Duncan Noble-Nesbitt
Specialist Nurse, tenor, travel loving, new experience, answer seeking type of guy. Lifelong PKU experience and on treatment #PKU #RareDisease Own views shared
@lillianisabella.com
@hammerschmidt.io
@jjunebrown.bsky.social
Author, public health advocate, genetics PhD. Creatively driven, scientifically inspired. Mom of 2 with the rare inherited health condition #PKU. https://jjbrownauthor.com/ is my author site and "When the Baby Is Not OK: Hopes & Genes" my newest book.
@sharonbuckley.bsky.social
Brexit pushed Uk migrant navigating life in Spain. Mum to two phenomenal kids living with the genetic metabolic condition PKU. https://www.researchgate.net/profile/Sharon-Buckley-2
@nowthenthee.bsky.social
Dadding, nursing, PKUing. House servant to the child and @emmavardy2.bsky.social
@kevinalexander-pku.bsky.social
🧬 Adult with Phenylketonuria (PKU) 🎥 Storyteller 📔Writer 🎸 Musician
@malhen.bsky.social
Board member of European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria, social services specialist, patient advocate. ♥️: 📖🚗✈️🎶📺
@espku.org
E.S.PKU - European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria in the umbrella organization of about 41 national and regional associations from 31 countries established by parents and/or patients.
@emmavardy2.bsky.social
Physician. Honorary Professor of Geriatric Medicine, University of Manchester. Delirium. Dementia. Quality improvement. Book lover. Mum to daughter with PKU.
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: support@bsky.app