Anneke Vliegen - Author
Author of Recognise Me, memoir about medical gaslighting. Advocating for more dignified approach to chronic, barely visible, fluctuating and/or rare conditions. Speaker and blogger. BHSc OT. Postgrad Cert Health Research.
@jengovey.bsky.social
I dress up in fancy dress for the charity Invest in ME Research to raise funds & awareness of Myalgic Encephalomyelitis. In a previous life I worked in film. I’m an advocate for good science, treatments & better healthcare for #pwME.
@swastrosarah.bsky.social
Speaking up for everyone affected by severe/very severe #ME. Medical science has everything to learn about human biology from the post infection disease ME. #MEKills backstory https://x.com/swastrosarah?lang=en-GB
@whitneydafoe.bsky.social
Severe ME/CFS patient and advocate. Writer, photographer, filmmaker. artist, activist, creative. Bedridden since 2013 sick since 2004. Never. Giving. Up. ✊
@cabruce.bsky.social
Previously a psychotherapist. Bedridden #ME 32years Daughter severe ME, eldest son MS. I like art, nature, books, people, music, poetry and podcasts!
@dysautonomia.bsky.social
We are the leading non-profit advocating for over 70M people around the world living with autonomic nervous system disorders. Research, Clinician Education, Patient Empowerment, Public Awareness & Advocacy is what we do. DysautonomiaInternational.org
@janetdafoe.bsky.social
ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
@meadvocacyproject.bsky.social
The ME Advocacy Project is a grassroots initiative founded by individuals living with post-infectious illnesses Myalgic Encephalomyelitis and/or Long COVID. Unceded Canada
@exceedhergrasp1.bsky.social
Scientific Director, #MEAction Stanford Med Université de Montréal TIME100 Health 2024 #ME, #EDS, #POTS, #LongCOVID Views my own exceedhergrasp1 on Twitter
@longcovidadvoc.com
A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time... 💙📚Home to the #pedanticzebra book club. https://www.longcovidadvoc.com/ 🛍️ https://longcovidadvoc.shop/
@danwyke.bsky.social
M.E. inactivist, person-centred counsellor, recovering poet (Rack & Waterloo Press)
@grachstephanie.bsky.social
Physician specializing in ME/CFS, Long COVID, & associated complex disease | Assistant Professor of Medicine | She/Her/Hers | https://t.co/TkYm2MXvir
@physiosforme.bsky.social
A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME Find out more at physiosforme.com
@bendyhedsandco.bsky.social
For Awareness & Support of #Hypermobility #hEDS/HSD #POTS #ME/CFS #MESpine #Stenosis #MCAS & co. #PANS/PANDAS & #LongCovid ally #NEISVoid #MedEd for EDS/HSD & co 🔗 conditions go to: 👉 https://gptoolkit.ehlers-danlos.org/ 👈
@seeunexttuesdee.bsky.social
she/her | life on pause due to severe ME (since 2019) ♿️ | anti-fascist ✊| anti-plague 🦠 cat mom 🐈🐈⬛ artist 🎨
@quaker.org.uk
Faith community grounded in stillness. We believe in working together to create a more just, equal and peaceful world. Quakers in Britain, Friends House, NW1 2BJ. www.quaker.org.uk
@lillieroth.bsky.social
Lawyer-disability rights at Neuroförbundet in Stockholm, Sweden. Active member of the Swedish civil defence Lottakåren. I have the same diagnosis as the journalist who was mocked by he who shall not be named Married to @pierrelillroth.bsky.social No DMs
@survivingcfs.bsky.social
escaped homelessness brought on by #mecfs. I’m just here to share thoughts and feelings.
@freezemysnowball1.bsky.social
What’s is Snowball??…Think TripAdvisor for the disabled community. Apple https://apps.apple.com/gb/app/snowball-community/id1624679548 Android https://play.google.com/store/search?q=snowball+community&c=apps&hl=en&gl=US
@deweyeyed.bsky.social
she/her, autistic chaos bean, public library staff likes: fiber arts, snacks, stories, language hates: intentional unkindness
@anntinkerbel.bsky.social
Bouwjaar 1964 - woon sinds 15 jaar in het oosten van Vlaams-Brabant, samen met hubby - voorheen Hoeilaart, bij Brussel - geïnteresseerd in mensen, natuur, kunst & andere mooie dingen. - gezondheid sputtert al een tijdje
@remissionme.bsky.social
ME/CFS since 2019, painter, yoga and health enthusiast. The healthiest sick person I know and on a quest for turning this around!
