Jen DressForME
I dress up in fancy dress for the charity Invest in ME Research to raise funds & awareness of Myalgic Encephalomyelitis. In a previous life I worked in film. I’m an advocate for good science, treatments & better healthcare for #pwME.
@mehroe.bsky.social
Caregiver & Organizer. Here for updates: COVID, Long COVID, MCAS, ME/CFS, POTS, and other disabilities. If I follow > unfollow > follow, it’s to see follow recommendations.
@benithologie214.bsky.social
Cartoon Maker/Comics|Photographe Amateur|One of The first Haitian 🇭🇹on This app .Follow me for historical& amazing pictures •Des photos et vidéos historiques fascinantes du monde entier.
@graygay.bsky.social
Once called the “Etsy Ryan Reynolds.” Texas lawyer with three kids and a husband I love very much. I'm here to share a laugh or two with others, not at them.
@benigma2017.bsky.social
Anger is an energy He/him Green Party Distance runner. I run one marathon a month. I was the 139,519th account on Bluesky.
@monitorlizard.bsky.social
Reptile. Socialist. Green Party voter. Marathon Runner How strange it is to be anything at all.
@evonnetcurran.bsky.social
Spent a career in IPC. Now just wanting IPC guidance to acknowledge the evident mode of transmission for SARS-CoV-2 and other respiratory pathogens - airborne. Without good guidance there is no person safety. Doctor of Nursing.
@chronicoleyme.bsky.social
Covid conscious #KeepMasksInHealthcare PhD in biomedical physics, settler in so-called BC. Disabled, chronically ill: endometriosis, #pwME, severe MCS, possible HSD/EDS. She/her, mixed race, acespec 🏳️🌈, avid knitter, former dancer. Free 🇵🇸
@baziaz.bsky.social
LifeStolenByME 23yrs, ME, POTS, MCAS. Masking to avoid being a eugenics stat. Here to learn & advocate to find a cure. I want to run, walk, work, build community, have a 2 way conversation. Live!
@bmhughes.bsky.social
Concerned citizen • Prof Psych • Writer • Galway • he/him A blog: https://thesciencebit.net/ A bio: https://brianmhughes.com/ A book: https://bloomsburycp3.codemantra.com/viewer/63721f10ee35880001aafadc 📷 https://www.photoblogism.net
@therealmecfs.bsky.social
Chronically ill & disabled person with lots of personal opinions, who sometimes likes a hat. Occasionally an advocate for PwME, gamer and proudly on the Autism spectrum. I’ve low tolerance for ignorance and assholery so if you come for a fight, expect one.
@smilingclare.bsky.social
ME since 2005, POTS, hEDS & some other complex stuff. Open University Graduate Often found with my Yorkie X, knitting, laughing, blogging or reading
@sallywrites.bsky.social
MG author: Toby and the Silver Blood Witches, Max and Monty with Collins Primary Winner of the Book Bloggers' Novel of the Year Award 2022 Owned by three-legged rescue dog ME/CFS https://linktr.ee/SallyDoherty
@safety.bsky.app
Sharing updates about trust and safety on Bluesky. This account’s mentions are not actively monitored. To report a post or account, use the in-app reporting feature. Community Guidelines: https://bsky.social/about/support/community-guidelines
@stephenfry.bsky.social
Grazer and nibbler at the outer edges of new social media platforms
@jannamoen.bsky.social
Postdoctoral scientist studying the neurobiology of #longCOVID in the Iwasaki lab @ Yale. Patient, scientist, advocate. | ♿🏳️🌈 | she/her My long COVID research newsletter: lcbreakdown.substack.com
@ravihvj.bsky.social
Post-Covid ME/CFS since March 2021. Before then, a life I loved. Stanford History | 2021 Schwarzman Scholar
@shelmish.bsky.social
#PWME since 2020. Currently severe - FUNCAP score 1.3 Queer, any pronouns 🏳️🌈🏳️⚧️ Mainly here for pics of dahlias, dogs with underbites and macro bugs 😍 MA in Forensic Linguistics🧑🎓 Love my garden and my elderly pupper
@sannara.bsky.social
#MECFS #MILLIONSMISSING #MEAwareness #PEM #POTS #MCAS #PostCovid #LongCovid #TeamWissenschaft #GdB https://www.mecfs.de/was-ist-me-cfs/
@macanders.bsky.social
Author of several novels | ME #pwme | https://henryandersonbooks.com
@mayalongcovid.bsky.social
RWJF ClinicalScholars Alum, School Nurse, Scientific Diver/ocean lover bedridden by severe #LongCovid 3/2020 & #MECFS, #POTS, #MCAS #hEDS #Chiari. #healthequity
@abrokenbattery.bsky.social
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos. https://linktr.ee/abrokenbattery
@guusontheinternet.bsky.social
Creative turned activist #NietHersteld - Long Covid since jan’21 ♿️ - posts with brain fog, so pls bear with me - eager to learn - posts in 🇬🇧 & 🇳🇱
@cyruxime.bsky.social
Energetically compromised (bedridden) by severe #MECFS. All systems operating at minimum capacity & overloaded. In a previous life: comp sci x math, powerlifting. #LongCovid ally.
