MillionsMissingFinland
ME/CFS G93.3 hoito & diagnosointi:
2021 Duodecim
https://rb.gy/m9spr
2021 NICE
https://rb.gy/h7eok
2021 Mayo Clinic Proceedings
https://rb.gy/fd54d
@aqem.bsky.social
L’AQEM vise l'avancement de la connaissance et la reconnaissance de l' #EMSFC et au mieux-être des #paEM | #Canada #Quebec | www.aqem.ca | IG/X @aqem_sfc #EncephalomyeliteMyalgique #MyalgicEncephalomyelitis #MECFS #pwME #CovidLongue #CovidLong #LongCovid
@twestphalia.bsky.social
Academic background: Comparative Literature (European 19th c) Bluesky focus: LC/ME, Russian invasion into Ukraine, Arts/Culture
@therealmecfs.bsky.social
Chronically ill & disabled person with lots of personal opinions, who sometimes likes a hat. Occasionally an advocate for PwME, gamer and proudly on the Autism spectrum. I’ve low tolerance for ignorance and assholery so if you come for a fight, expect one.
@terhivirtanen.bsky.social
🌞🌈🌏❤️🩹🇪🇺🇫🇮😻 "Olen täällä keskellä vieraiden, tarkoituksella, sattumalta kohdattujen"
@matthewjdalby.bsky.social
@meactmaryland.bsky.social
#MEActionMaryland Maryland chapter of the #MEAction Network: advocacy, education & support for people with Myalgic Encephalomyelitis #MECFS & complex chronic illnesses in MD/DMV https://youtube.com/@meactmaryland https://linktr.ee/meactmd
@ahandvanish.bsky.social
Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
@mfairma.bsky.social
ME. Spouse w LC, ME. Writer, bread baker, daydreamer. Still waiting on fair funding and apology from HHS. Masking like someone’s life depends on it.
@michelleb4.bsky.social
A mixture of stuff #MECFS #LongCovid #frailty #mtb #cycling #feelthefearanddoitanyway co-founder @PhysiosForME Views are all my own
@mmissingaus.bsky.social
There are #MillionsMissing from their lives due to ME (Myalgic Encephalomyelitis or #MECFS). We're fighting to make their voices heard. Sadly, many ppl with #LongCovid meet #ME diagnostic criteria - adding many more to the ME ranks.
@millionsmissingpod.bsky.social
Share your story / Amplifying the chronically ill / #MyalgicEncephalomyelitis #LongCovid et al / #MillionsMissing / Contact: millionsmissingpodcast@gmail.com / linktr.ee/millionsmissingpodcast
@dialoguesmecfs.bsky.social
https://www.dialogues-mecfs.co.uk Website with videos created by Natalie Boulton & Josh Biggs with a Wellcome Public Engagement Fund Award. Professionals and patients explain key aspects of #ME/CFS and a longer film explores the wider context and history.
@claguenjc36.bsky.social
Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise incl CV/fatigue/mental health/ME/Longcovid/EDI/all views my own she/her
@physiosforme.bsky.social
A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME Find out more at physiosforme.com
@janetdafoe.bsky.social
ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
@anilvanderzee.bsky.social
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS #art2cureME #pwme #millionsmissing
@neuroweaveratl.bsky.social
GSU • UNG Chronic Disease Researcher ME Action • Board Member #Neuroscience #ChronicIllness *views my own*
@pinam.bsky.social
GRADUATE PRODUCT DESIGNER, INTERIOR DESIGN Against FASCISM, any kind of RACISM and STIGMATIZATION of illness, especially MECFS Live with: Primary immunodeficiency (PID) Cancer ME(CFS) with humor, love for design, architecture, art...
@bshuell.bsky.social
Husband to a wonderful wife, father to 2 amazing kids, advocate, former software developer with myalgic encephalomyelitis, Living a limited life, missing from many places. Aspiring to be well again. Dog Dad. Occasionally bipedal. Twitter/X refugee. #mecfs
@stardust949.bsky.social
Aspiring to write for stage & screen. Dyslexic ball of chaos. She/ her. #pwME #MECFS #POTS #BLM #TransRightsAreHumanRights. Twitter account: @StarDust949
@mmissingholland.bsky.social
Actiegroep #MillionsMissing Holland wil betere zorg & sociale gelijkheid voor ME-patienten.
