Dee
Life on hold. In my last life I was free. Interested in research & discussion on Long Covid, Long Vax, MECFS, MCAS, POTS, CCI, EDS & all things complex illness, science, nature, psychology.
@patientadvocacy.bsky.social
📧 patientadvocacy100@gmail.com erika.valerie@proton.me Signal: patientadvocacy.100
@sannibenke.bsky.social
Originally a creator of colorful things but all i have left is my sword of words written in the dark. Former psychologist. Mom x 2. Life on hold by very severe #mecfs. Here to join the #pwme community. Sharing #bookrewievs and #liMEricks.
@airspotrob.bsky.social
AirSpotHealth.com Our Smallest CO2 Monitor! #CleanIndoorAir #COVIDisAirborne
@wacky-world.bsky.social
I have a startup with innovative public toilets 🚽 , a PhD in Economics 👨🏫 and a great fascination for the wonders of the world 💡. He/him
@marjoriemorgan.bsky.social
Storyteller. I write. I research. I photograph. Archaeologist of hidden stories. Witness. Orchids. Available for commissions. Paypal.me/MarjorieHMorgan ko-fi.com/Marjorie Bylines: Art UK, gal-dem, Are We Europe, Corridor8, The Fourdrinier
@alitwy.bsky.social
Living with Long Covid. Doing my bit to support UK healthcare workers with Long Covid. Chair of Supporting Healthcare Heroes UK. Associate Member Long Covid Support. Editor-in-Chief Evidence Based Nursing. Retired Professor of Children’s Nursing. #FBLC
@gemcarey.bsky.social
@UNSW (& non academic author side hustle). Public administration, social policy+public health scholar .Lots of NDIS. Vax injury, but pro vax
@benking01.bsky.social
Long Covid & PE recovery. GeographyTeacher. Sustainability & Climate Change. BSc Env Science & Physics (Stirling). Soil Erosion PhD & Geog PGCE (Exeter). Tuba player. Devon, UK.
@kristinwrites.bsky.social
Poet, Wife, Mom, LongCovid/MECFS Sufferer. Looking to connect and learning to advocate. Cofounder of #CripCoop. EIC, Poetry @epistemiclit.Bsky.social, @whirligiglit.bsky.social. Micropoetry chapbook Lift the Mask available widely. www.kristinhoulihan.com
@drbevans.bsky.social
Professor of Human Geography at Uni of Liverpool, research on chronic illness, energy limiting conditions, fat embodiment. Feminist, Fat Activist, Spoonie, PwME, Friend, Sister, Daughter, Person. Hobbies: SF, cats, knitting/crochet. she/her or they/their 🏳️⚧️
@shrinkatlarge.bsky.social
Consultant clinical psychologist/ activist/ neuroqueer bluestocking. Former Lived Experience Practitioner. Future failed poet. Will question ideology for cake. 💜🎭🦓🥄🏳️🌈 #MadSky #TraumaNotPD #Disability #Neurodivergent #Mad https://t.co/83d2Ztwpp2
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: support@bsky.app
@cm7505.bsky.social
Ex nurse, Long Covid & disability activist/advocate, hEDS, PoTS,MCAS, MECFS, Keyworker Petition Founder, NB, poly, pan, liberal, human
@rhymeswithvery.bsky.social
ACT I: Books, bookstores, publishing, the Bay Area, my dog, trees, rocks, crows, large bodies of water. ACT II: #FcktheNIH, post-vaccine syndrome, #ME, other new health disasters, good people, disability justice. ACT III:
@amandabennett.bsky.social
Usually up mountains, sidetracked by long covid since Dec 2020. Now mostly housebound with cardiac issues.