@transchronic.bsky.social
Trans, disabled & neurodivergent. TV, media and British telly ratings obsessive. Moved here from that other place, obvs!
@purplespeedwell.bsky.social
Mostly bedridden with #MyalgicEncephalomyelitis, a devastating illness with little funding and no treatment. Toronto, Canada Ally of #pwLC #pwME #LongCovid #POTS #MCAS #MEcfs
@franceyme.bsky.social
https://amandafrancey.com/ illustrator, amateur photographer and bird telepath. Advocating for myalgic encephalomyelitis #MECFS #LongCovid #ClimateAction
@joannesmith.bsky.social
ME since 1991.Owned by Shih Tzu called Teddy 🐾 Interested in ME advocacy & research.Dogs inc.welfare eg #LucysLaw .Wildlife. Books. Bit of Politics. #pwME Twitter Handle @_joannesmith
@faithie.bsky.social
SevereME/vax injured. Can't read, write, watch, walk or talk much. Just me, my bed & my swollen brain. Trying to stay sane. Roy Kent is my spirit animal.
@whywhy.bsky.social
Doctor in psychology, proud participant of #RemissionBiome first cohort, #EDSh #MCAS #ME/CFS. The pandemic is not over. #CleanAir #MaskUp
@shellchat.bsky.social
Reformed journo/editor, now working in health comms. Fighter of injustice in all its forms. Advocate for better research & support for ppl w uninvited friends POTS, ME/CFS, MCAS, LC, EDS, SjD, AnkSp plus other misunderstood AI conditions.
@oceandreaming50.bsky.social
Former surfer and scuba diver. Lover of the ocean and environment. 24yrs ME, POTS, TN #pwME #millionsmissing #MEScience Location: Australia
@talmandaniel.bsky.social
Curious & exhausted peace seeker, co-host of Post-Exertional Mayonnaise podcast, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
@stephenmia.bsky.social
Former Skier, Cyclist, Climber, Hill Walker, Diagnostic Radiographer and functioning human. Now - ME, POTS, LC, Vax Injury - Pro Vax - Still finding the joy
@danwyke.bsky.social
M.E. inactivist, person-centred counsellor, recovering poet (Rack & Waterloo Press)
@kristinwrites.bsky.social
Poet, Wife, Mom, LongCovid/MECFS Sufferer. Looking to connect and learning to advocate. Cofounder of #CripCoop. EIC, Poetry @epistemiclit.Bsky.social, @whirligiglit.bsky.social. Micropoetry chapbook Lift the Mask available widely. www.kristinhoulihan.com
@jenniferhuff.bsky.social
She/her. Historian/archivist in Indigenous justice history. POTs/MCAS/ME/hEDS since 2019. Former cyclist. Photography. Richmond, Virginia.
@melindaiscomplex.bsky.social
My body has given up but I haven't... ME/CFS Patient Leader & Complex-Chronic Disease Advocate (on hiatus). Co-founder #MEAction Maryland. Bed-tethered disabled by severe ME & LC & comorbids. Orioles/Ravens/Caps fan. She/her
@trishgreenhalgh.bsky.social
Prof of Primary Care Health Sciences, Oxford. Researching digital health/ inequities, covid prevention (masks/ air quality). Wild swimmer. Mum to Rob (marine bio) & Al (doc). She/her. https://scholar.google.com.au/citations?user=QDCqsJwAAAAJ&hl=en&oi=ao
@yeslek.bsky.social
On hiatus due to Myalgic Encephalomyelitis Profile: smiling human, eyes closed and partially covered by hand, in black and white filter
@thisismetweety.bsky.social
Apparently I don’t like viruses. #MEcfs as a child; post viral syndrome as an adult; now #LongCovid; #fibro; #hypermobility; #hEDS #pwME. Kiddo with #LC. #ND. #HealthPolicy research. (Yes I know it’s Skeeting & hashtags don’t work the same. Give me time.)
@meactnet.bsky.social
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet #pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
@exceedhergrasp1.bsky.social
Scientific Director, #MEAction Stanford Med Université de Montréal TIME100 Health 2024 #ME, #EDS, #POTS, #LongCOVID Views my own exceedhergrasp1 on Twitter
@longcovidkids.bsky.social
UK-based international charity supporting & advocating for children & young people with #LongCovid & related conditions. #LongCovidKids #LongCovid #PaediatricLongCovid #LongCovidAwareness