, pollution #EndFossilFuels #COVIDisAirborne. Views are my own
@cleanaircreworg.bsky.social
#CleanAirCrew #COVIDisAirborne Airborne pandemic tips & tools #COVIDco2 #CorsiRosenthalBox #ClearTheAir
@cleanairclub.bsky.social
Providing free air purifiers to Chicago artists, organizers, and touring musicians. linktr.ee/cleanairclub
@barryhunt008.bsky.social
------------------------------------- ๐ The World Needs More Canada ๐ โค๏ธ ๐ช ๐จ๐ฆ ---------------------------------------
@ravenapp.bsky.social
A global map of indoor places with good quality ventilation. Help prevent the spread of Covid-19! Built on top of Raven, a news and social media aggregator. ravenapp.org/cleanair