Bazia Zebrowski
LifeStolenByME 23yrs, ME, POTS, MCAS.
Masking to avoid being a eugenics stat.
Here to learn & advocate to find a cure.
I want to run, walk, work, build community, have a 2 way conversation. Live!
@kunstjonas.bsky.social
Professor of Communication and Psychology at BI Norwegian Business School and the University of Oslo Past Yale, Harvard, UiB. Editor-in-Chief at Advances.in Father. Views are my own.
@danwyke.bsky.social
M.E. inactivist, person-centred counsellor, recovering poet (Rack & Waterloo Press)
@davetuller1.bsky.social
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
@mileswgriffis.bsky.social
Co-founder/editor @TheSickTimes.bsky.social Columnist @HighCountryNews.org miles@thesicktimes.org #LongCOVID
@physiosforme.bsky.social
A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME Find out more at physiosforme.com
@sarahschafermd.bsky.social
Medical educator, MD-patient. I debunk Sjögrens myths. www.sjogrensadvocate.com - I show people with Sjogren's how to use credible resources to advocate for timely diagnosis and comprehensive care for this complex, multisystem disease.
@despicablemebsky.bsky.social
Fur mamma to Sammy & Twinx #pwME #PoTS Supports Invest In ME Research
@ontwarontwaar.bsky.social
ME-warrior, homo universalis, mind the body, train the brain with words, train the soul with feelings.
@bendyhedsandco.bsky.social
For Awareness & Support of #Hypermobility #hEDS/HSD #POTS #ME/CFS #MESpine #Stenosis #MCAS & co. #PANS/PANDAS & #LongCovid ally #MedEd for EDS/HSD & co 🔗 conditions go to:- 👉 https://gptoolkit.ehlers-danlos.org/ 👈 #NEISVoid
@jefferysmithme.bsky.social
Lover of old films, books, Doris Day and Rosemarys Baby and other who-haa. Cranky empath. Dealing with servere ME. and cancer. Politically sensible, sensitive and left.
@therealmecfs.bsky.social
Chronically ill & disabled person with lots of personal opinions, who sometimes likes a hat. Occasionally an advocate for PwME, gamer and proudly on the Autism spectrum. I’ve low tolerance for ignorance and assholery so if you come for a fight, expect one.
@meadvocacyproject.bsky.social
The ME Advocacy Project is a grassroots initiative founded by individuals living with post-infectious illnesses Myalgic Encephalomyelitis and/or Long COVID. Unceded Canada
@jendupuis.bsky.social
Disabled librarian turned writer • 📚 • Mom to rescue dog Clara & cat lover • #pwme #migraine #amquerying GenX upmarket/women’s fiction jendupuis.com | Detroit, MI | she/her
@sarahlizzylou.bsky.social
She/her, Physio student on hold since Oct 2021 LongCovid/ME 🇬🇧 Learning to live with Cognitive Dysfunction 🧠 #FBLC #pwME My Twitter handle was @SarahLizzyLou
@voidfemme.bsky.social
Autistic Space Babe. She/her ace leftist. Live long, smoke weed, be gay, do crimes, treat yourself, keep circulating the tapes, and most importantly…prosper.
@astrokatie.com
Cosmologist, pilot, author, connoisseur of cosmic catastrophes. TEDFellow, CIFAR Azrieli Global Scholar. Domain verified through my personal astrokatie.com website. She/her. Dr. Personal account; not speaking for employer or anyone else.
@jengovey.bsky.social
I dress up in fancy dress for the charity Invest in ME Research to raise funds & awareness of Myalgic Encephalomyelitis. In a previous life I worked in film. I’m an advocate for good science, treatments & better healthcare for #pwME.
@ravihvj.bsky.social
Post-Covid ME/CFS since March 2021. Before then, a life I loved. Stanford History | 2021 Schwarzman Scholar
@mlouiegoodog.bsky.social
Embracing kindfulness. Writer, director, filmmaker, performing artist, poet, performance coach, love all the arts; consultant/advocate for the marginalized, disabled, unhoused, suffering, & anyone who wants to help them. Worker/union rights 4All. MFA
@rebellionista.bsky.social
Single mum. Expert napper. Pet wrangler. Severe ME/CFS. My son & I are AuDHD. Former gifted child. Reformed TV producer. Live for horror movies. Life is a roller coaster.
