Anil van der Zee
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS
#art2cureME #pwme #millionsmissing
@ungenesbar.bsky.social
LongCovid & ME/CFS advocate/activist // Project Manager and Creator at https://mecfs-research.org // Co-Founder https://unitetofight.org // creator of http://mecfsmed.de // gay 🏳️🌈 Homebase: Berlin
@longcovidnederland.bsky.social
Onafhankelijke patiëntenvereniging voor én door #LongCovid patiënten. Volg ons ook op FB, X, LinkedIn en Instagram. Lid van oa Post Covid Netwerk Nederland en Long Covid Europe. longcovidnederland.com
@snowypanthera.bsky.social
Animagus. Hearty but not hale. Celebrant of beautiful action. Likes bicycles. Note: The only time I post with my real name is in scientific journals.
@siebepersists.bsky.social
Be kind Be rational Protect democracy Govern AGI Cure ME/CFS & Long Covid
@terbeke.bsky.social
Net nieuw hier. Schaatsen, cyber security, moestuin, vader/vriend, longcovid, voormalig marathonner, groen, duurzaam.
@alisonescalantemd.bsky.social
Pediatrician, Author Sigh, See, Start, Contributor Forbes & PsychToday. Parenting, Neurodiversity, Long COVID advocate.
@virusesimmunity.bsky.social
We study antiviral immunity and viral disease pathogenesis. We are developing mucosal vaccine strategies to prevent infection and transmission. #COVID19 #longCOVID #vaccines
@immunofever.bsky.social
Immunoengineer at MIT BE developing predictive diagnostics. Captivated by #inflammation, #SexDifferences #Lyme, #COVID, #IACI, #IACC and #onehealth. Mom of 2. prev/ PhD in Immunology @Yale; PostDoc @Stanford https://talresearchgroup.mit.edu/
@loucorsius.bsky.social
@unitetofight.bsky.social
LongCovid & ME/CFS conference project. We’re a small group of affected people living with LC & ME/CFS, alongside dedicated supporters. #UniteToFight2024 www.youtube.com/@unitetofight2024
@chantalbritt.bsky.social
Science journalist/comms, researcher, chronically impatient & difficult patient. Long covid, ME, ProVaxx, AntiGlobuli @ BFH, Long Covid Switzerland, Europe, Kids Switzerland, ENOVAT, SPO, EUPATI Ex Bloomberg, Swissinfo, SAKK, ESCMID, SCAHT, 3RCC
@amymooney.bsky.social
Occupational therapist, advocate, and caregiver dedicated to supporting individuals with chronic complex conditions. Offering therapeutic care for those affected by #MECFS, #LongCOVID, #POTS, #EDS, and related conditions. http://www.OT4ME.com
@sweetsciencewriter.bsky.social
Science journalist, with bylines in Nature, National Geographic, the New York Times, the Washington Post and the Houston Chronicle. I cover a mixture of health topics, with a focus on conditions such as autism, ADHD, ME/CFS, POTS and Long COVID.
@adrianusalexander.bsky.social
@lymecfs.bsky.social
Down with chronic Lyme disease & ME/CFS, Researcher in Environmental Sciences, Industrial Ecologist, Born at 348 ppm.
@jeremy-jeffs.bsky.social
Documentary photographer & film maker at Magnetofilms.com, editor/writer at PersonalWork.online Currently working on projects about ME/CFS (I have lived experience), loneliness and men's mental health. https://linktr.ee/jeremyjeffs
@fvrhijn.bsky.social
MD | rheumatology resident #ME due to #LongCovid Nonbinary 🌈🌈🌈🌈 | views are mine.
@cbammermd.bsky.social
Facharzt für Innere Medizin | Nephrologe | Geriater | interessiert an #PAIS und assoziierten Multisystemerkrankungen | * Privat gerne alles mit Musik * * Skeets in DE/EN * * TwiX: @CBammerMD *
@aryback.bsky.social
ME researcher at the University of Edinburgh. Clare Francis Research Fellow, funded by Action for ME.