@mflares.bsky.social
PhD in physics, former scientist, educator, and athlete, now housebound due to ME/CFS and POTS from SarsCov2, she/her
@dualiejulie.bsky.social
(She/her) In LongCOVID/M.E. hell looking for a way out! First wave Longhauler. Former engineering student. Trying to get my personality back from the disease. Very cute dog.
@joyk8.bsky.social
Medically retired palliative care RN, #pwME since 2001. #MECFS #POTS #MCAS #EDS Enthusiastic gardener, baker, and candlestick maker.
@irishmecfsassoc.bsky.social
Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association NB: Posts should not be considered advice Registered Charity Number 20100254 CHY 22039 #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
@mecfssd.bsky.social
ME/CFS San Diego, a 501c3 public charity, is working locally to raise awareness of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), to help educate healthcare workers and researchers, to increase access and support for ME/CFS patients.
@therealmecfs.bsky.social
Chronically ill & disabled person with lots of personal opinions, who sometimes likes a hat. Occasionally an advocate for PwME, gamer and proudly on the Autism spectrum. I’ve low tolerance for ignorance and assholery so if you come for a fight, expect one.
@longcovidsupport.bsky.social
UK Charity Keeping people with #LongCovid at the centre • Support • Research • Advocacy • Education • #ResearchLongCovid #TreatLongCovid #CureLongCovid www.longcovid.org https://linktr.ee/longcovidsupport 📧[email protected]
@meactnet.bsky.social
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet #pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
@lindaoh.bsky.social
Interested in history, disability, politics, chronic illness. Loves animals, dry white wine, chocolate and my bed. Irish. Actually Autistic, ADHD, ME sufferer. Cat and dog person. @shurlookit in the bad place
@kellybarnhill.bsky.social
I used to be an author. But that was in another life. Books, brain injuries, adorable animals, rhubarb recipes, nature facts, human rights, and how we can make this world safe and kind and good. You are precious to me, and I love you. kellybarnhill.com
@zaranosaur.bsky.social
Some kind of philosopher | mama of babies | disabled, chronically ill and neurod-d-d-d | permanently tired (with extra jazzhands) | founder and director of disabled-majority transcription and closed captioning biz @aat-transcribes.bsky.social | goof
@annalandre.com
Part woman, part machine / Disability justice + more / #DisabilityPower100, Vogue #21Under21 💋🦾 Fmr Washington DC Commissioner, now in London📍 annalandre.com
@rarediseasesint.bsky.social
RDI is the global alliance for persons living with a rare disease, across all countries and all rare conditions.
@ehlersdanlos.bsky.social
The global nonprofit organization dedicated to change and progress in the world of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) ehlers-danlos.com
@ehlersdanlosdaily.bsky.social
Hi, I'm Lauren. I'm a US-based artist (LaurenRubinArt.com; thank you for your support!) and a zebra (EDS, POTS, epilepsy, MCAS...should I go on?). This account is specifically for those who want to keep abreast of news and information of interest to EDS.
@mecvsvereniging.bsky.social
Patiëntenvereniging die zich inzet voor mensen met ME/cvs en hun omgeving. Op naar meer erkenning, kennis, steun en zorg voor ME/cvs patiënten. www.me-cvsvereniging.nl
@author-rdlangr.bsky.social
Neurodiversity advocate (AuDHD/Late diagnosed), humorist, satirist, poet, blogger, non-fiction and multi-genre writer. Leftist and all that implies. Proudly Minnesotan. Former TTRPG designer.
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 36 years, severe ME 30 years. @IrishMECFSAssoc trustee 28 years 26 publications in peer-reviewed journals Social media: https://me-pedia.org/wiki/Tom_Kindlon
@millionsmissingpod.bsky.social
Share your story / Amplifying the chronically ill / #MyalgicEncephalomyelitis #LongCovid et al / #MillionsMissing / Contact: [email protected] / linktr.ee/millionsmissingpodcast
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: [email protected]