Małgorzata Henek
Board member of European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria, social services specialist, patient advocate. ♥️: 📖🚗✈️🎶📺
@lillianisabella.com
@patientlibrary.bsky.social
Open access evidence base for patient experience, lived experience, patient/public involvement. www.patientlibrary.net
@stankiewicz.bsky.social
Codzienna dawka stoicyzmu dla Ciebie i Twojej firmy • www.piotrstankiewicz.pl
@jjunebrown.bsky.social
Author, public health advocate, genetics PhD. Creatively driven, scientifically inspired. Mom of 2 with the rare inherited health condition #PKU. https://jjbrownauthor.com/ is my author site and "When the Baby Is Not OK: Hopes & Genes" my newest book.
@duncann-n.bsky.social
Specialist Nurse, tenor, travel loving, new experience, answer seeking type of guy. Lifelong PKU experience and on treatment #PKU #RareDisease Own views shared
@kevinalexander-pku.bsky.social
🧬 Adult with Phenylketonuria (PKU) 🎥 Storyteller 📔Writer 🎸 Musician
@phenylcetonurie.bsky.social
@pkuday.org
International PKU Day was established and is led by the E.S.PKU to celebrate the legacy of Horst Bickel and Robert Guthrie as well as to raise awareness of Phenylketonuria.
@espku.org
E.S.PKU - European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria in the umbrella organization of about 41 national and regional associations from 31 countries established by parents and/or patients.
@hammerschmidt.io
@jarekgarnek.bsky.social
Działacz społeczny. Członek Stowarzyszenia Polska 2050 #Hołownia2025
@jaredkostrzewa.bsky.social
🚀 Co-owner Before Festival Sun Festival 💪 Manager: Natalia Sisik Ola Szkolda Julia Kostera 🤝 Wrzucam tutaj ciekawostki I fakty ze świata 😇 Na naszych festiwalach zagrali m in Oki, Quebonafide, Kuban, Bedoes #SocialMedia | #Events #Music
@krzysztofnor.bsky.social
"Budząc się rano pomyśl, jaki to wspaniały skarb żyć, oddychać i móc się radować" Łodziak w Norwegii, zakochany w RTS, książkach i dobrych filmach. Cenię ludzi, którzy zarażają optymizmem. Anty PiS,Konfederacja,Trump i Musk. 100 procentowy lewak 😜
@mincewicz.bsky.social
Dr nauk społ., politolog i socjolog. Polak i Europejczyk. #polityka #nauka #sport #kryptowaluty #blockchain #OSINT #informacje #bezpieczenstwo
@pablomoralespl.bsky.social
Motto PiS: jeszcze nigdy tak niewielu nie wydoiło tak wielu w tak krótkim czasie
@squirrelt.bsky.social
Professional interest in nutrition in rare disease. Very amateur interest in music and sport !
@brianrifkin.bsky.social
General and Interventional Nephrologist #MedSky #NephSky, pragmatist, lover of memes/GIFs/bad dad jokes, artist, singer, NephJC editor, NephSIM mentor, GlomCon grad. Air Force veteran and type 1 diabetic (insulin pimp).
@jimd-editors.bsky.social
The Journal of Inherited Metabolic Disease (JIMD) is the official journal of the Society for the Study of Inborn Errors of Metabolism (SSIEM). Social Media maintained by James Nurse
@nowthenthee.bsky.social
Dadding, nursing, PKUing. House servant to the child and @emmavardy2.bsky.social
@sharonbuckley.bsky.social
Brexit pushed Uk migrant navigating life in Spain. Mum to two phenomenal kids living with the genetic metabolic condition PKU. https://www.researchgate.net/profile/Sharon-Buckley-2
@phenylcetonurie.ca
🤔 Je parle de saine santé globale et de vie active avec la phénylcétonurie. 🫐 8g de protéines par jour. 🤔 I talk about healthy overall health and active living with phenylketonuria. 🫐 8g of protein per day.
@markmaguireb.bsky.social
Works #museum #education. Here for the #art, #comics, #SciFi, #news | Photos mine or otherwise credited. Followers with bio, activity, etc. more likely to become mutuals | ☘️ #SpeirGorm / #SpéirGhorm | 🐘 @MarkMaguire@mastodon.ie | 🧵 @markbmaguire
@pdmckellar.bsky.social
@clairbear42.bsky.social
PKU ADHD Mother to my bb g & lil black cat, xbox player, crotchet hooker, ginger and expert on ice cream.
@emmavardy2.bsky.social
Physician. Honorary Professor of Geriatric Medicine, University of Manchester. Delirium. Dementia. Quality improvement. Book lover. Mum to daughter with PKU.
@eksperimentgaj.bsky.social
nb she/her | 30 | Poland | mostly motorsports (F1, WRC) and winter sports (ski jumping, noco) | currently obsessed with KCD
@sheehangilroy.bsky.social
Lecturer Researcher Advocate #PKU #LowProtein #BrainHealth #RareDisease "Ní neart go cur le chéile" The views and opinions expressed here are solely my own
@ianfindlaytv.bsky.social
Sports Commentator for Eurosport and others | Ski Jumping | Snowboarding |Ski Cross | Snowboard Cross | Park & Pipe | Cycling | BMX | Basketball | Skateboarding + anything on water with an engine | www.ianfindlaytv.com
@bartstaszewski.pl
Polish LGBTI+ activist. @ObamaFoundation Leader 2020. @TIME 100 Next list. CEO of @bastafundacja. Przedsiębiorca, społecznik | czarny humor, satyra i ironia 😎
@marekuss.bsky.social
Mam swoje zdanie i konsekwencje ponoszę za nie. Polska 2050 - Biała Podlaska. Kierownik Bialskiej Onkologii. Informatyk, manager, ojciec. #PL2050 @PL_2050
@alikeasia.bsky.social
Always late… D🌹M 🦋#NoToWar ✌️☮️🕊️ 🤍♥️🇪🇺🏳️🌈 Humanity is the best religion 🦮🐈🐴🐏🐮🐥🐐🐷 #StopAnimalCruelty 💃🕺 Live & Let Live Pet peeve: square teabags ⛔️DM⛔️ Zjadam PL litery🧚♀️🪄💞🫶
@kobywatelska.bsky.social
Oficjalne konto Klubu Parlamentarnego Koalicji Obywatelskiej - Platformy Obywatelskiej, Nowoczesnej, Inicjatywy Polskiej, Zielonych.
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: support@bsky.app