@cabruce.bsky.social
Previously a psychotherapist. Bedridden #ME 32years Daughter severe ME, eldest son MS. I like art, nature, books, people, music, poetry and podcasts!
@britborg.bsky.social
Dutch. Severe ME. Previously journalist. #Fraudevinkje #code98 @brit_borg on Twitter/X #JournalismIsNotACrime
@millionsmissingswe.bsky.social
#MillionsMissing is a global campaign for ME health equality! https://meaction.net #MillionsMissingSweden #MEAction #MECFS #pwME #svmed #MEAwarenessHour
@emmiskyten.bsky.social
Sustainability science studies on hold because of POTS + Long covid / suspected ME. Previously interesting, now mostly into resting. Here to connect with other sick people and for science stuff.
@waldmeer.bsky.social
ME/CFS | Medizin | Wissenschaft Website: https://bit.ly/waldmeer Auch unter: @waldpol.bsky.social
@bmhughes.bsky.social
Concerned citizen • Prof Psych • Writer • Galway • he/him A blog: https://thesciencebit.net/ A bio: https://brianmhughes.com/ A book: https://bloomsburycp3.codemantra.com/viewer/63721f10ee35880001aafadc 📷 https://www.photoblogism.net
@ruthsg.bsky.social
#FBLC #LongCovid #LongCovidKids #MECFS ally. #MillionsMissing #MaskUp #Ireland
@adamleed.bsky.social
Here for ME/CFS information. Fatigue and brain fog limit my interactions quite a bit. Love animals, the outdoors and happy stories, work in art department for photo and video production. Ceasefire in Gaza, open fire on CEOs. What Would John Brown Do?
@sannara.bsky.social
#MECFS #MILLIONSMISSING #MEAwareness #PEM #POTS #MCAS #PostCovid #LongCovid #TeamWissenschaft #GdB https://www.mecfs.de/was-ist-me-cfs/
@despicablemebsky.bsky.social
Fur mamma to Sammy & Twinx #pwME #PoTS Supports Invest In ME Research
@mildtin.bsky.social
Usually a lurker, Chronically Online for #LongCovid and other #IACC | Australia
@mariannehout.bsky.social
Dutch. Bedbound with severe ME. Trying to find my way back to life.
@danwyke.bsky.social
M.E. inactivist, person-centred counsellor, recovering poet (Rack & Waterloo Press)
@longcovidsupport.bsky.social
UK Charity Keeping people with #LongCovid at the centre • Support • Research • Advocacy • Education • #ResearchLongCovid #TreatLongCovid #CureLongCovid www.longcovid.org https://linktr.ee/longcovidsupport 📧info@longcovid.org
@ekalmanen.bsky.social
Valtion viraalinen ebidemiologi. N:nnen aallon tukahduttaja. Viruslogian asiantuntia. Kausivaihtelun mukaan parodiaa, satiiria ja sarkasmia tai suoraa asiaa.
@edyong209.bsky.social
Writer, journalist. Science, health. Pandemics, animals. Birder, photographer. Many words, some awards. AN IMMENSE WORLD, I CONTAIN MULTITUDES. Married to Liz Neeley, parent to Typo. he/him 📷 Canon R6mkii + RF 800mm Edyong.me
@simonmcg.bsky.social
Sometimes try to explain and comment on ME researchh, or even contribute to it. And I advocate for more and better research.
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 36 years, severe ME 30 years. @IrishMECFSAssoc trustee 28 years 26 publications in peer-reviewed journals Social media: https://me-pedia.org/wiki/Tom_Kindlon
@exceedhergrasp1.bsky.social
Scientific Director, #MEAction Stanford Med Université de Montréal TIME100 Health 2024 #ME, #EDS, #POTS, #LongCOVID Views my own exceedhergrasp1 on Twitter
@julierehmeyer.bsky.social
Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. I mostly write about complex chronic illness and math. Bylines in NYT, WashPost, Discover, Wired, Slate, Stat News, Science News, lots more. She/her.