@bynalways.bsky.social
BynsWeirdBrain: ADHD, Menopause, Maximalist, RV Life, Pets, Family. LongCovid - ME since '20
@allyann.bsky.social
Living with & advocating for ME, POTS & FM, ex-IT. Homebound & at times bedridden. News and Recipe junkie. Living in Millowl, home of the Bunurong people, Victoria, Australia
@owasow.bsky.social
Asst Prof, UC Berkeley, Political Science. Study protests, stats & race: 1/ Agenda Seeding http://j.mp/agenda-seeding 2/ Race as a Bundle of Sticks http://j.mp/bundle-of
@drdanielloy.bsky.social
Ehemann, Jurist. #MECFS. Team #SIGNforMECFS. Team #GOfundMECFS. One of the #MillionsMissing.
@lisas25.bsky.social
human rts advocate, animal rescue/ rehabilitation, environmentalist, attorney #SFN #ME #Disability 💙🌊
@hopefullizzy.bsky.social
30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice✨ Bristol, UK
@auscandoc.bsky.social
Rural FP anesthetist formerly of Fort St John, BC, Canada. Trained in Aus and UK. Now doing rural locums in Canada. Blessed to live, work and play on the traditional, ancestral and unceded territory of the Tk’emlúps te Secwe̓pemc people.
@joho.bsky.social
I love vaccines, animals, and my wife, who set up this profile. https://sciencebasedmedicine.org/we-want-them-infected/
@aetiology.bsky.social
Collector of social media sites. Definitely not a memelord. Sometimes scienceing (infectious disease epi and shit. Occasionally literally). Writes about vaccine hesitancy, science misinfo, zombies. Probably somewhere on a trail. Views own etc.
@matthorsnell.bsky.social
Project Sleep’s Inaugural Sleep Advocacy Champion, Narcolepsy Renaissance Man, Pharma Consultant, Advocate-Author, Social Support Guru, Actigraphy, Go Heels!
@rkaanstad.bsky.social
Writer, Illustrator, Historian, Miniaturist, Shakespeare Nerd, HOCL aficionado. WEAR A MASK. Covid is airborne. She/they Defensive Hygiene for the Home is now available for FREE! https://defensive-hygiene-for-the-home.tiiny.site/
@jannamoen.bsky.social
Postdoctoral scientist studying the neurobiology of #longCOVID in the Iwasaki lab @ Yale. Patient, scientist, advocate. | ♿🏳️🌈 | she/her My long COVID research newsletter: lcbreakdown.substack.com
@lohmatt.bsky.social
Schreibt vor allem über #MECFS, etwas Politik und übers Leben | loves ART and SPORTS
@meactnet.bsky.social
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet #pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
@cgatist.bsky.social
Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
@emec.bsky.social
Advocacy organization for ME/CFS patients and their carers in Europe
@irishmecfsassoc.bsky.social
Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association NB: Posts should not be considered advice Registered Charity Number 20100254 CHY 22039 #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
@emmiskyten.bsky.social
Sustainability science studies on hold because of POTS + Long covid / suspected ME. Previously interesting, now mostly into resting. Here to connect with other sick people and for science stuff.
@richellesepulveda.bsky.social
Long Covid, MECFS, ADHD, etc. Patient-led research is my jam. A bit obsessed with GIP.
@laurieallee.bsky.social
✌ 😷 Mom, writer, photographer, & (since 2020) compiler of Covid studies, articles & discussions. I update my Covid compilations here: https://www.laurieallee.com/general-5 Lurking here, but not active on any social media. Find me: laurieallee.com
@filowenstein.bsky.social
writer + journalist covering health justice, wellness culture, LGBTQ+ stuff + more... https://www.fionalowenstein.com/ The Long COVID Survival Guide: https://theexperimentpublishing.com/catalogs/fall-2022/long-covid-survival-guide/ they/them
@mildtin.bsky.social
Usually a lurker, Chronically Online for #LongCovid and other #IACC | Australia
@sabinehermisson.bsky.social
PD Dr. (religion, empirical education research) mother of Mila who suffers from very severe ME/CFS (Bell 0) https://milaandmecfs.files.wordpress.com/2022/05/mila-spiegel.pdf Vienna, Austria #CleanAir
@z3r0gravitas.bsky.social
Extropian sci/tech geek. Improving moderate #MEcfs, #non24-hour sleep. #ADHD-PI, #AuDHD, #dyslexic. "ZeroGravitas" in PC gaming. He/him. 42. Please correct me. https://linktr.ee/ZeroGravitas
@maosbot.bsky.social
Parent, spouse, Australian, cyclist, Professor of Machine Learning in Oxford. Bayesian ML, Long Covid, photos of dog, AI must be good for humans, https://www.robots.ox.ac.uk/~mosb
@exceedhergrasp1.bsky.social
Scientific Director, #MEAction Stanford Med Université de Montréal TIME100 Health 2024 #ME, #EDS, #POTS, #LongCOVID Views my own exceedhergrasp1 on Twitter