Long Covid Support
UK Charity
Keeping people with #LongCovid at the centre
• Support • Research • Advocacy • Education •
#ResearchLongCovid #TreatLongCovid #CureLongCovid
www.longcovid.org
https://linktr.ee/longcovidsupport
📧[email protected]
@binitakane.bsky.social
Long COVID/ME interested lung doctor | Campaigner for race equality, clean air & patient voice | Independent SAGE | Co-Founder South Asian Heritage Month YouTube: @LCCWYCD Enquiries: [email protected] Linktree: https://linktr.ee/binitakane
@greensagainstcovid.bsky.social
#GreenParty #covid and #longcovid campaign working group. https://linktr.ee/greensagainstcovid
@healthydebate.bsky.social
Healthy Debate publishes journalism about health care in Canada. Free to read. Free to republish. http://linktr.ee/healthydebate
@cathnoakes.bsky.social
Pro Dean Research and Innovation in Engineering and Physical Sciences at Leeds University. Indoor air, ventilation, infection risks, fluid dynamics, academia, EDI in science and a few cats. Views my own. #academicsky
@martinmckee.bsky.social
Prof of European Public Health LSHTM Co-Director European Observatory on Health Systems & Policy Member Independent SAGE Past President BMA & EUPHA Committed to 🇬🇧 rejoining 🇪🇺 https://www.lshtm.ac.uk/aboutus/people/mckee.martin
@drjoepajak.bsky.social
PhD⚛️physical chemistry: colloid & interface science 💨 air entrainment. Public governor, NHS Foundation Trust Hospital. Previously director of education, UK children's charity. https://mstdn.science/@JoePajak https://petition.parliament.uk/petitions/701396
@julesahouston.bsky.social
Body malfunctioning since 1998 #MECFS #PoTS #MCAS #hypermobility & other delights. I'm a #LongCovid #LongCovidKids and #Pans #Pandas ally. Here to make connections old & new. #CovidIsNotOver #CleanAirForAll #MasksInHealthcare #GreatestMEdicalScandal
@cgatist.bsky.social
Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
@drericding.bsky.social
Public health warnings & health policy. Epidemiologist & health economist. Chair and Faculty at NECSI. Former 16 years at Harvard. DC & Virginia. Bio & contact: necsi.edu/eric-feigl-ding A story: bit.ly/raisealarm 📝: drericding.substack.com/subscribe
@claguenjc36.bsky.social
Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise incl CV/fatigue/mental health/ME/Longcovid/EDI/all views my own she/her
@travelhealthdoc.medsky.social
travel medicine│immunology│long covid│emerging infections ☣️│viruses│vaccines│🇮🇪🇪🇺🇩🇪 📷 flic.kr/p/49HUpn ⚕ posts ≠ medical advice
@davetuller1.bsky.social
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. [email protected]
@cortjohnson.bsky.social
Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
@filowenstein.bsky.social
writer + journalist covering health justice, wellness culture, LGBTQ+ stuff + more... https://www.fionalowenstein.com/ The Long COVID Survival Guide: https://theexperimentpublishing.com/catalogs/fall-2022/long-covid-survival-guide/ they/them
@remissionbiome.bsky.social
Community Science Project http://RemissionBiome.org
@dysautonomia.bsky.social
We are the leading non-profit advocating for over 70M people around the world living with autonomic nervous system disorders. Research, Clinician Education, Patient Empowerment, Public Awareness & Advocacy is what we do. DysautonomiaInternational.org
@talmandaniel.bsky.social
Curious & exhausted peace seeker, co-host of Post-Exertional Mayonnaise podcast, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
@julialmv.bsky.social
Long COVID patient-researcher @ Scripps Research & Patient-Led Research Collaborative
@weselymd.bsky.social
Husband & Dad. ICU Doc. Vanderbilt. @CIBScenter studies Covid & Long Covid, ICU Survivorship, Dementia, Delirium, PICS. Fighting misinformation. Posts my own. Still learning.
