E.S.PKU
E.S.PKU - European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria in the umbrella organization of about 41 national and regional associations from 31 countries established by parents and/or patients.
@hammerschmidt.io
@pdmckellar.bsky.social
@malhen.bsky.social
Board member of European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria, social services specialist, patient advocate. ♥️: 📖🚗✈️🎶📺
@duncann-n.bsky.social
Specialist Nurse, tenor, travel loving, new experience, answer seeking type of guy. Lifelong PKU experience and on treatment #PKU #RareDisease Own views shared
@pkuday.org
International PKU Day was established and is led by the E.S.PKU to celebrate the legacy of Horst Bickel and Robert Guthrie as well as to raise awareness of Phenylketonuria.
@emmavardy2.bsky.social
Physician. Honorary Professor of Geriatric Medicine, University of Manchester. Delirium. Dementia. Quality improvement. Book lover. Mum to daughter with PKU.
@drjulieabayomi.bsky.social
A registered Dietitian working in academia. Associate Head of Medicine and Nutrition at Edge Hill University. Passionate about maternal nutrition. Founder member of the BDA Maternal and Fertility Nutrition specialist group.
@ncaresearchnhs.bsky.social
Research & Innovation is an integrated service at Northern Care Alliance NHS Foundation Trust, including hospital and community services at Salford Royal, The Royal Oldham Hospital, Fairfield General Hospital and Rochdale Infirmary
@kevinalexander-pku.bsky.social
🧬 Adult with Phenylketonuria (PKU) 🎥 Storyteller 📔Writer 🎸 Musician
@phenylcetonurie.bsky.social
@jimd-editors.bsky.social
The Journal of Inherited Metabolic Disease (JIMD) is the official journal of the Society for the Study of Inborn Errors of Metabolism (SSIEM). Social Media maintained by James Nurse
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: support@bsky.app