@500milesforme.bsky.social
West Wales - Gorllewin Cymru - Carer - son very severe ME - longing for him to get his life back - www.500milesfor.ME
@niethersteld.bsky.social
Wij laten zien welke mensen we missen in de maatschappij omdat ze #NietHersteld zijn. 📣Actiegroep die zich inzet voor de honderdduizenden met Post Acute Infectieuze Syndromen (PAIS) zoals Long Covid, ME, Lyme, Q-koorts, Post Sepsis
@davetuller1.bsky.social
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
@mecentraal.bsky.social
Platform voor mensen met Myalgische Encefalomyelitis, hun familie, vrienden, verzorgers & geïnteresseerden. https://mecentraal.wordpress.com https://www.facebook.com/MECentraal mecentraal@gmail.com
@scienceforme.bsky.social
We are an independent, patient-led, international discussion forum (www.s4me.info) for people with ME/CFS and the carers, clinicians, scientists and advocates who support us. This account is maintained on a part-time basis by patients.
@ixabil.bsky.social
LongCovid. My child also has long covid. 💔 we both have the PEM, POTS and cognitive issues-sub (ME..) Love animals, science, nature, history. Once an active girl; swimming and hiking. Have 2 lady-cats.
@me-cfs.bsky.social
Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak. I care. My ME/CFS News Aggregator: @me-cfs.mastodon.social.ap.brid.gy Ⓐ💚, (FR/DE/EN, but posts in english) Clinging onto the ledge above the abyss.
@verhac.bsky.social
ME/CFS, Long Covid & PAIS | science & physiotherapy | #SaubereLuft #CleanAir | 📍Vienna
@stillviv.bsky.social
Biomedical engineer, mathematician, equestrian, thru-hiker and generally outdoorsy - now 99% bedbound with #severeME. I like posts on science, literature, world history and art.
@strangerandstranger.net
Author of "stranger and stranger”, letter writer, advocate and fundraiser for biomedical ME/CFS research.
@stephenmia.bsky.social
Former Skier, Cyclist, Climber, Hill Walker, Diagnostic Radiographer and functioning human. Now - ME, POTS, LC, Vax Injury - Pro Vax - Still finding the joy
@swastrosarah.bsky.social
Speaking up for everyone affected by severe/very severe #ME. Medical science has everything to learn about human biology from the post infection disease ME. #MEKills backstory https://x.com/swastrosarah?lang=en-GB
@nikosuvisto.bsky.social
Life on hold by severe #MECFS, currently 99% bedbound 🛌 Documenting my life like it is now, advocacy through photography 📷 📍Finland https://www.aquietstorm.me
@einfachkaffee.de
Mensch. Wie Du. Normalverteilung bedingt Randerscheinungen #covidkills #millionsmissing #NeurodiverseSquad #EuropaNazifrei #notjustsad he/him Queer @einfachkaffee on twitter
@rorpreston.bsky.social
Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions 💙 #MECFS #LongCovid #IACC #PAIS 📍 https://crunchme.org/
@putrinolab.bsky.social
@sunsopeningband.bsky.social
Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
@mileswgriffis.bsky.social
Co-founder/editor @TheSickTimes.bsky.social Columnist @HighCountryNews.org miles@thesicktimes.org #LongCOVID
@douggreigyyc.bsky.social
Caring for loved one with complex infection-associated chronic illness incl. #MEcfs. Decades-late biomedical research funding means no end in sight. #Calgary #YYC, #Alberta, 🇨🇦. #Treaty7. #CanadaSky
@ahandvanish.bsky.social
Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
@chrisklomp.nl
Journalist. Eigen baas. Werkt met donaties op www.chrisklomp.nl en realtwitcourt (op X). Voormalig AD , ANP en regionale kranten. Wappie-fluisteraar en complotbestrijder.
@openmedf.bsky.social
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
@stenhelmfrid.bsky.social
Ph.D. in physics, also interested in mathematics, science theory, and history. Follows research on ME/CFS. Stockholm, Sweden
@simonmcg.bsky.social
Sometimes try to explain and comment on ME researchh, or even contribute to it. And I advocate for more and better research.