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 36 years, severe ME 30 years. @IrishMECFSAssoc trustee 28 years 26 publications in peer-reviewed journals Social media: https://me-pedia.org/wiki/Tom_Kindlon
@helenh49.bsky.social
Passionate about patient safety, social justice and democracy. And cats. And trains Check out Patient Safety Learning’s free learning platform for patient safety - resources, networks and more www.pslhub.org
@patientsafetylearning.org
Patient Safety Learning is a charity and independent voice for improving patient safety. 🔗Our website: https://www.patientsafetylearning.org/ 🔗the hub, our platform to share learning for patient safety: https://www.pslhub.org/
@luckytran.com
Public Health, Climate Justice, and Science Communication. Bylines in the Guardian, Washington Post, and more. WHO Fides member. Grist 50 Fixer. Opinions my own and do not reflect those of my employer. http://linktr.ee/luckytran
@shaunlintern.bsky.social
Health Editor at The Sunday Times. Health Journalist of the Year 2023. Helped expose #MidStaffs. Public interest journalism matters #E17 #patientsafety 📰 https://www.thetimes.co.uk/profile/shaun-lintern 📝 DMs open 📨 [email protected]
@chronicillness.bsky.social
Chronic Illnesses + Autoimmune Disorders R no laughing matter but my humorous posts will make U feel better for while. https://chronicillnesstees.etsy.com https://mybodyistryingtokillme.com/ https://www.redbubble.com/people/ChronicillnessT #chronicillness
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: [email protected]
@maosbot.bsky.social
Parent, spouse, Australian, Professor of Machine Learning in Oxford. Bayesian ML, Long Covid, trans rights, photos of dog, AI must be good for humans, https://www.robots.ox.ac.uk/~mosb
@drinfosec.bsky.social
University prof. on cyber risk & systemic risk | He/him | Posts/RTs lots on #Covid #LongCovid. Covid is significant systemic risk. #COVIDisAirborne #MaskUp #IAQ #AirQ
@dupuisj.bsky.social
Librarian at York University in Toronto. Check out my Covid-Is-Not-Over Substack: https://johndupuis.substack.com/
@covidawarewebsite.bsky.social
I’m sorry if the virus outlasted your capacity for empathy. And if it didn’t, thank you. Covid is not over.
@bellwhitworth.bsky.social
#TeamCanada🇨🇦 Beagle Hooman 🐾 Widow 😢💔 Atheist, humanist, coffee enthusiast ☕️ POGG 🇨🇦 Slava Ukraini 🇺🇦 Anti 🇺🇸/🇷🇺 RSW (Ret) Ally 🏳️🌈🏳️⚧️ Social justice, science 🧪 nature 🌳 health 😷 weather junkie 🌡️ birds 🦢 dogs! 🐶
@meactnet.bsky.social
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet #pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
@dalupton.bsky.social
Prof, Arts, Design & Architecture, UNSW Sydney, Australia. Clean air/COVID safety advocate/activist/researcher. Other health and digital media research too. Personal blog: https://simplysociology.wordpress.com/
@charleswaltz.bsky.social
PR Comrade: #FansMASKUP e/nhw 🏴 David Tennant Fan ❤️ ❤️
@heartofthearts.bsky.social
Maintained by Slightly Overqualified Stagehand @justjennagain.bsky.social 🎭 Advocating for COVID safety on-set and onstage 😷 🚨There is a LONG COVID CRISIS in performing arts🚨 https://docs.google.com/document/d/1-PVLP_aQpcp-I2eXvcMOsALLRBD-sFxqdWJOhm
@jceoltasmith.bsky.social
Background #RetiredOccupationalTherapist due to #LongCovid background in vocational rehabilitation & PhD research includes #DWP policy, provision & front line practice. Not fully active here yet.
@danwyke.bsky.social
M.E. inactivist, person-centred counsellor, recovering poet (Rack & Waterloo Press)
@sabinehermisson.bsky.social
PD Dr. (religion, empirical education research) mother of Mila who suffers from very severe ME/CFS (Bell 0) https://milaandmecfs.files.wordpress.com/2022/05/mila-spiegel.pdf Vienna, Austria #CleanAir
@betsyladyzhets.bsky.social
editor/co-founder @thesicktimes.bsky.social | journalist covering Long COVID & related crises | she/her/🏳️🌈 email: [email protected] | signal: betsyladyzhets.25 | https://thesicktimes.org/
@thesicktimes.bsky.social
A nonprofit news site chronicling the #LongCOVID crisis. Founded by journalists @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social Website: thesicktimes.org Newsletter: thesicktimes.org/newsletter Donate: the-sick-times.fundjournalism.org
@mileswgriffis.bsky.social
Co-founder/editor @TheSickTimes.bsky.social Columnist @HighCountryNews.org [email protected] #LongCOVID
@cvcev.bsky.social
𝗖𝗼𝗿𝗲 𝗣𝗮𝗿𝘁𝗶𝗰𝗶𝗽𝗮𝗻𝘁 in the 𝗨𝗞 𝗖𝗼𝘃𝗶𝗱-𝟭𝟵 𝗜𝗻𝗾𝘂𝗶𝗿𝘆 #FBCV (follow back CV) and JOIN us on FB 📸cv_cev ❌️@cv_cev www.clinicallyvulnerable.org
@ahandvanish.bsky.social
Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
@lisamccorkell.bsky.social
formerly a patient-led research collaborative co-lead, always a co-founder | MPP | she/her | natures 10 in 2022
@openmedf.bsky.social
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
@putrinolab.bsky.social