@lisamccorkell.bsky.social
formerly a patient-led research collaborative co-lead, always a co-founder | MPP | she/her | natures 10 in 2022
@anilvanderzee.bsky.social
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS #art2cureME #pwme #millionsmissing
@oonaghcousins.bsky.social
@nicole-lee-sch.bsky.social
Historian of disability, early America, and the 19th century. Assistant Prof at Kean University Views mine, not my employer's
@aparachick.bsky.social
Kindness, Empathy, Love always. Covid damages your health.🦠 Bird Flu (H5N1) maybe soon too N95😷 to keep each other safe My List - Covid Info/Science I have friends on here who need us to use the alt text feature on images. Try and remember to 🙏🏻
@jujuliagrace.bsky.social
Chief Executive of EveryDoctor, and I write a personal newsletter called Call to Action! Click on my linktree for info: https://linktr.ee/jujuliagrace
@katiamek.bsky.social
26. Former greek Architecture student and 3D artist dealing with severe #LongCovid and #SevereME since 2021. . inst: k_aotic https://linktr.ee/katiamek
@irishmecfsassoc.bsky.social
Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association NB: Posts should not be considered advice Registered Charity Number 20100254 CHY 22039 #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
@ciarawrightphd.bsky.social
Long Covid March 2022, life on pause as Functional Medicine Nutritionist, Scientist, Mountain Runner. Loves trees, houseplants, dogs, profanity. Liberal Atheist, she/her
@dbkell.bsky.social
Research Scientist who prefers facts to lies. Focus on Long COVID. Free book: http://osf.io/pnxcs/.
@jenbrea.bsky.social
@gmuzz.bsky.social
Looking for a quieter life away from X. 20+ years in #sustainability and still fighting the good fight. Also championing / struggling with #mentalhealth and #MECFS since 2017. #PwME. Might even mention #LFC occasionally. #YNWA Feel free to connect. 😁
@christina4hope.bsky.social
👋ME/CFS ,Fibromyalgia , lyme Boriliose,Longcovid,MCS ,Vax Injured (not corrona vax),Hearing loss ect… Posts English and German. Bavaria ,Germany
@1789jam.bsky.social
French/Global History, 1500-1850 at #Emory, Opera, Skiing, Gardening, Vote Blue...& Shoes! User #396,109 :) Ohio native bouncing between Atlanta, Paris, & Salt Lake City. Immune compromised, still wear a mask. Where's the #skiing community
@camregier.bsky.social
Husband, Father, Engineer, Buildings Nerd, IAQ, LongCOVID, MCAS, ME/CFS. He/Him. Views are my own. Likes and retweets are not endorsements. Winnipeg, MB
@alinda6.bsky.social
@wildtwo66.bsky.social
Retired, charity trustee, avid gardener, hate injustice, seeking fairness and tolerance …and I’m from Yorkshire 👍
@voyageur71.bsky.social
Covid long hauler, freedom fighter, earth lover. Until capitalism is regulated sociopaths will always win and corrupt all institutions in their favour. The ultimate solution is to awaken all to the inner dramas that drive dysfunctional, compulsive greed.
@joissummers.bsky.social
Setting this up as I gradually move over from the bird place. ‘X’ since Musk is a bit like the UK post Brexit. Lovely to see some familiar faces and look forward to getting to know new ones. Post mainly about politics and covid. #FBPE #FBLC #PWLC
@mckatt.bsky.social
Long Covid ME/CFS/PEM - Severe - Living in a dystopian world is strange. Humans are crazy. Slava Ukraini.
@mjnabuurs.bsky.social
Trying to remain human in a world determined to challenge humanity.Extrovert w the need for quiet time, despite appearances to the contrary. Co-host of @theresisters.bsky.social spaces w @coopspeak.bsky.social. Spokesperson for @onschoolsafety.bsky.social.
@susandeeley.bsky.social
🌿 Science- leaning Naturopath. Foodie & urban farmer bringing green goodness to city life. Mum, meditator, medicine maker.
@coldon1983.bsky.social
Aberdeen fan. Passionate about an independent Scotland. SNP member. Live by the sea and a Loch. ME for 11 years #pwME #rejoin #FBPE 🏴
@mediapraxis.bsky.social
Scholar and maker of activist media; fake and real; digital and material. Working in and about AIDS, (long) COVID, queer, trans, anti-racist and feminist media. Trying to act on my commitments to non-Zionism, the climate, and my union, PSC-CUNY.
@fioname.bsky.social
Victoria, Australia. Former professional wordsmith. 14+ years living with the hell of myalgic encephalomyelitis (ME/CFS). Prone to so-called left-wing views & bingeing good TV 🤓