Kevin Alexander
🧬 Adult with Phenylketonuria (PKU)
🎥 Storyteller
📔Writer
🎸 Musician
@pkuday.org
International PKU Day was established and is led by the E.S.PKU to celebrate the legacy of Horst Bickel and Robert Guthrie as well as to raise awareness of Phenylketonuria.
@lillianisabella.com
@sjbecker.bsky.social
CEO @aphl.org, public health prof, husband, girldad, Wheaten owner, proud UMD graduate, Jersey Shore native, he/him. Views are my own!
@dementiacommunity.bsky.social
Dementia Community is a Charitable Community Benefit Society, a membership cooperative that provides learning and networking opportunities for the dementia care community. For more information please visit our website: journalofdementiacare.co.uk
@hammerschmidt.io
@triciaklapheke.com
-Media relations consultant and writer -Native Iowan living in Pittsburgh -PKU mom triciaklapheke.com
@jjunebrown.bsky.social
Author, public health advocate, genetics PhD. Creatively driven, scientifically inspired. Mom of 2 with the rare inherited health condition #PKU. https://jjbrownauthor.com/ is my author site and "When the Baby Is Not OK: Hopes & Genes" my newest book.
@jimd-editors.bsky.social
The Journal of Inherited Metabolic Disease (JIMD) is the official journal of the Society for the Study of Inborn Errors of Metabolism (SSIEM). Social Media maintained by James Nurse
@duncann-n.bsky.social
Specialist Nurse, tenor, travel loving, new experience, answer seeking type of guy. Lifelong PKU experience and on treatment #PKU #RareDisease Own views shared
@clairbear42.bsky.social
PKU ADHD Mother to my bb g & lil black cat, xbox player, crotchet hooker, ginger and expert on ice cream.
@pdmckellar.bsky.social
@markmaguireb.bsky.social
Works #museum #education. Here for the #art, #comics, #SciFi, #news | Photos mine or otherwise credited. Followers with bio, activity, etc. more likely to become mutuals | ☘️ #SpeirGorm / #SpéirGhorm | 🐘 @MarkMaguire@mastodon.ie | 🧵 @markbmaguire
@malhen.bsky.social
Board member of European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria, social services specialist, patient advocate. ♥️: 📖🚗✈️🎶📺
@sheehangilroy.bsky.social
Lecturer Researcher Advocate #PKU #LowProtein #BrainHealth #RareDisease "Ní neart go cur le chéile" The views and opinions expressed here are solely my own
@sharonbuckley.bsky.social
Brexit pushed Uk migrant navigating life in Spain. Mum to two phenomenal kids living with the genetic metabolic condition PKU. https://www.researchgate.net/profile/Sharon-Buckley-2
@nowthenthee.bsky.social
Dadding, nursing, PKUing. House servant to the child and @emmavardy2.bsky.social
@squirrelt.bsky.social
Professional interest in nutrition in rare disease. Very amateur interest in music and sport !
@caoimhin.mastodon.online.ap.brid.gy
[bridged from https://mastodon.online/@caoimhin on the fediverse by https://fed.brid.gy/ ]
@espku.org
E.S.PKU - European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria in the umbrella organization of about 41 national and regional associations from 31 countries established by parents and/or patients.
@anothermf.bsky.social
@aphl.org
APHL works to build effective laboratory systems in the US and globally. The association represents state and local governmental health labs that monitor and detect public health threats.
@emorygenetics.bsky.social
We are geneticists and genetic counselors at Emory University School of Medicine. Interested in #neuroscience, epigenetics, metabolic disorders, brain organoids, computational/quantitative genetics. This account will share research and events.
@emmavardy2.bsky.social
Physician. Honorary Professor of Geriatric Medicine, University of Manchester. Delirium. Dementia. Quality improvement. Book lover. Mum to daughter with PKU.
@phenylcetonurie.ca
🤔 Je parle de saine santé globale et de vie active avec la phénylcétonurie. 🫐 8g de protéines par jour. 🤔 I talk about healthy overall health and active living with phenylketonuria. 🫐 8g of protein per day.
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: support@bsky.app